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5/27/2018

2016 Equal Justice Works AmeriCorps JD Program (MD UCEDD/LEND)

Brian Paxton, a rising third-year law student at the University of Maryland Francis King Carey School of Law, was accepted into the 2016 Equal Justice Works AmeriCorps JD Program, to work 300 hours with Project HEAL (Health, Education, Advocacy, and Law) at Kennedy Krieger Institute in Baltimore, MD.

 
 

4/23/2018

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.

 
 

4/20/2018

Autism CARES Webinar Series: Call for Presenters

In the coming months, ITAC and SPHARC (with support from HRSA-MCHB and a planning committee of Autism CARES grantees) will host a three-part webinar series; the theme is: "Autism in the Context of Ableism: Culture, Identity, and Quality of Life." The committee is currently seeking input for a solution-focused panel of grantees (and representatives from outside organizations) who can share best practices, innovative approaches, and lessons learned with respect to addressing ableism across contexts.

 
 

4/20/2018

Changes in Intrinsic Local Connectivity After Reading Intervention in Children with Autism

Most of the existing behavioral and cognitive intervention programs in autism spectrum disorders (ASD) have not been tested at the neurobiological level, thus falling short of finding quantifiable neurobiological changes underlying behavioral improvement.

 
 

4/20/2018

Changes in Intrinsic Local Connectivity After Reading Intervention in Children with Autism

Most of the existing behavioral and cognitive intervention programs in autism spectrum disorders (ASD) have not been tested at the neurobiological level, thus falling short of finding quantifiable neurobiological changes underlying behavioral improvement.

 
 

4/20/2018

Review of Autism Screeners for Very Young Children with or at Risk for Autism Spectrum Disorders

Screening for autism spectrum disorders (ASD) at 18 and 24 months has been a standard American Academy of Pediatrics recommendation since 2007. However, research over the last two decades about the early emergence of autism symptoms has prompted a number of researchers and clinicians to create screening instruments and strategies for earlier ages.

 
 

4/19/2018

AIR-B Network Activities

The Autism Intervention Research Network for Behavioral Health (AIR-B) provides a free annual community conference to increase awareness of autism services, current research, and evidence-based interventions in the local regions of each of its network partners: University of Pennsylvania, UC Davis MIND Institute, University of Rochester, and University of California, Los Angeles. Experts in the network share their expertise and invite other prominent autism advocates to discuss topics ranging from non-clinical based autism interventions, to parent advocacy, to school-based transition supports for students with autism.

 
 

4/19/2018

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on reaching underserved communities.

 
 

4/19/2018

Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .

 
 

4/19/2018

Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .

 
 

4/19/2018

Better Together: Developmental Screening and Monitoring Best Identify Children who Need Early Intervention

Children at risk of developmental disabilities or delays who receive both monitoring and screening are more likely to receive the early interventions they need than their peers who receive either monitoring or screening, according to a study led by Dr. Brian Barger-a researcher at the Georgia State University and Policy Fellow with the "Learn the Signs. Act Early." team at NCBDD.

 
 

4/19/2018

IACC Summary of Advances in Autism Spectrum Disorder Research 2017

The 2017 Summary of Advances provides short, plain language summaries of the top 20 research articles selected by the Interagency Autism Coordinating Committee (IACC). The studies selected for 2017 have provided new insight into potential biomarkers to predict risk of autism spectrum disorder (ASD), developmental trajectories of children with ASD, and the impact of the various prenatal exposures on ASD risk. The advances also include studies that investigated treatments and interventions for both ASD and co-occurring conditions, the impact of policy changes on ASD health care spending, patterns of injury mortality, and prevalence differences across demographic groups.

 
 

4/19/2018

NJLEND Presents Twice Born: Stories from the Special Delivery Unit

New Jersey's Leadership Education in Neurodevelopmental and Related Disabilities program (NJLEND) at Rutgers University, hosted Twice Born: Stories from the Special Delivery Unit, a continuing education event highlighting the principles of family-centered care. The session shed light on one family's experience with fetal surgery, the intricacies of navigating the healthcare system, and the complex relationships between healthcare professionals and parents as shown in the Emmy Award-winning PBS series.

 
 

4/19/2018

Transitions Over the Life Course For Individuals with Autism

Early identification of and intervention for autism spectrum disorder (ASD) have traditionally garnered a significant portion of public attention and spending. However, with an estimated 60,000 youth on the autism spectrum turning 18 years old in 2016*, understanding the factors associated with risk and resilience in adulthood is of significant public health importance. Notably, both research and anecdotal accounts indicate that adults with autism tend to suffer from poor life course outcomes, including but not limited to unemployment, underemployment, and social disengagement. The Health Care Transitions Research Network (HCTRN) was thus designed as an interdisciplinary, multi-center research forum for scientific collaboration and infrastructure-building, with a focus on research designed to improve health care transitions and promote an optimal transition to adulthood among youth and young adults with ASD .

 
 

4/19/2018

Update from the Division of MCH Workforce Development

Autism Awareness Month is a perfect time to acknowledge the many ways in which the Autism CARES grantees make a difference in the lives of children with ASD and other developmental disabilities (DD), and their families. This quarter's MCHB Minute is about our gratitude for all that you do!

 
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