News / Document Search Results
5/15/2018
MNLEND Fellow Leads Creation of Sensory Tents in the Minneapolis Parks
Summer is coming and city parks will soon be filled with crowds, noisy events, excited children, food, and family pets. For most people, this is a celebration of warm weather and a chance to reconnect with family and friends in the great outdoors. But Elise Niedermeier (far right in photograph), a Fellow in ICI's Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) program, and the ADA Coordinator for the Minneapolis Park and Recreation Board (MPRB), knows that for some people -- such as children with autism -- all this stimulation can become sensory overload.
5/10/2018
AUCD Seeks Two Emerging Leaders Interns
Applications Due June 22, 2018
AUCD is seeking two current trainees to work as AUCD Emerging Leaders Interns (formerly Virtual Trainees) to work together to passionately represent the trainee network. Ideal candidates will be big-picture thinkers who value building and enhancing a community among trainees and emerging leaders (e.g. early career professionals and trainee alumni) in meaningful and sustainable ways across all AUCD member sites (i.e., LENDs, UCEDDs, and IDDRCs). The AUCD Emerging Leaders Interns will act as connection points between the national network and each Program/Center by ensuring trainees receive relevant information and opportunities related to leadership, research, grants fellowships, emerging issues, and more.
5/4/2018
A Founding Member of the AUCD Family Discipline Network Leaving Va-LEND
Just as a bridge in music links two sections of a composition, so it is with Elaine Ogburn, who has been the bridge connecting Va-LEND trainees with mentoring families for 19 years. This type of synergy is worth noting and will not be easy to duplicate when she leaves Va-LEND on June 30th. Elaine is the Family Mentorship Experience (FME) Coordinator and a Family Discipline faculty member of Va-LEND, part of the Partnership for People with Disabilities at Virginia Commonwealth University.
5/3/2018
Bitter for Better: former UCCEDD LEND trainee running for State Senate in Ohio
Sara Bitter is a mother, lawyer and leader in advocacy. She and her husband, Kai, are the parents of two children living with a developmental disability. Sara has devoted her entire career to helping improve the lives of people living with disabilities and their families, including her current role as the UCCEDD. She knows that parents of children with special healthcare needs, families who have loved ones living with mental health conditions and communities torn apart by the opioid crisis, do not have lobbyists. Sara would like to bring these voices to the Ohio legislature by creating a Disability, Mental Health and Addiction Caucus.
5/2/2018
Iowa LEND Educates Legislators on the Hill
The Iowa Leadership Education in Neurodevelopmental and Related Disabilities (LEND) trainees traveled from Iowa City, Iowa to attended the 2018 Disability Policy Seminar (DPS) in Washington, D.C from April 23rd-25th, 2018. Earlier in the year, the trainees spoke with Iowa's State legislators (Representative Ashley Hinson, Representative Bobby Kaufmann, Senator Liz Mathis, and Senator Joe Bolkcom) in Des Moines, Iowa to discuss the importance of LEND and state-level disability issues. The trip to the U.S. Capitol served as the culmination of the Iowa LEND experience, allowing trainees to use the tools they had learned in the past year to advocate and educate on disability rights at the federal level.
5/2/2018
LEND Audiology Trainees at EHDI 2018
The 17th annual Early Hearing Detection and Intervention (EHDI) Meeting took place in Denver, CO. The Meeting welcomed around 1,000 diverse stakeholders nationwide to enhance the implementation of comprehensive state-based EHDI programs and expand opportunities for young children who are deaf and hard of hearing. The EHDI Meeting was organized by American Academy of Pediatrics, U.S. Department of Health and Human Services: HRSA, Hands and Voices, and National Center for Hearing Assessment and Management at Utah State University.
4/26/2018
CDC Releases New Key Findings on Autism Spectrum Disorder
For more than two decades, the Centers for Disease Control and Prevention (CDC) has been tracking the prevalence and characteristics of children with autism spectrum disorder, or ASD, through a multi-state tracking system focused on school-aged children. Data from the CDC's Autism and Developmental Disabilities Monitoring (ADDM)* Network help us understand more about the number of children with ASD, the characteristics of those children, and the age at which they are first evaluated and diagnosed.
4/23/2018
Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial
Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.
