News / Document Search Results
4/16/2018
AUCD2018: You're Invited
Colleagues, I am excited to invite you to join me in Washington, DC, on November 11-14 for the 2018 AUCD Conference - We ALL Belong Here! Achieving Inclusive Communities. This year's theme has a strong message of belonging and inclusion. I cannot think of a time in my life when it was more important to remember, celebrate, and remind others that all human beings have value, and a right to be included in their communities. This means opportunity, access, and equity in education, housing, employment, healthcare, faith communities, transportation, activities, and all aspects of community living. I am very much ...
4/16/2018
Preparing Tomorrow's Leaders: How the Nisonger LEND Program at The Ohio State University Provides Training in Technology Supports
Understanding technology is a critical leadership skill in neurodevelopmental disabilities. Leaders in our field interface with technology in almost all aspects of our work: Electronic Medical Records, telehealth, wearable devises, assistive and environmental technologies. One challenge our LEND program faces is how to provide information and skills about technology to a diverse group of LEND Trainees. To start to address the "technology" issue we have implemented a two-pronged strategy to provide introductory didactic and advanced interdisciplinary clinical experiences to LEND trainees.
4/6/2018
Reflection of My Visit to a New LEND Program (WA LEND)
By Courtney Davis, MS RD CD LEND Nutrition Fellow University of Washington
My visit to JFK Partner's LEND program at the University of Colorado began 3 months prior with a simple question, "what do other LEND programs look like?" I was cognizant of the 51 other programs operating around the country, but had little knowledge of their clinical focuses and expertise. I had lived in Colorado while attending college and was curious how their state's program compared to my own. I approached my nutrition faculty member about a potential visit who thought it was be a positive way to immerse myself further into the LEND program.
3/29/2018
CT LEND Students Present at the EHDI Meeting in Denver Colorado
In its 17th year the EHDI Meeting has built a strong reputation for bringing together a wide variety of attendees including those who: work in state Early Hearing Detection and Intervention programs; assist in EHDI efforts on the federal level; provide screening, diagnostic and early intervention support at the state/ local level to young children with hearing loss and their families; champion Medical Home activities within each state; are parents of children with hearing loss; or are deaf or hard-of-hearing adults who are helping to expand opportunities for young children with hearing loss.
3/29/2018
Iowa Lend Self-Advocate Trainee "Makes the Connection" at National Conferences
Iowa LEND's first self-advocate trainee, Ed Esbeck, recently returned from the Association of Maternal and Child Health Programs (AMCHP) national conference where he served as lead presenter on a session entitled "Developing an Inclusive and Accessible LEND Curriculum." It was Esbeck's second trip to Washington in the past three months, having attended the AUCD national conference in November.
3/26/2018
Colorado LEND/UCEDD Fellow Policy Day
Colorado's JFK Partners LEND and UCEDD fellows and faculty visited the state capitol on Feb 28, 2018. JFK Partners collaborated with The Arc of Colorado and Alliance Colorado to host IDD Awareness Day 2018 with nearly 400 participants from each of the three agencies and invited guests from state agencies and the legislature.
3/19/2018
Portland Maine LEND Holds Annual Family Picnic
"The family picnic is the first step of our family-led experiences for LEND Trainees. We welcomed 5 families during the picnic and solicited more in the process. Each LEND trainee will be matched with a family that fits their learning goals. Host families will teach the trainees about everyday life with children with neurodevelopmental disabilities. Trainees will play, eat, and enjoy family life with their host family and in the process they will learn deep lessons that they will carry through into their leadership. Trainees may also accompany children to appointments, school planning, activities, and family experiences," explains LEND Training Coordinator, Clinical Professor and occupational therapist Dr. Kathyrn Loukas.
3/12/2018
Vanderbilt Consortium LEND
The Vanderbilt Consortium LEND program has provided far reaching opportunities for trainees to gain expertise in family-centered care, to become familiar with community resources, and to develop an interprofessional problem solving mindset. In addition to providing rigorous leadership training and an intensive 24-week core series on topics ranging from life course to ethics, from specific diagnoses to medical home, from newborn screening to policy, the core curriculum and leadership seminars have reinforced the importance of interprofessional and family-centered care within the healthcare setting. These learning experiences have aided our understanding of our role as part of a healthcare team and have helped expand our knowledge of the roles of other professionals we work alongside.
