AUCD 360 - December 2022

December 23, 2022

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
December 2022  |   Volume 7 Issue 12

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders

  Global Impact

  Upcoming Events 

 AUCD Central Office News

2022-2023 AUCD Children's Mental Health Champions

AUCD

AUCD's National Center on Disability in Public Health continues its work with the Children's Mental Health Champions project for a third year. Building on the efforts of the 2021-2022 Champions, twelve Champions were selected for 2022-2023 to continue providing timely support for children and their families. Read more…

Welcome Newly 2022 Elected Board Members

AUCD

On behalf of AUCD Nominating Committee Chair Tawara Goode and Board President Danny Armstrong, AUCD is pleased to announce the newly elected members of the Board of Directors. These new members will begin their three-year term after the passing of the gavel at the 2022 AUCD Conference closing plenary. Congratulations! Read more…

 Network Recognitions

FEMA Welcomes New National Advisory Council Members

FEMA Welcomes New National Advisory Council Members

FEMA announced the appointment of 16 new members to the agency's National Advisory Council. Members appointed included two AUCD territory members: Dr. Carol Salas Pagán, AUCD President, Director for the Puerto Rico UCEDD and Ms. Tafaimamao “Tafa” Tua-Tupuola, State Director for the American Samoa UCEDD at the American Samoa Community College. Read more...

Timotheus "T.J." Gordon Jr. Among Crain's Chicago Business 2022 Notable Black Executives and Leaders

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) celebrates 10 years of TennesseeWorks

Timotheus "T.J." Gordon Jr. '19MS DHD, a research associate in the Institute on Disability and Human Development who works toward self-advocacy and racial equity in disability culture, was included on the Crain's Chicago Business list of Notable Black Executives and Leaders for 2022. Read more...

Biennial Community Partnership Celebration

Biennial Community Partnership Celebration

Every two years, Community Crossroads hosts a premiere Biennial Community Partnership Celebration. This year it was held on October 13 at the Atkinson Country Club & Resort. Student Kate Lonergan of University of New Hampshire (UNH) College of Health and Human Services was in attendance and won the Outstanding DSP Award, as was UNH-4U student Andrew Martin-Brown. Read more...

Vanderbilt Kennedy Center Celebrates 10 years of TennesseeWorks

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) celebrates 10 years of TennesseeWorks

Nearly a decade ago, a group of motivated and caring people worked with the Vanderbilt Kennedy Center (VKC) (TN IDDRC, UCEDD, LEND) to form TennesseeWorks with one goal in mind: to increase the number of employed young people with intellectual and developmental disabilities in Tennessee. Read more...

Lighting the Way: JFK Partners Self-Advocacy Director Robin Ennis

Lighting the Way: JFK Partners Self-Advocacy Director Robin Ennis

Robin Ennis, LCSW, is Self-Advocacy Discipline Director for Colorado's JFK Partners LEND program. Ennis, who is a woman with a developmental disability, is the first person to serve as The Self-Advocacy Director at JFK Partners, but her leadership is nothing new. Read more...

Ruby Natale (UM UCEDD) is Recipient of the Micah Batchelor Award for Excellence

Ruby Natale (UM UCEDD) is Recipient of the Micah Batchelor Award for Excellence

Ruby Natale, PhD, PsyD was honored with the 2022 Micah Batchelor Award for Excellence in Children's Health Research. As a recipient of this award, Dr. Natale's work will be focused on improving the social-emotional development and resiliency of at-risk preschool children in childcare centers using a mobile application. Read more...

Pam Flaherty Named Executive Director of the National Center for START Services

Pam Flaherty Named Executive Director of the National Center for START Services

Pam Flaherty, a leader of educational programs that include students with disabilities, has been named executive director of the National Center for START Services (NCSS) at the University of New Hampshire’s Institute on Disability (IOD). Read more...

Utah's Institute for Disability Names New Service Division Director

New Associate Director Named at IOD in Pennsylvania

Dr. Curtis Phillips is the new IDRPP Service Division director—and he comes to the job at a busy time. The division, which includes  South East Early Intervention, Up to 3, the Employability Clinic and Stride Services, has programs operating in several Utah regions. Plans are in place to grow even more. Read more...


