AUCD 360 - January 2023

January 27, 2023

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
January 2023 |   Volume 8 Issue 1

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders

  Community Input

  Upcoming Events 

 AUCD Central Office News


Save the Date: AUCD for All Gala is April 19

AUCD for All

The 2023 AUCD for All Gala will take place in Washington, DC on April 19, 2023. The Gala theme will focus on Creating Inclusive Communities and the important work being done around the AUCD network to meet the needs of people with disabilities and their families. Mark your calendars and stay tuned for the latest updates via the Gala website. We hope to see you there! Read more…

AUCD Leadership Acaedmy

AUCD Leadership Academy

The AUCD Leadership Academy is a program that lasts one year. It is designed for current and emerging leaders from the disability community. The goal is to develop and improve leadership skills. The Academy teaches people how to improve systems of support and services. These systems and services can include federal and state agencies. Examples include HRSA, ACL, and State Councils on Developmental Disabilities. Informational Webinar February 1 at 4pm ET.

AUCD Network Narratives - Season 2

AUCD Network Narratives: Real Stories from Our Members

Season 2 of AUCD Network Narratives - a show that aims to cover a lot of national disability issues while handing the mic over to people to share their stories. Your host, Jeiri Flores, will kick off the second season by introducing herself, sharing what her vision for the show is, and sharing her passion for advocacy communities. Each AUCD Network Narratives episode features a conversation about experiences at a LEND, UCEDD or IDDRC, especially highlighting emerging leaders and the voices of BIPOC disabled people and their families. Learn more...

 Network Recognitions


AAIDD Announces Amy Hewitt as the Next Editor of IDD

AAIDD Announces Amy Hewitt as the Next Editor of IDD

The American Association on Intellectual and Developmental Disabilities (AAIDD) is extremely pleased to announce the appointment of Amy S. Hewitt, PhD, FAAIDD, to a 4-year term as the next Editor of Intellectual and Developmental Disabilities (IDD), the Association’s multidisciplinary peer-reviewed journal of policy, practices, and perspectives. She succeeds Dr. James Thompson as Editor of this journal. Read more...

Delaware LEND Gets New Co-director

Delaware LEND Gets New Co-director

Dr. Sarah Mallory has joined Dr. Beth Mineo as co-director of the Delaware LEND program, led by the University of Delaware's Center for Disabilities Studies. The Delaware LEND is part of a "national network" of training programs for pre-professionals, professionals, self-advocates and family members that promotes interdisciplinary, culturally competent, family-centered care. Dr. Mallory has more than 20 years of experience in public schools, home settings and academia and has a joint appointment at CDS and in UD’s School of Education. Read more...

Jennifer Sulewski Named Associate Director and Assistant Research Professor at the Institute on Disability

Jennifer Sulewski Named Associate Director and Assistant Research Professor at the Institute on Disability

The Institute on Disability is pleased to announce that Jennifer Sulewski, PhD, has been named Associate Director of the Institute on Disability (IOD), as well as Assistant Research Professor. As a Senior Research Associate and Project Manager at the Institute for Community Inclusion (ICI) at UMass Boston, Sulewski brings knowledge and an interest in community life engagement, evaluation, community building, and employment services and supports to this new and unique position at the IOD. Read more...

Dr. Arnold receives the American Psychiatric Association's 2023 Frank J. Menolascino Award

Dr. Arnold receives the American Psychiatric Assocation's 2023 Frank J. Menolascino Award

Congratulations to Dr. Arnold at The Ohio State University Nisonger Center who will receive the American Psychiatric Association's 2023 Frank J. Menolascino Award for Psychiatric Services for Persons with Intellectual Disability/Developmental Disabilities. This award will be presented at the APA Annual Meeting in May. The Frank J. Menolascino Award recognizes an individual who has made significant contributions to psychiatric services for persons with intellectual disability/development disabilities, through direct clinical services and/or dissemination of knowledge through teaching or research. Read more...


Vanderbilt Kennedy Center Celebrates Special Education Professor Erik Carter's Student Mentorship, Community Impact Ahead of Departure

Elise McMillan (gray haired woman wearing a white suit) hands a framed painting to Erik Carter (a tall man with salt and pepper hair and beard wearing a plaid button-down and khaki pants.)

