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 A toddler-aged white boy with Down syndrome looks to the camera. He has straight brown hair, green eyes, and a red T-shirt.

5/17/2023

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Member Works to Improve Sleep Assessment in Down Syndrome Research

Vanderbilt Kennedy Center (VKC) member Sarika Peters, Ph.D., received a VKC Director's Strategic Priorities Grant to determine the feasibility of use of a wearable sensor to assess sleep in children (ages 4-10 years) with Down syndrome. Down syndrome is estimated to occur in 1 out of 700 babies and is associated with many co-occurring conditions including obstructive sleep apnea (OSA). OSA impacts between 50-79 percent of individuals with Down syndrome and the American Academy of Pediatrics recommends screening for OSA in children with Down syndrome starting at age 4.

 
 

5/17/2023

Vanessa Richard, the recipient of the Department of Educational Psychology's 2023 Excellence in Diversity

The CDD is pleased to announce that Vanessa Richard has been selected as the recipient of the Department of Educational Psychology's 2023 Excellence in Diversity, Equity, and Inclusion Award. This honor recognizes Vanessa's work with the CDD's Capacity-Building Project, the Texas Faith and Disability Network, and the Vaccine Acessibility for Individuals with Disabilities project, as well as her support of diversity and inclusion through campus and community activities.

 
 

5/16/2023

Aggie ACHIEVE Ring Day

On Friday, April 14 the seven juniors and four seniors from the Aggie ACHIEVE program received the first-ever Aggie ACHIEVE Rings in a ceremony at the Rec center at Texas A&M. The ACHIEVE Ring represents the students' dedication to excellence in their 4 year certificate program of Interdisciplinary Studies. We are so proud of each student's accomplishments!

 
 

5/16/2023

Centers for Medicare and Medicaid Services Proposes Two New Rules to Improve Medicaid and CHIP

The Centers for Medicare and Medicaid Services (CMS) have proposed two new rules that would improve the service and delivery of Medicaid and the Children's Health Insurance Program (CHIP), Ensuring Access to Medicaid Services and Medicaid and Children's Health Insurance Program Managed Care Access, Finance, and Quality. Both of the proposed rules aim to improve the access and quality of care, improve transparency, and address health inequity within Medicaid and Children's Health Insurance Program (CHIP).

 
 

5/16/2023

UW CHDD Promoted to UW IHDD with Sandra Juul as New Director

The University of Washington (UW) Center on Human Development and Disability (CHDD) has been renamed the UW Institute on Human Development and Disability (IHDD), with Dr. Sandra Juul appointed as the new Director. The IHDD is a research, service, and training center that aims to improve the lives of individuals with disabilities and their families through various programs and services, including diagnostic, assessment, and treatment services.

 
 

5/15/2023

Autism and the Dysregulated Arousal System

By Rebecca Grzadzinski, Kattia Mata, and Jose Rodriguez-Romaguera, The Carolina Institute for Developmental Disabilities - UNC IDDRC

How do babies learn to be social? Babies are born into the world with so much to learn, from basic body movements to complex communication and interaction skills. Philosopher John Locke believed that babies are born into the world as "blank slates" (tabula rasas)-everything to learn will be gained from their environment and experience1. Indeed, environment and experience are critical for learning-studies on enriched environments highlight this. However, research continues to highlight the influence of inherent characteristics, underlying neurobiology and genetics on how and what we learn or know. Researchers aim to understand what and how we learn by studying the dynamic interplay between inherent biological traits, physiological states, and the environment.

 
 

5/11/2023

The Center on Youth Voice, Youth Choice Expands its National Community of Practice of State Teams Advancing Alternatives to Guardianship

The Center on Youth Voice, Youth Choice (CYVYC) is delighted to announce its selection of three additional State Teams to join its national Community of Practice to promote alternatives to guardianship for youth with intellectual and developmental disabilities (I/DD). Nineteen teams from 15 States and the District of Columbia applied. The quality of the applications was excellent and revealed a deep interest in and commitment to Supported Decision-Making and its importance in the lives of transition-age youth.

