NCEDC Minutes

Full Council Meeting

October 28, 2002

Hyatt Regency Hotel, Bethesda, Maryland

Members Present:

Debbie Gilmer Maine
Shelley Dumas Texas
Susan Vig Bronx, New York
Linda Tuchman Wisconsin
David Helm Massachusetts
Marc Tasse North Carolina
Mary Mercer North Dakota
Lann Thompson Indiana
Elizabeth Bishop Tennessee
Jenny Overeynder Rochester, New York
Elizabeth DeBrine Illinois
Margie Kassier (for Carl Everstbush) Alaska
Mike Massie Wyoming
Nancy Deringer/Julie Fodor (for Jennifer Olson) Idaho
Traci Laliberte (for Amy Hewitt) Minnesota
Toby Long District of Columbia
David Deere Arkansas
Tera Yoder Virginia
Mary Anne Pallack Rhode Island
Vyonda Martin Oklahoma
Mary Ellen Zeppuhar (for Helen Panzironi) West Virginia
Lisa Lister AUCD
Yvonne Bullock Fryberger Cincinnati, Ohio
Cary Kreutzer California (USC)
Diane Lenz Arizona
Kathleen Olson Kansas

The meeting was called to order at 12:15 p.m. by Kathleen Olson, NCEDC Chair.
Kathleen asked participants to introduce themselves and share information about presentations/posters they will give over the next few days.

I. Closing Remarks and Introduction of New Officers
Kathleen Olson, NCEDC Chair, presented certificates to 2001-2002 steering committee members and council officers. Diane Lenz presented an engraved crystal bowl to Kathleen Olson for her 3 years of service as the AUCD NCEDC Chair 1999-2002.

II. Election - Vice Chair
Diane Lenz asked for nominations from the Council for the position of Vice Chair. The Vice Chair serves as chair in the absence of the elected chair. He/she is also the representative from the NCEDC to the planning committee for the Annual Training Symposium, which includes designees from each of the Councils. Linda Tuchman nominated Debbie Gilmer and Kathleen Olson seconded the nomination. Debbie Gilmer nominated Shelley Dumas and Lisa Lister seconded the nomination. Yvonne Fryberger moved to close nominations and Elizabeth DeBrine seconded. Each of the nominees presented a one-minute summary of their background and experience with AUCD and NCEDC. Members (one per organization) from each UCEDD were asked to cast their vote. Debbie Gilmer was elected to the position of Vice Chair with her position effective immediately.

III. Opening Remarks, Council Member Update, Council Membership and Committee Rosters
Diane Lenz, incoming NCEDC Council Chair, welcomed participants and reviewed the agenda and plan for the meeting. The NCEDC roster was distributed and members/ UCE representatives were asked to correct the membership roster for themselves and/or their organization.

IV. Approval of November 2001 Minutes
David Helm moved to approve the minutes and Debbie Gilmer seconded. The Council approved the November 2001 minutes.

V. AUCD Board Update / Committee Reports
Kathleen Olson reported that the AUCD Board met in Hawaii this year. She suggested that NCEDC members read the forward, written in the annual meeting program from Dr. Stodden, President, which summarizes the Board activities over the past year. Major accomplishments included discussion as to how to strengthen the AUCD Network, how to involve trainees and avenues for achieving greater collaboration in the Network. Financially the Association is doing well. AUCD is looking at increasing dues to help support legislative efforts and may consider including international members. Other areas of emphasis / enhancement includes, promoting multicultural participation and involving consumers.

VI. Committee Reports
A. NCEDC Technical Assistance and Dissemination Committees

Since these two committees have met over the past year, Cary Kreutzer and Linda Tuchman, Committee Chairs presented the report together. At the Annual Meeting in 2001 the TA and Dissemination Committees agreed to hold joint committee conference calls throughout the year. Two conference calls were conducted on May 2, 2002 and September 12, 2002. Other activities over the year included:

A letter was mailed to NCEDC members on March 19, 2002 asking members to:

  • a) confirm committee membership or change to another committee, if desired,
  • b) bookmark the AUCD web Page,
  • c) utilize the NCEDC List-serve for sharing information or posing questions (step-by-step instructions for sending a List-serve message were provided),
  • d) utilize the AUCD Wired (electronic newsletter) for sharing information,
  • e) update UCEDD Program info on the AUCD web page,
  • f) contact Linda Tuchman if a new member and would like technical assistance.