The Vanderbilt Kennedy Center (VKC) and the Vanderbilt Peabody College Department of Special Education held a joint farewell celebration on Dec. 14 to give their best wishes to longtime faculty member Erik Carter, Ph.D., as he prepares for the next phase of his career.In addition to his academic appointment as Cornelius Vanderbilt Chair and professor of Special Education, Carter serves as co-director of the VKC University Center for Excellence in Developmental Disabilities (UCEDD). Read more...


Marnie Morneault Appointed as Chair of Maine's Interagency Coordinating Council (ME UCEDD)

Marnie Morneault Appointed as Chair of Maine's Interagency Coordinating Council (ME UCEDD)

Marnie Morneault, a research associate from the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) has been appointed as Chair of Maine’s Interagency Coordinating Council (ICC). The ICC is a required component of the early intervention system in every state. Morneault, who specializes in inclusive care and education, is an alumna of the NH LEND Program (2013) and is currently a family faculty member for the NH-ME LEND Program. Read more...


Kentucky Employment First Welcomes Katie Wolf Whaley as New Council Chair

Kentucky Employment First Welcomes Katie Wolf Whaley as New Council Chair

On December 2nd, 2022, Kentucky welcomed Katie Wolf Whaley as the new chair of Kentucky's Employment First Council. Employment First practices the idea that competitive integrated employment should be considered the first and primary option for people with disabilities who are eligible and desire to be employed. Simply put, it is the idea that everyone has the right to work! Read more...

 

  Network News


The Ohio State University Nisonger Center Launches Project STEER

The Ohio State University Nisonger Center Launches Project STEER

The Ohio State University Nisonger Center is proud to announce the launch of our Project STEER (Stakeholders Engaged in Early Intervention Research) website! The website contains a variety of resources related to early autism intervention research and consultation, including an early autism intervention Research Agenda created by our stakeholder teams, and a Consultation Workbook to guide researchers in their efforts to collaborate effectively with autism community stakeholders. Read more...

 


Spontaneously arising variants in FRMD5 gene are associated with a novel neurological disorder

 Spontaneously arising variants in FRMD5 gene are associated with a novel neurological disorder

A study led by Dr. Hugo Bellen, investigator at the Jan and Dan Duncan Neurological Research Institute (NRI) at Texas Children's Hospital (TCH) and distinguished service professor at the Baylor College of Medicine (BCM), reports de novo variants in a gene involved in regulating cellular motility to be the underlying cause of a new neurological disorder characterized by intellectual disability, motor dysfunction, seizures, abnormal eye movements etc. Read more...



UNC ACL Initiative Supports Summits for Education and Employment

UNC ACL Initiative Supports Summits for Education and EmploymentThe University of NC in Chapel Hill is in its second year of the five year initiative “Work Together NC,” North Carolina Community Collaboration for Employment funded by the United States Department of Health and Human Services Administration for Community Living Developmental Disabilities Projects of National Significance (Award # 90DNCE0006-01-00). Dr. Brianne Tomaszewski of the Department of Psychiatry/ TEACCH, is the principal investigator for the 5-year project. Read more...

 

UCCEDD Receives NIDILRR Grant to Study Ableism

Time to Change Our Thinking About Disability in KentuckyThe National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) has awarded the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) at Cincinnati Children's Hospital Medical Center (CCHMC) a Field Initiative (FI) Project Grant to study the impacts of internalized, interpersonal, and systemic ableism in healthcare services and systems. Read more...


Sensory Bags Available for First Time at Texas A&M Graduation Ceremonies

Sensory Bags Available for First Time at Texas A&M Graduation CeremoniesGraduation ceremonies can be exciting and loud, but that’s not always pleasant for people with sensory sensitivities. The Texas A&M Center on Disability and Development and St. Joseph Health Therapy have partnered to help change that. Special sensory bags will be available for the first time at Texas A&M University graduation ceremonies later this month. The sensory bags include a weighted lap pad, sunglasses, headphones, along with toys to help graduation guests who may feel overwhelmed. Read more...


