AUCD Celebrates Minority Health Month

April 15, 2013


In accordance with the vision for people living with developmental and other disabilities to have a future in which culturally appropriate supports are universally available across the lifespan that lead to a healthy quality of life, AUCD celebrates Minority Health Month. Learn about some of the network's targeted efforts in education, research, and service aimed at reducing racial and ethnic health disparities at the intersection of disability and minority health.

Training Tomorrow's Leaders Strengthening the Workforce

MCH Leadership Education in Neurodevelopmental and other Related Disabilities

AL-Civitan International Research Center, UCEDD/LEND

This project will improve the health status of infants, children, and adolescents with neurodevelopmental and related disabilities, leadership education for professionals in appropriate disciplines, continuing education, technical assistance, and interagency consultation. This education focuses on clinical competence and leadership abilities and will include 1)educating/training graduate students employing a core curriculum of interdisciplinary, clinical, and leadership skills, 2)providing leadership education which emphasizes interdisciplinary, family centered, culturally appropriate, comprehensive case management services, 3) developing research awareness, 4) participating as members of community advisory boards, state planning committees, state and local task forces, regional planning committees, and other panels dedicated to the improvement of children's health consistent with the Healthy People 2010 Objective and Bright Futures Guidelines.   Read more....


CDC_MCHC RISE-UP National Minority Undergraduate Training Program

CA-USC, Childrens Hospital, UCEDD/LEND

The Maternal and Child Health Careers/Research Initiatives for Student Enhancement (MCHC/RISE-UP) Program provides undergraduate students from disadvantaged and/or under-represented racial and ethnic groups with opportunities for enhanced public health and related training to encourage and support the pursuit of graduate degrees in public health and related fields. Funding from this program is from the Centers for Disease Control and Prevention National Minority Undergraduate Program and was awarded to the Kennedy Krieger Institute (KKI) at Johns Hopkins University. MCHC/RISE-up is a consortium of three UCEDD/LEND programs at KKI (Baltimore, MD), the University of South Dakota, and the USC UCEDD at Children's Hospital Los Angeles and their university partners of Historically Black Colleges and Universities, Minority Serving Institutions, and Tribal Colleges.Read more....


GaLEND Program

GA-Center for Leadership in Disability at Georgia State University, UCEDD/LEND

The Georgia Leadership Education in Neurodevelopmental and Related Disabilities (GaLEND) Interdisciplinary Training Program is a one-year training program that incorporates didactic and experiential learning in clinical and community-based settings. This program prepares future leaders to serve children with neurodevelopmental and related disabilities and their families through coordinated, culturally competent, and family-centered care, as well as through public health services and policy systems change. The GaLEND Program operates in collaboration with the Satcher Health Leadership Institute at Morehouse School of Medicine (MSM), and the National Center on Birth Defects and Developmental Disabilities of the Centers for Disease Control and Prevention (CDC). These and other community partners offer the expert faculty and resources necessary to provide exceptional interdisciplinary training and services. Read more....


New Hampshire Leadership Education in Neurodevelopmental Disabilities Program

NH-New Hampshire LEND Program

The purpose of the NH LEND Program matches that of MCH: improving the health of infants, children, and adolescents who have, or are at risk for developing, neurodevelopmental and other related disabilities by: 1) preparing trainees from a wide variety of professional disciplines to assume leadership roles; 2) to ensure high levels of interdisciplinary clinical competence; and, 3) assure a culturally diverse workforce. The NH LEND Program will increase the numbers of leaders in the MCH workforce, with the particular intention to address health outcome disparities for children with NDD and Autism Spectrum Disorders in our region and nationally.Read more....


Leadership Education in Neurodevelopmental Disabilities

FL-Mailman Center for Child Development, UCEDD/LEND

The purpose of this Leadership Education in Neurodevelopmental Disabilities (LEND) application is to advance a currently vibrant training program that for 40 years has developed a skilled workforce of professionals dedicated to improving the health of children who have or are at risk for developing NDD/ASD. Goals include to (1) increase the number and diversity of leaders qualified to provide family-centered, interdisciplinary, culturally competent services; (2) increase the number of leaders who can evaluate and develop public policy and can (3) conduct research and integrate it into clinical programs and systems of care; (4) provide continuing education and technical assistance; and (5) improve local systems of care.Read more....