AUCD has asked each Council to designate a representative to serve on an Ad-hoc web page committee to facilitate ongoing communication and to discuss a consistent/unified look for the AUCD Web page. Cary Kreutzer is representing NCEDC on this committee. One outcome of the committee is a consistent set of shortcuts/buttons on the opening screen for each council Web Page. The committee was also asked to discuss future AUCD Web functions that would be valuable to the Network.

The TA and Dissemination Committee developed a plan beginning in June 2002 to post "Monthly Tips" to the NCEDC List Serve as a strategy for sharing information across the country, recognizing that we all have unique experiences and resources that we can share with one another. For example, in August 2002, Elizabeth Bishop posted information concerning the Distance Training Network in Tennessee. She presented steps taken to develop the network and a Web address where additional information can be accessed. The Committee will recruit additional authors for future month posting and will add the monthly Tips to the AUCD NCEDC Web Page.

The NCEDC Web Pages have been revised and updated with new information and sections added. Look for the new pages following the Annual meeting. The revised WEB pages may, in the future, include a section for NCEDC members to share information about Center Products/Publications using wherever possible, links to Center Web Pages.

The TA/Dissemination committees will look closely at the NIRS database, working with AUCD and will explore how product information can be extracted and disseminated from the database.

The TA Committee mentored and provided TA to several new NCEDC members.

B. Nominating Committee

Yvonne described the committee charge. Jennifer Olson, Idaho was nominated to chair this committee and Vyonda agreed to continue as a committee member.

C. Training Symposium Committee - Chair is Vice Chair of NCEDC

The training symposium this year was successful with 80 participants signed-up and over 110 individuals attended.

D. Steering Committee

The Steering Committee conducts quarterly conference calls throughout the year and includes eac of the committee chairs, NCEDC Chair, Chair-Elect, Secretary and At-Large Members.

Kathleen Olson reported that a Survey of TIP Projects, conducted by AUCD, reported that over 78% of the UCEs still have their training initiatives. The report is posted on the AUCD web page.

Kathleen also reported that the ADD PNS, Development of an Integrated Marketing Communication Approach to Dissemination of Information, at the USC UCE, asked NCEDC for a representative to the Advisory Board of the Project. Yvonne Fryberger has agreed to represent the Council.

Since the NCEDC Chair selects the At-Large Members, Diane Lenz asked for volunteers to identify themselves if they are interested in serving on the Steering Committee. Diane also suggested that the TA and Dissemination Committee Chairs nominate an individual to take over as Dissemination Committee Chair now that Cary Kreutzer is Secretary. Cary agreed to continue working with the Dissemination and TA Committee over the coming year.

Members were also encouraged to identify their interest in Committee by contacting Committee Chairs and volunteering to join the committee.

E. Committee Structure

Yvonne Fryberger suggested that NCEDC review the roles of each of the committees.
Yvonne suggested that NCEDC should look at topic areas that members have information that they can share, eg. direct support, abuse and neglect. NCEDCs focus is around training, how can we adapt our agenda to the needs of what we are about? Yvonne suggested that we consider establishing workgroups around real information and sharing this information. Debbie Gilmer stated that she had posted topical information to the NCEDC list serve and received many responses and information from across the country.
Yvonne a motion (and withdrew) that the leader of the 4 new AUCD Interest Groups/Committees (eg. The networking meetings) be a member of our list serve so that we can share information, or we could consider asking for NCEDC members to be a liaison to those groups and to report back to NCEDC (amendment suggested by D. Gilmer). These groups could work together and establish collaborative action from each of the Councils.