A Look at the Undergraduate Certificate in Universal Design

A Look at the Undergraduate Certificate in Universal DesignUniversal Design affects everyone—students of all disciplines, people with disabilities, and any other community members. Universal design creates spaces and products that are as usable as possible by as many people as possible. The University of Kentucky Human Development Institute offers an Undergraduate Certificate in Universal Design. In this program, students learn about and benefit from Universal Design’s broad set of strategies that promote inclusion and participation of all people. Read more...

 

Playtime is Serious Business

Playtime is Serious BusinessEveryone knows that the holiday season is one of the most popular times of year to buy toys. IOD blogger Kathy Bates wondered about the role of assistive technology in making toys easier and more fun to play with for children with disabilities. Discover what she learned in her latest blog post "Playtime is Serious Business." Read more...


PATHS Students Get Creative!

ATHS Students Get Creative!PATHS Program students participated in two art projects this semester. The first one was in October in awareness of Hispanic Heritage month, where students learned to work with crepe paper to make paper flowers. The November art project gave students the opportunity to prepare for Christmas. They learned to paint ceramic Christmas ornaments. It was the perfect time to relax and mentally prepare to finish the semester strong. All of the students did an amazing job!!! Read more...


MMI Showcases an Inclusive Holiday Scene

MMI Showcases an Inclusive Holiday Scene

Rachel Mulligan, a part-time employee at the Munroe-Meyer Institute who loves to draw and create characters, is the designer of MMI's holiday card for this year. Mulligan drew a winter scene that reflects characters with different disabilities, including one person who uses a wheelchair, someone with cerebral palsy who uses crutches and a person with autism who uses a voice box. Read more...


JFK Partners Approved for $2,780,297 Million for a Study Comparing Approaches of Two School-Based Interventions to Manage Anxiety in Autistic Students

JFK Partners Approved for $2,780,297 Million for a Study Comparing Approaches of Two School-Based Interventions to Manage Anxiety in Autistic Students

A research team at University of Colorado School of Medicine, JFK Partners, led by Judy Reaven, Ph.D. has been approved for a $2,780,297 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) to study A Comparison of Two School-Based Interventions to Manage Anxiety in Autistic Students. Read more...


Iowa's UCEDD Leads EPSDT Shared Language Initiativee

Iowa's UCEDD Leads EPSDT Shared Language Initiative

The Care for Kids grant program team at Iowa's Center for Disabilities and Development (CDD, Iowa's UCEDD) is leading a Shared Language Initiative to support the work of the state's Early and Periodic Screening, Diagnosis and Treatment (EPSDT) interagency stakeholder workgroup. Read more...


HDI's New Project Aims to Enhance Photography of People with Disabilities

HDI's New Project Aims to Enhance Photography of People with Disabilities

A newly funded Fund for Excellence Project, will provide HDI and other organizations with accurate photographs of people with disabilities and will also provide a modeling opportunity for people with disabilities. This project will use three photographers to photograph people with disabilities in Central Kentucky. This will provide HDI and other organizations with accurate photographs of people with disabilities and will also provide a modeling opportunity for people with disabilities. Read more...

HDI Diversity, Equity and Inclusion Director Invites Wider UK Community to Seek Out HDI Resources

New Article Published on LIFE Framework to Develop Emerging Leaders

"There's only so much time on this earth, and the majority of our life is really spent asleep. Next to that, it's spent at work," said Dr. Nicholas Wright, UK Human Development Institute Director of Diversity, Equity and Inclusion. "So I want to make sure people understand they can be their authentic self. They can be genuine, and they have a sense that they matter here." Read more...

 

GEAR UP's First Faculty Fellow, Mrs. Young-Weatherspoon from Hearne High School

$3M Award to Boost IDD Research at KU

The Heart of Texas GEAR UP program is a grant project funded through the U.S. Department of Education. The goal of this project is to support and empower the Class of 2026 to fulfill their potential in order to achieve post high school success. The Heart of Texas GEAR UP is partnered with Bryan and Hearne ISDs to serve students in the class of 2026.Mrs. Young-Weatherspoon is GEAR UP's first Faculty Fellow. Read more...

