AUCD 360 - August 2022

August 29, 2022

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
August 2022  |   Volume 7 Issue 7
AUCD 360, News from Around the Network, Facebook space 

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders Voices

  Global Impact

  Upcoming Events 

 AUCD Central Office News


AUCD Board Elections: Nominations Requested

AUCD Globe

Deadline: September 9, 2022
AUCD is currently seeking nominations for three (3) At-Large members to join the AUCD Board of Directors for a three-year term beginning in November 2022. Meet the current members of the AUCD Board of Directors. Before making a nomination, please ensure potential nominees are (1) willing to serve on the AUCD Board for the specified term and (2) have the financial support of their center to travel to meetings (or have communicated with AUCD about the need for potential financial support). Read more...

AUCD 2022 Conference

Image of 5 women sitting in front of a table presenting to group of individuals at a conference.

The AUCD Conference brings together more than 1,200 researchers, policymakers, practitioners, professionals, advocates, community leaders, and students. This annual event is designed to promote innovative thinking that will launch disability policy, research, and advocacy initiatives to the next level. AUCD is excited to return to an in-person Conference this November 13-16 in Washington, DC. A few important updates:

  • Registration opens on September 1.
  • The official host hotel of the AUCD Conference is the Marriott Marquis, Washington, DC. The hotel room block will be available on September 1.
  • AUCD will be livestreaming the main Plenary Sessions. Inclusion is at the core of AUCD’s mission which is why we want to give everyone the opportunity to access our main Plenaries.
  • Learn more about registration, how to access livestreaming, and our plans for Hill Day by visiting

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  Network Recognitions

NH-ME LEND 30th Anniversary Video

NH-ME LEND 30th Anniversary Video

The NH-ME LEND Program celebrated its 30th anniversary by creating a 7-minute captioned video that features LEND trainees, alumni, and staff reflecting on what LEND means to them and the impact it has had on their lives. The video was produced by the University of New Hampshire Institute on Disability/UCED. Read more...


Mike Hoenig’s Retirement Signals the End of an Era for Iowa’s UCEDD

Mike Hoenig demonstrates Braille to school kids.

The Center for Disabilities and Development (CDD), Iowa’s UCEDD, is celebrating the end of an era. Mike Hoenig, long-time program coordinator for the UCEDD, has retired after twenty-nine years of service at CDD. Hoenig has played an integral role in a variety of programs and projects, including Living Well Iowa, our state’s version of Living Well with a Disability. Read more...

PATHS Graduate, Michael Bittar, receives EANSPIRATION Award Educational Impact

Pictured left to right: Michael Bittar, Susan Stotzer, Laura Avery, Jeffrey Strange, Superintendent Dr. Tom Leonard. Not pictured: Kimberly Jones, Rusty Tolliver

The EANSPIRATION Award is given to those who display leadership and commitment to the district by making a positive, noticeable and significant impact. Award recipient, Michael Bittar is a former ATS student. He went to college via the Texas A&M PATHS program and received a certificate to be a paraprofessional. Read more...


Mailman Center ADA Award

University of Miami Mailman Center for Child Development

The American Diabetes Association (ADA) has awarded Alan M. Delamater, Ph.D., ABPP, director of research at the University of Miami Mailman Center for Child Development, the Richard R. Rubin Award — one of the highest awards attainable by a behavioral scientist in the field of diabetes. Read more...

Wyoming Institute for Disabilities Speech-Language Pathologist Wins Distinguished Educator Award

Wyoming Institute for Disabilities Speech-Language Pathologist Wins Distinguished Educator Award

The Wyoming Institute for Disabilities is pleased to announce that Terri Wofford, MS, CCC-SLP, has been awarded the 2022 Bright Star Distinguished Educator Award. Presented by the Wyoming Governor’s Council on Developmental Disabilities, the annual Bright Star Distinguished Educator Award recognizes outstanding performance by individuals identified by both their peers and community as having consistently excelled in the field of disabilities within the education system. Read more...

