AUCD 360 - May 2023

May 26, 2023

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
May 2023 |   Volume 8 Issue 5

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders

  Community Input

  Upcoming Events 

 AUCD Central Office News


AUCD 2023 Conference: Call for Proposals

AUCD 2023 Conference: Call for Proposals Opens on May 1

Deadline: June 20, 2023
The AUCD 2023 Conference will be held November 5-8 in Washington, DC. This year’s theme of Emerging Leaders: Shaping the Future recognizes and focuses on the thousands of Emerging Leaders that we welcome to the AUCD Network each year and how they continue to propel our Network forward, positively shaping the future. Take this opportunity to be a part of the conversation by submitting a proposal to present a concurrent session and/or a poster. Read more...

 

May 2023: Mental Health Awareness Month

May is Mental Health Awareness Month, providing an excellent opportunity to recognize the significant work of Champions who aim to address the mental health needs of children and youth. Mental health in childhood means reaching developmental and emotional milestones and learning healthy social skills and how to cope when there
are problems. 
During Mental Health Awareness Month,
AUCD will focus on the importance of mental health promotion, prevention supports, and strengthening of mental health systems for children and/or youths. This initiative celebrates the work of the Children's Mental Health Champions, who play a vital role in addressing these needs. Throughout May, the Champion's projects will be
showcased on social media platforms using hashtags like #MentalHealthAwarenessMonth and #MentalHealthForAll

 

 Network Recognitions


Iowa Recognizes the 2023 Healy Award Winners

L-R Laury Scheidler, MSW and Audrey Wood, CCC-SLP

Each year, the Center for Disabilities and Development (CDD), Iowa’s UCEDD, recognizes trainees from the Iowa LEND program with the Alfred Healy Leadership Award in Developmental Disabilities. The award is intended to nurture in the recipients a life-long commitment to leadership in developmental disabilities to carry on Dr. Healy’s legacy for future generations. Dr. Healy’s long-term leadership is still felt in the CDD clinics, the UCEDD and the Iowa LEND program. The Healy Award is intended to facilitate additional leadership development activities. This year’s award winners are Laury Scheidler and Audrey Wood. Read more...

 

Vanessa Richard, the recipient of the Department of Educational Psychology's 2023 Excellence in Diversity

Image Vanessa Richard

The Center on Disability and Development (CDD) is pleased to announce that Vanessa Richard has been selected as the recipient of the Department of Educational Psychology's 2023 Excellence in Diversity, Equity, and Inclusion Award. This honor recognizes Vanessa's work with the CDD's Capacity-Building Project, the Texas Faith and Disability Network, and the Vaccine Acessibility for Individuals with Disabilities project, as well as her support of diversity and inclusion through campus and community activities. Read more...

 

Abigail Peskin Recipient of The Children's Trust Champions 2023 Excellence in Direct Services Award

Image Abigail Peskin

Dr. Abigail “Abby” Peskin is a child psychologist who specializes in Parent-Child Interaction Therapy (PCIT) at the University of Miami’s Mailman Center for Child Development. Dr. Peskin has a training emphasis in the treatment of disruptive behavior disorders in young children, focusing on intervention and assessment for Autism Spectrum Disorder. Her clinical background consists of specialized training in the diagnosis and treatment of both Autism and anxiety, including group, individual and school-based treatment. Read more...


UW CHDD Promoted to UW IHDD with Sandra Juul as New Director

Image Sandra Juul

The University of Washington (UW) Center on Human Development and Disability (CHDD) has been renamed the UW Institute on Human Development and Disability (IHDD), with Dr. Sandra Juul appointed as the new Director. The IHDD is a research, service, and training center that aims to improve the lives of individuals with disabilities and their families through various programs and services, including diagnostic, assessment, and treatment services.Dr. Sandra Juul, a highly respected clinician and researcher in the field of neonatology and developmental disabilities, has been appointed as the new Director of the IHDD.
Read more...

The Center Welcomes Kelly Kurtz Majewski as the New iGROW Program Director

Kelly Kurtz Majewski

Kelly Kurtz Majewski has accepted the position of iGROW Program Director and will be leading the rural transition work in Central Texas as well as future replication sites across Texas. The iGROW impact report for year one is included in this post. Kelly has served the field of education in rural areas for over 20 years as a classroom teacher, educational diagnostician and transition coordinator. She grew up in a small town on the coast and now lives in Giddings with her husband of 22 years Neal, a high school teacher and coach. They have 3 children, Taylor 19 (a freshman aggie), Karli 14 and Mason 11. She has served as the district transition coordinator and the transition employment designee (TED) with Giddings ISD. Read more...


