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A headshot photo of Beth Malow, a middle-aged white woman with chin-length brown hair, a pink sweater, and a black beaded necklace. Another headshot photo of Jeff Neul, a middle-aged white man with red hair, including a mustache and beard, wearing a

8/30/2021

Vanderbilt Kennedy Center Efforts Enhance Inclusivity in Clinical Trials

Following the Vanderbilt Kennedy Center�s (VKC) (TN IDDRC, UCEDD, LEND) renewal as a national Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center in 2020, the center underwent a shuffling of their four scientific cores that support basic and applied research on intellectual and developmental disabilities (IDD).

 
 

6/7/2021

Funded Through NSF Grant, Researchers Strive to Increase Neurodiversity in STEM Fields

There is wide agreement that the United States needs to grow our STEM workforce to remain globally competitive, but how can we ensure the workforce reflects the neurodiversity of our population? Importantly, do our higher education institutions serve as facilitators or barriers to neurodiversity in STEM?

 
 

6/2/2021

Providing Support During the COVID-19 Pandemic: Direct Support Professionals Survey, 12-Month Follow Up

Over the past 12 months, direct support professionals have experienced high risks of infection, financial hardship, and exhaustion. Many have become ill and lost loved ones. The voices of DSPs matter, now more than ever. Show them you care about their wellbeing by passing along this confidential survey. The University of Minnesota's Institute on Community Integration, in partnership with the National Alliance for Direct Support Professionals, developed this survey to understand the impact of the COVID-19 pandemic on direct support professionals and identify the most effective ways to protect DSPs and the people they support.

 
 

6/2/2021

The Boggs Center Celebrates the Graduation of the 2020-2021 NJLEND Fellows at the 5th Annual Maternal and Child Health Leadership Symposium

The Boggs Center celebrated the graduation of the 2020-2021 NJLEND Fellows at the New Jersey Leadership Education in Neurodevelopmental Disabilities (NJLEND) program's 5th annual Maternal and Child Health Leadership Symposium. Held virtually this year in response to COVID-19, the event featured a keynote address, "The Meaning of Resilience: Building Self-Healing Communities," by Dave Ellis, Founding Executive Director The Office of Resilience New Jersey Department of Children and Families, and was attended by those from the Rutgers community, New Jersey's Department of Children and Families and Department of Health, SPAN Parent Advocacy Network, and other state and community organizations. There were brief video presentations by each of the 20 graduating NJLEND Fellows sharing their personal definitions of leadership, the culmination of the year-long Defining Leadership: Charting Your Trajectory Learning Exercise.

 
 

6/1/2021

Maryland Center for Developmental Disabilities Community and Professional Development Training Program Hosts its 2021 Summer Learning Series Virtually

The Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute is hosting its 2021 Summer Learning Series, consisting of 15 virtual workshops with interdisciplinary topics focused on working with children, youth, and adults with intellectual, developmental, and other disabilities, and their families. The workshops will run from June 1 through July 29 to help disseminate critical information to providers, parents and caregivers, and people with disabilities across a wide range of topics.

 
 

6/1/2021

MN LEND Fellows Help Faith-based Organizations with Inclusion

Plenty of mission statements for faith-based organizations talk about welcoming everyone. When it comes to people with disabilities, however, it takes more than words and a wheelchair ramp to achieve true inclusion. MN LEND fellows, along with the MN UCEDD, are working with a Twin Cities-area church and mosque to think differently about how they serve worshippers with disabilities. MN LEND is an interdisciplinary leadership development program, funded by the U.S. Maternal & Child Health Bureau, that spans more than 16 disciplines across the University of Minnesota.

 
 

6/1/2021

NH-ME LEND Trainees Display Scholarship and Leadership in 2021 Capstone Poster Session

On May 7, 2021, twenty-four trainees from the 2020-2021 New Hampshire-Maine Leadership Education in Neurodevelopmental and Related Disabilities (NH-ME LEND) Program shared their scholarship and leadership development during the annual Capstone Poster Session and Celebration. In keeping with federal and state Centers for Disease Control (CDC) health and safety guidance, the event was held online. For the second year in a row, the trainees remotely collaborated with faculty mentors and leadership partners to complete their capstone projects throughout Maine and New Hampshire.

 
 

5/11/2021

AUCD2021 - Submit Your Proposal Today!

