News / Document Search Results
9/23/2024
AUCD 360 - February 2024
3/25/2024
IDDRC Research Brief: Providing Support for Families Affected by Rare Genetic Diseases
The RFK IDDRC unveils its groundbreaking "Operation IDD Gene Team" program developed by Dr. Steven Walkley. This multidisciplinary initiative supports families affected by rare genetic diseases causing intellectual & developmental disability (IDD).Operation IDD Gene Team brings together families, physicians, and scientists to foster understanding and empowerment. Through collaborative meetings, families share their experiences, physicians discuss clinical implications, and scientists provide insights into gene biology. Published in the Journal of Neurodevelopmental Disorders, this innovative program offers hope and guidance to families while advancing research into rare genetic diseases.
3/25/2024
ME UCEDD Goes to White House to Highlight Impact of Federal Initiatives on Maine's Disability Community
On March 14, 2024, Alan Cobo-Lewis, associate professor of psychology and director of the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD), was invited to attend Communities in Action: Building a Better Maine, New Hampshire, and Vermont, in person at the White House complex. This meeting brought together federal figures with over three dozen local elected officials and community leaders working on behalf of their communities to create opportunities and improve people's everyday lives. Discussions highlighted federal initiatives, especially those funded by the American Recovery Plan Act (ARPA), Inflation Reduction Act, and Bipartisan Infrastructure Investment and Jobs Act.
3/25/2024
NH-ME LEND Spring Kickoff: Organizing to Influence Your State's Policy
In late January, NH-ME LEND gathered for the annual spring kick-off event: Organizing to Influence Your State's Policy. An inspiring keynote speaker, Ansley Peacock, followed by an informative panel discussion set the stage for the upcoming policy module, and the trainees' participation in the upcoming Disability Policy Seminar (DPS) in Washington, D.C.
3/22/2024
2024 Developmental Disabilities Day at the Legislature Reflection
Each year, the Maryland Developmental Disabilities (MDD) Coalition sponsors Developmental Disabilities Day at the Legislature (DD Day), an opportunity for participants to educate state legislators in the capital on crucial issues affecting individuals with intellectual and developmental disabilities (IDD), their caregivers and their families. On February 21, 2024, we had the pleasure of attending this year's DD Day as Maryland Center for Developmental Disabilities trainees, alongside Kennedy Krieger Institute staff members, other trainees and self-advocates.
3/21/2024
AUCD International Special Interest Group
An International Collaborative on Disability Rights and Inclusion
The International Collaborative on Disability is comprised of network members who have a strong interest in or whose work are related to international activities. This include, but is not limited to, research and evaluation, education, training, practice, technical assistance, and information dissemination.
3/21/2024
Missouri UCEDD Launches New Training on Traumatic Brain Injuries
Brain injury is more common than you might think. Every brain injury is different in terms of symptoms, affected areas of the brain and the outcome. The University of Missouri-Kansas City's Institute for Human Development, the University Center for Excellence in Developmental Disabilities for the state of Missouri, has just launched a new free training to raise awareness of traumatic brain injuries - or TBIs. It highlights symptoms, treatments and provides prevention strategies.
3/21/2024
Oklahoma LEND Graduate's Non-Profit Nationally Recognized
Jeanette O'Hara is an OK LEND 2022 graduate and Founder/Executive Director of the nonprofit, Will's House, located just outside Tulsa in Jenks, Oklahoma. Will's House serves as a specialized respite option that supports full time caregivers of children and young adults with medical needs or intellectual/developmental disabilities. Jeanette's approach is simple yet profound: "What do you need? How can we help you?" This philosophy reflects a commitment to addressing the diverse and often overlooked gaps in services for caregivers and families.
3/21/2024
Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Researcher and Health Equity Champion Arie Nettles Retires
Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researcher and longtime health equity champion Arie Nettles has retired from Monroe Carell Jr. Children's Hospital at Vanderbilt. As a psychologist and professor of Clinical Pediatrics at Monroe Carell Jr. Children's Hospital at Vanderbilt, her entire career has been spent ensuring the well-being of pediatric and adolescent patients with intellectual and developmental disabilities, autism and cleft craniofacial disorders.
3/19/2024
Announcement: Seeking Emerging Leader Board Member Nominations
Deadline: March 29, 2024
The AUCD Board of Directors is seeking nominations from the network's Emerging Leader community to fill the Emerging Leader Board Member voting position on the Board. (*Note that this is not the same as the Emerging Leader Intern.) The Emerging Leader Board Member will be a voting member on AUCD's national Board of Directors and represent the Association and broader AUCD network. This position will bring the voice and perspective of the AUCD Emerging Leader Community, including but not limited to trainees and early career professionals in the network.
3/18/2024
AUCD Joins University of Kansas as Co-Host for Gatlinburg Conference on Intellectual and Developmental Disabilities
The Gatlinburg Conference, a premier research event focused on Intellectual and Developmental Disabilities (IDD) in its 56th year, is proud to announce that the Association of University Centers on Disabilities (AUCD) will be joining the University of Kansas as co-host for this year's conference. The event is scheduled to take place from April 17th to 19th in Kansas City, MO, with the theme "Early Life Identification of Intellectual and Developmental Disabilities."
3/18/2024
Disability Policy News | March 18, 2024 | Vol. MMXXIII | Issue 87
Budget and Appropriations; House of Representatives Introduces the Health Equity for People with Disabilities Act, Senate Special Committee on Aging Holds Hearing on Disability Employment, House of Representatives Introduces the John R. Lewis Voting Rights Advancement Act, Reminder: U.S. Department of Transportation Announces Notice of Proposed Rulemaking to Ensure People Who Use Wheelchairs Can Travel Safely on Airplanes and more.
3/4/2024
Disability Policy News | March 4, 2024 | Vol. MMXXIII | Issue 86
Budget and Appropriations; U.S. Department of Transportation Announces Notice of Proposed Rulemaking to Ensure People Who Use Wheelchairs Can Travel Safely on Airplanes, Senate Special Committee on Aging Holds Hearing on Disability Employment, House Introduces Bill to Provide Refundable Tax Credit for Home Accessibility Improvements and more.
2/23/2024
Exploring the Intersectionality of Ability, Race, & Religion
Dr. Nicholas Wright and Maria Kemplin, staff at the University of Kentucky Human Development Institute, received a University of Kentucky Office for Institutional Diversity Award to support programs that are student-centric and foster collaboration through partnerships that address the important of diverse views and cultures. In partnership with the Martin Luther King Center and the Disability Resource Center, staff will explore the intersectionality of ability, and race.
2/23/2024
Video Podcast Series: Life After LEND
Meet Sharon Williams, LEND Class of 2019-2020
In this episode, meet Sharon Williams, LEND Class of 2019-2020. Sharon was a LEND trainee from the US Virgin Islands. She lives on the island of St. Croix with her husband and daughter Sharon joined the Virgin Islands UCEDD (University Center for Excellence in Developmental Disabilities) in 2012 and is the Assistant Director of Assistive Technology.
2/22/2024
Higher Ed Grants Coming Soon
Aiming to boost college options for Minnesota students with intellectual disability, the Institute on Community Integration's new Inclusive Higher Education Technical Assistance (TA) Center is collaborating with the Minnesota Office of Higher Education as it implements a competitive grant process this spring.