2008 Workshops

• Health Services Transitions: Process and Perspectives
• UCEDDs & LENDs - Stepping up to Leadership in Developmental Disabilities
• Evidence Based Practices in Autism -Making it Real for School Teams
• ADD National Training Initiative - A National Gateway to Self Determination
• ThinkCollege: Postsecondary Education Options for Students with Intellectual Disabilities
• Early Childhood Intervention for Infants and Young Children: Have We Lost our Way?
• Creating Change One State at a Time: Experiences of State ID/DD Agencies and the UCEDDs in Expanding Employment for Consumers
• NIRS Database Workshop and Data Coordinators Meeting
• Supporting Siblings Across the Life Cycle: Emerging Research, Service, and Policy Perspectives

Health Services Transitions: Process and Perspectives

Time: Sunday, November 9, 2:00 pm - 4:00 pm

Cost: $50

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This workshop will introduce participants to the issues and barriers experienced by professionals, youth with disabilities and special health care needs, and families during the process of moving from the pediatric to the adult health care system. Attendees will learn about 1) the different dynamics of the pediatric and adult care systems, 2) the changing roles of professionals, family members, and youth with disabilities and special health care needs throughout the transition process, and 3) the supporting roles individuals working with youth and families can play in improving the health care transition process.  Workshop attendees will participate in transition exercises, apply learned materials, and be provided with resources that will enhance their ability to facilitate the development and successful implementation of health care transition plans.

Presenters:

1. John Reiss, PhD; Associate Professor of Pediatrics; Institute for Child Health Policy, University of Florida; Gainesville, FL
2. Cory Nourie, MSS, MLSP; Patient Transition Social Work Coordinator; Nemours/Alfred I. duPont Hospital for Children; Wilmington, DE
3. Ilka K. Riddle, PhD; Project Director, Healthy Delawareans with Disabilities: Bridging the Gap; Center for Disabilities Studies, University of Delaware; Newark, DE

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Creating Change One State at a Time: Experiences of State ID/DD Agencies and the UCEDDs in Expanding Employment for Consumers

Time: Sunday, November 9, 4:00 pm - 6:00 pm

Cost: $50

This session will examine lessons learned in implementing state level strategy and policy to expand integrated employment opportunities. A framework for employment will be presented, and activities of the State Employment Leadership Network, a collaborative partnership of 16 state developmental disability agencies committed to employment growth, will be highlighted. Presenters will discuss ways in which UCEDDs can partner in areas of training, capacity development, and model demonstration at a state and local level. Topics for discussion include development of an employment-first policy, leadership, capacity development, use of data to facilitate systemic change, investment in training and technical assistance, interagency collaboration, support innovation, and outcome measurement. Ways of engaging schools, public Vocational Rehabilitation Agencies, and One Stop Career Centers will be examined. Participants will also explore ways of collaborating with the state ID/DD agencies to enhance employment outcomes in their home state.

Presenters:

1. John Butterworth, PhD; Senior Program Manager, Institute for Community Inclusion, Boston, MA
2. Bill Kiernan, PhD; Director, Institute for Community Inclusion, Boston, MA
3. Nancy Thaler, MS; Executive Director, National Association of Directors of Developmental Disabilities Services (NASDDDS); Alexandria, VA

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UCEDDs & LENDs - Stepping up to Leadership in Developmental Disabilities
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Time: Sunday, November 9, 2:00 pm - 4:00 pm

Cost: $50

This workshop will focus on the issues related to leadership and transition of leadership of developmental disabilities agencies, government offices, advocacy groups, and other entities.  Strategies will be presented that UCEDDs and LENDs can use to purposefully develop leaders in systems and organizations providing services, supports, advocacy, and regulation and funding of supports for people with intellectual and developmental disabilities.  Strategies for working with non-UCEDD/LEND groups such as state Developmental Disabilities offices, private providers, and advocacy groups will be addressed.

