AUCD 360 - June 2022

June 24, 2022

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
June 2022  |   Volume 7 Issue 6
AUCD 360, News from Around the Network, Facebook space 

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders Voices

  Global Impact

  Upcoming Events 

 
 AUCD Central Office News

 

Statement of the Association of University Centers on Disabilities on Reproductive Health

In response to the U.S. Supreme Court's decision today in Dobbs v. Jackson Women's Health Organization, the Association of University Centers on Disabilities (AUCD) issues the following statement. First and foremost, AUCD recognizes the significance and complexity of the impact of the decision on all people, including those with disabilities. For many, this is deeply personal. AUCD fully supports and advocates for people with disabilities to have the right and freedom to make their own decisions about healthcare. Read more...

AUCD 2022 Awards - Nominate an Inspiring Leader

Image of 5 women sitting in front of a table presenting to group of individuals at a conference. Text Submit a Proposal! #AUCD2022 I Nov 13-16, 2022 I Washington, DC

Deadline: August 15, 2022
Each year, AUCD recognizes people, programs, and organizations for their leadership and contributions to the disability community. We honor leadership, advocacy, research, policy, and practice that creates more inclusive communities for people with disabilities and their families. AUCD invites you to nominate someone who inspires you in the spirit of this year’s theme, Health Equity: Serving the Whole PersonRead more...

2022 Emerging Leaders Map: Supporting Resiliency and Self-Determination for All

Outline of US Map with text AUCD Emerging Leaders Map Showcasing Trainee & Early Career Leaders in the AUCD NetworkThe 2022 Emerging Leaders Map has now launched! The AUCD Emerging Leaders Map highlights the contributions of emerging leaders, who are current and former trainees at LENDs, DBPs, UCEDDs, and IDDRCs. The theme of this year’s map is Supporting Resiliency and Self-Determination for All. Read more...

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  Network Recognitions


Retiring Va-LEND Faculty Member Leaves with a Song

Image of an older woman with short grayish hair wearing a blazer and scarf.

It is this value Lissa Power-deFur, PhD brought to Va-LEND as the Speech-language pathology faculty member since 2011, even though she has worked in this field for over 40 years. In her role at Va-LEND,she advised and supported students with their research and leadership activities. However, this summer she will move from a faculty position into retirement.Read more...

PATHS Graduate, Michael Bittar, receives EANSPIRATION Award Educational Impact

Pictured left to right: Michael Bittar, Susan Stotzer, Laura Avery, Jeffrey Strange, Superintendent Dr. Tom Leonard. Not pictured: Kimberly Jones, Rusty Tolliver

It The National Academies of Sciences, Engineering and Medicine's Board on Children, Youth and Families will host a 3-day virtual workshop focused on Supporting Children with Disabilities, Lessons from the Pandemic. The event is designed to explore promising approaches and innovative strategies employed during the pandemic to address challenges faced by children with disabilities and their families, including access to clinical service and treatment needs, home caregiving, and mental health treatment with an emphasis on underserved/under resourced children and families. 
Read more...

Mailman Center ADA Award

University of Miami Mailman Center for Child Development

The American Diabetes Association (ADA) has awarded Alan M. Delamater, Ph.D., ABPP, director of research at the University of Miami Mailman Center for Child Development, the Richard R. Rubin Award — one of the highest awards attainable by a behavioral scientist in the field of diabetes. Read more...

IOD Received a Lifetime Achievement UNH Sustainability Award

The UNH Sustainability Award Lifetime Achievement 2022 digital badge with the UNH logo.

IOD received a Lifetime Achievement UNH Sustainability Award in the staff category. The Sustainability Awards program at UNH celebrates and incentivizes individuals and teams doing important sustainability research, curriculum development and teaching, campus initiatives and culture, and external engagement work across and beyond the university. Read more...

Mailman Center Associate Director Receives Highest Honor in from the American Occupational Therapy Association

Image of Douglene Jackson holding an award and certificate on statge

Douglene Jackson, Ph.D., OTR/L, LMT, ATP, Assistant Professor and Associate Director of Community Engagement at the Mailman Center for Child Development, has received the American Occupational Therapy Association (AOTA) Award of Merit and Roster of Fellows Award at the organization’s 2022 Annual Conference and Expo. In addition, she has been elected as the AOTA's alternate delegate to the World Federation of Occupational Therapists. Read more...