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  Network News

Inclusive, Accessible Health Care the Focus of Free Continuing Medical Education Course

Graphic of a female doctor and a woman using a wheelchair in a doctors office. Text: Your pation with intellectual and/or developmental Disability: Accessibility, Decision-making, and Consent

A new Continuing Medical Education (CME) course aimed at facilitating more equitable and accessible health care for patients with intellectual and/or developmental disabilities (I/DD) is available through the University of Arizona Sonoran Center for Excellence in Disabilities. The CME is a free and self-directed online course for physicians, nurse practitioners, and other licensed health care providers who require continuing education. Course completion grants three CME credit hours toward license renewal. Read more...

Equitable Health Care for LGBTQIA+ Individuals with Disabilities: A New Frontier for Vanderbilt Kennedy Center and the Tennessee DD Network

Image of paper cut figures in rainbow.

Vanderbilt Kennedy Center leaders serve on the Executive Diversity Council for Vanderbilt University Medical Center (VUMC). In Tennessee, the VUMC Program for LGBTQ Health is one of the only networks in the Southeast with health care providers who understand and welcome sexual and gender minorities. However, the Center does not have specific training in disability. We know we must forge a new frontier. Read more...

Reduced levels of IGF-1 levels in the brain found to be an underlying cause for infantile spasms, hinting at a novel therapy

Image of Ballester-Rosado CJ et al. A Role for Insulin-like Growth Factor 1 in the Generation of Epileptic Spasms. Ann Neurol. 2022 Apr 25. doi: 10.1002/ana.26383. PMID: 35467038.  Text Press Release - Reduced levels of IGF-1 levels in the brain found to be an underlying cause for infantile spasms, hinting at a novel therapy - Learn more at AUCD.  @TexasChildrens @ANA_journals

A breakthrough study from Baylor College of Medicine IDDRC-one of AUCD's Intellectual & Developmental Disabilities Research Centers (IDDRCs)-has found an underlying cause & novel therapy for infantile spasms, a severe epilepsy in babies. IDDRCs contribute to the development and implementation of evidence-based practices by evaluating the effectiveness of biological, biochemical, and behavioral interventions; developing assistive technologies; and advancing prenatal diagnosis and newborn screening. Read more...

IGROW Project at Texas A&M University Student Highlights

Image of a young black woman baking in a kitchen and smilng at the camera. The future is looking pretty sweet for this amazing young lady! M.W. spent her summer exploring the world of baking and bakery ownership with Liz Smith of Country Road Baking Co.During her 5 week work experience she learned about food preparation and safety, food quality standards, communicating with customers and taking orders, baking techniques and creativity with flavor and texture. She learned how to make specialty desserts including custom cookies, cupcakes and cakes. She also worked with the owner to help build the company website! Read more...

MHMR Authority of Brazos Valley to provide Temporary Assistance for Needy Families

Graphic of three apples with a icon of a family with text MHMR Authority of Brazos Valley MHMR Authority of Brazos Valley is working with the Texas Health and Human Services Commission (HHSC) IDD-BH Unit to administer and disperse Temporary Assistance for Needy Families (TANF) Pandemic Emergency Assistance Funds (PEAF) which was  authorized through the American Rescue Plan Act of 2021 (HR 1319). The TANF PEAF addresses housing and ancillary needs of needy families in which dependent children have or reside with a family who has a diagnosis of a mental health condition, intellectual or developmental disability (IDD), and/or substance use disorder and who have been impacted by Coronavirus Disease 2019 (COVID-19) pandemic through the provision of direct financial assistance or services aimed at short-term stabilization efforts for families. Read more...

ToTAL Summer Enrichment Academy 2022

Image of a person having their brain activity monitored as they are walking on a treadmill.For the first time since 2019, the IDS Summer Enrichment Academy provided in-person options to youth and young adults wanting to increase their employability skills.  Beginning in 2018, IDS, through its Transition of Teens to Adult Life (ToTAL) Program, has hosted youth and young adults for a multi-week training and internship experience during the summer.  While other students may be taking vacations, spending times with friends and enjoying time out of school, a group of youth and young adults chose to spend this summer learning how to prepare for future employment and participating in an internship experience. Read more...

