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1/12/2023

Iowa's UCEDD Leads EPSDT Shared Language Initiative

The Care for Kids grant program team at Iowa's Center for Disabilities and Development (CDD, Iowa's UCEDD) is leading a Shared Language Initiative to support the work of the state's Early and Periodic Screening, Diagnosis and Treatment (EPSDT) interagency stakeholder workgroup. The Shared Language Initiative is intended to develop a list of common terms and concepts to be used by our stakeholder workgroup and agencies to make it easier for patients, families, and providers to better understand EPSDT benefits and how they differ from other insurance benefits like CHIP. The Initiative will also support statewide efforts to promote EPSDT and its services, and meet EPSDT goals.

 
 

1/12/2023

Jennifer Sulewski Named Associate Director and Assistant Research Professor at the Institute on Disability

The Institute on Disability is pleased to announce that Jennifer Sulewski, PhD, has been named Associate Director of the Institute on Disability (IOD), as well as Assistant Research Professor. As a Senior Research Associate and Project Manager at the Institute for Community Inclusion (ICI) at UMass Boston, Sulewski brings knowledge and an interest in community life engagement, evaluation, community building, and employment services and supports to this new and unique position at the IOD.

 
 

1/12/2023

JFK Partners Approved for $2,780,297 Million for a Study Comparing Approaches of Two School-Based Interventions to Manage Anxiety in Autistic Students

Funds awarded by the Patient-Centered Outcomes Research Institute

A research team at University of Colorado School of Medicine, JFK Partners, led by Judy Reaven, Ph.D. has been approved for a $2,780,297 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) to study A Comparison of Two School-Based Interventions to Manage Anxiety in Autistic Students.

 
 

1/12/2023

Kentucky Employment First Welcomes Katie Wolf Whaley as New Council Chair

On December 2nd, 2022, Kentucky welcomed Katie Wolf Whaley as the new chair of Kentucky's Employment First Council. Employment First practices the idea that competitive integrated employment should be considered the first and primary option for people with disabilities who are eligible and desire to be employed. Simply put, it is the idea that everyone has the right to work!

 
 
Marnie Morneault, ME UCEDD Research Associate

1/12/2023

Marnie Morneault Appointed as Chair of Maine's Interagency Coordinating Council (ME UCEDD)

Marnie Morneault, a research associate from the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) has been appointed as Chair of Maine's Interagency Coordinating Council (ICC). The ICC is a required component of the early intervention system in every state.

 
 
Rachel Mulligan, the designer for the Munroe-Meyer Institute's holiday card, standing for a photo at the institute.

1/12/2023

MMI Showcases an Inclusive Holiday Scene

Rachel Mulligan, a part-time employee at the Munroe-Meyer Institute who loves to draw and create characters, is the designer of MMI�s holiday card for this year. Mulligan drew a winter scene that reflects characters with different disabilities, including one person who uses a wheelchair, someone with cerebral palsy who uses crutches and a person with autism who uses a voice box.

 
 

1/12/2023

MN LEND Fellow Elected to School Board

Kim Baker (MN LEND 2019-20), a special education supervisor and parent of three students with disabilities, was elected to the Lakeville (Minn.) Area School Board in November. Her four-year term begins January 1, 2023.

 
 

1/12/2023

PATHS Students Get Creative!

PATHS Program students participated in two art projects this semester. The first one was in October in awareness of Hispanic Heritage month, where students learned to work with crepe paper to make paper flowers. The November art project gave students the opportunity to prepare for Christmas. They learned to paint ceramic Christmas ornaments. It was the perfect time to relax and mentally prepare to finish the semester strong. All of the students did an amazing job!!!

 
 
A person tries out a white and blue

1/12/2023

Playtime is Serious Business

Everyone knows that the holiday season is one of the most popular times of year to buy toys. IOD blogger Kathy Bates wondered about the role of assistive technology in making toys easier and more fun to play with for children with disabilities. Discover what she learned in her latest blog post "Playtime is Serious Business."

 
 

1/12/2023

Sensory Bags Available for First Time at Texas A&M Graduation Ceremonies

St. Joseph Health Therapy partnered with the Center on Disability and Development at Texas A&M University to provide some help to people with sensory sensitivities.

 
 

1/12/2023

South Carolina LEND Trainee Receives Prestigious Genetic Counseling Award

Mr. Scott Dent, a 2nd year genetics counseling masters student and South Carolina LEND trainee has been recognized for excellence in his field.. The Jane Engelberg Memorial Fellowship Student Research Award is intended to support research in the profession that addresses advances in genetic technology, along with the ethical, legal, and social dimensions of genetics in medicine.

 
 

1/12/2023

The Ohio State University Nisonger Center Launches Project STEER

The Ohio State University Nisonger Center is proud to announce the launch of our Project STEER (Stakeholders Engaged in Early Intervention Research) website! The website contains a variety of resources related to early autism intervention research and consultation, including an early autism intervention Research Agenda created by our stakeholder teams, and a Consultation Workbook to guide researchers in their efforts to collaborate effectively with autism community stakeholders.

 
 

1/12/2023

UCCEDD Receives NIDILRR Grant to Study Ableism

The National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) has awarded the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) at Cincinnati Children's Hospital Medical Center (CCHMC) a Field Initiative (FI) Project Grant to study the impacts of internalized, interpersonal, and systemic ableism in healthcare services and systems.

 
 

1/12/2023

UNC ACL Initiative Supports Summits for Education and Employment

UNC Chapel Hill and the new ACL Initiative "Work Togther NC" Supports Summits for Education and Employment to further its efforts to expand opportunities for transition aged youth into meaningful work life experiences.

 
 
 Elise McMillan (gray haired woman wearing a white suit) hands a framed painting to Erik Carter (a tall man with salt and pepper hair and beard wearing a plaid button-down and khaki pants.)

1/12/2023

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Celebrates Special Education Professor Erik Carter's Student Mentorship, Community Impact Ahead of Departure

The Vanderbilt Kennedy Center (VKC) and the Vanderbilt Peabody College Department of Special Education held a joint farewell celebration on Dec. 14 to give their best wishes to longtime faculty member Erik Carter, Ph.D., as he prepares for the next phase of his career. Elise McMillan (gray haired woman wearing a white suit) hands a framed painting to Erik Carter (a tall man with salt and pepper hair and beard wearing a plaid button-down and khaki pants.)

 
 

1/10/2023

Spontaneously arising variants in FRMD5 gene are associated with a novel neurological disorder

A study led by Dr. Hugo Bellen, investigator at the Jan and Dan Duncan Neurological Research Institute (NRI) at Texas Children's Hospital (TCH) and distinguished service professor at the Baylor College of Medicine (BCM), reports de novo variants in a gene involved in regulating cellular motility to be the underlying cause of a new neurological disorder characterized by intellectual disability, motor dysfunction, seizures, abnormal eye movements etc.

 
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