2012 Annual Meeting Minutes

January 2, 2013


CIS Annual Meeting

AUCD Conference
Washington Hilton

December 2, 2012



Amy Hewitt, Minnesota

Kelly Nye-Lengerman, Minnesota

Hilliary Licclni, South Dakota,

Lann Thompson, Indiana

Donna Yurby  , North Carolina

Mary Bowem, New Mexico

Rebecca Carmen, AUCD

Shanaon Hayworth, Virginia, LEND Fellow

Matt Braun, Kansas

Jason Kavin, Georgia

Linda Rambler, Connecticutt



Julie Foder, Conf Chair, Incoming AUCD Board President

George Jeson, AUCD Executive Director



Technology blog update

Last year the CIS conducted a network survey of programs who were using technology in their programs in creative ways.  Members of the CIS posted a report focusing their findings.  As a result the CIS started a technology blog highlighting exciting and promising technology across the AUCD network.  You can read the blog and review the CIS Technology report at cisaucd.org. 


If you have any thoughts, suggestions, or contributions please contact Kelly Nye-Lengerman at knye@umn.edu


Special thanks for Rebecca Carman for assisting in setting up this blog. 


State Updates


·         Using remote telehealth

·         Avatar research program on kids with ASD.

·         Georgia, do have remote telehealth.  LEND trainee watch as observers. 

·         Provide ipads to children with ASD and give kids cue to participate in social activities. 1 Funding, 2 maintenance cost or replacement cost. 



·         Gave families laptops, worked with families recorded the sessions with interdisciplinary teams, that they would be able to see multiple times. 


·         Technology and infrastructure exists but its underutilized.  And it's a shift in cultural change.  Different types of exams can be preformed via telehealth.




·         Uses Facebook and twitter for girls group Braun is a contact for this.

·         Also uses an app in their clinical work, contact Renee Jamison.

·         Research study using GPS for monitoring children with ASD who elope.



·         Medicaid reimbursement for telemedicine, credential and HIPAA

compliance with Beaconess hospital. Even when reimbursed, not covered.

·         Families love this because they do no have to drive.

·         Grand rounds are recorded and trainees can go on and see these.



·         Broadcast events, trainees facilitate webinar to reach out state MN,

university has infrastructure that makes this easy. Special events

·         LTSAE event up on the LEND website

·         Check and Connect

·         College of Direct Support asynchronous learning with effective

record keeping through LMS and the use of on line training and testing that

is measuring the improved outcomes of training CIS technology




·         Connecticut feel they are at the infancy stages of developing new idea



·         LEND trainees all got iPads and training on how do we use them.  

·         Focus on specific apps to test such as apps from CDC drug interaction, med ex

·         Interdisciplinary clinic child bused into school and Mom at home we Skyped in Mom for interdisciplinary consult - used technology



·         Used distance technology for diagnostic consult for ASD diagnosis- clinicians could give input from offsite.

·         avatar program with high schools to teach how's to interact with students for a suicide prevention

·         smart ponds, iPhones and iPads to advocate for self using simple technology

·         Taught self advocacy skills through technology- pens, ipads, iphones, video modeling. 

·         used sounding board because it is less expensive (compared to quidlo pro to go)




·         Use telehealth sporadically. Consult and TA and not direct clinical observation of a patient.  Underutilized. Concerns about secure upload and storage of video.  We are doing more web-based training.  Video coaching for parents-challenging catching the actual behaviors. 

·         some work with schools who capture video and share for consult. Fall

·         back on mail and hard copy to make this happen




·         ipad clinical usage with students who are non verbal. 

·         Interdisciplinary clinic in for hearing impaired students. 


Final thoughts


·         Overlap with AAC movement.  Coleman Institute.  Dave Bradico.  Interdisciplinary engineering. 

·         Evaluating how we use technology.  Do people use it.  Measuring how they use it, what does it change, does it lead to sustained outcomes. 



Funding for interdisciplinary services

Sent out three requests for information regarding CIS funding. Will

send out one more time to a broader list that includes CIS, Directors,

Associate Directors and Training Directors.  Council members felt we

needed to try one more time.



From the data currently gathered themes that have emerged:

·         Many are not paid for interdisciplinary services but they offer a very

small number of clinical services to a small number of people for a training options for fellows. Others get Medicaid dollars to cover

·         very small portion of the costs and then they are supplementing

·         Military reimburses better then Medicaid and some use fee for service.

·         WI Waisman and UCLA both have pretty significant involvement of

interdisciplinary services offered.

·         Some members noted no wait lists for ASD assessment and others

mentioned two year wait lists; there was a lot of difference.