Project TAPP Now Offering Professional Development for Teaching Teams at No Cost

Project TAPP (Teaching Autism and Practitioner Preparation) is offering summer training (at no cost!) for teacher and paraprofessional teams!  - Training on Autism Spectrum Disorders and Applied Behavior Analysis - Tailored for the unique needs of Paraprofessionals - Provided at no cost - 6 half-day workshops -Topics include: Intro to Autism and Applied behavior analysis, responding to problem behavior, identifying motivation versus skill deficits, increasing independence, prompting, communication supports, and small group instruction strategies -Funding for substitute teachers available while paraprofessionals participate.  For more information, visit the webiste below or complete the interest form here:  Website: Email: Texas A&M University's Project TAPP is excited to provide professional development for teacher and paraprofessional teams working with students with autism spectrum disorder. Participants will receive two-days of PD workshops in autism and. related interventions and follow-up support during the school year. All teacher and paraprofessional teams working with students with autism are invited to participate. Read more...

Fall CampLIFE to Take Place October 21-23, Registration to Begin August 1st

camp LIFELIFE— it stands for Leadership, Independence and Friends through Experiences, and it’s what embodies the spirit of Camp LIFE, a unique and inclusive camping adventure for children with disabilities and their siblings. Held twice a year at the barrier-free facilities of Camp For All in Burton, Texas, Camp LIFE provides recreation for children ages 5 and up with disabilities and their siblings while offering a weekend of respite for their parents. Read more...

Community Supports in Crisis: No Staff, No Services

older white man and younger African American woman stand next to each other smiling. Text reads Community Supports in Crisis: No Staff, No ServicesAll the progress toward community living that has been made in services for people with IDD over decades is now in jeopardy because of catastrophic labor shortages and pervasive high turnover rates in the direct support workforce. This white paper from ICI and its partners at HSRI and NASDDDS explores the depth of the crisis in the workforce and the impact on people with IDD and sounds the alarm about the nature and scope of the workforce crisis in the IDD service system. Read more...



Speed coaching event, UCLA PEERS for Careers program

There will be an estimated 700,000 autistic adults aging into adulthood over the next 10 years. Yet, a staggering 80% of autistic adults are unemployed. The UCLA PEERS® for Careers program was developed to address the challenges faced by autistic young adults in their transition from college to career and to create a scalable solution to employment barriers faced by autistic individuals to serve as a model of higher education training for colleges across the country.

Vanderbilt Kennedy Center Introduces New Toolkits Promoting Neurodiversity, Self-determination in Early childhood Services

A teacher is teaching a young student how to right. The teacher is a white woman with brown curly hair and a white shirt. The student is around 5 years old and is a white boy with short brown hair and a yellow polo shirt. They are both holding pencils.

The Vanderbilt Kennedy Center (VKC)(TN IDDRC, UCEDD, LEND) recently introduced two brand-new educational resources promoting neurodiversity, self-determination in early childhood services. The toolkits were created by the VKC’s Treatment and Research Institute for Autism Spectrum Disorder (TRIAD) and the Vanderbilt Consortium LEND Training Program. Read more...


University of Hawaii Center on Disability Studies, 2022 July eNewsletter

University of Hawaii Center on Disability Studies July 2022 eNewsletter

Happy Disability Pride Month!! And welcome to the July 2022 issue of the University of Hawaii at Manoa Center on Disability Studies eNewsletter. Special highlights in this issue include: Featured Artist Eben Hooey; Spotlighting CDS and projects' socials; Disability and China Call for Papers RDS Journal;  #PacRim2023 theme, topic nomination and sponsors;SPIN Recorded Seminar overview; Manga Portrayals of Deaf... Project Hōkūlani in the news. Read more...


