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Community of Practice Project (MO UCEDD, with NASDDDS, NACDD and HSRI)

This five year grant will identify and implement policies and practices that will serve as a national framework for states to use to support families with members with I/DD across the lifespan. 5 states will each form a team that is facilitated jointly by the state I/DD service system office and the state Council on Developmental Disabilities with additional membership from self-advocacy and family organizations, university, education, aging and other organizations.



'Parents Perspectives' Video Series from the OK UCEDD

This short video series features parents of children with intellectual and developmental disabilities or special health care needs. In the videos, parents share their perspectives on getting a disability diagnosis, supporting their children through transitions in the school system, and dealing with emergency personnel.



AUCD 2013: You're Invited

Promoting Inclusion in an Increasingly Diverse World

This Conference theme promotes our network values of inclusion of all persons with developmental and other disabilities in community life and engages the network in conversation and practices to ensure our work reflects the changing cultural and linguistic landscape in our Centers and States.



'Understanding a Down Syndrome Diagnosis' Booklet Available Through Kennedy Foundation and Kentucky's Human Development Institute

Copyright to the nationally lauded booklet has been donated to the The Joseph P. Kennedy, Jr. Foundation. The booklet continues to be available in print and as a free digital download through the Lettercase program at the University of Kentucky's Human Development Institute. Over 25,000 copies of Understanding a Down Syndrome Diagnosis have been distributed nationwide since 2008.

Kathy Roberson


Kathy Roberson (NJ UCEDD) Honored with Elizabeth Boggs Family Advocate Award

Kathy Roberson was recently honored with the Elizabeth Boggs Family Member Advocate Award by the NJ Council on Developmental Disabilities.



Former Trainee Alicia Curran Joins MoLEND as the Family Faculty

Alicia initially connected with the LEND when her family volunteered to have a trainee shadow them. The trainee matched with the Curran family "recruited" Alicia to apply as a family trainee; she was ultimately selected and finished the program in May 2012, when she began her employment with MoLEND.



Kathy Roberson Honored with Elizabeth Boggs Family Advocate Award by the NJ Council on Developmental Disabilities

The award honors a family member of an individual with a developmental disability who has shown outstanding advocacy efforts in the area of developmental disabilities.



Dr. Barbara Wheeler Presented with the Distinguished Professional Award from the Family Resource Centers Network of California

The Distinguished Professional has demonstrated unyielding commitment to ensure families have access to parent-to-parent support and resources throughout California.

Dr. Herbert J. Cohen, Director Emeritus of CERC


"CERC-ling" the Wagons: How Bronx Moms Helped Shape Needed Services

For any parent, finding out your child has disabilities changes your world forever. For a pioneering group of five women in the Bronx, Mary Bonsignore, Mary St. Mark, Dorothy Stone, Nellie Velez and Anna Mae Vener, the children who changed their worlds led them to the herculean undertaking of altering the world around them, so they could make a place for their children and others like them to live, learn, love and laugh - instead of being locked away in an institution.



Transplants for Children with Disabilities: Information for Parents

Developed by the Elizabeth M. Boggs Center on Developmental Disabilities at the UMDNJ Robert Wood Johnson Medical School, this pamphlet contains information for families of children with disabilities on organ transplants. Topics include advocacy, important things to know, medication and diet, school programs, and the federal law.



AUCD Partners with Exceptional Parent Magazine

This past fall, AUCD celebrated its 40th anniversary-a time to reflect on the accomplishments of the last four decades, face the challenges of today, and imagine the future. Throughout this milestone year, please look for future articles in Exceptional Parent that highlight and celebrate the great strengths and capacity of our AUCD Network and share strategies in research, education, and service that advance the journey towards equity and excellence.



Combating Autism Reauthorization: A Father Celebrates

Written by Michael Strautmanis, Deputy Assistant to the President, this article from The White House Blog describes one father's feelings on the President's signing of the Combating Autism Reauthorization Act.



'Mom Advocates for Child' - Cincinnati LEND Highlighted

One mom is learning how to be a more effective advocate for all children with disabilities through a training program at Cincinnati Children's Hospital Medical Center and the University of Cincinnati.



Family-Centered Inclusive Practices Represented in Interdisciplinary Clinical Evaluation Reports of Young Children Diagnosed with ASD and other Developmental Disabilities

The Institute on Disability UCEDD at the University of New Hampshire and the New Hampshire LEND are conducting a research project designed to identify exemplars of family-centered inclusive practices in interdisciplinary clinical evaluation reports for children diagnosed with an autism spectrum disorder or other developmental disability between the ages of 18 months and 5 years at the UNH Seacoast Child Development Clinic.



'Rosa's Law' Introduced to End Discriminatory Language

National Disability Organization Applauds Senators Mikulski and Enzi for its Introduction


80% Autism Divorce Rate Debunked by Kennedy Krieger Researchers

Having a child with autism can put stress on the parents: marriage, and a frequently cited statistic leads to a common perception that the divorce rate among these families is as high as 80%. But a study released by researchers from Kennedy Krieger Institute in Baltimore found that a child's autism has no effect on the family structure.

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