Developments, December 2012
Monday, December 10, 2012
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Developments is a newsletter for CAAI programs funded under MCHB. The content of this newsletter has been generated by program staff and trainees, and does not necessarily reflect the views and policies of HRSA-MCHB. No official support or endorsement by HRSA-MCHB is intended or should be inferred. This publication is funded in part by cooperative agreement #UA5MC11068.
 AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910
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When Misti Moxley realized that her son's high functioning autism diagnosis might keep him from having an overnight summer camp experience, she saw an opportunity, not a barrier. She and her husband founded ASD Oregon, a non-profit organization that hosts the only summer camp specifically for children with high functioning autism spectrum disorders in the Pacific Northwest... 
The Riley Child Development Center (Indiana LEND) hosted the 2012 LEND Great Lakes Collaboration annual regional meeting in Indianapolis. The goal of the 2012 Forum was to bring together trainees, community partners and faculty to share ideas to influence practice, policy, intervention, and advocacy in the area of autism identification, screening/assessment, and intervention/services. In addition to the four Great Lakes LEND programs, representatives from the UCEDD programs at the University of Puerto Rico and Wayne State University participated in the day long forum... 
This year long project is being conducted in conjunction with ACHIEVA (Arc of Greater Pittsburgh). Parent-focused topics include "Navigating the Medical System" and continuing education topics include "Autism and Epilepsy" and "Autism and "Genetics and Autism." The medical topics are aimed at addressing the need for... 
A consortium of five pediatric hospitals that are geographically-distributed throughout the US have been awarded a five-year project, funded by the National Institutes of Neurological Disorders and Stroke (NINDS). The project, TSC Autism Center of Excellence Research Network (TACERN), is aimed at elucidating biomarkers of autism... 
A new instructional video produced by the University of Cincinnati University Center for Excellence in Developmental Disabilities illustrates how to use the Autism Case Training (ACT) Modules created by the Centers for Disease Control and Prevention (CDC) in training pediatric and Family Medicine residents... 
Georgetown's project, "Improved Early Identification of Autism in Latino Children," funded by the Maternal and Child Health Bureau (MCHB) at the Health Resources and Services Administration (HRSA), grew out of disquiet about disparities in access to developmental services in Washington among D.C. delegates to the Act Early Region III Summit in 2010. One of the goals that emerged from the summit was to increase screening for Autism Spectrum Disorders (ASD) among Washington's largely Central American immigrant families... 
The Family Implemented TEACCH for Toddlers study (FITT) recently finished its first of three funded years and the team has many accomplishments to celebrate. Based on structured teaching and naturalistic strategies, this family-implemented approach provides coaching and support for families to increase interaction and engagement with their young children with ASD across daily routines... 
Obstructive sleep apnea (OSA) in individuals with Down syndrome is associated with multiple morbidities: systemic and pulmonary hypertension, glucose intolerance, cardiovascular and cerebrovascular disease, and behavioral problems. The prevalence of OSA in this population is very high, with estimates ranging between... 
In 2008, Maine began an ASD Systems Change Initiative sponsored by the Commissioners of Education, Labor and Health and Human Services. The ASD initiative was charged with analyzing the multiple systems of care that individuals with ASD and their families had to navigate. The work began by analyzing... 
Autism NOW has recently released its first video in its Autism NOW Answers Series. Each month experts will answer questions about autism and developmental disabilities... 
Twenty-three percent of adults are already the primary caregiver for their adult brother or sister with a disability. The new Easter Seals Siblings Study calls attention to the experiences of siblings as caregivers, and the services and supports families need... 
The National Youth Leadership Network is excited to promote our new curriculum - Reap What You Sow: Harvesting Support Systems. Our curriculum was created by disability rights activities, family members, and community allies. The curriculum teaches participants how to set goals, build support system (a network of people in your life that support you), and find power among an inclusive community... 
Tory previously worked on the CDC Cooperative Agreement and brings her experience to the ITAC team, providing technical assistance to LEND and other MCH grantees on topics in autism and developmental disabilities, including the "Learn the Signs. Act Early." Campaign and Ambassadors... 
The Training Toolbox makes it easy for program staff to browse and share innovative and time-tested training strategies on a variety of topics relevant to leadership and Maternal and Child Health... 
The "Learn the Signs. Act Early." Ambassador project... 
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