News
1/15/2019
Tuesdays with Liz: Remembering History and Early Disability Advocates
Tune in as Liz sits down with Deborah Spitalnik to talk about how the history of disability advocacy has shaped the disability rights movement today and some of the major leaders who spearheaded the movement.
1/14/2019
UM Law Students Research Disability Access at Vacation Rentals (MT UCEDD)
The Americans with Disabilities Act, passed in 1990, protects people with disabilities against discrimination in employment settings, state and local government services, and public-serving businesses. As vacation rental properties such as Airbnb and VRBO grow in demand and straddle the line between private residences and public business, how or if ADA applies was - until recently - somewhat unclear. Law students at the University of Montana set out to provide some answers to this and other ADA questions.
1/10/2019
Aetna Medicaid Announces New Innovative Approach for Members With Intellectual and Developmental Disabilities (MO UCEDD)
Aetna Medicaid, a CVS health business (NYSE: CVS), has announced an outcomes-based model for members with intellectual and development disabilities (IDD). The new model, which will launch on January 1, 2019 in Kansas, will be partially based on the Charting the LifeCourse framework developed by the University of Missouri-Kansas City (UMKC) Institute for Human Development, Missouri's University Center for Excellence in Developmental Disabilities Education, Research and Services.
1/8/2019
Tuesdays with Liz: Welcome to the 116th United States Congress!
With the 116th Congress in session as of January 3, 2019, Liz wants YOU to know there is no reason to be scared of contacting your Congressperson! Here, she reminds you to feel comfortable about sharing your story and advocating yourself, and how you can contact your Congressperson.
1/7/2019
LEND Regional Consortia Activities
LEND Regional Consortia are a forum for smaller groups of neighboring programs to share ideas around topics such as recruitment, curriculum, evaluation, research, and clinical/community services. This resource summarizes previous and proposed LEND collaborative activities at the regional level.
1/4/2019
Kelly Nye-Lengerman Delivers Keynote at UMaine World Usability Day (ME UCEDD)
Kelly Nye-Lengerman, Ph.D., a research associate at the University of Minnesota Institute on Community Integration (MN UCEDD), recently delivered the keynote address for "Equity, Access and Inclusion: A World Usability Day Event" at the University of Maine. Her keynote was sponsored by the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD). "We had an opportunity to forge a strong collaboration with UMaine's Office of Student Accessibility Services on their conference," said UCEDD director, Alan Cobo-Lewis. Under the leadership of director Sara Henry, the office serves nearly 800 students with documented disabilities at UMaine.
1/4/2019
New Encyclopedia Announcement: "Disability in American Life: An Encyclopedia of Concepts, Policies, and Controversies." (IL UCEDD/LEND)
This encyclopedia is edited by Illinois UCEDD faculty Tamar Heller, Sarah Parker Harris, Carol Gill, and Rob Gould. This exciting new publication includes entries by faculty and trainees throughout the network as well as other noted scholars in disabilities across many disciplines. The forward to the encyclopedia was written by AUCD Executive Director Andy Imparato. Once primarily thought of as a medical issue, disability is now more widely recognized as a critical issue of identity, personhood, and social justice.
1/4/2019
Professional Fellows Program for Inclusive Disability Employment
AUCD is excited to announce that the host application for the International Professional Fellows Program for Inclusive Disability Employment (PFP-IDE) is now open. PFP-IDE is a new U.S. Department of State professional exchange program that will enable 20 emerging leaders in inclusive employment from Kenya, Tanzania and Uganda to participate in a five-week Fellowship in the U.S. where they will learn about disability rights and inclusive employment.
1/2/2019
Fact Sheets Created From Disabled Parenting Project (OH UCEDD/LEND)
These fact sheets were created as part of our Cincinnati LEND Seminars in Evidence-Based Medicine project. A team of LEND trainees and faculty members conducted research on best practices while also consulting with stakeholders, including women with disabilities who have experienced pregnancy and prenatal care as well as medical providers.
1/2/2019
Working to Improve the Patient Experience (AL LEND)
Each year, LEND Trainees at the Civitan-Sparks Clinics in Birmingham, Alabama develop a project that will aid in improving the experience of our patients. As an interdisciplinary clinic, families who come into the Civitan-Sparks Clinics see a wide variety of professionals, including Speech/Language Therapy, Occupational Therapy, Nutrition, Pediatrics, Audiology, Psychology, and Dental. As such, many parents are unsure of what to expect from a visit with each of these disciplines, particularly when they are new to our clinic. Additionally, while the range of areas of concerns that families come in with is broad, visits to each of our disciplines are largely the same clinic to clinic.
12/21/2018
Georgia LEND hosts David Satcher Lecture on Leadership on the Elimination of Health Disparities
Georgia State University's (GSU) Georgia Leadership Education in Neurodevelopmental Disabilities (GaLEND) Program - housed within the Center for Leadership in Disability (CLD) - has had a partnership with the Satcher Health Leadership Institute at the Morehouse School of Medicine extending back to 2010. GaLEND recruits a fellow who participates in the Health Leadership Policy Fellowship at Morehouse School of Medicine and GaLEND at GSU concurrently. In 2015, GaLEND and the Satcher Health Leadership Institute created a partnership with Emory's Center for Excellence in Maternal Child Health (MCH). These three institutions offer the MCH Leadership Collaborative each Fall semester which draws students and faculty from across the three institutions to prepare for leadership in a rapidly changing world.
12/21/2018
Maureen Van Stone, Esq., MS, Named as Kennedy Krieger Institute's Director for the Maryland Center for Developmental Disabilities (MD UCEDD)
Maureen Van Stone, Esq., MS, Named as Kennedy Krieger Institute's Director for the Maryland Center for Developmental Disabilities (MCDD) effective December 17, 2018. Maureen earned a bachelor's degree in psychology at the University of Southern California, a master's degree in developmental psychology at The Johns Hopkins University, and a Juris Doctor at Whittier Law School, with a concentration on children's legal issues. She holds an adjunct faculty position at Towson University.
12/21/2018
Michigan Development Disabilities Institute (UCEDD-MI) Awarded Nearly $1 Million Grant from Michigan Health Endowment Fund
Awards will support older adult caregiver programs
The Michigan Health Endowment Fund has awarded nearly $1 million to two Wayne State University programs that protect and enhance the well-being of our area's older adults and caregivers. The Health Fund granted $413,903 to Dr. Peter Lichtenberg's program, SAFE: Caregiver Empowerment, and $500,000 to the Michigan Development Disabilities Institute (MI-DDI) for its program, Michigan Older Caregivers of Emerging Adults with Autism and other Neurodevelopmental Disabilities (MI-OCEAN) Family Support Project.
12/21/2018
New Toolkit from the Council on Quality and Leadership: Building the Framework for IDD Quality Measures
The report 'Building The Framework For IDD Quality Measurement' provides a roadmap for the key measures which would support people with IDD to receive high quality services and supports. It serves as one of many steps towards quality value-based services for people with IDD.
12/21/2018
Organization for Autism Research: Request for Applications
Since 2002, the Organization for Autism Research (OAR) has spent more than $3.7 million in support of autism research. OAR invites researchers to submit pre-proposals to the 2019 Applied Research Competition. Applications are due Monday, March 25, 2019.
12/21/2018
Organization for Autism Research: Request for Applications
Since 2002, the Organization for Autism Research (OAR) has spent more than $3.7 million in support of autism research. OAR invites researchers to submit pre-proposals to the 2019 Applied Research Competition. Applications are due Monday, March 25, 2019.