Discussion: how are the special interest groups different from other special interest we all have? If we open up to the four groups we need to open to all of our interest areas. The Council members need to serve as the liaisons. The TA and Dissemination committee have been presenting monthly Tips, this could be an avenue for information sharing under topic areas by the various committees.

VII. NCEDC Liaisons to other AUCD Councils
NCEDC Liaisons to other councils and interest groups were asked to take notes and provide the notes to Cary Kreutzer for inclusion in the minutes. Cary distributed a form for data collection. The Council is most interested in activities/ initiatives that have the potential to impact NCEDC. Diane Lenz asked members to take a copy and complete the form developed by Cary Kreutzer for providing feedback from Council and AUCD Conference meetings to our membership.

Shelly Dumas is a member of the Council on Consumer Affairs and liaison from NCEDC and David Helm, represents the NCEDC on the Training Council. We don't have representatives for the Interdisciplinary or Multicultural Councils. Yvonne Fryberger motioned and Kathleen Olson seconded, that Diane Lenz, NCEDC Chair: request that the chairs of the Multicultural and Interdisciplinary Councils assign an individual to attend the NCEDC and present a 5-10 minute report on activities that specifically impact the NCEDC and the NCEDC can likewise send a representative to Multicultural and Interdisciplinary Council meetings to report on NCEDC.

Regarding liaison to the special interest group meetings, the following council members volunteered to attend and take notes at the following sessions:

  • Direct Support Professionals: Mary Mercer (meeting summary attached)
  • Child Maltreatment: Susan Vig (meeting summary attached)
  • National Service Inclusion: Elizabeth Bishop
  • Victims of Crime: David Deere

VIII. Old Business
A. E-Commerce Site

The question was raised as to the status of the ADD-project funded (Cincinnati UCEDD) E-commerce site. Yvonne reported that the last she heard, AUCD had lost technical support staff designated to work on the site. Current status and future plans are unknown.

Diane Lenz and Joe Evans were asked to suggest the following to the AUCD Board: to assemble a short-term Ad Hoc committee including Yvonne Fryberger, Chair, and Joe Evans, Kathleen Olson, Diane Lenz, Debbie Gilmer to serve on the committee to explore the current status and future direction of the E-Commerce site which was to sell previously developed TIP products via E-Commerce. It was suggested that the committee may find it inappropriate (outdated) to move forward with the original plan.

B. NCEDC Rules and Guidelines

The NCEDC Rules and Guidelines are outdated and a workgroup is needed to update the documents. Yvonne Fryberger volunteered to work on the committee and Kathleen Olson was nominated to chair the committee. Committee members will include Shelly Dumas, Linda Tuchman and Cary Kreutzer. It was suggested that the Rules and Guidelines could be updated at the next Steering Committee meeting.

C. Liaison Committee Reports

Shelly Dumas reported that the Consumer Council would like to work toward strengthening their relationship with NCEDC and all other Councils. It was suggested that the TA and Dissemination committees discuss as part of their agenda.

Daivd Helm reported that the Training Directors Council will be meeting follow the NCEDC meeting and their plan is to break into 3 discussion groups during their meeting.

Lisa Lister reported from AUCD that the NIRS Database now includes data from only about 38 UCEs and the database has been in operation for 2 months. The new system allows quick access to Center data for central office and legislation. The database will tie into the new WEB portal and can gather info from each center's web site, using Google. The database will have locked areas that will not be accessible to others outside of AUCD. NIRS Database went live July 1, 2002.

IX. New Business
No new business to report.

X. Information Sharing
In order to allow time for committee meetings, participants were asked to informally network, and resource and product materials were placed on a table for review during and after committee meetings.

XI. Committee Meetings
Following the general meeting, time was designated for the Dissemination and Technical Assistance Committees to meet. The following is a summary of the discussion and recommendation from each Committee.

