AUCD 360 - July 2022

July 22, 2022

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
July 2022  |   Volume 7 Issue 7
AUCD 360, News from Around the Network, Facebook space 

  Central Office News

  Network News

  Emerging Leaders Voices

  Community Updates

  Global Impact

  Upcoming Events 

 AUCD Central Office News


AUCD 2022 Conference

Image of 5 women sitting in front of a table presenting to group of individuals at a conference. Text Submit a Proposal! #AUCD2022 I Nov 13-16, 2022 I Washington, DC

The AUCD Conference brings together more than 1,200 researchers, policymakers, practitioners, professionals, advocates, community leaders, and students. This annual event is designed to promote innovative thinking that will launch disability policy, research, and advocacy initiatives to the next level.


CDC-AUCD Leadership Opportunity: Act Early Ambassadors-State or Territorial Liaisons to CDC's "Learn the Signs. Act Early." Program

Image of a toddler smiling with text Learn the Signs. Act EarlyThe Centers for Disease Control and Prevention's (CDC) National Center on Birth Defects and Developmental Disabilities and the Association of University Centers on Disabilities (AUCD) announce a funding opportunity for Act Early Ambassadors to work with CDC's "Learn the Signs. Act Early." This funding opportunity will support a new, two-year cohort of up to 60 Act Early Ambassadors. Individuals from all states and territories are eligible to apply. Read more...

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  Network Updates

KU Multidisciplinary Team Awarded Research Rising Grant

Image of an older white male wearing glasses with a slide presentantation projected behind him.

The University of Kansas (KU) has selected a proposal submitted by the KU Life Span Institute for funding under the Research Rising initiative. The goal of the project, “Advancing Intellectual and Developmental Disabilities Research at KU,” is to transform understanding of and support for those with intellectual and developmental disabilities. Read more...

Institute for Disability Research, Policy & Practice EDI Coach Reflects on the Places Where Disability and Diversity Meet

Image of older latino man with grayish black hair, wearing a button down shirt and smiling at the camera.

Institute for Disability Research, Policy & Practice (IDRPP) is home to one of six equity, diversity and inclusion coaches who advise the nation’s university-based centers on disability.  Dr. Eduardo Ortiz’s role with AUCD lasts through September 29. But he said work on understanding diversity and its intersection with disability should—and will—continue much farther into the future at IDRPP. Read more...

OHSU UCEDD Addresses Emergency Preparedness for People with Disabilities


In 2021, the Oregon Health & Science University UCEDD partnered with the University of Southern California UCEDD at Children's Hospital Los Angeles to host an Emergency Preparedness webinar for people with disabilities. Wesley Witherspoon, Consumer Advocate, USC UCEDD and Donna Harris, M.A., Disability Advocate and Emergency Preparedness Instructor, presented about how to prepare for emergencies using the Feeling Safe Being Safe toolkit and how to create a power outage plan. Read more...

RTC: Rural - Participatory Curriculum Development for Health and Independent Living for Disabled People: A Qualitative Study of Participant Experiences

Rural Institute for Inclusive Communities A host of RTC:Rural researchers worked with Center for Independent Living staff members through participatory curriculum development to create and update curriculum for in-person, web-based delivery. Engaging members of the intended audiences in the curriculum development process in this way is a relatively new approach to health promotion. Developing curriculum for and with disabled people had not previously been done, and is shown to be a valuable, worthwhile approach. Read more...

RTC:Rural - Creating Rural Community Outreach Materials Related to COVID-19 and Disability

Image of a person wearing a tshirt and shorts sitting on a tree stump and smiling at the camera.RTC:Rural researchers have worked with a rural disability stakeholder group to develop a list of recommendations specifically for rural outreach. Researchers packaged this feedback into Practice Guidelines for Creating Rural Community Outreach Materials Related to COVID-19 and Disability. The practice guidelines explain the health challenges of people with disabilities living in rural areas and provide a list of recommendations for rural outreach. Read more...