New Certificate in Disability Rights, Policy, and Services (C-DRPS) at Indiana University

Indiana Institute on Disability and Community

A new graduate certificate program, the Certificate in Disability Rights, Policy, and Services (C-DRPS) has been introduced at Indiana University – Bloomington because of a partnership between the School of Education, School of Social Work, and the Indiana Institute on Disability and Community (IIDC). The C-DRPS program provides students the opportunity to explore critical concepts impacting the lives of individuals with disabilities across the lifespan. Through active engagement with national and state experts with and without disabilities, students will be provided the opportunity to analyze and critique the systems that provide services and supports to this broad community. Read more...



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  Emerging Leaders Voices

CDD Psychologist Makes Going to the Dentist a Team Effort

Image of young white woman with her hair pulled back wearing a blouse and sweater.How do you help a child with autism, who needs to see a dentist before starting kindergarten, but has had a previous visit to the dentist that didn’t go well at all? Very patiently, according to Jillian Reiher, Ph.D, a clinical psychologist at the Center for Disabilities and Development (CDD), Iowa’s UCEDD, and the state’s premier center for diagnosis, evaluation and treatment of people with disabilities. Reiher had been working with the child who had been diagnosed with autism the previous year. They met once a week in Day Treatment, doing bridge ABA therapy and skill acquisition. When the child’s mother brought up the need for a dental appointment, and the challenging visit at the pediatric dentistry clinic, Reiher came up with a plan. Read more...


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  Community Updates


ANCOR's COVID-19 Vaccine Toolkit

ANCOR's COVID-19 Vaccine Toolkit

As a DSP, It's Up to Me! Protect yourself and the people you support 

Developed by ANCOR with funding from the Association of University Centers on Disabilities (AUCD), "As a DSP It's Up to Me" recognizes that people with I/DD should be able to live and thrive in their communities. We want them to live where they want to live, with whom they want to live. We want them to have jobs that are fulfilling to them. And we recognize achieving these goals requires isolating people with I/DD from the dangers of COVID-19. With a goal of keeping people with I/DD and the people around them safe and healthy, The COVID-19 Vaccine Toolkit was designed with ANCOR members and other community providers in mind. You are an essential partner for this initiative, and these tools were designed for you-to make it as easy as possible for you to engage with your colleagues on the frontlines to get vaccinated. 


Call for Participation: Champs Survey

A person sitting at a desk with a computer  Take a survey about COVID-19 get a $10 gift card! Take 10 minutes to tell us how you have been affected by COVID-19.The National COVID-19 Resiliency Network (NCRN) is interested in hearing about your experiences with COVID-19 so that we can better support other people like you. The CHAMPS Survey is about your feelings, experiences, and needs related to COVID-19. CHAMPS stands for COVID-19 Health Assessment and Mitigation Planning Survey (CHAMPS) Quick Response Survey. The CHAMPS Survey will take about 10 minutes. It is for adults aged 18 years and older. You must live in the United States, its territories, or its tribal communities. Read more…

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 Upcoming Events


Fostering Self-Advocacy and Choice: An Interdisciplinary Approach for Children and Adolescents who are Deaf or Hard of Hearing

Image of teacher talking to a group of studentss.Tuesday, September  20, 2022 - 8:45 am - 3:15 pm ET Virtual
The Mailman Center for Child Development Innovation and Connection Conference will bring experts together to discuss methods that members of an interdisciplinary team, including audiologists, teachers, speech and language pathologists and parents, may use to facilitate the development of self-advocacy skills in children who are deaf or hard of hearing. 

 2022 State-of-the-Science on Disability Statistics

Disability Statistics & Demographics Rehabilitation Research & Training CenterOctober 6-7, 2022, Virtual and In-Person
Out of concern for the health and wellness of our community, StatsRRTC has postponed the State-of-the-Science on Disability Statistics Conference to October 6 - 7, 2022. This hybrid event will be streamed online via Zoom and held in-person at the Holiday Inn, 550 C St SW, Washington, DC 20024. Read more...


 AUCD 2022 Conference

 AUCD 2022 ConferenceNovember 13-16, 2022, In-Person
The AUCD Conference brings together more than 1,200 researchers, policymakers, practitioners, professionals, advocates, community leaders, and students. This annual event is designed to promote innovative thinking that will launch disability policy, research, and advocacy initiatives to the next level. Read more...

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News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be