AL State University Maternal and Child Health Pipeline Training Program

AL-Civitan International Research Center, UCEDD/LEND

Consistent with the purpose of the Maternal and Child Health Pipeline Training Program (MCHPT), Alabama State University (ASU) proposes to implement a training program that will promote the development of a culturally diverse and representative MCH public health care workforce by recruiting, training and retaining students from under-represented minorities into careers in maternal and child health (MCH). ASU will collaborate with the University of Alabama at Birmingham's (UAB) MCH long-term training programs to promote interest in MCH public health careers among ASU students who are from an under-represented minority group.Read more....

Advancing Policy, Research & Best Practice

Project Karinu - Cultural & Linguistic Competency

GU-Guam Center for Excellence in Disabilities Education, UCEDD

Guam CEDDERS assumed primary responsibility for the coordination of the Cultural and Linguistic Competence (CLC) component as specified in the approved Guam Department of Public Health and Social Services Early Childhood Mental Health System of Care "Project Karinu" to help ensure that federal requirements for cultural and linguistic competence of the Comprehensive Community Mental Health Services for Children and Their Families are met. Guam CEDDERS worked jointly with Project Karinu staff and stakeholders to develop and implement the CLC Plan, policies and procedures that orient and train all stakeholders on system of care values and principles to include the rationale and purpose for promoting cultural and linguistic competence.Read more....


Health Disparities-Disability Rehabilitation Research Project

NH-Institute on Disability, UCEDD

A growing body of research has documented that persons with disabilities are more likely to experience health disparities compared to the general population. The Disability and Rehabilitation Research Project: Health and Health Care Disparities Among Individuals with Disabilities project will extend this research by determining what factors relate to or explain health outcomes and health care access among the diverse populations of individuals with disabilities. The goal of the Health Disparities Project is to generate new knowledge about health access and health outcomes among sub-groups of people with disabilities and translate and disseminate the findings for researchers, policy makers, and others.Read more....


Addressing Health Disparities at the Intersection of Race/Ethnicity & Disability

OR-Oregon Institute on Disability & Development, UCEDD/LEND 

The three-year project will have four major components: (1) A review and synthesis of existing efforts to reduce racial and ethnic disparities in health care and wellness promotion, with a focus on examining whether these efforts explicitly include people with disabilities. (2) Secondary data analysis using data from the Medical Expenditure Panel Survey (MEPS) and the Survey of Income and Program Participation (SIPP) to determine how disability type, severity, duration, and permanence interact with race and ethnicity to affect access to and quality of care. (3) Identification of specific barriers to health care through: a) a systematic review of existing literature; and b) focus groups with adults with disabilities from underserved racial and ethnic groups. (4) Translation of research findings into recommendations to improve access to and quality of health care and health promotion programs for adults with disabilities from underserved racial and ethnic groups. The culmination of the project will be a national summit to present project findings and recommendations to health researchers, health care providers, public health professionals, policy makers, and advocates. Read more....


Physical Frailty in Older Urban African Americans

OR-Oregon Institute on Disability & Development, UCEDD/LEND

Disablement in general and lower body functional problems in particular, occurs in physical and social contexts. Neighborhood conditions have been shown to predict incident lower body functional problems. Therefore, we examine the association of adverse neighborhood (block face) and individual risk factors on disability among persons with and those without diabetes using data from the African American Health (AAH) project, a longitudinal study of African Americans aged 49-65 years at baseline. Briefly, the AAH is a population-based cohort study of 998 African Americans with recruitment starting in 2000. All subjects lived in either a poor, inner-city area (St. Louis) or less impoverished and more heterogeneous suburbs just northwest of the City of St. Louis. Sampling involved random selection of first, street segments within block groups, and then housing units within each selected street segment. Professional interviewers (two thirds of whom were African American) with extensive project-specific training contacted households in-person. Follow-up in-home interviews were conducted 36 months after baseline assessments. Of the 998 persons who participated at baseline, 853 were successfully interviewed at follow-up.Read more....