Presenters:

1. Steven M. Eidelman, MBA, MSW; Co-Director, National Leadership Consortium on Developmental Disabilities, Center for Disabilities Studies, University of Delaware (NLCDD, CDS, UD); Newark, DE
2. Nancy Weiss, MSW; Co-Director, National Leadership Consortium on Developmental Disabilities, Center for Disabilities Studies, University of Delaware (NLCDD, CDS, UD); Newark, DE
3. Nancy Thaler, MS; Executive Director, National Association of State Directors of Developmental Disabilities Services (NASDDS); Alexandria, VA
4. Renee Pietrangelo, PhD; Chief Executive Officer, American Network of Community Options and Resources (ANCOR); Alexandria, VA

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Evidence Based Practices in Autism -Making it Real for School Teams

Time: Sunday, November 9, 2:00 pm - 5:00 pm

Cost: $65

Presenters:

1. Linda Tuchman-Ginsberg, PhD; Program Director for Early Childhood Professional Development and Co-Investigator for the National Professional Development Center on Autism Spectrum Disorders (NPDC-ASD); Waisman Center UCEDD, University of Wisconsin; Madison, WI
2. Ann Cox, PhD; Scientist, NPDC-ASD; University of North Carolina at Chapel Hill; Chapel Hill, NC
3. Len Abbeduto, PhD; Associate Director for Behavioral Sciences, UCEDD Director, Co-Investigator for the NPDC-ASD; Waisman Center UCEDD & IDDRC, University of Wisconsin; Madison, WI
4. Cathy Pratt, PhD; Director, Indiana Resource Center on Autism, Indiana Liaison for the NPDC-ASD; Indiana University; Bloomington, IN
5. Gail R. Houle, PhD; Associate Division Director and Project Officer NPDC-ASD; Office of Special Education Programs; Washington, DC

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ADD National Training Initiative - A National Gateway to Self Determination

Time: Sunday, November 9, 2:00 pm - 5:00 pm

Cost: $40

This pre-conference workshop will introduce participants to the conceptual framework and beliefs that will guide the development of a National Gateway to Self-Determination, a National Training Initiative funded by the Administration on Developmental Disabilities. In addition, the workshop will provide an overview of initiatives planned to support the scaling-up of self-determination on the national level through all three phases of the project. Workshop participants will also engage in facilitated discussions regarding such issues as available resources and gaps, implementation strategies, and UCEDD partnerships, and sustainability.

Leading this effort is a UCEDD Consortium which includes representatives from the University of Missouri Kansas City Institute for Human Development (the MO-UCEDD), the Kansas University Center on Developmental Disabilities (the KS-UCEDD), the Westchester Institute for Human Development (a NY-UCEDD), the Center on Human Development (an OR-UCEDD), and the Institute on Disability and Human Development (the IL-UCEDD). This consortium in partnership with a variety of other UCEDDs and numerous national and state programs will form a National Self-Determination Alliance to support the creation and sustainability of the National Gateway to Self-Determination.

Presenters:

1. Carl Calkins, PhD, UMKC Institute for Human Development
2. Ansley Bacon, PhD, Westchester Institute for Human Development
3. Tamar Heller, PhD, UIC Chicago Institute on Disability and Human Development
4. Jennifer Johnson, Administration on Developmental Disabilities
5. Tom McVeigh, MS, UMKC Institute for Human Development
6. Laura Walker, BA, UMKC Institute for Human Development

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ThinkCollege: Postsecondary Education Options for Students with Intellectual Disabilities

Time: Sunday, November 9, 2:00 pm - 5:00 pm

Cost: $40

This session will provide participants with an overview of the current "State of the Practice," related to supporting students with intellectual disabilities in postsecondary education. Preliminary findings from two OSEP funded research and innovation projects will be presented (C3 and PERC). Further, examples from MassBay Community College on how to create access to inclusive courses related to students career goals and the college community will be presented.