NEW Deadline: Friday, June 11th

AUCD has made the decision to conduct the 2021 Conference as a fully virtual event. With the theme of "Learning Together: Connecting Research and Lived Experience," AUCD2021 will continue to serve as a forum for meaningful collaborations around important topics, best practices, and issues that affect the disability community, our network, and beyond. AUCD is also excited to continue 50th anniversary celebrations during the virtual conference. The 2021 AUCD Conference will take place online November 15-17 and more details on exact times and other potential events will be shared going into the summer. Submissions are now closed.

 
 

5/7/2021

Request for Proposals: UCEDD Leadership Development

Deadline to submit a proposal: May 26, 2021.

The UCEDD Resource Center (URC) is seeking consultation to develop a UCEDD Network Leadership Development Map ("Map") and TA plan. The Map will provide UCEDD network members with concrete information about the knowledge, skills, and abilities that they need to advance their careers within the UCEDD network and about existing strategies, resources, and opportunities to acquire those knowledge, skills, and abilities. The TA plan will identify gaps in the UCEDD network career pathways and provide the URC with recommended activities to address those gaps. Both documents will specifically attend to the unique needs of the network and network members to enhance career opportunities for individuals from historically underrepresented communities.

 
 

4/28/2021

AIR-B Network Continues Outreach in Diverse Communities

Although much of the research activity has moved virtual, the Autism Intervention Research Network on Behavioral Health (AIR-B Network; PI: Kasari) continues its research-community partnership in the COVID-19 era. The AIR-B is a network of researchers at UCLA, UC Davis, University of Pennsylvania, University of Rochester, Drexel University, University of Kansas, University of Washington and each site's local community partners working to increase equity in access to ASD information and interventions for families of children with ASD.

 
 

4/22/2021

Morehouse School of Medicine National COVID-19 Resiliency Network

Plain Language Summary

The Morehouse School of Medicine is working on a project called the National COVID-19 Resiliency Network, or NCRN. This project brings together organizations from across the country to meet the COVID-19 needs of people from minority races and ethnicities.

 
 

4/21/2021

2021 Trainee Council Representatives Selected!

We are pleased to announce our 2021 Council Trainee Representatives.

 
 

4/16/2021

Advocates in the Making

While on the path to adulthood, all young people need to learn to advocate for themselves. In other words, they need to find their voices. For young people with disabilities, learning to advocate for themselves is crucial in becoming more independent and reaching their life goals. The Institute for Disability Studies (IDS) Transition to Adulthood Programs have recognized the need to have advocacy at the core of all curriculum and services.

 
 

4/16/2021

AUCD Professional Fellows Alum Wins United Nations Award for Inclusive Education TV Show

AUCD Professional Fellows alumna Maria Omare from Nairobi, Kenya, has won a grant from the United Nations Development Programme (UNDP) for her work on Somesha Stories, a TV series she created that delivers accessible and inclusive educational content to children in East Africa. Somesha Stories is a weekly program that promotes early literacy and is one of the first children's TV series in East Africa to use closed captioning and sign language in all episodes. The series uses interactive storytelling to foster inclusive values and educate children about diverse topics, including science, community, mental health, COVID-19, and interacting with peers.

 
 

4/16/2021

Current and Former LEND Trainees Provide Unique EI Services Through the FOCUS Program

As the New Mexico LEND cohort liaison to the Emerging Leaders Community, I had the opportunity to interview Una Vicenti and Laura Hawkey of the FOCUS program. Vicenti is an Occupational Therapist and Director of Early Intervention Services and Laura works as a Family Service Coordinator and developmental specialist within the program. Hawkey is a current LEND trainee and Vicenti is a LEND fellow. Vicenti reported that 3 other employees at FOCUS, including the program director, are LEND fellows.

 
 

4/16/2021

Direct Support Workforce and COVID-19 National Report: Six-Month Follow-up

The Institute on Community Integration's Research and Training Center on Community Living for Persons with intellectual and Developmental Disabilities at the University of Minnesota, in partnership with the National Alliance for Direct Support Professionals, conducted a survey of approximately 9,000 direct support professionals (DSPs) from across the country about their experiences supporting people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic. This is a six-month follow-up report to the initial report completed in April 2020 and is the largest study conducted on the direct support workforce.

 
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