·         There is a challenge of pitching the value of interdisciplinary.

·         CIS members suggested identifying the various options and then having

a resource list of names and models where network members can go for

further information.


AUCD Welcome

Karen Fodor welcomed everyone and thanked them for their volunteer

work. George Jesien encouraged evaluation of the conference and

communicating to the BOD through the BOD liaison. Also shared

information on the CRPD problem and how AUCD will be addressing this.


AUCD's 2013 Theme:

Theme of Cultural Diversity-AUCD is going to take on a cultural competence (internal and external) initiative.  With urging from MCHB about diversifying our programs. 



The AUCD bylaws make it challenging to have diversity on the Board of directors (Director, Associate Director, or Committee Chair is eligible for a board seat).  We want more culturally diverse leadership. 


VA-Cultural Brokers- 5 hours per month for a year.  Increase cultural competency, be a  trainee, family navigator,  Interdisciplinary teamwork class helped bring up the idea of differences in cultural responses to disabilities.   Broadened our view as trainees about where it is needed. 


We specifically recruited  for family leadership training groups who we need had access to diverse groups in order to increase our reach.  Challenge of fidelity (any service is good services)  Need technical assistance and support- to help


KS- recruiting trainees, we capture SES and life experience, as examples of diversity.  We need a broad range definition.  Urban vs. Rural.


MN- uses Office of Cultural Diversity at the U of M, and heavily targets student organizations for recruitment of LEND Fellows. 


ND- cultural liaison position to reach out to tribes in the state.  making connections to different groups.  Relationship building takes times. 


Historically, not an "assigned role" in a UCEDD.  Challenge- using the right terminology-tribes vs. nations, Hispanic vs. Latino.


KS- has a data base which collects county and race, we can take that data and compare it to state data.  We were then able to target specific counties who could benefit from services/supports. 


Miscellaneous  Thoughts-


·         Cultural diversity theme over the next year as a priority of the

BOD, what are the implications for CIS.


·         Cultural brokers in interdisciplinary teamwork - differences and

access to treatment, cultural responses to disabilities. The role of a

cultural broker on interdisciplinary teams.

·         CT recruited people to participate I. Parent leadership training

from diverse communities and fidelity to interventions post training.

·         Focus training evaluation on outcomes assessment.  Provide support to

cultural brokers.

·         Adopt a broader definition of cultural competence such as the

·         Georgetown definition. Looking at SES, military, various types of

families, bi-racial

·         Utilization of resources on campus to increase cultural diversity

and cultural competence.


Affordable care Act Discussion

Interdisciplinary services in context of medical home and healthcare

reform through the affordable care act and managed care.


·         Some are thinking there opportunity because people will have more

care through Medicaid or pooled care. More opportunity.

·         Biggest challenges in NM even now with insurance mandate we do not

have the professionals to address these issues.

·         In clinical services the electronic medical record is a big problem and how do we share this info?  More long term services we need access to this.

·         ASD planning grant how to implement medical home from community

health (0-3) and public health (Medicaid infrastructure)  , what will

this look like? This is apart of planning grant.

·         More mandates in qualifications for providers and in ND we do not

have the professionals, the infrastructure is not there.


BCBA and other behavioral approaches

- having enough providers is a challenge in many states

- other disciplines cannot be third party reimbursed

- this plays out between educators and behavior practitioners


VA- Its an opportunity as more will have access to care.  Greater opportunity for teams to be built around.  VCU has one clinic record. 


NM - opportunity yes.  We don't have the professionals to staff services.   And getting folks on EBP or practice tracks.  Electronic Medical Records- need to share between team members.  There is a big push on using EMR, but don't have the infrastructure. 


NC the EMR has been a challenge for interdisciplinary as the records don't always match.  Have had to modify what's recorded.


MN land of HMO and has always used EMR.   Long term care services have been carved out, and that will be changing. 


GA- How to implement Medical Home.  Planning with dept of public health and community health asking them how would you want to see this designed.  Used planning grant to seek feedback. 


Fear of mandates without enough providers.  Not enough resources to meet the need due to lack of infrastructure. 


In home practitioner providers- don't have to be BCBA and are there quality issues.  They are developing a new credential RBT to help fill those gaps. 



Final Thoughts-

·         Vice Chancellor of Diversity-assist with recruitment.  Pipeline grants. 


·         Pipeline of leadership for CIS. 


·         MCHB giving pressure to increase diversity numbers in both recruitments for trainees and faculty. 


·         Can sometimes be very challenging to find diverse faculty---and have expertise in disability.