Dawn Rudolph to Join the Wyoming Institute for Disabilities

Dawn Rudolph to Join the Wyoming Institute for Disabilities

The Wyoming Institute for Disabilities is pleased to announce that Dawn Rudolph, MSEd, has accepted the position of Senior Program Manager to lead initiatives in home and community-based services. Dawn will provide leadership for new programs focused on person-centered services and supports for individuals with disabilities in their homes and communities.Dawn has recently worked for 14 years at the Association of University Centers on Disabilities, providing technical assistance to university-based research, service, and training centers who advance disability policy and systems change to support disabled people in being fully included, participating members of their communities. Read more...


Greater Miami Chamber of Commerce 24th Annual Health Care Heroes Awards Luncheon

Greater Miami Chamber of Commerce 24th Annual Health Care Heroes Awards Luncheon

Congratulations to Dr. Daniel Armstrong, Professor & Executive Vice Chair and Department of Pediatrics, Director, Mailman Center for Child Development, University of Miami Miller School of Medicine, as the recipient of the Lifetime Achievement Award from the Greater Miami Chamber of Commerce. On May 17, 2023 the Greater Miami Chamber of Commerce held its Annual Health Care Heroes awards luncheon at Jungle Island in Miami, Florida. The event was attended by more than 450 Healthcare Professionals. Read more...


2023 PATHS Partner Brunch

Greater Miami Chamber of Commerce 24th Annual Health Care Heroes Awards Luncheon

The Postsecondary Access and Training in Human Services (PATHS) program at Texas A&M University held their annual Partner Brunch on Saturday April 15, 2023. Our theme this year: “BEE Courageous” to Change Lives. This event is held every year to recognize both the partners and the students who have worked in the community this past year. Read more...


Advocacy Network on Disabilities Breakfast for Champions

Advocacy Network on Disabilities Breakfast for Champions

Jairo Arana, one of Mailman Center for Child Development staff members, is being recognized as a self-advocate champion at the Breakfast for Champions on Wednesday, May 17th at 9:00am. The Breakfast for Champions is an annual Advocacy Network on Disabilities sponsored event recognizing individuals that epitomize their mission and goals. The Advocacy Network on Disabilities champions the rights of individuals with intellectual, developmental, and other disabilities by promoting inclusion, providing services, and advancing systems change. Read more...


American Association on Health and Disability Announces Leadership Transition

Advocacy Network on Disabilities Breakfast for Champions

The American Association on Health and Disability (AAHD) today announced the Board’s selection of Karl Cooper to succeed Roberta Carlin as Executive Director, effective June 1, 2023. Karl will transition into this role from his current position as AAHD’s Director of Public Health Programs. Karl’s appointment comes as Roberta Carlin is retiring after 21 years of service to AAHD as the Executive Director. Read more...

 

  Network News


ME UCEDD Receives Nearly $500K Maine DHHS Grant to Help Adults with Disabilities

Photo credit: Image by aabejon (istockphoto.com) Standard License.

With a $499,970 grant from the Maine Department of Health and Human Services Office of Aging and Disability Services, the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD), will conduct a model demonstration project of intensive evidence-based behavioral intervention to help adults with disabilities who are currently subject to restrictive behavior management plans. CCIDS will contract with behavioral clinicians (doctoral-level board-certified behavior analysts) to assess challenging behavior in a few volunteers who receive services and support whose rights are currently restricted. Read More...

 

Western Carolina University University Participant Program First Postsecondary Program for Students with Intellectual Disability to be Accredited by New Agency

IHEA Council Inclusive Higher Education Accreditation UMass Boston ICI

The Institute for Community Inclusion’s (ICI) Think College and the Inclusive Higher Education Accreditation Council (IHEAC), a new accrediting agency for postsecondary programs for students with intellectual disability (ID), jointly announced today that the Western Carolina University (WCU) University Participant (UP) Program is now fully accredited for the next seven years. “The Council is delighted to award accreditation to the outstanding WCU UP program and appreciate their willingness to be the first to undergo accreditation. The documentation provided, site visit, peer reviewer report, and strong support from the university clearly demonstrate that the UP program merits accreditation,” said Stephanie Smith Lee, IHEAC Board President. Read more...