New Associate Director Named at IOD in Pennsylvania

New Associate Director Named at IOD in Pennsylvania

Kathryn "Katey" Burke, Ph.D., has been named the Associate Director of the Institute on Disabilities (IOD) at Temple University, College of Education and Human Development. Burke has been serving as a Senior Research Associate at the IOD and as an Assistant Research Professor in the Department of Teaching and Learning since August 2019. Read more...

  Network News

FDA Grants Special Designation to Friedreich's Ataxia Treatment

FDA Grants Special Designation to Friedreich's Ataxia Treatment

A potential new therapy for the progressive neurological disorder, Friedreich's Ataxia (FA) was granted Fast Track Designation and Orphan Drug Designation by the U.S. Food and Drug Administration based on study findings le by a neurologist at CHOP which is one of AUCD's Intellectual & Developmental Disabilities Research Centers. Read more...


The Boggs Center on Developmental Disabilities (NJ UCEDD/LEND) Launches Season 2 of BoggsCast

The Boggs Center on Developmental Disabilities (NJ UCEDD/LEND) Launches Season 2 of BoggsCast

The second season of BoggsCast, a podcast by The Boggs Center on Developmental Disabilities, has launched. The podcast is hosted by faculty and staff, often alongside co-hosts with lived experience with disability. Episodes of BoggsCast explore best practices, showcase success stories, and help listeners envision possibilities for the future through interviews with state and national experts.  Read more...

Vanderbilt Kennedy Center produces new video, Belonging in Faith Communities

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) produces new video, Belonging in Faith CommunitiesThe Vanderbilt Kennedy Center (VKC) (TN IDDRC, UCEDD, LEND) strives to foster communities of belonging for people with disabilities and their families. VKC's new video "Belonging in Faith Communities" illustrates why belonging matters so much and what true belonging looks like in two Nashville-area church congregations. Read more...

Time to Change Our Thinking About Disability in Kentucky

Time to Change Our Thinking About Disability in KentuckyKathy Sheppard-Jones, Ph.D., is executive director of the University of Kentucky Human Development Institute (HDI). Roughly one in three people in Kentucky have a disability. Recent data found 75% of Kentuckians without disabilities are employed, compared to 32% of those with disabilities. Read more...


ASL Team delivers services at Southeast Regional Institute on Deafness

ASL Team delivers services at Southeast Regional Institute on DeafnessThis past October, the Kentucky Office of Vocational Rehabilitation (OVR) American Sign Language (ASL) Interpreting Team, housed at the University of Kentucky Human Development Institute, traveled to Orlando, Florida to deliver services at the Southeast Regional Institute on Deafness (SERID) Conference. Read more...

Congratulations to Dr. Gene Arnold for receiving the Elaine Schlosser Award

Congratulations to Dr. Gene Arnold for receiving the Elaine Schlosser AwardDr. Gene Arnold, Professor Emeritus of Psychiatry at The Ohio State University Nisonger Center, received the Elaine Schlosser Award for Research in ADHD at the October AACAP meeting in Toronto. This award recognizes the best paper published in the Journal on attention-deficit disorder written by a child and adolescent psychiatrist during the past year. Read more...


Georgia Association for Infant Mental Health: Birth to Five to Hosted Kick-Off Event

Georgia Association for Infant Mental Health: Birth to Five to Host Kick-Off EventThe Georgia Association for Infant Mental Health: Birth to Five (GA-AIMH), housed in the Center for Leadership in Disability at the Georgia State University School of Public Health, held on November 2. The event celebrated the establishment of GA-AIMH and look ahead to opportunities to expand Infant and Early Childhood Mental Health (IECMH) initiatives. Read more...

Autism research is a family affair: Steps toward increasing inclusion and diversity

Autism research is a family affair: Steps toward increasing inclusion and diversityA research team working with children and adolescents with autism in the Bronx, a racially, ethnically and culturally diverse borough of New York City, has seen the significant barriers to research participation that families in our area face. Research is an essential step toward improving outcomes of individuals with autism. Read more...


Georgetown UCEDD Celebrated Inclusive Schools Week

GUCEDD employees and teachers stand in front of a classroom filled with students. The slide being projected onto the board reads,

The Georgetown University Center of Excellence in Developmental Disabilities (GUCEDD) celebrated and participated in Inclusive Schools Week in the District of Columbia (D.C.). Inclusive Schools Week celebrates the progress schools have made in providing a supportive and quality education to students with disabilities. Read more...


