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2/2/2018

Nutrition is for Everyone Ambassador Updates - Oklahoma

The Deputy Nutrition Ambassadors taught a class in Oklahoma City in Spanish for families with children with disabilities focused on making mealtimes a priority with tips for planning and prepping meals. They have a class scheduled next month focused on ways to add fruits and vegetables to the diet. Deputy Ambassadors also led a cooking demonstration and nutrition class for people with disabilities in Shawnee and participants prepared a healthy snack (Greek yogurt and banana parfait).

 
 
Healthy snack snowman

2/2/2018

Nutrition is for Everyone Ambassador Updates - Tennessee

The Post-Secondary Education programs were all on break between semesters and came back to ice and then snow at the start of the semester, with multiple days where universities were closed because of hazardous roads. Note the photo of the snowman with not only a carrot for a nose, but cashews for the smile, and dried apricots for eyes, which shows a creative use of food! Meanwhile, the program directors, along with the Nutrition Ambassador and are getting reorganized to begin planning nutrition education dates for the spring semester, and looking into further outreach.

 
 

2/1/2018

Adolescent Brain Cognitive Development Study Highlighted on Today Show

Featuring work by Dr. Susan Bookheimer, Director of the UCLA Semel Institute IDDRC

Parents and researchers alike wonder about the effects of everything from homework to screen time to stress to friendships on teenagers' brains. To understand more, the NIH has launched the Adolescent Brain Cognitive Development (ABCD) Study tracking over 11,000 kids. New from the Today Show, AUCD member Dr. Susan Bookheimer, Director of the UCLA Semel Institute for Neuroscience and Human Behavior IDDRC, and the role she's playing in this study are highlighted in this piece from Maria Shriver.

 
 

2/1/2018

Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity

Authors include several AUCD members

Anyone can become disabled in a flash. Furthermore, across the life span, almost all persons live with disability at some time, especially in their later years. Thus, according to the World Health Organization (WHO), disability is "a continuum, relevant to the lives of all people to different degrees and at different times in their lives,"virtually a "universal phenomenon" and a "natural feature of the human condition." As the Institute of Medicine stated: If one considers people who now have disabilities..., people who are likely to develop disabilities in the future, and people who are or will be affected by the disabilities of family members or others close to them, then disability affects today or will affect tomorrow the lives of most Americans.

 
 
Performers Marcus Ramey, left, and Walter Watson in

1/30/2018

Camp Munroe Theater 'Flawless' (NE UCEDD/LEND)

"Fractured Fairy Tales," held at the Scottish Rite Masonic Hall in Omaha, was the culmination of a three-day theater workshop for children and young adults with intellectual and developmental disabilities. The 23 participants, ranging in age from 6 to 30, also created the sets and some of the props for a skewed look at some classic children's tales.

 
 

1/30/2018

Dr. Maria Mercedes Avila, VT LEND Director, Appointed Health Equity Inclusive Liaison at the University of Vermont College of Medicine (VT LEND)

Maria Mercedes Avila, Ph.D., an associate professor of pediatrics and director of the Vermont Leadership Education in Neurodevelopmental Disabilities (VT LEND) Program, has been appointed Health Equity Inclusive Excellence Liaison in the University of VT (UVM) College of Medicine's Office of Diversity and Inclusion. Dr. Avila also serves as adjunct faculty in the UVM College of Nursing and Health Sciences.

 
 

1/30/2018

Dr. Nettles appointed by TN Governor Haslam as Chair of DIDD Advisory Council (TN UCEDD, IDDRC, LEND)

Arie Nettles, Ph.D., associate professor of Clinical Pediatrics and Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) member, has been appointed by Governor Haslam as chair of the Statewide Planning and Policy Council of the Tennessee Department of Intellectual and Developmental Disabilities (DIDD). Dr. Nettles has served as a member of the Council since 2014.

 
 
Photo: Jonathan Whiting and Jared Smith, WebAIM's WAVE development team.

1/30/2018

New Tools Allow Site-wide Web Accessibility Evaluation (UT UCEDD)

WebAIM has long set the standard for web accessibility, and its WAVE tool has made it possible for people everywhere to find out whether a web page is usable for people with disabilities. Now, new options make it possible to use WAVE across an entire website. "The online version of WAVE and the browser extensions for Chrome and Firefox are and always will be free," said Jared Smith, associate director of WebAIM and a developer of the WAVE web accessibility evaluation tool. But the new license options allow users to evaluate more than one page at a time. "People wanted that data that WAVE provides on a page, but they wanted it across an entire website," Smith said.