 

A Qualitative Investigation on COVID-19 Vaccine Hesitancy in Neurodivergent Communities

A Qualitative Investigation on COVID-19 Vaccine Hesitancy in Neurodivergent Communities

Vaccine hesitancy is a major barrier to vaccination, hindering the success of vaccine efforts and thereby increasing public health risk to viral diseases, including COVID-19. Neurodivergent (ND) individuals, including individuals with an intellectual and/or developmental disability, have demonstrated a heightened risk of hospitalization and death due to COVID-19, highlighting the need for further research specifically on ND communities. Over the course of 2 years, the student led group, Neurodiversity Health Chats at UCLA has published their explorative work on vaccine hesitancy in the neurodivergent community! Read more...

 

UM-NSU CARD Constituency Board Members Visit State Capitol

um.nsu.card University of Miami-Nova Southeastern University Center for Autism & Related Disabilities

Five Constituency Board Members from University of Miami - Nova Southeastern University Center for Autism and Related Disabilities visited the state capitol of Tallahassee to both thank representatives who have supported UM-NSU CARD and educate policymakers on the importance of resources for the autism community to be included in the state budget. The five board members were: Michael Alessandri, PhD, Executive Director of UM-NSU CARD; Haley Moss, self-advocate and attorney; Diana Abril, a parent; Kenneth Duvall, a parent; and Jairo Arana, self-advocate and clinical program coordinator at UM Mailman Center for Child Development at the Miller School of Medicine. Read more...

 

Blazing a trail: Ann Switzer 1st to complete UK’s College and Career Studies Program

Ann Switzer (center) helps record artists' sets at Kenwick Table's open mic night. Photo by Lindsay Travis."Community. Coffee. Wine." Those words are listed on the sign for Kenwick Table. Tucked away in a Lexington neighborhood, the community-based coffee shop creates a comfortable and inviting atmosphere for all people. On Monday nights you’ll find local artists eagerly waiting for their turn to play a few songs as part of an open mic night. They’re greeted near the stage by a familiar face, sharing her love of music with the community built up at Kenwick Table. “Having Ann Switzer help out with open mics means the world to me,” said Jondra Nicole, who directs the weekly event. “Open mic is meant to be an inclusive group effort and the sense of community we are building bears a special kind of sweetness that I hope to continue building up for some time to come." Read more...

 

Autism and the Dysregulated Arousal System

Autism and the Dysregulated Arousal System How do babies learn to be social? Babies are born into the world with much to learn, from basic body movements to complex communication and interaction skills. Research continues to highlight the influence of inherent characteristics, underlying neurobiology, and genetics on how and what we learn or know. Researchers from The Carolina Institute for Developmental Disabilities at the University of North Carolina at Chapel Hill aim to understand what and how we learn by studying the dynamic interplay between inherent biological traits, physiological states, and the environment. Read more...

 

The Center on Youth Voice, Youth Choice Expands its National Community of Practice of State Teams Advancing Alternatives to Guardianship

The Center on Youth Voice, Youth Choice Expands its National Community of Practice of State Teams Advancing Alternatives to GuardianshipThe Center on Youth Voice, Youth Choice (CYVYC) is delighted to announce its selection of three additional State Teams to join its national Community of Practice to promote alternatives to guardianship for youth with intellectual and developmental disabilities (I/DD). Nineteen teams from 15 States and the District of Columbia applied. The quality of the applications was excellent and revealed a deep interest in and commitment to Supported Decision-Making and its importance in the lives of transition-age youth. Read more...

 

Aggie ACHIEVE Ring Day

Aggie ACHIEVE Ring DayOn Friday, April 14 the seven juniors and four seniors from the Aggie ACHIEVE program received the first-ever Aggie ACHIEVE Rings in a ceremony at the Rec center at Texas A&M. The ACHIEVE Ring represents the students' dedication to excellence in their 4 year certificate program of Interdisciplinary Studies. We are so proud of each student's accomplishments! Read more...

 

Patient Driven Innovation with Dr. Christina Gurnett, Neurologist and Director of Washington University IDD Research Center

Patient Driven Innovation with Dr. Christina Gurnett, Neurologist and Director of Washington University IDD Research CenterDr. Christina Gurnett who is the co-director of The Intellectual and Developmental Disabilities Research Center (IDDRC) at Washington University speaks to The Accessible Podcast about her community-based approach to cutting edge scientific research which puts individuals and families at the center.” Read more...