Walking Gives the Brain a 'Step-up' in Function for Some

Image of a person having their brain activity monitored as they are walking on a treadmill.It has long been thought that when walking is combined with a task - both suffer. Researchers at AUCD's Intellectual and Developmental Disabilities Research Center (IDDRC), Del Monte Institute for Neuroscience at the University of Rochester found that this is not always the case. Some young and healthy people improve performance on cognitive tasks while walking by changing the use of neural resources. However, this does not necessarily mean you should work on a big assignment while walking off that cake from the night before. Read more...

Epo Does Not Help with Neurological Damage to Newborns

Image of a newborn in a incubator recieving care.New research by UW School of Medicine, one of AUCD's Intellectual & Developmental Disabilities Research Centers, finds that adding erythropoietin to cooling therapy for term newborns w/ birth asphyxia has no benefit over cooling therapy alone. The findings contrast with results from small trials in which erythropoietin appeared safe and effective, noted Dr. Sandra "Sunny" Juul, senior author of the study. The Alan Hodson Endowed Professor of Pediatrics at the UW School of Medicine, Juul is also the UW Medicine chief of neonatology (newborn medical care) and practices at Seattle Children's. Read more...

Institute for Disability Research, Policy & Practice Research Offers Skills List for College Bound Students with Intellectual Disabilities

A young woman looks up from cooking.A study published in the Journal of Inclusive Postsecondary Education offers a list of skills that parents of college students with intellectual disabilities said would help students as they prepare to go to an inclusive college program.  The parents surveyed all had children who had attended a program designed to support students with intellectual disabilities at college. They agreed on a list of 30 important skills, with the first nine showing the most consensus, said Dr. Jefferson Sheen, the study’s lead author. Much of the work done on the publication happened when he was with the Institute for Disability Research, Policy & Practice. Sheen was the co-principal investigator of Aggies Elevated, USU’s inclusive college program for students with ID. Read more...

Vanderbilt Kennedy Center ASD Study Explores Link Between Repetitive Motion, Depressions

A bearded man with a beanie and scarf sits in profile. He appears sad.Research into depression risk and resilience factors for adults with ASD is also critical to guide proper screening and intervention efforts, said Vanderbilt Kennedy Center (VKC) (TN IDDRC, UCEDD, LEND) member Jessica Schwartzman, Ph.D., author on a Frontiers in Psychiatry paper that examined the connection between repetitive behaviors and depression in autistic adults. Read more...

CT UCEDD, AUCD, and National Partners Bring Disability Awareness and Inclusion Plenary Session to SOPHE 2022 National Meeting

The UNH Sustainability Award Lifetime Achievement 2022 digital badge with the UNH logo.

The UConn UCEDD’s training director and coordinator of the Certificate of Interdisciplinary Disability Studies in Public Health, Dr. Tara Lutz, was asked to moderate Society for Public Health Education (SOPHE) 2022 first ever plenary on disability and public health. Over 140 participants attended the March 25 virtual event. Speakers included Sara Lyons from the National Association of County and City Health Officials (NACCHO), D’Arcee Neal from the Ohio State University, and Dr. Adriane Griffen from the American Academy of Orthotists and Prosthetists (The Academy) and formerly AUCD’s Senior Director of Public Health and Leadership. Read more...

Mailman Center for Child Development Publishes Annual Report

Mailman Center for Child Development Publishes Annual Report

The Mailman Center for Child Development at the University of Miami highlights innovative research, clinical services, and training in its 2018-2021 Annual Report.The Mailman Center for Child Development is an academic center at the University of Miami Miller School of Medicine that addresses concerns of individuals with developmental disabilities and children with special health care needs through: Research; Clinical service; Training for professionals and Parental workshops and Advocacy. Read more...

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  Emerging Leaders Voices

Maine LEND Leadership at Health Careers Camp

Image of three students attending summer camp. The Maine LEND program led two one-hour activity sessions focused on the work of health professionals who work with children with neurodevelopmental disabilities and their families at the Annual Health Careers Explorations Camp at the University of New England.   Since 2010, the Maine AHEC Network has been hosting a free annual Health Careers Explorations Camp for high school students from rural or underserved communities to participate in hands-on activities to learn about various careers in health care. Read more...