Project Serve: A Service Learning Experience with an Emphasis on Enhancing Student Healthcare Providers' Cultural Competency and Communication Skills

FL-Mailman Center for Child Development, UCEDD/LEND

This study aims to address this gap in the literature in an effort to investigate the efficacy of service learning opportunities, like Project Serve, in improving communication skills and understanding of the social determinants of health.Read more....


Disparities in the clinical encounter: Virginia's African American children with special health care needs.

VA-Partnership for People with Disabilities, UCEDD/LEND

This study analyzed Virginia data from the most recent National Survey of Children with Special Health Care Needs. Logisticregression models were run for six Maternal and Child Health Bureau core outcomes and included demographics, childcharacteristics, health care providers, and health care access variables as predictors. Race/ethnicity disparities were judged tobe present if the race/ethnicity variable was a significant predictor in the final model. Examining the components of disparateoutcomes, African American children were found to be less likely than their white counterparts to have a usual source for sick andpreventive care and to have a personal doctor or nurse. Their parents were less likely to say that doctors spent enough time, listenedcarefully, were sensitive to values and customs, and made them feel like a partner. These findings emphasize the need to examinehealth care disparities at a state level in order to guide efforts at remediation. Read more (PDF) ....


Asia-United States Partnership

HI-Center on Disability Studies, UCEDD/LEND

The goal is to expand the vision of integrated services by improving ECD and primary care through convening Early Child Development in Primary Care network.Read more....

Services & Resources

MICS (MS Integrated Community Systems for CSHCN and Families)

MS - Institute for Disablity Studies, UCEDD

MS Integrated Community Systems for children and youth with special health care needs - to create a seamless system of family centered community based culturally competent services and supports for CYSHCN and families.Read more....


BHIP - Be Healthy Information Program

OH-The Nisonger Center, UCEDD/LEND

The Behavioral Health Information Program (B-HIP) was developed to help children and adults with disabilities better understand how to live a healthy lifestyle and the relationship between healthy behavior and feeling healthy. Brochures were written to provide information and resources in an accessible and appealing format for children and adults with developmental disabilities and their caregivers. B-HIP will allow people with disabilities to learn more about their health and how to adopt new skills so they may engage in healthier behaviors. Six brochures were developed addressing topics of particular relevance to this population: nutrition, oral health, physical activity, sleep, and protection from abuse and exploitation. These colorful brochures offer information about the problems faced by children and adults with disabilities, ideas on how to overcome these problems, and suggestions on improving behavior.Read more....


Health Disparities Chart Book on Disability

NH-Institute on Disability, UCEDD

The purpose of the Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States is to answer the question of whether working age (18-64) people with disabilities in the United States experience health disparities similar to those experienced by members of racial and ethnic minority groups in the United States. Because of the perception that disability is solely an aging phenomenon, we limited our analysis to people of working age. Relatively little research has been conducted comparing the health of people with disabilities to that of people from racial and ethnic minority groups. However, research has consistently documented that, as a group, people with disabilities experience worse health than the general population. Specifically, people with a variety of physical and cognitive disabilities are more likely to experience poorer health status, potentially preventable secondary conditions, chronic conditions, and early deaths.Read more....


Cultural Competence for Health Care Providers Manual

VT-Interdisciplinary Leadership Education Program for Health Professionals, LEND

Vermont developed a Cultural and Linguistic Competence training model that focuses on health disparities. The poster session will include core components of the training and review data attesting to the model's effectiveness in increasing providers' knowledge. Data analyses revealed significant increases in participants' knowledge relating to the difference in net worth between US white and black families of similar incomes (53% pre vs. 71% post, p=.04), race identification (33% pre vs. 93% post), genetic variation (24% pre vs. 100% post), and genetic similarity of groups (5% pre vs. 97% post), among other topics.Read more (PDF)...