Next, new amendments to the Higher Education Opportunities Act will be detailed and discussed. Participants will also learn about two new national projects funded by the National Institute on Disability Rehabilitation Research and by the Administration on Developmental Disabilities, which will provide technical assistance, training, and research on a national scale. Finally, participants will receive a set of evidence-based, objective Quality Indicators that have been drafted to be used to define, create, or expand high-quality postsecondary education services to support positive post-school outcomes for students with disabilities.

Presenters:

1. Debra Hart, MS, Institute for Community Inclusion, University of Massachusetts
2. Cate Weir, MEd, Institute for Community Inclusion, University of Massachusetts
3. Maria Paiewonsky, EDd, Institute for Community Inclusion, University of Massachusetts
4. Meg Grigal, PhD, TransCen, Inc.
5. Molly Boyle, MEd, Massachusetts Bay Community College

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Early Childhood Intervention for Infants and Young Children: Have We Lost our Way?

Time: Sunday, November 9, 2:00 pm - 6:00 pm

Cost: $80

Early childhood intervention is a field that has evolved over 40 years, and this history has provided a philosophical foundation which has guided both service delivery and the training of professionals. In particular, three critical components of early childhood intervention for infants and young children will be discussed in this workshop: family centered services, team process, and natural learning opportunities. Both the philosophical foundation of each component and the current evidence base from which to guide practice will be addressed. Emerging issues will also be discussed, such as the challenges of accountability in reporting valid early childhood outcomes to OSEP, collaborations with state early childhood initiatives, and the emergence of special populations such as children in CAPTA and children with ASD. Recommendations will be provided for the future evolution of the field, in particular interdisciplinary pre-service and in service training models for those who will provide early childhood intervention services.

Presenters:

1. Mary Beth Bruder, PhD; UCEDD Director; A.J. Pappanikou Center for Excellence in Developmental Disabilities; Farmington, CT
2. Michael Conn Powers, PhD; Center Director, Early Childhood Center; Indiana Institute on Disability and Community, Bloomington, IN
3. Cordelia Robinson, PhD, RN; UCEDD Director; JFK Partners; Aurora, CO
4. Steve Rosenberg; Aurora, CO
5. Lise Fox, PhD; UCEDD Director: Florida Center for Inclusive Communities; Tampa, FL

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Supporting Siblings Across the Life Cycle: Emerging Research, Service, and Policy Perspectives

Time: Sunday, November 9, 4:00 pm - 6:00 pm

Cost: $50

This presentation will describe exciting national and local efforts to better involve, inform, and understand brothers and sisters of people with intellectual and developmental disabilities. Established three years ago, the Sibling Leadership Network is comprised of siblings and professionals who are launching a national agenda to support siblings in their roles as the next generation of care givers, supporters, and advocates for people with disabilities. The Leadership Network held its first national conference in Washington, DC last November and subsequently has produced a series of three white papers on the research, services, and policy issues. The latest findings, model programs, and recommendations from the white papers as well as future plans for the Leadership Network and local efforts will be presented.

Presenters:

1. Tamar Heller, PhD; Director & Professor; Institute on Disability and Human Development; University of Illinois at Chicago; Chicago, IL
2. Tom Fish, PhD, LICSW; Family and Employment Services; Nisonger Center; Ohio State University; Columbus, OH
3. Katie Keiling; Community Support Coordinator; Institute on Disability and Human Development; University of Illinois at Chicago; Chicago, IL

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NIRS Database Workshop and Data Coordinators Meeting

Time: Sunday, November 9, 4:00 pm - 6:00 pm

Cost: $0

This workshop will highlight the changes and updates made to NIRS for the FY09 iteration and will feature a discussion on proposed revisions to the trainee follow up survey and strategies for increasing survey response rates. The session will provide participants the opportunity to ask questions and offer suggestions for continued improvement.

Presenters:

1. Maggie Nygren, EdD; Technical Assistance Director, AUCD, Silver Spring, MD
2. Ray Gurganus, Senior Programmer; Community IT Innovators, Washington, DC
3. Danielle Onunkwo; Technical Assistance Specialist, AUCD, Silver Spring, MD 

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