3/9/2018
Dental Health Care Challenges and Barriers for Persons with Neurodevelopmental Disabilities (MN LEND)
In our January 25th MNLEND cohort session, we had the honor to hear Katie Anderson, DDS 4th year dental student at the University of Minnesota School of Dentistry, 2nd year LEND Fellow, present information on "Common Dental Challenges and Preventive Dental Care for Persons with Neurodevelopmental Disabilities.
3/7/2018
UCEDD Funding Alert
The President's FY 2019 Budget Request cuts the funding for UCEDDs by $6 million from $39 to $33 million, or more than 15%. In fact, a $5.5 million increase over the expected FY 2018 level is needed to meet the growth of scope of work as related to assisting states to effectively implement recently enacted Federal laws, and the growth of need around autism, Zika, and neonatal abstinence syndrome. UCEDD directors, health professionals, trainees, families, and allies must educate their Members of Congress about why this training program is important, how it serves your state, and why increased funding is needed.
3/4/2018
New Gopen & Crocker Fellows (MA UCEDD/LEND)
The 2018 Gopen Fellow, Ashley Quick, joined ICI in early July. She will spend the year focusing on how to help law enforcement better understand and work with people with disabilities. Raquel Quezada, the 2018 Crocker Fellow, continues her work at the ICI in this new capacity after having been a 2017 LEND Fellow. Raquel has developed a radio program dedicated to helping the Latina population learn more about disability resources. Her program is heard weekly on La Mega 95.1FM (or 1400AM) each Saturday at 11am, and will be expanding soon.
3/2/2018
Continue to Educate your Members of Congress on the importance of the Money Follows the Person (MFP) Program
Help people living in nursing facilities and other institutional settings move back into their community!
We applaud all advocates for their continued engagement around the important MFP program. This week is crucial for advocates to continue educating Members of Congress on the positive impact this program has had on the lives of people with disabilities. It is AUCD's hope that MFP will be included in the March 23 omnibus appropriations package. Contact your senators and representatives to educate them on the importance of MFP in order to increase co-sponsors: 03/07: call. 03/08: social media. 03/09: email.
3/1/2018
Spread the Word to End the Word
Join us on March 7
The R-word hurts. It's offensive. It's derogatory. This worldwide campaign asks people to pledge to stop saying the R-word as a starting point toward creating more accepting attitudes and communities for all people. Language affects attitudes and attitudes affect actions. Pledge today to use respectful, people-first language.
2/15/2018
In Memoriam: Gordon Richins (UT UCEDD)
Gordon Richins, Consumer Liaison at the Center for Persons with Disabilities in Utah and former 2-term COCA Co-Chair, passed away on February 11. He leaves a hole at the CPD, and in many other places where his influence was felt.
2/12/2018
AUCD Trainee Updates: News from the North (AK LEND)
Submitted by LEND Trainee Kelly McBride
Alaska's LEND Without Walls, part of the Center for Human Development at the University of Alaska Anchorage, is building capacity. 2017-2018 LEND trainees have had a variety of experiences so far, including time with host families, field experiences, and clinical observations.
2/12/2018
Registration Open for 2018 Disability Policy Seminar and AUCD Trainee Policy Summit
The Disability Policy Seminar hosted by The Arc, UCP, AUCD, AAIDD, NACDD, and SABE is the premier opportunity to cultivate champions on Capitol Hill and advance the grassroots movement for people with intellectual and developmental disabilities. The event is packed with informative sessions from experts in the field, and opportunities to discuss key issues with others from your state. Armed with valuable information, attendees then converge on Capitol Hill to speak directly to their representatives about the issues that affect them most. All AUCD trainees are invited to a pre-DPS Trainee Summit on Sunday afternoon. Attendees will have exclusive access to Hill staffers and former trainees now working in policy, and learn from the experts how to best craft your message for Wednesday's Hill visits. An evening reception will provide a comfortable background for trainees to meet and network with over 200 peers from around the country.