Four Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) TRIAD Practices Accepted into AMCHP Innovations Hub; One selected as award-winner

Association of Maternal and CHild Health Programs logo (red AMCHP letters with silhouettes of children and their parents) with a collage of photos, including a group photo of VKC TRIAD staff, a young boy smiling, another little boy sitting in flowers, and a woman answering a work phone.

Four best practices emerging from the Vanderbilt Kennedy Center’s (TN IDDRC, UCEDD, LEND) Treatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD) were accepted into the Association of Maternal & Child Health Programs (AMCHP) Innovations Hub Database. The Hub is an online platform that provides maternal and child health professionals and advocates with a variety of resources, including a searchable repository of “what’s working” in the maternal and child health field. Read more...

Steven Beetstra, DDS, MHSA Receives Award

Image of a man wearing a suit and tie smiling at the camera.

The Vanderbilt Kennedy Center’s (TN IDDRC, UCEDD, LEND) Treatment & Research Institute for Autism Spectrum Disorders (VKC TRIAD) announces the hiring of Adithyan Rajaraman, Ph.D., BCBA-D, LBA, as Director of Behavior Analysis Research. As an assistant professor in Pediatrics at Vanderbilt University Medical Center and a VKC investigator, Dr. Rajaraman will lead the research and dissemination of TRIAD’s innovative behavior analytic services and the growing portfolio of related projects. Read more...

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  Network News


Finding Our Place in the World

Image of Pine Ridge hills with light blue sky above the hills.Even though Tribal Nations are exempt from the Americans with Disabilities Act (ADA), some tribes have adopted ordinances that protect members with disabilities.South Dakota is home to the Lakota, Dakota, and Nakota Tribes as part of the Očeti Sakówi (7 Council Fires Nation).  Between 8-10% (77,000) of South Dakota’s population identify as Native American according to the US Census Bureau (2020) with an estimated undercount of 6% for Tribal members.  Approximately 20% (also thought to be undercounted) identify as having a disability. Read more...

The Center for Autism and Related Disorders at Kennedy Krieger Institute Kicks off Meaningful Conversations with Autistic Self-Advocates

Image of a young woman with shoulder length hair smiling at the camera with art hanging behind them.The Center for Autism and Related Disorders at Kennedy Krieger Institute kicked off monthly Meaningful Conversations with autistic self-advocates on June 8, 2022. In the inaugural session, our guest was Ms. Katelyn Szymanski. Ms. Szymanski is a Behavior Associate at Itineris in Baltimore, MD, and has just completed undergraduate training in social work. She explained how she first learned of her diagnosis in late elementary school. While she was distraught at the news, it explained a lot, like why she didn't learn to talk until after 4 years of age, and gave her insights into why other kids called her names and saw her as 'different'. Read more...

UK Human Development Institute Resources Formally Recommended by American Academy of Pediatrics for Families of Infants with Down Syndrome

Image of a young child holding up a heart with puzzles pieces on it.In a clinical report released on April 18, The American Academy of Pediatrics recommended resources administered by the University of Kentucky Human Development Institute to pediatricians across the nation. These resources are recommended to be distributed by pediatricians to families learning about a prenatal diagnosis of Down syndrome. The report directs medical providers to Lettercase: National Center for Prenatal and Postnatal  Resources, which has been housed within the Human Development Institute since 2012. Read more...

MI-DDI Co-hosts Vaccination, Health Clinic for People with Disabilities and their Families

Image of staff in front of a the Wayne Health Mobil Unite VanThe Michigan Developmental Disabilities Institute (MI-DDI) co-sponsored a health and resource fair with Disability Rights Michigan, as a part of the Michigan Vaccination Partners. Here, a new ADA-compliant Wayne Health Mobile Unit offered vaccinations and boosters, as well as diabetes, cholesterol and kidney function screenings; blood pressure screenings; COVID-19 testing; HIV testing; mental health screenings; and referrals to health and care resources in the community. Read more...