4/16/2018
AUCD2018: You're Invited
Colleagues, I am excited to invite you to join me in Washington, DC, on November 11-14 for the 2018 AUCD Conference - We ALL Belong Here! Achieving Inclusive Communities. This year's theme has a strong message of belonging and inclusion. I cannot think of a time in my life when it was more important to remember, celebrate, and remind others that all human beings have value, and a right to be included in their communities. This means opportunity, access, and equity in education, housing, employment, healthcare, faith communities, transportation, activities, and all aspects of community living. I am very much ...
4/16/2018
Preparing Tomorrow's Leaders: How the Nisonger LEND Program at The Ohio State University Provides Training in Technology Supports
Understanding technology is a critical leadership skill in neurodevelopmental disabilities. Leaders in our field interface with technology in almost all aspects of our work: Electronic Medical Records, telehealth, wearable devises, assistive and environmental technologies. One challenge our LEND program faces is how to provide information and skills about technology to a diverse group of LEND Trainees. To start to address the "technology" issue we have implemented a two-pronged strategy to provide introductory didactic and advanced interdisciplinary clinical experiences to LEND trainees.
4/6/2018
Reflection of My Visit to a New LEND Program (WA LEND)
By Courtney Davis, MS RD CD LEND Nutrition Fellow University of Washington
My visit to JFK Partner's LEND program at the University of Colorado began 3 months prior with a simple question, "what do other LEND programs look like?" I was cognizant of the 51 other programs operating around the country, but had little knowledge of their clinical focuses and expertise. I had lived in Colorado while attending college and was curious how their state's program compared to my own. I approached my nutrition faculty member about a potential visit who thought it was be a positive way to immerse myself further into the LEND program.
3/29/2018
CT LEND Students Present at the EHDI Meeting in Denver Colorado
In its 17th year the EHDI Meeting has built a strong reputation for bringing together a wide variety of attendees including those who: work in state Early Hearing Detection and Intervention programs; assist in EHDI efforts on the federal level; provide screening, diagnostic and early intervention support at the state/ local level to young children with hearing loss and their families; champion Medical Home activities within each state; are parents of children with hearing loss; or are deaf or hard-of-hearing adults who are helping to expand opportunities for young children with hearing loss.
3/29/2018
Iowa Lend Self-Advocate Trainee "Makes the Connection" at National Conferences
Iowa LEND's first self-advocate trainee, Ed Esbeck, recently returned from the Association of Maternal and Child Health Programs (AMCHP) national conference where he served as lead presenter on a session entitled "Developing an Inclusive and Accessible LEND Curriculum." It was Esbeck's second trip to Washington in the past three months, having attended the AUCD national conference in November.
3/26/2018
Colorado LEND/UCEDD Fellow Policy Day
Colorado's JFK Partners LEND and UCEDD fellows and faculty visited the state capitol on Feb 28, 2018. JFK Partners collaborated with The Arc of Colorado and Alliance Colorado to host IDD Awareness Day 2018 with nearly 400 participants from each of the three agencies and invited guests from state agencies and the legislature.
3/19/2018
Portland Maine LEND Holds Annual Family Picnic
"The family picnic is the first step of our family-led experiences for LEND Trainees. We welcomed 5 families during the picnic and solicited more in the process. Each LEND trainee will be matched with a family that fits their learning goals. Host families will teach the trainees about everyday life with children with neurodevelopmental disabilities. Trainees will play, eat, and enjoy family life with their host family and in the process they will learn deep lessons that they will carry through into their leadership. Trainees may also accompany children to appointments, school planning, activities, and family experiences," explains LEND Training Coordinator, Clinical Professor and occupational therapist Dr. Kathyrn Loukas.
3/12/2018
Vanderbilt Consortium LEND
The Vanderbilt Consortium LEND program has provided far reaching opportunities for trainees to gain expertise in family-centered care, to become familiar with community resources, and to develop an interprofessional problem solving mindset. In addition to providing rigorous leadership training and an intensive 24-week core series on topics ranging from life course to ethics, from specific diagnoses to medical home, from newborn screening to policy, the core curriculum and leadership seminars have reinforced the importance of interprofessional and family-centered care within the healthcare setting. These learning experiences have aided our understanding of our role as part of a healthcare team and have helped expand our knowledge of the roles of other professionals we work alongside.
