AUCD 360 - February 2023

February 16, 2023

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
February 2023 |   Volume 8 Issue 2

  Central Office News

  Network Awards

  Network News

  Emerging Leaders

  Community Input

  Upcoming Events 

 AUCD Central Office News


AUCD Leadership Academy

AUCD Leadership Academy Shaping the future of disability.

Deadline: Friday, March 3, 2023
The AUCD Leadership Academy is a program that lasts one year. It is designed for current and emerging leaders from the disability community. The goal is to develop and improve leadership skills. The Academy teaches people how to improve systems of support and services. These systems and services can include federal and state agencies. Examples include HRSA, ACL, and State Councils on Developmental Disabilities. View Informational Webinar.


Save the Date: AUCD for All Gala is April 19

Image of a blue globe with a burst of white lines through it that says AUCD for All Creating Inclusive Communities

Join the Association of University Centers on Disabilities (AUCD) on April 19, 2023 in Washington, DC for its annual AUCD for All Gala. This year, we will focus on Creating Inclusive Communities and the important work being done around the AUCD network to meet the needs of people with disabilities and their families. The AUCD for All celebration brings together leaders from all sectors who are advocating for disability rights, equity, and inclusion. Learn more and purchase tickets. aucd4all.org

Disability Policy Seminar

Silhouette of the US Capito building. l Text: AUCD Disability Policy Seminar AAIDD, ASA, AUCD, NACDD, SABE, The Arc, UCP

Monday, April 24: Virtual Policy Programming and Training
Thursday, April 27: Fly-In Hill Day

2023 is the start of a new Congress—which means many new opportunities to educate and advocate! During the virtual programming day, you will deepen your knowledge various policy issues affecting people with disabilities, hear predictions about the upcoming Congress, and gain valuable insights from policy experts and those “in the know.” You will leave the programming day with the knowledge and skills you need to advocate for a more equitable future for people with disabilities at your Hill visits and all year long. Read more...

 

 Network Awards


Dr. Kuhn Honored with National Innovation Award

Dr. Kuhn, Image of a bald white man with a goatee wearing an oxford and jacket.

Brett Kuhn, PhD, a diplomat of behavioral sleep medicine and professor of psychology at the Munroe-Meyer Institute and UNMC, was honored with the Society of Behavioral Sleep Medicine's 2022 Outstanding Innovation in BSM Service Delivery Award. Dr. Kuhn directs the behavioral sleep medicine clinic at the Children's Sleep Disorders Center, where he supervises medical residents, sleep fellows, and psychology interns in assessing and treating pediatric sleep disorders. Read more...

Dr. Jennifer Coto, Recipient of the Mentored Translational Research Scholars Program Award

Dr. Jennifer Coto - Image of a white woman with long blonde hair wearing a oxford shirt.

Congratulations to Dr. Jennifer Coto, a previous psychology LEND trainee and now assistant professor. She received the Mentored Translational Research Scholars Program Award. The Miami Clinical and Translational Science Institute has chosen Jennifer Coto, Ph.D., assistant professor of otolaryngology at the University of Miami Miller School of Medicine’s Division of Audiology, as the recipient of this year’s Mentored Translational Research Scholars Program Award (KL2). Read more...

GaLEND Alumna Selected as the Joseph P. Kennedy Foundation Public Policy Fellow

Catherine Citta - Image of a young white woman with wavy brown hair wearing a blue blouse.

Catherine Citta, a 2021 alumna of the Georgia Leadership Education in Neurodevelopmental and Related Disabilities (GaLEND) program, has been selected as the Joseph P. Kennedy Foundation’s Public Policy Fellow for 2023. After a rigorous application and interview process, one public policy fellow from across the nation is selected each year. Citta was selected for the JPKF Fellowship in recognition of her teaching and leadership experience in early childhood special education, early intervention, and state-level initiatives in recruiting to work with young children with disabilities and their families.
Read more...

New Associate Director Named at The Florida Center for Inclusive Communities

Dr. Boone - Close up image of a white woman with short red hair wearing glasses and black shirt.

Dr. Boone is a professional dedicated to working with individuals with intellectual and developmental disabilities and their families. She received her Ph.D. in Clinical Psychology from the University of Florida in 2001, completing pre-doctoral and postdoctoral fellowships in pediatric psychology at the A.I. duPont Hospital for Children in Wilmington, DE, and a second postdoctoral year as a LEND fellow at the Westchester Institute for Human (UCEDD).
Read more...

