Another Key Piece to the Overall Strategy for Cross Systems Data Collection and Integration in Colorado

November 14, 2012

The Colorado Department of Public Health and Environment (CDPHE) is a partner in Project CASCADE (Collaborative Addressing System Change in ASD and other DEvelopmental disabilities).  Project CASCADE proposes to build upon the state's infrastructure for sharing electronic screening records. This involves CDPHE's Integrated Data System (IDS) to maintain client records. IDS includes electronic birth records, newborn screening results, and Colorado Responds to Children with Special Needs (CRCSN) data. Each program has its own IDS application (e.g., Early Hearing Detection and Intervention (EHDI) IDS).

The Colorado Immunization Information System (CIIS - immunization registry) is in the process of adding the newborn screening and newborn hearing screening results to the platform to allow primary care providers to see the screening results in a timely manner to support the medical home approach. IDS applications have been created for children followed by specialty clinics (e.g. Sickle Cell, Inherited Metabolic Disease, Cystic Fibrosis). The database can also facilitate long-term management and tracking of these children. Dates of clinical evaluations, secondary diagnoses, complications, hospitalizations, surgeries, and subspecialty evaluations can be entered and diagnostic and monitoring laboratory studies and dietary therapy can be tracked.