 

An Overview of the Resource Finder at the Maryland Center for Developmental Disabilities

An Overview of the Resource Finder at the Maryland Center for Developmental Disabilities

The Resource Finder is a project of the Maryland Center for Developmental Disabilities (MCDD), housed within Kennedy Krieger Institute. The project provides a valuable tool for patients, students, families, and professionals, allowing them to obtain information and access resources on intellectual and developmental disabilities. Community members can call, email or submit an online form requesting information, resources, or services based on their specific needs. Read more...

 

Zebrafish Advance as a Model Organism for Fragile X Syndrome

Zebrafish Advance as a Model Organism for Fragile X Syndrome

Fragile X Syndrome is the most common inherited form of autism, caused by variants in the FMR1 gene. Scientists have developed animal models of the disorder to better understand the consequences of the genetic mutation and to see if they can intervene. In a recent study in The Journal of Neuroscience, Geoffrey Goodhill, PhD, Professor of Neuroscience and Developmental Biology at Washington University School of Medicine, and his team describe the utility of zebrafish larvae in recapitulating features of Fragile X. Read more...

 

SPARK Uncovers Moderate-effect Genes that Cause Autism

A recent study at Baylor College of Medicine and Texas Children's Hospital-one of AUCD's Intellectual and Developmental Disability Research Centers or IDDRCs-used SPARK data to identify a new class of moderate-effect genes that are associated with less likelihood of intellectual disability and may reveal more about autism and brain development. Read more...

 

 

  Emerging Leaders Voices

 

MN LEND Fellow Elected to School Board

 MN LEND Fellow Elected to School Board Kim Baker (MNLEND 2019-20) was elected to the Lakeville (Minn.) Area School Board in November. Her four-year term began January 1, 2023. Baker is a special education supervisor for Owatonna Public Schools and is a parent of three children in the Lakeville district. She was a Minnesota Leadership Education in Neurodevelopmental Disabilities (MNLEND) fellow following completion of Partners in Policymaking, a program of the Minnesota Governor’s Council on Developmental Disabilities.. Read more...

 South Carolina LEND Trainee Receives Prestigious Genetic Counseling Award

South Carolina LEND Trainee Receives Prestigious Genetic Counseling AwardMr. Scott Dent, a 2nd year genetics counseling masters student and South Carolina LEND trainee has been recognized for excellence in his field.. The Jane Engelberg Memorial Fellowship Student Research Award is intended to support research in the profession that addresses advances in genetic technology, along with the ethical, legal, and social dimensions of genetics in medicine.
Read more...

 

  Community Input


2023 Family & Individual Needs for Disability Supports (FINDS) Survey

2023 Family & Individual Needs for Disability Supports (FINDS) SurveyThe Research and Training Center on Community Living at the University of Minnesota, in collaboration with The Arc of the United States, is conducting a survey that seeks information from caregivers to assist in answering the following questions: What are the life experiences of caregivers and their family members with intellectual and developmental disabilities (IDD)? What are the most difficult or stressful aspects of caregiving? What is most rewarding about it? What would make life easier or better for caregivers, their families, and people with IDD they support across the life course. Read More...

 Upcoming Events


 22nd Annual Alabama Autism Conference

22nd Annual Alabama Autism ConferenceFriday, February 24, 2023, In Person on Online
The purpose of the Alabama Autism Conference is to build upon the vision of creating better services for individuals affected by ASD by educating our medical professionals, service providers, parents, and teachers in addition to developing relationships across the state. Read more...

2023 Gatlinburg Conference, hosted by the Kansas University IDDRC and Baylor College of Medicine IDDRC

2023 Gatlinburg Conference, hosted by the Kansas University IDDRC and Baylor College of Medicine IDDRCApril 10-13, 2023, In Person
The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities is one of the premier conferences for behavioral scientists conducting research on intellectual and developmental disabilities. Read more...

38th Annual Pacific Rim International Conference on Disability and Diversity

38th Annual Pacific Rim International Conference on Disability and Diversity  March 6-7, 2022, Honolulu, HI
Taking with us lessons from choppy waters and storms, we recognize now more than ever the importance of continuing to move forward, together. This can only be done by coordinating our actions and our energies, keeping in mind our shared destination.  Come share your research, your personal stories, your practical strategies, and fellowship and aloha at the 38th Annual Pacific Rim International Conference on Disability and Diversity. Read more...

 

  Submissions
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News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.news