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Kennedy Krieger Institute hosts 9th Annual Room to Grow: Journey to Cultural and Linguistic Competency Conference (MD UCEDD/LEND)

Kennedy Krieger Institute hosted the 9th Annual Room to Grow: Journey to Cultural and Linguistic Competency Conference on September 17th 2019. Harolyn Belcher, MD, MHS, Director for the Center for Diversity in Public Health Leadership at Kennedy Krieger Institute welcomed over 180 attendees and addressed this year's theme of ensuring inclusion and provided updates on what we have learned since the publication of the National Academies of Sciences' important report entitled, "Neurons to Neighborhoods".



New Publication on Transportation Patterns for Working-age Americans with Disabilities (NH UCEDD)

A recently published paper by Megan Henly and Debra Brucker at the Institute on Disability at the University of New Hampshire analyzed data on travel patterns to consider ways in which people with disabilities differ from people without disabilities in their daily transportation.



Tuesdays with Liz: Autism and Employment with Walmart's JP McCory

JP McCory is a Senior Program Analyst on the Retail Technology team at Walmart. He was diagnosed with autism as an adult. In this interview he shares his thoughts on feeling valued in the workplace and speaking publicly about his experience with autism.



CDC-AUCD Leadership Opportunity: Act Early Ambassadors-State or Territorial Liaisons to CDC's "Learn the Signs. Act Early." Program

The Centers for Disease Control and Prevention's (CDC) National Center on Birth Defects and Developmental Disabilities and the Association of University Centers on Disabilities (AUCD) with support from the Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB), announce a funding opportunity for Act Early Ambassadors to work with CDC's "Learn the Signs. Act Early." (LTSAE) program to improve early identification of developmental delays and disabilities, including autism. Applicants from the following states are eligible to apply for two available Ambassadorships: Illinois, Maryland, Michigan, West Virginia.



Minnesota LEND Fellows Partner with Community Organization to Promote Mindfulness

Families of children with autism spectrum disorder (ASD) often report chronic and high levels of stress. A group of MNLEND Fellows are partnering with a local nonprofit organization, Communities Engaging Autism (CEA), to support families as they face the challenges of raising children with ASD and other neurodevelopmental disabilities (NDD).



Pre-Registration for AUCD 2019 is Closed

You are Welcome to Register In Person

Whether you're a newcomer to the field or a seasoned professional, the AUCD Conference provides countless opportunities to share with and learn from colleagues and peers. Online pre-registration has closed, but that does not mean your chance to attend this exciting event has passed. Make plans to join us for part or all of the AUCD Conference and register in person.



The Maryland Center for Developmental Disabilities Hires Another Staff Attorney (MD UCEDD)

On October 1, 2019, the Maryland Center for Developmental Disabilities (MCDD), hired staff attorney Tracy Waller, Esq., MPH as part of the receipt of a three-year grant from the Administration for Community Living (ACL).

Screenshot of the first page of journal article titled


RTC:Rural Researchers Publish Paper on Rural/Urban Differences in Social Connectedness and Perceived Isolation for People with Disabilities (MT UCEDD)

Dr. Meredith Repke, RTC:Rural Research Associate, and Dr. Catherine Ipsen, RTC:Rural Director, recently published a paper in the Disability and Health Journal titled "Differences in social connectedness and perceived isolation among rural and urban adults with disabilities."



Tuesdays with Liz: Disability Employment with Walmart's Aaron Combs

Aaron Combs is a Resolution Specialist for Walmart's Central Operations team. Aaron has a disability, but says his disability does not define him. He shares what his experience of being a young professional has been like with Walmart, and offers advice to other young professionals with disabilities.



Welcome Newly Elected Board Members

On behalf of AUCD Nominating Committee Chair, Bruce Keisling, and Board President, Amy Hewitt, AUCD is pleased to announce the newly elected members of the AUCD Board. These new members will begin their three-year term at the AUCD 2019 Conference.



KU Center on Developmental Disabilities: Celebrating 50 Years of Excellence (KS UCEDD)

Kansas University Center of Developmental Disabilities (KUCDD) celebrated their 50th Anniversary as a federally funded disability research, training and service center at their annual meeting on September 6th. This year's theme was building collaboration among the University of Kansas Life Span Institute centers who also focus on IDD/ASD research, they include Kansas Center for Autism Research and Training (KCART) and Juniper Gardens.

James Booth, Vanderbilt Peabody College, principal investigator


$3.2M Grant to Fund Study of Reading Skills in Children who are Deaf or Hard of Hearing at Vanderbilt (TN IDDRC/UCEDD/LEND)

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Investigator James R. Booth, Ph.D., has been awarded a $3.2 million grant by the National Institutes of Health to better understand how children who are deaf or hard of hearing (DHH) excel at reading.

(L-R) Maura Rouse, PsyD, HSPP and Brett Enneking, PsyD, HSPP


Indiana LEND Faculty Receive Grant to Increase Access

Previous LEND trainees and current Indiana LEND faculty, Maura Rouse, PsyD, HSPP and Brett Enneking, PsyD, HSPP, were recently awarded grant funding for their project to bring the telehealth model of care into the Indiana University/Riley Hospital for Children LEND clinic. Their project builds on previous care coordination research demonstrating that families need continued education and support related to diagnosis (e.g. autism spectrum disorder, intellectual disability) and treatment following their child's initial evaluation. As Riley Hospital for Children at Indiana University is one of the premier care centers for children with neurodevelopmental disabilities in the state of Indiana, approximately 68% of the families travel more than an hour to receive this high quality care for their child.



Kicking off the 2019-2020 NH-ME LEND Year!

Welcome to the 2019-2020 cohort of 22 trainees, 16 from New Hampshire and 6 from Maine who began the LEND year on August 30. Consistent with the program's goal of recruiting trainees from diverse backgrounds, we welcome self-advocates, family members, graduate students, and professionals representing a wide variety of professional fields including early intervention, education, family medicine, nursing, communication sciences and disorders, occupational therapy, journalism, humanities, human services, mental health, social work, public policy, and political science.



LEND Trainee Receives Young Scientist Award

The professional advisory board of Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) has selected Samuel J. Eckrich, MS for a 2019 Young Scientist Research Awards. Sam is a doctoral candidate in the clinical psychology program at University of Central Florida.

Screenshot of the first page of the ACA and Medicaid Expansion Associated with Increased Insurance Coverage for Rural Americans with Disabilities fact sheet.


RTC:Rural Fact Sheet Explores Insurance Coverage Rates Before and After ACA and Medicaid Expansion (MT UCEDD)

The passage of the Patient Protection and Affordable Care Act (ACA) and adoption of Medicaid expansion was associated with substantial increases in insurance coverage across the United States (see Changes in coverage and access, MACPAC 2019). However, RTC:Rural researchers wanted to know how ACA policy changes and Medicaid expansion impacted people with disabilities, particularly those who live in rural areas. To explore this question, RTC:Rural researchers analyzed microdata from the 2008-2013 American Community Survey from IPUMS-USA. Using these data, they were able to compare how insurance coverage has changed over time for people with and without disabilities in rural and urban places, and in expansion and non-expansion states.

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