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A family is in a backyard with green grass and a picnic table. Older family members are less clear in the background of the photo, while younger family members are holding up a young child and smiling. Credit: Adobe Stock

4/11/2024

Special Issue Explores the Complex Genetic Landscape Around Diverse IDDs

The IDDRC network has completed their 2023 publication section in the Journal of Neurodevelopmental Disorders focused on "Etiological heterogeneity, pleiotropy, and polygenicity in Intellectual and Developmental Disabilities (IDDs)". The issue includes seven new publications from IDDRC investigators across the country.

 
 

2/1/2024

Medical and Dental Curricula on IDD: Training Inclusive Providers

A Study on How Medical and Dental Schools Teach Students about IDD

Past research has shown that many medical and dental students do not learn about IDD in school. The WITH Foundation, AUCD, and UC-LEND, led by Dr. Kashia Rosenau, collaborated to learn more about how medical and dental schools are teaching students about intellectual and developmental disabilities (IDD). The study found that most of the schools had self-advocates to help them teach their medical and dental students about caring for patients with IDD. The study also found that medical and dental students want to learn more about caring for their patients with disabilities. Overall, the study highlights the importance of teaching medical and dental students about caring for patients with IDD and including more self-advocates in this training.

 
 
Jamie Junior, an advocacy and community education coordinator for the Disability Network of Wayne County, reaches down to pet a service dog. Jamie is wheelchair bound and is being watched by the dog's owner. The dog's owner is standing to the right o

1/30/2024

Michigan Developmental Disabilities Institute and Michigan Vaccination Partners accomplishments Highlighted in APHA's Thought Leadership Film Series

The American Public Health Association (APHA) selected the Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University and the Michigan Vaccination Partners project to be featured in the APHA 2023 Thought Leadership Film Series. The series profiles cutting-edge efforts to address public health issues being led by researchers, advocates and organizations across the country.

 
 
This colored drawing by Mengxi Cai shows adults, children, and a dog along with red hearts and stars.

1/30/2024

New Issue Released of Review of Disability Studies: Extended Volume on Disability and China (Vol 18, No.4 & Vol 19 No. 1)

The Center on Disability Studies, College of Education, University of Hawai'i at Mānoa, is pleased to announce the release of the Review of Disability Studies: An International Journal Special Issue on China and Disability. The 595-page issue (Volume 18, Issue 4 & Volume 19, Issue 1) was guest-edited by Drs. Luanjiao Hu, The Lurie Institute for Disability Policy, Brandeis University, and Fengming Cui, Harvard University.

 
 

1/26/2024

Apply Today: AUCD Leadership Academy

The deadline to apply is March 1st at 5:00 PM EST

The AUCD Leadership Academy is a week-long intensive experience, paired with a year of pre and post interactions designed to enhance the skills of current and emerging leaders from disability networks to build coalitions to improve systems of supports and services. The Leadership Academy engages participants from UCEDDs, LENDs, and the wider community of disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development.

 
 

1/23/2024

A National Partnership to Advance Peer-Support Models for People Who Need Augmentative and Alternative Communication (AAC)

The Association of University Centers on Disabilities (AUCD) is pleased to announce that the University Center of Excellence in Development Disabilities Education, Research, and Service (UCEDD) at Oregon Health & Science University (OHSU), in partnership with CommunicationFIRST, has been selected as the recipient of a subaward to create a national partnership to develop an approach and plan to advance peer-support models for augmentative and alternative communication (AAC) users.

 
 
Two photos showing a 4-H banner at a community event. The photo on the left shows people at the event with the banner over their heads. The photo on the right is a close-up of the banner.

1/18/2024

ICI, UM Extension Partner For 4-H Youth

The MN UCEDD has created accommodation kits containing tools to better accommodate Minnesota 4-H members with and without disabilities. The training also shared tips about more fully including youth with disabilities.

 
 

1/17/2024

Student Spotlight - Blake Jackson

Meet Blake Jackson, a resilient second-year student in the Direct Support Professional - General (DSP-G) track. As a proud member of the PATHS class 2024 in the fightin' Texas Aggie community, Blake is enrolled in the Postsecondary Access and Training in Human Services (PATHS) Program, where he finds inspiration in Andrey Hepburn's timeless words: "Nothing is impossible, the Word itself says "I'm possible'!".