 

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Member Works to Improve Sleep Assessment in Down syndrome Research

A toddler-aged white boy with Down syndrome looks to the camera. He has straight brown hair, green eyes, and a red

In 2022, Vanderbilt Kennedy Center (VKC) member Sarika Peters, Ph.D., received a VKC Director’s Strategic Priorities Grant to determine the feasibility of use of a wearable sensor to assess sleep in children (ages 4-10 years) with Down syndrome. Down syndrome is estimated to occur in 1 out of 700 babies and is associated with many co-occurring conditions including obstructive sleep apnea (OSA). OSA impacts between 50-79 percent of individuals with Down syndrome and the American Academy of Pediatrics recommends screening for OSA in children with Down syndrome starting at age 4. Read more...

 

 

  Emerging Leaders Voices

 

MN LEND Graduates Celebrate

MN LEND Graduates CelebrateSouth Dakota LEND trainees, Kylie Hamman (Audiology), Abby Myers (Physical Therapy), and Kaylee Schmidt and Emily Bruinsma (Occupational Therapy) joined clinical outreach ventures to Antigua and Santiago Atitlán in Guatemala during spring break 2023.  The groups were led by LEND discipline heads Patti Berg-Poppe (PT), Shana Cerny (OT), and Liz Hanson (SLP), and were also joined by former discipline head, Lana Svien (PT-retired), all from the University of South Dakota. Read more...

 

 

  Community Input


Centers for Medicare and Medicaid Services Proposes Two New Rules to Improve Medicaid and CHIP

Centers for Medicare and Medicaid Services Proposes Two New Rules to Improve Medicaid and CHIP

The Centers for Medicare and Medicaid Services (CMS) have proposed two new rules that would improve the service and delivery of Medicaid and the Children's Health Insurance Program (CHIP), Ensuring Access to Medicaid Services and Medicaid and Children's Health Insurance Program Managed Care Access, Finance, and Quality. Both of the proposed rules aim to improve the access and quality of care, improve transparency, and address health inequity within Medicaid and Children's Health Insurance Program (CHIP). AUCD will be taking suggested comments and using it to craft AUCD’s comments until June 7th. Read more...



 

 Upcoming Events

 

AUCD Leadership Academy

AUCD Leadership Academy Shaping the future of disability

June 4-9, 2023, Atlanta, GA
The AUCD Leadership Academy is a program that lasts one year. It is designed for current and emerging leaders from the disability community. The goal is to develop and improve leadership skills. The Academy teaches people how to improve systems of support and services. These systems and services can include federal and state agencies. Read more...

 

Maryland Center for Developmental Disabilities 2023 Summer Learning Series

Maryland Center for Developmental Disabilities 2023 Summer Learning Series

Tuesday, June 13, 2023 - Thursday, July 20, 2023
The Community and Professional Development Training Program offered by the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute is committed to providing evidence-based training across a broad spectrum of topics to improve the quality of life of people with disabilities and their families. The series consist of 1-hour to 3-hour workshops with interdisciplinary topics focused on working with individuals with intellectual, developmental, and other disabilities and their families. Read more...

 Louisiana FASD Summit 2023

 Louisiana FASD Summit 2023 Louisiana FASD Summit 2023

June 16-17, 2023, New Orleans, LA and Virtual
Louisiana's UCEDD, the Human Development Center (HDC) at the LSU Health Sciences Center in New Orleans, will host the Louisiana FASD Summit as an initial activity to raise awareness about Fetal Alcohol Spectrum Disorders (FASD). This event lays the foundation for building engagement in addressing the lack of access to screening/diagnosing, prevention, providing evidence-based services and supports for individuals with FASD and their families in Louisiana. Read more...

 

 African American Conference on Disabilities - June 2023

African American Conference on Disabilities

Saturday, June 17, 2023, Phoenix, AZ
The Arizona Center for Disability Law (ACDL) and its partners are excited to announce the 12th Annual African American Conference on Disabilities (AACD). The conference will offer the opportunity to select among twenty different disability-related workshops and three general sessions. There are a limited number of scholarships for families to attend the conference. For more information, please contact Renaldo Fowler, [email protected]. Read more...

 

Rubinstein-Taybi Syndrome (RTS) National Conference

Group of individuals with RTS, their families, and UCCEDD staff, standing together in front of a wall for a group photo at an RTS event.

June 21-24, 2023
The University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) at the Cincinnati Children’s Hospital (CCHMC) and the RTS-OKI Family Support Group are the hosts for this event. We are very excited to welcome families of children and adults with RTS from across the country! Read more...

 

  Submissions

 

News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are second Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.