 

The IOD Welcomes Its First Director of Operations

Lisa Leach, Image of a white woman with shoulder length blond hair and wearing a blouse and jacket .

On March 6, 2023, the IOD will welcome its first Director of Operations, Lisa Leach. Lisa brings new and diverse leadership experience in healthcare and human services to this position. The IOD Director of Operations will provide leadership and support for core functions across IOD projects and programs in HR, office management, staff development, and technology. She will work as a member of the IOD Management Team. Read more...

 

Ariel Schwartz Named Assistant Research Professor and Director of UNH-4U

Ariel Schwartz, Image of a young white woman with hair pulled bac wearing a polo shirt.

The Institute on Disability (IOD) is pleased to announce that Ariel Schwartz, PhD, has joined the IOD as an Assistant Research Professor, and will also serve as the Director of UNH-4U. Prior to coming to the IOD, Schwartz was an Assistant Professor in the Department of Occupational Therapy at the MGH Institute of Health Professions in Boston, MA. She brings knowledge and interests in mental health, employment, participation, and participatory research for transition-age youth with intellectual and developmental disabilities to this position at the IOD.) Read more...


  Network News


The Special Diversity, Equity, and Inclusion (DEI) Issue of DDNJ Out Now

DDNJ Developmental Disabilities Network Journal

This special issue focused on Diversity, Equity, and Inclusion (DEI) will spur thought, discussion, and a renewed focus on creating genuinely inclusive supports and programs. This special issue is a DDNJ and the AUCD Multicultural Council (MCC) collaboration. Guest editors for this special issue are Lydia Ocasio- Stoutenburg (Penn State) and Jacy Farkas (Sonoran UCEDD). The Developmental Disabilities Network Journal is a project of the Utah State University Institute for Disability Research, Policy & Practice (UCEDD). Read more...


Call for UCEDD LEND ECHO Organizations

Project ECHO

The Wyoming Institute for Disabilities is inviting organizations across the network to join the newly formed UCEDD LEND ECHO Collaborative. These monthly calls are open to any UCEDD or LEND program currently replicating or interested in implementing the ECHO model. The collaboration will allow UCEDD, LEND, and partner agencies to share successes, challenges, and strategies using the ECHO model to build capacity throughout their programs supporting individuals with developmental disabilities. Read more...


Michigan Developmental Disabilities Institute (MI UCEDD) Receives Grant to Support Aging Caregivers of Persons with Intellectual and Developmental Disabilities

Michigan Developmental Disabilities Institute (MI-DDI)

The Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University has received a $400,000 two-year grant from the Michigan Health Endowment Fund. The mission of the Michigan Health Endowment Fund is to improve the health of Michigan residents, with special emphasis on the health and wellness of children and seniors, while reducing the cost of health care. The project, entitled Hope for Aging Caregivers, will look to improve the lives of aging family caregivers of adults with intellectual and developmental disabilities (I/DD). Read more...


Shelby County Relative Caregiver Program at UTHSC Receives $1.87 Million Grant

Teresa English, Dr. Fred Palmer, Dr. Bruce Keisling, Dr. Carolyn Graff, Belinda Hardy, Shelby County Relative Caregiver Program staff, and relative caregivers attended today’s luncheon in celebration of the program.Following a competitive application process with the TN Department of Children’s Services, the UTHSC Center on Developmental Disabilities’ Shelby County Relative Caregiver Program (SCRCP) has been awarded a 30-month contract for $1.875 million dollars. Children in relative care in Shelby County face complex and interrelated economic, social, and institutional challenges which create barriers for individuals seeking to live healthy and productive lives in their communities. Read more...

 

New HDI Project to use Universal Design to Create Inclusive Student Environments

Photographs of the people involved in the Munroe-Meyer Institute's adaptive toys program.Universally designed, accessible safe spaces create a sense of welcome and belonging for all students, including those with mental health conditions, physical disabilities, intellectual and developmental disabilities, and those in underserved communities. The Human Development Institute's new project will fund universally designed spaces for students at Berea Community School, a high school, to allow students to build meaningful connections.
Read more...


Iowa Promotes Competitive Integrated Employment through Participation in ASPIRE

Graphic of state of Iowa reflecting the participants of each counties. Text IPS in Iowa to Date. Iowa has FIVE teams serving 23 of 99 countiesThe U.S. Department of Labor, Office of Disability Employment Policy, as one of seven states participating in the second round of the ASPIRE Initiative-Advancing State Policy Integration for Recovery and Employment. Iowa is one of four states that participated in the first round of the initiative, aiming to promote competitive integrated employment for individuals with mental health conditions by aligning state policies, programs, and funding. Read more...