 
 

1/16/2024

Five-year Grant to Support KU Project's Goal to Make Disability Data Accessible and Inclusive for Broad Audiences

Numbers alone can't tell a story. That's the foundation of a project now based at the University of Kansas that takes volumes of raw federal and state expenditure data and distills that information for everyone - including policymakers, service providers and individuals with developmental disabilities and their families - to help them make the most informed decisions.

 
 

1/16/2024

Missouri's UCEDD Develops "After Abuse: Resources for Missourians with Disabilities"

The University of Missouri-Kansas City's Institute for Human Development, the University Center for Excellence in Developmental Disabilities for the state of Missouri, in cooperation with the Missouri Developmental Disabilities Council, has published a new online resource called After Abuse: Resources for Missourians with Disabilities to help people with disabilities learn about abuse and what happens when it is reported.

 
 
Three African women stand in front of three African men, all holding blue certificates from the US Department of State.

1/10/2024

University of Massachusetts Boston Institute for Community Inclusion Partners with the International Disability Alliance and the African Disability Forum on International Fellowship Program

The Institute for Community Inclusion (ICI) at the University of Massachusetts (UMass) Boston, in collaboration with the International Disability Alliance (IDA) and the African Disability Forum (ADF), has been awarded a grant from the US Department of State to launch the third round (FY 2023) of the Professional Fellows Program on Inclusive Civic Engagement. This program, designed for emerging leaders in East Africa, aims to facilitate exchange and implementation of best practices for disability-inclusive civic engagement.

 
 

11/20/2023

Iowa Creates a New Vaccine Clinic for Patients with Unique Needs

Iowa's Center for Disabilities and Development (CDD) has a new vaccine clinic for children and some adults with unique needs, including sensory issues, anxiety, and other disabilities. Earlier this year, the mother of a child with autism got in touch with CDD, looking for a place to get her child vaccinated against Covid-19. CDD clinical nurse manager Sheree Murphy, RN, took up the challenge, and enlisted the help of UCEDD program coordinator, Anne Crotty, MPH.

 
 

11/15/2023

OHSU UCEDD: A personal and professional experience

In the summer of 2020, Jan Staehely, communication consultant and staff member at the OHSU Institute on Development and Disability UCEDD, and an individual with Cerebral Palsy who uses an assistive communication device, had a frightening experience. Wildfires were approaching the south-eastern towns near Portland, Oregon and her neighborhood was placed in an evacuation zone.

 
 

11/7/2023

2023 AUCD Multicultural Council Award for Leadership in Diversity

The AUCD Multicultural Council Award for Leadership in Diversity is presented to an Association member or group in recognition of: their exhibited leadership and commitment to advancing programs and practices aimed toward increasing the diversity, cultural, and/or linguistic competencies (in curriculum, services, supports, research, and recruitment) within a Center and the AUCD network as a whole exemplary programs and practices addressing the areas of diversity, cultural, and/or linguistic competencies (in curriculum, services, supports, research, and recruitment) within a Center and the AUCD network as a whole significant contributions in furthering the cause of diversity understanding for the needs of families seeking disability services. The 2023 AUCD Multicultural Council Award for Leadership in Diversity was presented to Mirian Ofonedu during the AUCD 2023 Awards Ceremony on November 7, 2023.

 
 

11/2/2023

UCEDD Resource Center ExceLens Series: AUCD Emerging Leader: Blake Warner

Honoring the theme of the AUCD Annual Conference, this edition of ExceLens is excited to feature AUCD Emerging Leader Blake Warner. Blake has previously completed two years of SD LEND and is currently serving as a UCEDD trainee and completing a predoctoral internship at the UCLA Tarjan Center. Blake is passionate about advocacy and policy reform efforts, particularly for LGBTQ+ individuals in the disability community. The AUCD Community Inclusion Team was able to sit down with Blake and learn more about his interests, goals, and experience so far as an AUCD Emerging Leader. Please read on to see the highlights from Blake's interview!

 
 

10/30/2023

Defining Equity

We are excited to announce AUCD's Board-approved working definition of equity in IDD. Below you will also see a plain language and easy read version. We hope this will help guide you in your future Council work as we continue to discuss concrete ways to improve systems, services, policies, and programs to improve equity. We know this will be an ongoing and evolving conversation within your Centers and across the Network. Thank you for your feedback and contributions to this effort.

 
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