Publications

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3/6/2019

Charting Your Course AUCD Toolkit

A Toolkit for New Directors of University Centers for Excellence in Developmental Disabilities (UCEDD)

This toolkit contains a series of concepts and exercises designed to help early stage UCEDD directors begin well in their roles. This toolkit is a complementary resource to the AUCD's UCEDD Resource Center (URC). The URC contains a treasure trove of resources for UCEDD Directors to learn and grow in their leadership. Most of the available resources provide guidance on many of the technical and regulatory issues related to the work of the UCEDD. This toolkit is designed to provide concepts, frameworks and tools that build that capacity of UCEDD directors for organizational and systems leadership.

 
 

1/30/2019

Education and Advocacy: Know the Difference

A guide for trainees

As experts with lived experience and knowledge gained from training, research, and direct practice, we have a responsibility to engage in policy education and systems change. It is important to understand the ways you can engage as a representative of a federally-funded training program and which actions should be reserved to your roles as private citizen.

 
 

1/24/2019

Keeping All Students Safe Act

America's schools should be places where every child is safe and protected. The practice of seclusion and restraint in schools exposes students to physical, developmental and emotional harm.

 
 

11/1/2018

About the Autism CARES Act

Fact Sheet for 2019 Reauthorization

If Congress does not take action to reauthorize funding, available funds for LEND and other initiatives funded under the Autism CARES Act will expire in September 2019. This would eliminate interdisciplinary diagnostic services for hundreds of thousands of children, training training tens of thousands of graduate students, and important research being conducted around the nation.

 
 

11/1/2018

State Level Policy Advocacy 101

Advocating for inclusive disability policy at the state and local levels is a great way to make positive change in your community. However, all advocacy is not created equal. It is important to advocate in the most useful, impactful way possible and in a way that will create change. This page will help guide you through things to consider when taking part in effective advocacy.

 
 

10/5/2018

Tuesdays With Liz Flyer

This one-page printable flyer for the AUCD "Tuesdays with Liz" YouTube show is intended for sharing on bulletin boards, in handouts, and anywhere people gather who would benefit from learning more about disability policy in a short, user-friendly format.

 
 

10/1/2018

Public Charge Policy Update

The Department of Homeland Security (DHS) posted a new draft of the "public charge" policy on September 22. Public charge is a term used by U.S. immigration officials to refer to a person who is considered primarily dependent on the government for subsistence.

 
 

10/1/2018

Sample Phone Script

For Calling Members of Congress

Sometimes calling your Congressmember can be scary. You may not know what to say or how to say it. This script from AUCD can be used for any concerns you may have; just fill in the blanks.

 
 

8/1/2018

Contacting Congress

A How-To

This short, easy-to-read document from AUCD explains the What, Why, Who, and How of Contacting Congress.

 
 

7/2/2018

Voting

Voting is one of the most important rights of a US citizen. It allows people to choose leaders they feel will best represent their needs on the local, state, and federal levels. You can make real change by being an educated voter in your community.

 
 

11/16/2017

Health Care Reform: A Research to Policy Brief

Written by: Christine Marcella Grosso, Kim Musheno, John Tschida, Denise Rozell, Adriane Griffen, AUCD

The Affordable Care Act (ACA) was signed into law on March 23, 2010. The main goals of this landmark health reform law are to: expand access to coverage, improve the quality of care, and make coverage more affordable. Since its passage, the ACA has extended health insurance coverage to approximately 20 million people and contributed toward slower growth of health care costs. The ACA contains many provisions intended to ensure accessible, comprehensive, affordable, non-discriminatory coverage for consumers, especially people with disabilities.

 
 

10/3/2017

Interdisciplinary Genetics Competencies for LEND Trainees

As recommended by the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Genetics Workgroup

The purpose of this document is to serve as resource for LEND programs for those programs desiring to strengthen their genetics content. It is not intended to serve as a mandate or requirement, but rather to provide specific guidance in achieving basic and advanced competencies in genetics.

 
 

9/26/2017

Obesity and Individuals with Intellectual and Developmental Disabilities

A Research to Policy Brief

Obesity is an increasingly common condition that is characterized by an increase in the number and size of fat cells in the body. Obesity rates are a concern for the general population, but research findings consistently report even higher rates of obesity among individuals with intellectual and developmental disabilities (IDD). The Centers for Disease Control and Prevention report approximately 35% of the general population is obese, while the rate of obesity among adults with IDD is as high as 58.5% in the United States. The consequences of obesity predispose adults with IDD to a greater risk of secondary health conditions that can impair their health status and quality of life.

 
 

9/20/2017

2017 AUCD Network Report

AUCD is fortunate to have such a committed network of experts and advocates who are engaged in the critical work of our diverse network. In this, our 2017 annual report, we've highlighted several of those individuals from all branches of the AUCD membership to reflect the many different ways they are accomplishing extraordinary things in their everyday work. They reflect the power and importance of lifting your voice. We know you will be as impressed as we are with their stories, and we invite you to join us as we work to advance the well-being of all people with disabilities and their families.

 
 

11/14/2016

HealthMatters for People with Intellectual and Developmental Disabilities: Building Communities of Practice for Health

A Research to Policy Brief from AUCD and UIC's RRTCDD

The emergence of accessible health promotion initiatives for people with intellectual and developmental disabilities (IDD) over the past 20 years demonstrates great promise for improving their health status. However, people with IDD continue to experience numerous age-related health issues and often lack control over environments and practices that impact their health. Determining successful scale-up processes of "what works" is critical in being able to achieve the goal of improved lives for the greatest number of people.

 
 

8/3/2016

Policy to Practice: Falls in Adults with Intellectual Disabilities

One out of every three adults aged 65 years or older in the general population falls at least once each year. For adults with intellectual disability (ID), the prevalence of falls is even higher with studies estimating a fall rate ranging from between 29% to 70%. Falls are a major cause of serious injury and hospitalization, and an important public health concern. Using baseline data from the Longitudinal Health and Intellectual Disability Study, we examined the prevalence of falls and potential risk factors for falls in adults with ID.

 
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