Maine LEND Final Presentations Demonstrate Leadership

Image of a group of 11 trainees standing next to each other with one screen behind projecting another trainee.The Maine LEND graduated 12 Trainees from the program in May 2022.  As part of demonstrations of Maternal and Child Health Competencies and LEND tenets, the Trainees each participated in an elective project that was presented at the end of April.   Topics included; Support and Accessibility; Going Beyond the Limits of Self-Advocacy; Creating and Becoming a Culturally Informed Family Resource; A Wabanaki Cultural Immersion Experience; Best Practices in Classroom Inclusion; and A College Based Transition Program for Young Adults with Disabilities. Read more...

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  Global Impact


Where They Are Now: ICI Reconnects with ADA Fellows

The ADA fellows at the University of Minnesota (MN UCEDD) in 2017

Navigating war, pandemic, persistent ableism, or a combination of all three, participants in the ADA Anniversary Fellowship Program in Inclusive Education (pictured at the University of Minnesota in 2017) continue to work for global inclusion, five years. In 2017, the Institute on Community Integration and the Humphrey School of Public Affairs collaborated with Arizona State University to welcome 28 fellows to the six-week intensive fellowship. The fellows, 20 of whom completed their experiences in Minnesota, observed and formed connections with local organizations working for more inclusive classrooms. The program was led by ICI’s Renáta Tichá and Brian Abery, co-directors of the Global Resource Center for Inclusive Education. Read more...

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  Community Updates

ADA Anniversary #ADA32 - Celebrate. Learn. Share.

ADA 32 Americans with Disabilities Act Celebrate the ADA! July 26, 2022 1990-2022

The Americans with Disabilities Act (ADA) was signed into law on July 26, 1990 by President George H.W. Bush. Throughout the year and on the ADA Anniversary (July 26), the ADA National Network recognizes this landmark event and the important work to promote equal opportunity for people with disabilities. Read more...

New Guidance Helps Schools Support Students with Disabilities and Avoid Discriminatory Use of Discipline

Healthcare provider wearing a mask, holding hands with a person another person wearing a mask who is sitting in a wheelchair.

New guidance released today from the Department of Education’s Office for Civil Rights (OCR) and Office of Special Education and Rehabilitative Services (OSERS) helps public elementary and secondary schools fulfill their responsibilities to meet the needs of students with disabilities and avoid the discriminatory use of student discipline. Read more...

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 Upcoming Events


Maryland Center for Developmental Disabilities: 2022 Summer Learning

Image of teacher talking to a group of studentss.June 21, 2022 - August 1, 2022, Virtual
The Community and Professional Development Training Program offered by the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute is committed to providing evidence-based training across a broad spectrum of topics to improve the quality of life of people with disabilities and their families. Read more...


2022 MIND Summer Institute on Neurodevelopmental Disabilities

Image of three young women embracing and smiling at the camera.Wednesday, August 3, 2022, Virtual
This annual event is intended to help participants keep pace with the latest in evidence-based treatment and research on neurodevelopmental disabilities and the implications for best practices in prevention, assessment, and treatment. ​This inter-disciplinary event will bring together researchers and self-advocates to share valuable information and personal experience.. Read more...


 2022 State-of-the-Science on Disability Statistics

Disability Statistics & Demographics Rehabilitation Research & Training CenterOctober 6-7, 2022, Virtual and In-Person
Out of concern for the health and wellness of our community, StatsRRTC has postponed the State-of-the-Science on Disability Statistics Conference to October 6 - 7, 2022. This hybrid event will be streamed online via Zoom and held in-person at the Holiday Inn, 550 C St SW, Washington, DC 20024. Read more...


 AUCD 2022 Conference

 AUCD 2022 ConferenceNovember 13-16, 2022, In-Person
The AUCD Conference brings together more than 1,200 researchers, policymakers, practitioners, professionals, advocates, community leaders, and students. This annual event is designed to promote innovative thinking that will launch disability policy, research, and advocacy initiatives to the next level. Read more...



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News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be