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6/24/2019

The Boggs Center (NJ UCEDD/LEND) Celebrates the Graduation of the 2018-2019 NJLEND Fellows at the 3rd Annual Maternal and Child Health Leadership Symposium

On May 10th, 2019, The Boggs Center celebrated the graduation of the 2018-2019 NJLEND Fellows at the New Jersey Leadership Education in Neurodevelopmental Disabilities (NJLEND) program's 3rd annual Maternal and Child Health Leadership Symposium. Held in New Brunswick at Children's Specialized Hospital, the event featured a keynote address, Life Course Research and Community Engagement to Improve Autism Outcomes, from Paul T. Shattuck, PhD, Associate Professor at Drexel University's A.J. Drexel Autism Institute, and was attended by those from the Rutgers community, New Jersey's Department of Children and Families, SPAN Parent Advocacy Network, and other state and community organizations. During the NJLEND Leadership Projects Poster Session, attendees had the opportunity to learn from each Fellow about the leadership project they conducted over the course of the academic year.

 
 
2019 LEND Fellows

6/6/2019

2019 ICI MA LEND Graduation

On May 10th the achievements of the 2019 LEND Fellow were celebrated at their graduation. During the event, 2019 highlights were shared including family visits, Title V program visits, work in community based organizations (CBOs), clinical and research reflections, and the Disability Policy Seminar in DC.

 
 

6/6/2019

Exciting Work Showcased at the LEND Poster Session

The full cohort of Leadership in Education for Neurodevelopmental Disabilities (LEND) trainees filled the atrium of the Van Nuys Medical Science Building's on April 26th for the LEND poster and networking session.

 
 

6/6/2019

MNLEND Fellow Speaks at Hollywood Fundraiser with Conan O'Brien

MNLEND Fellow Olivia Maccoux spoke at a sold-out Hollywood fundraiser headlined by comedian Conan O'Brien (pictured together). "In Stitches: A Night of Laughs with Conan and Friends" was covered by the Hollywood Reporter and raised over $300,000 to support critical research and programs that improve the quality of life for people living with hydrocephalus, an incurable lifelong condition that affects over one million Americans, and which Maccoux acquired when she was born three months premature.

 
 

5/20/2019

Active Leadership in the Tucson Community (Arizona LEND)

What a bittersweet end to a fantastic traineeship for the University of Arizona LEND cohort! Over the past nine months, Arizona LEND has been involved in some great Leadership Projects designed to step outside of their comfort zones and serve people with disabilities and complex medical needs in Tucson. From neighborhood playgrounds to customized websites, the trainees in this cohort came together to make the most of their skill sets. Here are some of the highlights.

 
 

5/20/2019

Kansas LEND Receives Diversity & Inclusion Award

Kansas LEND was honored to accept the University of Kansas Medical Center Executive Vice Chancellor award for Diversity & Inclusion in April. LEND was nominated by Alice Zhang, LEND Postdoctoral Fellow and was supported by our community partner Families Together, Inc. The work to expand understanding, acceptance, inclusion and belonging on our KUMC campus and beyond continues. Pictured: Jessica Schuttler, Ph.D., LEND Training Director, Alice Zhang, LEND Postdoctoral Fellow and Dr. Robert Simari, KUMC Executive Vice Chancellor

 
 
LEND Audiology trainees and faculty discuss the role of audiologists in supporting families to accessing timely diagnostic services.

5/20/2019

LEND Audiology Trainees Learn Strategies for Early Diagnosis at EHDI 2019

The 18th annual Early Hearing Detection and Intervention (EHDI) Meeting welcomed nearly 1,000 diverse stakeholders on March 4-6 in Chicago, IL. The EHDI Meeting brings together those who work in state-based EHDI Programs, assist in EHDI efforts on the federal level, provide screening, diagnostic, and early intervention support at the state level to young children who are deaf and hard of hearing and their families, and deaf and family advocates. The Meeting is organized by the American Academy of Pediatrics, Hands and Voices, U.S. Department of Health and Human Services: Health Resources and Services Administration, and National Center for Hearing Assessment & Management at Utah State University.

 
 

4/22/2019

Linking Nutrition and Disability (MN LEND)

What does food have to do with disability? Kalia Thor wanted to know. She is a Fellow in ICI's Minnesota Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) Program, but she is also a second-year Master of Public Health nutrition student at the University of Minnesota, a Maternal and Child Health nutrition trainee, and a nutrition educator for the Women, Infants, and Children (WIC) program. "During undergrad [in nutritional science], I always wondered why nutrition choices were so limited for certain individuals with disabilities and why they tended to be so 'picky' at mealtime," she says.

 
 
An SC LEND trainee and practicing nurse presented on information related to providing specialized training for school nurses working with students with disabilities.

4/22/2019

SC LEND Trainees Attend the Nurturing Developing Minds Conference

The members of the South Carolina LEND program recently attended a state conference in March 2019 focusing on research and initiatives that are driven to create supportive environments to help children and their families flourish. The Nurturing Developing Minds conference provided several opportunities to the LEND trainees, including attending reviews of recent research and policies on developmental surveillance and screening (with a particular emphasis on the Help Me Grow nationwide initiative) and on the long-term risks of spanking and promising interventions (i.e., the No Hit Zone)

 
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