MMI's Adaptive Toys Program Keeps Spreading Skills

Photographs of the people involved in the Munroe-Meyer Institute's adaptive toys program.A group of 10 families, and volunteers from the Munroe-Meyer Institute, gathered at the Munroe-Meyer Guild Institute in early December, all hoping to make the holidays brighter for young family members with disabilities.  Organized by MMI’s Monica Pleiss and Korey Stading and led by Jamie Gehringer, PhD, the event helped families adapt toys to be activated via a switch component, making them accessible for children with mobility or movement challenges. Read more...


Clinician, Researcher Lead New Intellectual and Developmental Disabilities Research Center in Iowa

Image of father and child  in an outdoor sports event.Ted Abel, PhD, and Lane Strathearn, MBBS, PhD, lead one of only 15 federally funded intellectual and developmental disabilities research centers in the country. The new Hawk-IDDRC [Hawkeye Intellectual and Developmental Disabilities Research Center] integrates the efforts of researchers in the Iowa Neuroscience Institute (INI) and clinicians in the Center for Disabilities and Development (CDD), part of the University of Iowa Stead Family Children's Hospital, to connect basic and clinical research across the lifespan. Read more...


LEND and NERGN DNA Today Podcast/Spotify

Betsy Humphreys, Karen Volle, and NH-ME LEND trainee Karina Mancini were interviewed for the “DNA Today” podcast by host Kira Dineen. Betsy Humphreys, Karen Volle, and NH-ME LEND trainee Karina Mancini were interviewed for the “DNA Today” podcast by host Kira Dineen. The interview explores how LEND and NERGN (New England Regional Genetics Network) support the training of future interdisciplinary leaders.The podcast educates the public on genetic and public health topics through event coverage, news stories, book/movie reviews, and interviews. Guests include genetic counselors, researchers, patient advocates and professors in the field of genetics. Read more...


The Inclusive Dojo: HDI training supports martial arts instructors in transforming training spaces

UK Human Development Institute Martial Arts for Everyone Martial artists with disabilities are transforming dojos.

Darrell Mattingly, a computer specialist at HDI, developed HDI's Adaptive Martial Arts training course, which teaches martial arts instructors about disability etiquette, universal design, and how to adapt their teaching to include students with disabilities. Mattingly serves as president of the Adaptive Martial Arts Association, which offers further resources for both students and instructors. According to Mattingly, there is no standard way of “adapting” martial arts for individuals with disabilities. The nature of adapting makes the experience highly individualized. Read more...


Federally Funded Studies into Treatment for Chronic Conditions Overlook Efficacy in Adults with Autism, Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Research Finds

Image of T.A. Meridian McDonald a white woman with long brown hair wearing a blouse and sweater and smiling at the camera.

Physical health disparity conditions in autistic adults have not been the focus of any research funded by the U.S. National Institutes of Health (NIH) in the last four decades, an analysis of a federal database found. Using the NIH Research Portfolio Online Reporting Tools Expenditures and Results (RePORTER) database to determine whether the NIH has funded any research related to physical health disparity conditions in autistic adults, Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researcher T.A. Meridian McDonald, Ph.D., used 30 separate searches to discover that "autism" is often used as a key term - not the target population. Read more...


Rates of Autism Increase, but Numbers Don't Paint the Full Picture

Image of a child looking down at the camera.

Over the past 20 years, headlines have signaled ever-increasing recognition of autism spectrum disorder (ASD). In a new article published in Autism, IDDRC network researchers describe their own estimates of how many children across Children's Hospital of Philadelphia's (CHOP) Primary Care Network have been diagnosed with ASD. What they found highlights the importance of tracking and unpacking the number of diagnoses to identify areas for continued improvement. Read more...


Biomarkers Can Help Improve Clinical Trials for Children with Neurodevelopmental Disorders

W University of Washington

In the past decade, many large-scale randomized controlled pharmaceutical clinical trials for children with neurodevelopmental disorders have struggled demonstrating child clinical changes. In a recent study, researchers from the University of Washington IDDRC discuss how biomarkers can help improve clinical trials for children with neurodevelopmental disorders. Read more...


“My Mother’s Apprentice” The Special Qualities of my Upbringing. A Discussion with Gyasi Burks-Abbott

“My Mother’s Apprentice” The Special Qualities of my Upbringing. A Discussion with Gyasi Burks-Abbott

ICI's Gyasi Burks-Abbott's interview with Dr. Barry Prizant and Dave Finch for the Uniquely Human Podcast was just published. They had a great conversation about the intersectionality between race and disability, the overpathologizing of autistic traits, and the ways parents can best support their children on the autism spectrum. Read more...