Dissemination Committee:

Participants: Mary Mercer, Vyonda Martin, Dave Deere, Susan Vig, Diane Lenz, Cary Kreutzer

  • Clinician doesn't have time to visit Web Sites but can look at email - quick messages OK.
  • Important to use a subject heading that clearly describes list serve message being sent
  • Important for NCEDC to forward listserve messages to others within our state involved in training in disabilities as a way of sharing information - many of us don't do much in this area, some states doing a lot of networking/sharing.
  • Some states have put together mailing lists and products, announcements are mailed
  • NCEDC members have the opportunity under implementation of Olmstead to take inventory of existing training -strengths and unmet needs.
  • Important under reauthorization of ADA that UCEDDs, SCDD's and P&A's work together at a state-level. Some states have good relations and already offer co-sponsored annual emerging issues/best-practices conferences and training.
  • We need to keep a close watch on the potential of NIRS for accessing information on UCEDD products/publications/ initiatives, we may not need to add much to our WEB page if info is accessible on NIRS.
  • Other topics for "Tip of the Month" - systems change and emerging issues along with TA-type activities are important, not just topics, eg. Abuse/Neglect, National Service Inclusion
  • When question goes out on the list serve the primary author needs to collect all responses and post a summary of information and resources via the list serve and ask the council to post on the WEB site.

TA Committee:
Participants: Mark Tasse, Debbie Gilmer, Shelley Dumas, Elizabeth Bishop, Jenny Overeynder, Tara Yoder, Mike Masse

  • Encourage participants to post a question to the listserve at any time.
  • Explore connections to the Consumer Affairs council. This is important for bringing the consumer perspective into training activities.
  • Follow the evolution of the SIG groups to explore the connection to the infrastructure of the NCEDC.
  • Include information about the TIP of the month in the AUCD WIRED. Identify that information from the list serve will be posted on the NCEDC web site.
    Consider a message board on the NCEDC website for real time discussions.
    Consider how the listserve can serve as a mentoring mechanism for new Community Education directors.
  • Follow up as suggested to send an e-mail with mailing list information for each of the Community Education Directors so that we can each mail pertinent information to each other.
  • Make sure the listserve remains practical and useful so that it isn't just more junk e-mail to sort through.
  • Continue the TIP of the month- working on a protocol for posting the information on the web site including - what is posted (e.g., synthesis of reactions/comments as well as original content) and how/timelines for posting.
    • November - Deb Gilmer
    • January - Jenny (follow up to exercise/Disabilities presentation)
    • February -Elizabeth (National Inclusion Project)
    • March - Tara Yoder ( IEP partnership training)
    • April - Shelley Dumas
    • May -Michael Masse
    • June - Joe Evans
  • Format - optional for person submitting the information. Limit attachments.
    Jenny Overeynder volunteered to assume chair of the dissemination committee. Linda, Cary and Diane will meet to discuss the transition.

Child Maltreatment Special Interest Group:
Kim Musheno, policy analyst for AUCD, gave a progress report on CAPTA (Child Abuse Prevention and Treatment Act) reauthorization.

The Child Maltreatment Special Interest Group currently includes 24 members, most of whom are members of its listserv. Ten members attended the 10/29 meeting.

Participants described UCEDD-sponsored projects relevant to child maltreatment. Group members agreed that there is need for training in child abuse/developmental disabilities issues for parents, child welfare personnel, physicians (pediatricians, psychiatrists), judicial system representatives, educators, early intervention providers, substance abuse workers, related service providers, and others. Across the UCEDD network, training targets all of these systems.


  • Challenging issue
    • Developmental disabilities, mental health, and child welfare systems tend to function independently and do not talk to each other. This points to a need for cross-training and partnership across systems.
  • Key information/resources
    • The "News to Use" bulletin is updated regularly and disseminated through its website and e-mail by the Arizona Child Abuse Information Center. Much of the information is of general interest to a national audience.
    • Contact: Jane Schorzman; Tel: 520-626-8056; Email; Website
    • Jane Schorzman can provide information about the listserve currently used to communicate with members of the special interest group.



  • Recommendations for action
    • Members of the NCEDC should contact Jane Schorzman if interested in further information, collaboration with members of the special interest group, or other involvement.