Invitation to participate in a focus group study at Columbia University

May 30, 2023

Columbia University invites you to participate in a study that explores issues of trust in a type of medical research called “precision medicine research.” This looks at a person’s genetics, environment, and lifestyle. It can help physicians improve prevention and diagnosis of diseases and develop new treatments.

You are invited because you are:

  • A deaf or hard of hearing adult
  • A blind or low vision adult
  • An adult with a mobility disability Your views are valuable to us.

If you agree, you will be asked to join a 2-hour online focus group to share your thoughts about precision medicine. You do NOT need to have prior knowledge about precision medicine research to participate in this study.

The study will help us understand what deaf or hard of hearing adults, blind or low vision adults and adults with mobility disabilities think about how precision medicine researchers and research institutions can be more responsive to the needs of persons with disabilities.

The focus group will be conducted using the online app Zoom. It will be available in English, Spanish, and American Sign Language. CART Captioning will be available, as needed. You choose the language that works best for you. Focus group dates and times will be scheduled soon.

You are offered a $50 gift card for participating in our focus group.

If you are interested or have any questions, please contact the Principal Investigator, Dr. Maya Sabatello, at [email protected]. You will be asked to complete a short online survey about your background and convenient times for participation.

Maya Sabatello, LLB, PhD
Associate Professor of Medical Sciences
Co-Director, Precision Medicine: Ethics, Politics, and Culture Project Department of Medicine and
Department of Medical Humanities & Ethics Columbia University