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LTSS as it relates to Medical Expense Deduction

by National Academy of Elder Law Attorneys

If Congress ends the Medical Expense Deduction, many Americans paying for Long-Term Services and Supports (LTSS) costs will not be able to pay for both LTSS and federal income tax at the same time. Raising the standard deduction and lowering rates will not address the issue. Why? Because many chronically ill Americans will pay all of their income towards care, and without the Medical Expense Deduction they could still have a tax liability that they cannot afford to pay.



Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every Mondayouse Appropriations Full Committee Markup of FY19; Trump Administration announced $25 million in cuts to the Navigator program; Medicaid LTSS Expenditures Webinar; Supreme Court Nomination; and more



Tuesdays with Liz: Disability Policy for All - AUCD's Executive Director, Andy Imparato

Supreme Court decisions affect EVERYONE, which is why Liz thought this week, in response to President Trump's nomination of a new Justice, it would be helpful to look back at her interview with AUCD Executive Director Andy Imparato from the last time a Court spot needed to be filled. Also see previous In Brief for background on Justice Anthony Kennedy's retirement.



AUCD Strongly Opposes Decision to Let Electric Shock Treatments Continue

The Association of University Centers on Disabilities (AUCD) stands with many other national disability organizations in strongly opposing the recent decision by a Probate and Family Court judge to allow a school in Canton, Massachusetts, to continue administering electric shocks to students with intellectual and developmental disabilities.



Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayConcerning Language in House Report; Home Health Prospective Payment System; ACA's risk adjustment; Work Requirements; Native Populations; Addressing the Policy Tangle - education work community living; and more



The Direct Support Workforce Crisis is Focus of New Impact Issue from MN UCEDD

The direct support workforce is crucial in providing daily supports to people with intellectual, developmental, and other disabilities in the U.S. as they live and participate in their communities. While demand for these supports has never been higher and will continue to grow, significant challenges exist in finding, keeping, and training Direct Support Professionals.



Addressing the Policy Tangle: Students with Intellectual Disability and the Path to Postsecondary Education, Employment and Community Living

Joint Report: AUCD and NDSC

The Association of University Centers on Disabilities (AUCD) and National Down Syndrome Congress (NDSC) released a comprehensive report "Addressing the Policy Tangle: Students with Intellectual Disability and the Path to Postsecondary Education, Employment and Community Living" on implementation problems with using federal IDEA and vocational rehabilitation (VR) funding for postsecondary students with intellectual disabilities (ID).



Tuesdays with Liz - AUCD's Policy Director, Rylin Rodgers

This week Liz sits down with AUCD's new Policy Director, Rylin Rodgers. Liz finds out what direction Rylin hopes to take the policy department in and how advocates can engage with their elected officials on social media.



Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayFY19 funds; Recess; food security; HCBS; Immigration; Electric Shock; and more



VT LEND Awarded Green Mountain Self-Advocates Ally of the Year Award

Green Mountain Self-Advocates (GMSA), Vermont's state wide self-advocacy organization, awarded the 2018 Ally of the Year Award to the Vermont Leadership Education in Neurodevelopmental Disabilities Program (VT LEND) for their outstanding support of Vermont self-advocates, the mission of self-advocacy, and Green Mountain Self-Advocates. The award was presented at the 20th Annual Voices and Choices Conference on May 15, 2018 with the following statement: "VT LEND is dedicated to inclusion and making sure people from diverse language and cultural backgrounds, including people with disabilities, are part of the VT LEND training program.



Pavithran Named Policy Director at Center for Persons with Disabilities (UT UCEDD)

The Center for Persons with Disabilities at Utah State University has appointed Sachin Pavithran as its policy director, effective July 1. The center has been involved in policy issues since its inception in the early 1970s, when it secured funding to educate children with developmental disabilities. At the time, schools were turning children with disabilities away. While issues have come and gone, Pavithran said it's important for the CPD to continue giving people with disabilities a voice in public policy. The CPD will bring a data-driven approach to advocacy for civil rights and inclusion at all levels of society.



Tuesdays with Liz: Disability Policy for All - Kate Mevis Part 2

This week we share part 2 of Liz's interview with Hill Staffer Kate Mevis. In part 2, Liz and Kate continue their chat about the importance of inclusive employment and the influence Liz's presence had on the staff and office of U.S. Senator Bob Casey.



Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayFY19 Appropriations; Rescission of funds; Immigration; Perkins; and more

LEND Trainees and Faculty pose with Senator Shenna Bellows (third from left) and Kim Humphrey (far right.


Grassroots Advocacy Strategies in the State of Maine (ME LEND)

The Maine LEND Program hosted an Advocacy and Strategy Forum on April 27, 2018, in Lewiston, Maine. LEND Trainee, Kim Humphrey, a public health advocate, founder of Community Connect ME, and mother of a child with autism, led the charge with key decision makers who work with and/or have children with Intellectual Developmental Disabilities (I/DD) in the state. State Senator Shenna Bellows and former Maine State Legislator Peter Stuckey led one key aspect of the Strategy Forum. Speakers and presenters also included University of Maine professor and Center for Community Inclusion and Disability Studies Director, Alan Cobo-Lewis; LEND trainee and occupational therapist, Taylor Cahill;LEND trainee and family member, Sanaa Abduljabbar; Coordinator of Education and Autism for the Center for Community Inclusion and Disability Studies, Alan Kurtz. There were approximately 40 leaders and advocates in attendance.



AUCD Welcomes Public Policy Intern Jillian Odom

Jillian Odom is recently graduated from American University's Master's International program with a MA in Public Anthropology. Through this program she spent two and a half years in The Gambia, West Africa working with deaf populations as a Health Extension Volunteer with the United States Peace Corps. Though her main project was developing a mobile communication resource, it was this experience that allowed her to witness the importance of productive, innovative, human-centered disability policy and effective implementation strategies.

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