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2/6/2020

WITH Foundation, AADMD, and Ability Central Awards More than $478,000 to Foster Supported Decision-making for AAC Users

The WITH Foundation, the American Academy of Developmental Medicine and Dentistry (AADMD) and Ability Central are pleased to announce that more than $478,000 will be awarded to five organizations as a result of their joint RFP. These grants will fund programs focused on the development of resources, programmatic models, and/or advocacy related to Supported Decision-Making (SDM) for adults with intellectual and developmental disabilities who use Augmentative and Alternative Communication (AAC). Applicants were encouraged to develop new partnerships or significantly enhance existing partnerships between disability organizations, advocates, community organizations, and healthcare providers.

 
 

2/5/2020

Call for Participation: Michigan Older Caregivers of Emerging Adults with Autism and other Neurodevelopmental Disabilities (MI-OCEAN) Caregiver Support Project

The Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University is proud to announce The MIchigan Older Caregivers of Emerging Adults with Autism and other Neurodevelopmental Disabilities (MI-OCEAN) Caregiver Support Project. MI- OCEAN is a statewide project funded by The Michigan Health Endowment Fund.

 
 
Cover of 2020 Exceptional Parent Guide: Navigating Special Needs Resources

2/5/2020

Former NJLEND Family Fellows Partner with Family Voices NJ to Highlight Parent Professional - Partnerships in Training Programs in the Exceptional Parent Guide 2020: Navigating Special Needs Resources

Two former NJLEND Family Fellows partnered with Family Voices NJ recently to highlight parent-professional partnerships in training programs in the Exceptional Parent Guide 2020: Navigating Special Needs Resources. Their article on matching future healthcare professionals with families of children with special needs highlights the NJLEND Mentor Family Experience as well as other opportunities for parents to serve as educators of future health care professionals.

 
 

2/5/2020

WIHD Staff Featured on Fox 5 New York

WIHD staff members, Naomi Brickel and Brendan Klein, were featured on Fox 5 New York with Ernie Anastos to speak about the vital social opportunities they create for people with disabilities through social groups. Naomi Brickel is the Director of the Community Support Network and Brendan Klein is the Youth Advocacy and Engagement Coordinator at WIHD.

 
 

2/4/2020

Inclusive Public Health Quarterly-February 2020

 
 

2/3/2020

Disability Policy News

AUCD, Disability Policy News, every MondayMedicaid, Public Charge, Campaign 2020, Census, State of the Union, Budget and Appropriations

 
 

2/1/2020

New App Developed by Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) to Help Pediatricians Recognize Autism Risk in Young Children

Researchers from the Vanderbilt Kennedy Center Treatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD, TN IDDRC, UCEDD, LEND) and partners from technology start-up Adaptive Technology Consulting have been awarded $1 million from the National Institute of Mental Health (NIMH) to evaluate a new mobile app designed to help pediatricians recognize autism risk in young children.

 
 

1/31/2020

AUCD Invites Host Applications for the Spring 2020 Professional Fellows Program on Inclusive Disability Employment (PFP-IDE)

AUCD is excited to invite host applications for the Spring 2020 Professional Fellows Program on Inclusive Disability Employment (PFP-IDE). PFP-IDE is a U.S. Department of State professional exchange program that enables emerging disability rights leaders from Kenya, Tanzania and Uganda to participate in a five-week Fellowship in the U.S. where they will learn about disability advocacy and inclusive employment. Hosts will provide mentorship to the Professional Fellows and will collaborate to develop an inclusive employment project for their home countries.

 
 

1/31/2020

Increasing Trainee Survey Responses: Best Practice Methods for Obtaining High Response Rates from Trainees

Obtaining high trainee response rates to the LEND and UCEDD 1, 5, and 10 year surveys can be difficult for programs to get. To assist Centers in potentially increasing their response rates, AUCD interviewed training directors and former trainees from the 5 UCEDDs and/or LENDs with the consistently highest response rates to understand their strategies for surveying former trainees. This report describes AUCD's interviews and the practices these Centers have found to be successful.

 
 

1/31/2020

Increasing Trainee Survey Responses: Best Practice Methods for Obtaining High Response Rates from Trainees

NOTE (1-31-2020): Since this resource was published, trainee surveys have been revised to a 2, 5, and 10 year timeline. The tips provided here are otherwise still pertinent. Obtaining high trainee response rates to the LEND and UCEDD 1, 5, and 10 year surveys can be difficult for programs to get. To assist Centers in potentially increasing their response rates, AUCD interviewed training directors and former trainees from the 5 UCEDDs and/or LENDs with the consistently highest response rates to understand their strategies for surveying former trainees. This report describes AUCD's interviews and the practices these Centers have found to be successful.

 
 
Photo of Dr. Szarkowski at Scarlett's Park Conf., Fresno, CA Sept. 2019

1/27/2020

BCH/LEND Faculty Presentation on ASD in Children who ared Deaf or Hard of Hearing

Amy Szarkowski, PhD, is a psychologist who specializes in working with children who are deaf or hard of hearing (DHH) and their families. She is a faculty member with the Boston Children's Hospital LEND Program (BCH/LEND), and is part of the Institute for Community Inclusion at BCH and the University of Massachusetts, Boston. In September 2019, Dr. Szarkowski gave a keynote address at the Scarlett's Park conference in CA, an annual conference highlighting special topics related to DHH children. This year's conference was on DHH children and Autism Spectrum Disorder. Dr. Szarkowski's keynote was entitled, Red Flags: The Presentation of ASD in Children who are DHH & Considerations for Support and Intervention.

 
 

1/27/2020

Disability Policy News

AUCD, Disability Policy News, every MondaySocial Security, Aging, Healthcare, Medicaid, Voting, Home and Community Based Services, Education

 
 

1/27/2020

Iowa's Money Follows the Person Program Ranked Third in Nation for I/DD Transitions (IA UCEDD)

There are now 761 great reasons Money Follows the Person (MFP) is on display at the Center for Disabilities and Development, Iowa's UCEDD. Since the launch of the MFP program in Iowa, 761 individuals with disabilities have made the transition from facilities to community living, and that number keeps growing. A total of 649 individuals have completed the 365 days of support, and made the transition to the Intellectual Disabilities Waiver or Brain Injury Waiver.

 
 

1/27/2020

University of Cincinnati UCEDD Receives Grant to Establish a Center for Dignity in Healthcare for People with Disabilities

The University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD), has received a three-year, $1.5 million grant to lead a national coalition to establish the Center for Dignity in Healthcare for People with Disabilities (CDHPD). The grant is made possible by the Administration on Community Living and the goal is to identify and reduce life-limiting healthcare inequities for people with intellectual and developmental disabilities by improving access to medical protocols that reduce medical discrimination.

 
 

1/24/2020

AUCD Policy Fellowship 2020

The Policy Fellowship is an opportunity for an advanced network member to live and work in Washington, DC for one year, learning about AUCD, current legislation affecting people with disabilities and their families, and exercising leadership skills. The Fellow's responsibilities will be developed based on the needs of the Association and the interest and experience of the Fellow. Deadline: March 31; start date: September 2014.

 
 

1/24/2020

Equity, Diversity, and Inclusion Action Plan for the UCEDD National Network

The UCEDD network has the capacity to reduce disparities, improve outcomes, and promote a more equitable, diverse, and inclusive society for individuals with developmental disabilities and their families from historically underserved groups. This Action Plan identifies four areas of focus with objectives and action steps for network members to address: (1) workforce diversity, (2) cultural and linguistic competence, (3) state/local impact, and (4) crosscutting considerations that apply to all efforts.

 
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