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12/12/2016

2017 START National Training Institute (NH UCEDD/LEND)

The Center for START Services, a national initiative based at UNH's Institute on Disability/UCED, works to address the service gap for people with IDD and Mental Health issues in communities across the country. The annual START National Training Institute (SNTI) provides an interactive forum aimed at the sharing of best practices, engaging in experiential learning opportunities, and "feeling the strength of START".

 
 

12/12/2016

AUCD MCC Council Presentation

pdf File AUCD MCC Council Presentation 2016 final.pdf [download]
 
 

12/12/2016

Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayContinuing Resolution; 21st Century Cures Act reforms; House passed Kevin and Avonte's Law; U.S. Department of Education today made available final regulations under Part B of the IDEA; and more

 
 

12/12/2016

Dr. Stephen Sulkes Receives First Special Olympics New York Golisano Health Leadership Award for Advancing Inclusive Health for People with Intellectual Disabilities (NY UCEDD/LEND)

In October Dr. Stephen Sulkes of Rochester, New York received the 2016-17 Golisano Health Leadership Award. The Golisano Health Leadership Award was established in 2016 in partnership with Special Olympics International and the Golisano Foundation, and is given to one of only 32 individuals or organizations in the world who are dedicated to improving the health of people with intellectual disabilities and advancing the health work of Special Olympics. "Special Olympics New York is delighted to be able to present Dr. Stephen Sulkes with the Golisano Health Leadership Award.

 
 

12/12/2016

Dr. Therese Willkomm Presents at White House Summit (NH UCED/LEND)

Dr. Willkomm served as a panelist during a discussion on "Promoting Innovation in Assistive Technology & Prosthetics." Shea Tanis, Associate Director of Research at Coleman Institute for Cognitive Disabilities at the University of Colorado, moderated the panel. Other panelists included Dr. Cathy Bodine, Associate Director and Executive Director in the Department of Bioengineering and Department of Pediatrics at the University of Colorado and Alexis Kashar, Board Chair at the National Association of the Deaf.

 
 

12/12/2016

Institute on Disability Receives Grant for National Disability Employer Practices Survey (NH UCEDD/LEND)

The Institute on Disability (IOD) at the University of New Hampshire has been awarded a $265,000 Signature Employment Grant by Kessler Foundation to conduct the "Kessler Foundation Employer Practices Survey." The IOD will collaborate with the University of New Hampshire Survey Center on the project.

 
 

12/12/2016

IU Report Provides Employment and Inclusion Data About Hoosiers with Disabilities (IN UCEDD)

Indiana residents who receive employment services and other support from disability service providers have made few gains in the past year, according to a new report from Indiana University's Center on Community Living and Careers. Findings about how people with intellectual and developmental disabilities are interacting with their communities are included in the 2016 "Day & Employment Services Outcomes Systems Report." The report is published annually by the center, a division of the Indiana Institute on Disability and Community at Indiana University Bloomington.

 
 

12/12/2016

Labor Secretary Tom Perez Addresses Harkin International Disability Employment Summit

On December 8 and 9, high-level representatives and grassroots implementers from around the world convened in Washington, D.C. for the inaugural Harkin International Disability Employment Summit - an event designed to identify and create strategies to increase the employment opportunities for people with disabilities around the world.

 
 

12/12/2016

Linking Latino Parents to Autism Resources (IL UCEDD/LEND)

For parents who have a child with autism, navigating the service system to find ways to help their child can be overwhelming. Within the Latino community, promotoras - community health workers who are indigenous to the community - help educate parents on autism and appropriate services. Two UIC researchers are going global by expanding a parent educational intervention designed for Latino parents in the U.S. to Colombia.

 
 

12/12/2016

MCC Full Meeting Meetings

AUCD Conference
pdf File MINUTES DEC 2016 MCC FULL MEETING- AUCD conference 12.12.2016.pdf [download]
 
 

12/12/2016

Pre-existing Conditions and Medical Underwriting in the Individual Insurance Market Prior to the ACA

Website  from http://kff.org

Before private insurance market rules in the Affordable Care Act (ACA) took effect in 2014, health insurance sold in the individual market in most states was medically underwritten

 
 

12/12/2016

Student "Draft IEP" Interactive Tool Enables Students in New York State to be More Active in their IEP Development (NY UCEDD/LEND)

Students who are engaged in their program planning are more successful in school and in later life. However, many students do not attend their IEP meetings, and of those who do, very few participate meaningfully. The IEP meeting is devoted to the individual student and it is therefore critical that students be heard and have a way to impact on the decisions made. Student participation is meaningful only if they understand the purpose and process. Preparation is important to assure full engagement.

 
 

12/12/2016

the Housing Iowa Conference about the history of the landmark Supreme Court decision and the importance of housing in community integration. The session also featured Iowa's Money Follows the Person coordinator Brooke Lovelace and program participant

The Tarjan Center in partnership with the Center for Cerebral Palsy and David Geffen School of Medicine at UCLA is one of four sites working to transform healthcare for women with disabilities. The focus at UCLA is to improve access to reproductive health care and pregnancy experiences of women with cerebral palsy.

 
 

12/12/2016

The Illinois UCEDD Director and Distinguished Professor, Tamar Heller, is featured in a documentary titled, "Going Home: A Full Life in the Community" (IL UCEDD/LEND)

The Illinois UCEDD director and distinguished professor, Tamar Heller, is featured in a documentary titled, "Going Home: A Full Life in the Community" . It makes the case for community living and for closure of large state institutions in Illinois. The film cites research conducted at the UCEDD and is partially filmed in its building.

 
 

12/12/2016

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Rett Syndrome Clinic has been Named a Rett Syndrome Clinical Research Center of Excellence

Led by Vanderbilt Kennedy Center Investigator Sarika Peters, Ph.D., and Cary Fu, M.D., Vanderbilt�s clinic is one of only 14 sites nationwide to receive this designation. The award acknowledges that these clinics not only provide treatment for patients but work collaboratively to provide support for families, as well as with specialists in a range of studies, including developmental and behavioral pediatrics, neurology, sleep disorders, gastroenterology and more.

 
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