Reaven Receives PCORI Funding for "A Comparison of Two School-Based Interventions to Manage Anxiety in Autistic Students"

Reaven Receives PCORI Funding for

Colorado's JFK Partners LEND/UCEDD Associate Director Judy Reaven, PhD, was awarded a Patient-Centered Outcomes Research Institute (PCORI grant). PCORI funds comparative clinical effectiveness research to enable patients and other healthcare decision makers to make well-informed health and intervention choices. Read more...


Serving Underserved Communities: Therapies for Hope

Serving Underserved Communities: Therapies for Hope

Therapies for Hope is a new non-profit agency in the greater Denver area that offers interdisciplinary therapies to children with developmental disabilities and their families. JFK Partners LEND and UCEDD trainees, especially trainees in Occupational Therapy, Physical Therapy and Speech-Language Pathology, serve as team members. Read more...


2023 IOD Calendar

2023 IOD Calendar

For 20 years, the IOD has produced beautiful, full-color calendars featuring original works of art coupled with inspirational quotes. To commemorate this 20-year milestone, we have put together a special edition calendar’s "best of" featuring artwork from the past 20 years along with their original quotes.  Read more...


Ask Kathy - The IOD's Q&A Column

Ask Kathy - The IOD's Q&A Column

Introducing "Ask Kathy" - the IOD's Q&A column, where Kathy Bates responds to your questions about all things disability, including disability rights, representation, language, pride, identity, and more! Have a disability-related question? Send it to Kathy and receive an informative and honest response on the IOD website. Read more...


Violence & Aggression in Health Care: A Report Prepared for the NH Health Care Violence Prevention Consortium

Violence & Aggression in Health Care: A Report Prepared for the NH Health Care Violence Prevention Consortium

New research from the NH Healthcare Violence Prevention Group (NHHVP) puts a spotlight on the incidence and consequences of violent events within New Hampshire's hospitals. Over 200 staff from six New Hampshire emergency departments responded to the survey conducted during the summer of 2022, sharing multiple insights into not only the challenges but potential solutions as well. Read more...


New Video "Complex Identities: Hoosiers with Disabilities from Minoritized Communities"

 New Video

The Indiana Disability History Project produced a video about the experience of people who have disabilities and are members racial or ethnic minoritized communities in Indiana. Eight individuals describe lives complicated by their multiple, marginalized identities, and the overlapping systems of oppression they must navigate.
Read more...


New Article Published on LIFE Framework to Develop Emerging Leaders

New Article Published on LIFE Framework to Develop Emerging Leaders

A new article was published by Dr. Sharon Milberger and MI-LEND Program colleagues from both Wayne State University and Michigan State University. The article "Using a LIFE Framework to Develop MCH Leaders" examines the impact that the MI-LEND 'LIFE' framework has on the development of essential competencies identified within the leadership program. Read more...


$3M Award to Boost IDD Research at KU

$3M Award to Boost IDD Research at KU

The University of Kansas has awarded the KU Life Span Institute a $3 million grant to expand the organization's capacity, staff, recruitment, and training in intellectual and developmental disability research.The five-year grant awarded through the university’s Research Rising competition builds on 65 years of research on intellectual and developmental research at the Life Span Institute. Read more...

 

Va-LEND Assistant Director Presents at the Division for Early Childhood and International Society on Early Intervention Fall Joint Conference

Va-LEND Assistant Director Presents at the Division for Early Childhood and International Society on Early Intervention Fall Joint Conference

Collaboration, teamwork, and leadership are fundamental to Va-LEND. Jackie Robinson Brock, MSW and Assistant Director of Virginia Leadership Education in Neurodevelopmental Disabilities (Va-LEND), demonstrated all of these values at the annual Division for Early Childhood (DEC) and International Society on Early Intervention (ISEI) Joint Conference held in Chicago this past fall. Read more...

 

UK HDI Fund for Excellence Award to fund Bluegrass Mountain Biking Accessibility Initiative

UK HDI Fund for Excellence Award to fund Bluegrass Mountain Biking Accessibility Initiative

Kentuckians will soon have access to an adaptive mountain biking trail, thanks in part to an internal grant funded by the University of Kentucky Human Development Institute. The trail, to be built by the Kentucky Mountain Biking Association, will be designed with the interest of people with disabilities at the forefront, prioritizing input and feedback from trail users with disabilities. Read more...