 
 

5/9/2023

Western Carolina University University Participant Program First Postsecondary Program for Students with Intellectual Disability to be Accredited by New Agency

The Institute for Community Inclusion's (ICI) Think College and the Inclusive Higher Education Accreditation Council (IHEAC), a new accrediting agency for postsecondary programs for students with intellectual disability (ID), jointly announced today that the Western Carolina University (WCU) University Participant (UP) Program is now fully accredited for the next seven years. The WCU UP program is the first program to be accredited by the council.

 
 

5/8/2023

Disability Policy News

AUCD, Disability Policy News, every MondayCongress; HCBS; Energy and Commerce; Mentorship; Autism; COVID-19

 
 

5/3/2023

EDI-Self-Report (EDI-SR) Survey

The purpose of this new research study is to create a questionnaire known as the EDI-Self-Report (EDI-SR). This project is funded by the Eunice Shriver National Institute of Child Health & Human Development (NICHD). The EDI-SR was designed to measure emotional experiences in autistic teens and adults and teens and adults with other intellectual and developmental disabilities (IDD). This study is enrolling individuals ages 11 and older who are autistic or have an intellectual or developmental disability (IDD) and their parents/caregivers, as well as individuals without these diagnoses. Individuals must be current United States residents to participate.

 
 

4/28/2023

AUCD 360 - April 2023

 
 
 Jacy Farkas, assistant director of the UArizona Sonoran Center for Excellence in Disabilities, and Wendy Parent-Johnson, executive director of the UArizona Sonoran Center for Excellence in Disabilities holding UArizona Diversity, Equity and Inclusio

4/25/2023

Sonoran Center for Excellence in Disabilities Recognized with University of Arizona Diversity, Equity, and Inclusion Awards

At a ceremony on March 2, 2023, the University of Arizona Sonoran Center for Excellence in Disabilities was awarded the 2023 College of Medicine - Tucson Departmental Excellence in Diversity, Equity, and Inclusion Award for its outstanding excellence in the management of its people and resources, including its progress in building an inclusive workplace.

 
 
The Sonoran Center for Excellence in Disabilities, along with the Center for Transformative Interprofessional Healthcare, utilize a virtual Interprofessional Education Event on Disability, to ready Health Sciences students to care for patients.

4/25/2023

Sonoran Center Trains Students to Close Disability Care Gaps

Most people receive care from a variety of health professionals throughout their lives, including doctors, nurses, pharmacists, dietitians, people who run public health programs, and more. Unfortunately, not all of these professionals have experience providing care to people with disabilities. The Sonoran Center for Excellence in Disabilities in the Department of Family & Community Medicine in the College of Medicine - Tucson works to ensure that future health care providers are prepared for some of the unique challenges they may face.

 
 

4/25/2023

The Disability Employment TA Center (DETAC)

The Disability Employment TA Center (DETAC) is a five-year federally funded national Technical Assistance Center that provides training and technical assistance to Centers for Independent Living, Councils on Developmental Disabilities, University Centers for Excellence in Developmental Disabilities, Education, Research, and Service, Protection and Advocacy entities, Traumatic Brain Injury Centers, and Projects of National Significance.

 
 

4/24/2023

Disability Policy News

AUCD, Disability Policy News, every MondayCongress; Budget; Medicaid; HCBS; Education

 
 
MN LEND fellow Sanju Koirala (right) and her advisor, Damien Fair.

4/24/2023

Harnessing Uniqueness: MNLEND Fellow Leverages Neuroscience Advances to Explore Brain-Behavior Links

A MN LEND fellow searches neuroimaging databases for patterns that could lead to more personalized and effective strategies for regulating emotions, or developing social cognition, among other skills.

 
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