 
 

1/30/2018

Rett Syndrome Research of Baylor IDDRC Director Dr. Huda Zoghbi Highlighted on TODAY Show

NBC News's Richard Engel's son diagnosed

This morning on the Today Show: When NBC News's Richard Engel learned his son had Rett Syndrome, he called AUCD's Dr. Huda Zoghbi at the Baylor College of Medicine Intellectual and Developmental Disabilities Research Center (IDDRC), one of 14 Centers funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development to advance research in Intellectual and Developmental Disabilities (IDD) in order to contribute to the resolution of many issues encountered by individuals with IDD and their families.

 
 
Photo: Joanna Onorato, Outreach Coordinator for the MVMC, and Audrey Graham, Developmental Specialist for the South East Early Intervention Program.

1/30/2018

South East Early Intervention Program Receives Award (UT UCEDD)

The South East Early Intervention Program at the Center for Persons with Disabilities was recently honored as the Community Partner of the Year by the Moab Valley Multicultural Center (MVMCC) for its efforts in "building bridges across language and culture through family support, community collaboration, and education." The program, which began in 2011, is a home-based program serving children from birth to 3 who are at risk of having developmental delays, or are diagnosed with a disability.

 
 

1/30/2018

The Tarjan Center at UCLA (UCEDD) Staff Member Appointed to the California State Rehabilitation Council for the Department of Rehabilitation

Kecia Weller, is the Self Advocate and Community Liaison at the Tarjan Center at the University of California Los Angeles (UCLA). At the Center, Kecia assists with recruitment and ongoing support of members of the Tarjan Advisory Committee. She also represents the Tarjan Center on the State Self Advocacy Network.

 
 

1/30/2018

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC)TRIAD's Juarez now President-Elect of TABA

Pablo Ju�rez, M.Ed., BCBA, has been chosen as President-Elect of the Tennessee Association for Behavior Analysis (TABA). Ju�rez is director of the Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Treatment and Research Institute for Autism Spectrum Disorders (TRIAD), and is a behavior analyst in Pediatrics and Psychiatry & Behavioral Sciences. He will serve as President-Elect until TABA's annual conference in 2018, and he will go on to serve as President for one year and Past President for the subsequent year.

 
 

1/29/2018

AUCD Welcomes Brett Enneking as the 2018 Assistant Virtual Trainee

Brett Enneking is the 2018 Assistant Virtual Trainee for the Association of University Centers on Disabilities (AUCD), where she will participate in efforts to engage trainees across the AUCD network. She is currently a postdoctoral fellow in clinical psychology and a second-year trainee with Indiana's LEND program, the Riley Child Development Center (RCDC).

 
 

1/29/2018

Educate your Senators on the importance of the Money Follows the Person (MFP) Program

Help people living in nursing facilities and other institutional settings move back into their community!

The future of a program that has helped more than 75,000 seniors and individuals with disabilities move out of nursing homes and institutions is in jeopardy. Enacted in 2005 with strong bipartisan support, Money Follows the Person (MFP) is one of the longest running, most successful Medicaid demonstrations. Join AUCD and other national organizations in contacting Congress on February 1 & 2 to talk about the impact of this important and money-saving program.

 
 
Ellyn McNamara, Disability Studies IL LEND Trainee, screening a child for ASD.

1/26/2018

IL LEND Hosts Autism Community Screening Events for Families in Illinois

On October 1st, IL LEND post-doc, Robin Dodds, and Clinical Training Director, Ann Cutler, organized and supervised the first autism spectrum disorder (ASD) community screening event of the fall semester. The event was held at the Spectrum Toy Store in the north side of Chicago. Six LEND trainees - in a variety of disciplines - provided screenings and discussed steps for further diagnostic evaluation, when indicated. In collaboration with Grupo Salto, a family advocacy and support group for Latino families, a second screening event was held on October 21st for Spanish speaking families in the west side of Chicago. A third screening event was held in Urbana, Illinois in December.

 
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