 

The Maine LEND Family Picnic

 The Maine LEND Family Picnic

Food and friendly fun were themes of the 2022 Maine Leadership Education in Neurodevelopmental Disabilities (LEND) Family Picnic held at the Portland Campus of the University of New England on September 24. The picnic has been an annual LEND event with the goal of supporting families in the community and spearheading Family-Led partnerships which are integral to the training program. Read more...

New Fellowship Program Connects with Communities

New Fellowship Program Connects with Communities

The MN LEND at Institute on Community Integration is mentoring community members, providing resources, networking connections, and technology to help Minnesota families. Pilot projects completed earlier this year included training for educators on inclusive practices for campus visits by students with disabilities, online resources for providers supporting Somali mothers and their newborn children, and career preparation for neurodiverse high school students. Read more...

 
Jeiri Flores Publishes Reflection on Disability and Womanhood

 Jeiri Flores Publishes Reflection on Disability and Womanhood What is womanhood? Who defines it? And most importantly, who gets to decide that a woman is woman enough? The Strong Center for Developmental Disabilities (SCDD) is proud and honored to recognize Jeiri Flores' recent publication through the Christopher and Dana Reeve Foundation blog: "Ain't I a Woman?" a stunning piece on womanhood and its intersection with other identities. Read more...

  Emerging Leaders Voices

MN UCEDD's Certificate: A Deeper Understanding of Disability

MN UCEDD's Certificate: A Deeper Understanding of DisabilityThe MN UCEDD jointly offers the Disability Policy and Services Certificate to students who want a deeper understanding of disability. Akeem Anderson, a University of Minnesota J.D./Ph.D. student interested in the intersection of race, health, and law, is adding the Institute's Disability Policy and Services Certificate to his already hefty academic pursuits. Read more...

 AK LEND fellow YouTube Series Make Art Your Way

AK LEND fellow YouTube Series Make Art Your WayAlaska LEND Without Walls fellow Kara Thrasher-Livingston created a video series called "Make Art Your Way." This video series encourages viewers to experience making art and think about their abilities and interests. Read more...

 
MN UCEDD's Certificate: A Deeper Understanding of Disability

MN LEND Fellow is Removing Barriers for Massachusetts FamiliesAfter completing a master’s degree at Harvard University, Julia Anderson (MNLEND 2016-17) is turning her experience in disability policy to a new task of innovating state programs for the Commonwealth of Massachusetts. In January, she became director of strategic innovation for Governor Charlie Baker’s cabinet relations/strategic operations team. Read more...

  Global Impact

Special RDS Issue on Disability & Sub-Saharan Africa Now Available

Special RDS Issue on Disability & Sub-Saharan Africa Now AvailableThe Center on Disability Studies at University of Hawaiʻi at Mānoa, College of Education, is pleased to announce the release of an Extended Special Issue of Review of Disability Studies: Understanding Disability in Sub-Saharan Africa. Read More...

 Upcoming Events

 22nd Annual Alabama Autism Conference

22nd Annual Alabama Autism ConferenceFriday, February 24, 2023, In Person on Online
The purpose of the Alabama Autism Conference is to build upon the vision of creating better services for individuals affected by ASD by educating our medical professionals, service providers, parents, and teachers in addition to developing relationships across the state. Read more...

2023 Gatlinburg Conference, hosted by the Kansas University IDDRC and Baylor College of Medicine IDDRC

2023 Gatlinburg Conference, hosted by the Kansas University IDDRC and Baylor College of Medicine IDDRCFriday, February 24, 2023, In Person on Online
The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities is one of the premier conferences for behavioral scientists conducting research on intellectual and developmental disabilities. Read more...

2023 Disability Policy Seminar

2023 Disability Policy SeminarMarch 20-22, 2023, Washington, DC
The Disability Policy Seminar offers the opportunity for passionate advocates, self-advocates, experts, and professionals in the field to come together and learn about key issues that affect them most. Read more...

  Submissions
Image of a button with an image of a document.

News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910

This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.news