News / Document Search Results
4/23/2018
Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial
Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.
4/20/2018
Changes in Intrinsic Local Connectivity After Reading Intervention in Children with Autism
Most of the existing behavioral and cognitive intervention programs in autism spectrum disorders (ASD) have not been tested at the neurobiological level, thus falling short of finding quantifiable neurobiological changes underlying behavioral improvement.
4/20/2018
Changes in Intrinsic Local Connectivity After Reading Intervention in Children with Autism
Most of the existing behavioral and cognitive intervention programs in autism spectrum disorders (ASD) have not been tested at the neurobiological level, thus falling short of finding quantifiable neurobiological changes underlying behavioral improvement.
4/20/2018
Review of Autism Screeners for Very Young Children with or at Risk for Autism Spectrum Disorders
Screening for autism spectrum disorders (ASD) at 18 and 24 months has been a standard American Academy of Pediatrics recommendation since 2007. However, research over the last two decades about the early emergence of autism symptoms has prompted a number of researchers and clinicians to create screening instruments and strategies for earlier ages.
4/19/2018
AIR-B Network Activities
The Autism Intervention Research Network for Behavioral Health (AIR-B) provides a free annual community conference to increase awareness of autism services, current research, and evidence-based interventions in the local regions of each of its network partners: University of Pennsylvania, UC Davis MIND Institute, University of Rochester, and University of California, Los Angeles. Experts in the network share their expertise and invite other prominent autism advocates to discuss topics ranging from non-clinical based autism interventions, to parent advocacy, to school-based transition supports for students with autism.
4/19/2018
AIR-P Network Activities
The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on reaching underserved communities.
4/19/2018
Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences
The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .
4/19/2018
Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences
The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .
4/19/2018
Better Together: Developmental Screening and Monitoring Best Identify Children who Need Early Intervention
Children at risk of developmental disabilities or delays who receive both monitoring and screening are more likely to receive the early interventions they need than their peers who receive either monitoring or screening, according to a study led by Dr. Brian Barger-a researcher at the Georgia State University and Policy Fellow with the "Learn the Signs. Act Early." team at NCBDD.
4/19/2018
IACC Summary of Advances in Autism Spectrum Disorder Research 2017
The 2017 Summary of Advances provides short, plain language summaries of the top 20 research articles selected by the Interagency Autism Coordinating Committee (IACC). The studies selected for 2017 have provided new insight into potential biomarkers to predict risk of autism spectrum disorder (ASD), developmental trajectories of children with ASD, and the impact of the various prenatal exposures on ASD risk. The advances also include studies that investigated treatments and interventions for both ASD and co-occurring conditions, the impact of policy changes on ASD health care spending, patterns of injury mortality, and prevalence differences across demographic groups.
4/19/2018
NJLEND Presents Twice Born: Stories from the Special Delivery Unit
New Jersey's Leadership Education in Neurodevelopmental and Related Disabilities program (NJLEND) at Rutgers University, hosted Twice Born: Stories from the Special Delivery Unit, a continuing education event highlighting the principles of family-centered care. The session shed light on one family's experience with fetal surgery, the intricacies of navigating the healthcare system, and the complex relationships between healthcare professionals and parents as shown in the Emmy Award-winning PBS series.
4/19/2018
Transitions Over the Life Course For Individuals with Autism
Early identification of and intervention for autism spectrum disorder (ASD) have traditionally garnered a significant portion of public attention and spending. However, with an estimated 60,000 youth on the autism spectrum turning 18 years old in 2016*, understanding the factors associated with risk and resilience in adulthood is of significant public health importance. Notably, both research and anecdotal accounts indicate that adults with autism tend to suffer from poor life course outcomes, including but not limited to unemployment, underemployment, and social disengagement. The Health Care Transitions Research Network (HCTRN) was thus designed as an interdisciplinary, multi-center research forum for scientific collaboration and infrastructure-building, with a focus on research designed to improve health care transitions and promote an optimal transition to adulthood among youth and young adults with ASD .
4/19/2018
Update from the Division of MCH Workforce Development
Autism Awareness Month is a perfect time to acknowledge the many ways in which the Autism CARES grantees make a difference in the lives of children with ASD and other developmental disabilities (DD), and their families. This quarter's MCHB Minute is about our gratitude for all that you do!
4/19/2018
Updates from the State Public Health Autism Resource Center
This cohort has continued participating in monthly technical assistance calls, and through these calls, there has been a lot of discussion around grantee needs for more support and guidance around the Telehealth/education piece of their work. The 2018 Peer-to-Peer Exchange will be held in mid-April in Spokane, WA with a focus on creating connections for children and their families, self-advocates, and providers through Telehealth services. The meeting will feature the Washington State Department of Health team and their partners. During this meeting, participants will learn how the WA team (and others) have collaborated with different partners, addressed challenges around serving culturally and linguistically diverse families, and establishing buy-in to effectively provide Telehealth services in their communities. Stay tuned for the December 2018 Developments issue for our lessons learned from the meeting!
4/18/2018
Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders Journal of Autism and Developmental Disorders
Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English.
4/18/2018
Transitioning Together: A Multi-family Group Psychoeducation Program for Adolescents with ASD and Their Parents (WI UCEDD/LEND)
Currently there are few evidence-based programs available for families of individuals with ASD during the transition to adulthood. The present study provided a preliminary evaluation of a multi-family group psychoeducation intervention using a randomized waitlist control design (n = 41). Families in the intervention condition participated in Transitioning Together, an 8-week program designed to reduce family distress and improve social functioning for adolescents.