Peer-Reviewed Article in American Annals of the Deaf

ICI staffer, Amy Szarkowski (on the right) and her co-author, Sarah E. Brandt, have just been published in The American Annals of the Deaf. They are shown here pointing to their article, “Universal design for learning in deaf education contexts: A scoping review” in the Table of Contents for the journal.

ICI's Amy Szarkowski and her colleague, Sarah Brandt, have just published an peer-reviewed article, "Universal Design for Learning in Deaf Education: A Scoping Review," in American Annals of the Deaf. Brandt, S & Szarkowski, A. (2022). Universal Design for Learning in Deaf Education: A Scoping Review. American Annals of the Deaf. 167(4); 489-502. Read more...

 

 

  Emerging Leaders Voices

 

Collaborating for Mental Health

Caroline Roberts, Image of a young white woman with reddish brown hair wearing a sweater and smiling at the camera.Addressing self-injury among adolescents with intellectual and developmental disabilities (IDD) is typically quite different from how it is addressed among those without IDD. A University of Minnesota graduate student is exploring the notion that it shouldn’t be. MN LEND fellow Caroline Roberts studies self-injury among adolescents with intellectual and developmental disabilities. Despite their busy schedules, psychiatrists and behavioral therapists are eager to participate in the research. Read more...


  Community Input


Survey to Understand the Barriers to Including People with Disabilities in Clinical Trials

Have you participated in a clinical trial? If so, we want to hear from you?The Indiana Institute on Disability and Community (IIDC) at Indiana University is partnering with Disability Solutions and Bristol Myers Squibb to develop a deeper understanding of the barriers to including people with disabilities in clinical trials to reduce and eliminate those barriers ultimately. The goal is to gather data and insights that will help develop strategies that will enable more people with disabilities to participate in potentially lifesaving investigational research. Interested in learning more? Contact [email protected].

 Upcoming Events

 

38th Annual Pacific Rim International Conference on Disability and Diversity

38th Annual Pacific Rim International Conference on Disability and Diversity  March 6-7, 2022, Honolulu, HI
Taking with us lessons from choppy waters and storms, we now recognize more than ever the importance of continuing to move forward, together. This can only be done by coordinating our actions energies, keeping our shared destinations in mind.  Share your research, personal stories, practical strategies, and fellowship and aloha at the 38th Annual Pacific Rim International Conference on Disability and Diversity. Read more...

 
2023 Gatlinburg Conference, hosted by the Kansas University IDDRC and Baylor College of Medicine IDDRC

2023 Gatlinburg Conference, hosted by the Kansas University IDDRC and Baylor College of Medicine IDDRCApril 10-13, 2023, In Person
The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities is one of the premier conferences for behavioral scientists conducting research on intellectual and developmental disabilities. Read more...


AUCD Leadership Academy

AUCD Leadership Academy Shaping the future of disability

Deadline: Friday, March 3, 2023
The AUCD Leadership Academy is a program that lasts one year. It is designed for current and emerging leaders from the disability community. The goal is to develop and improve leadership skills. The Academy teaches people how to improve systems of support and services. These systems and services can include federal and state agencies. Examples include HRSA, ACL, and State Councils on Developmental Disabilities. View Informational Webinar.

Save the Date: AUCD for All Gala is April 19

Image of a blue globe with a burst of white lines through it that says AUCD for All Creating Inclusive Communities

Join the Association of University Centers on Disabilities (AUCD) on April 19, 2023 in Washington, DC for its annual AUCD for All Gala. his year, we will focus on Creating Inclusive Communities and the important work being done around the AUCD network to meet the needs of people with disabilities and their families. The AUCD for All celebration brings together leaders from all sectors who are advocating for disability rights, equity, and inclusion. aucd4all.org

Disability Policy Seminar

AUCD Leadership Academy Shaping the future of disability.

Monday, April 24: Virtual Policy Programming and Training
Thursday, April 27: Fly-In Hill Day

2023 is the start of a new Congress—which means many new opportunities to educate and advocate! During the virtual programming day, you will deepen your knowledge various policy issues affecting people with disabilities, hear predictions about the upcoming Congress, and gain valuable insights from policy experts and those “in the know.” You will leave the programming day with the knowledge and skills you need to advocate for a more equitable future for people with disabilities at your Hill visits and all year long. Read more...

 

  Submissions
Image of a button with an image of a document.

News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.news