Translational Research in Hereditary Spastic Paraplegia

Image of a group of adults and children New research out of Boston Children's Hospital-one of AUCD's Intellectual and Developmental Disabilities Research Centers (IDDRCs)-provides new insight into a group of genetic diseases called hereditary spastic paraplegias (HSPs). Features of HSPs include progressive motor impairment and moderate to severe intellectual disability. The hereditary spastic paraplegias (HSPs) are a group of over 80 rare or ultra-rare genetic diseases that collectively represent the most common cause of inherited spasticity and associated disability worldwide, with an estimated prevalence of 2-5:100,000. Read more...

The Ohio State University Nisonger Center's Christine Brown becomes Ambassador for Charting the LifeCourse

Image of a woman with short hair wearing glasses and a floral blouse.Christine Brown, Clinical Research Assistant at the Ohio State University Nisonger Center, has completed the Ambassador training program through Charting the LifeCourse. She is now a full-fledged Ambassador and will be working with the Family Resource Network of Ohio to help educate and help self-advocates utilize the framework and tools of Charting the LifeCourse. Congratulations Christine! 
Read more...

Inclusive Pre-K Classrooms: Unlocking Potential

Image of a child and teacher building blocks on a classroom floor.Ms. Diane Appel, Dr. Rebecca Landa, Ms. Shay Roemmich and Ms. Carrie Zetlmeisl were awarded funding from the Maryland State Department of Education for the Prekindergarten Expansion Grant Program at Kennedy Krieger Institute's Center for Autism and Related Disorders. This was one of only 50 grants awarded in a pool of 150 applicants for the 2022-2023 school year and we are thrilled that it enables us to further our mission of equity, diversity and inclusion at CARD. Read more...

Herron Named Interim Director of the Early Childhood Center at the Indiana Institute on Disability and Community

Image of a brain activity scan with an arrow pointing with text CA1. Katie Herron, research scientist with the Institute’s Early Childhood Center, has been appointed as interim director of the center. Herron is replacing Michael Conn-Powers, who has retired after serving as the center’s director for 28 years. Herron has been with the institute for nearly a decade and brings her extensive background in psychology and belief in the center’s research-to-practice mission to the role. Read more...

Inclusive Postsecondary Education (IPSE) Day

Incoming UNH-4U student Grace holds up an IPSE Day sign that says, The IOD and UNH-4U celebrated Inclusive Postsecondary Education (IPSE) Day. IPSE Day is a day to raise awareness and spread the word about inclusive postsecondary education (IPSE) options for students with intellectual disabilities. IPSE means that students with intellectual disabilities can go to college, regardless of their test scores and high school diplomas, just like their peers and siblings. Read more...

Traumatic Brain Injury Toolkit for Emotional Self-Regulation Project

UMKC Institute for Human Development A University Center for Excellence in Developmental DisabilitiesTraumatic brain injury (TBI) is an injury that affects how the brain works. The Centers for Disease Control (CDC) estimates there were more than 220,000 TBI related hospitalizations in 2019.  Difficulties regulating emotions are a frequent consequence of a TBI. Common behavioral and emotional problems experienced by a person with a TBI include depression, anxiety, impulsive behavior, and verbal or physical outbursts. Read more...

Georgetown UCEDD Names New Information Dissemination Coordinator

 A headshot of white woman wearing a plain blue shirt and gold wire framed glasses. She has shoulder length curly reddish light brown hair and is outside. Leaves and tree branches make up the background.The Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) has hired a new Information Dissemination & Product Development Coordinator, Jalyn Marks, to lead an effort to partner with disabled persons, their families, and the communities in which they live in the District of Columbia to share their stories of lived disability experiences. These stories will inform policy makers, legislators, and other constituency groups to promote change within the current system of supports and services in DC. Read more...

PATHS Program Welcomes New and Returning Students

Image of computer monitor that shows Paths Certificate Program with students sitting in a classroom in the background. On June 19th, we will be welcoming 13 new amazing students and on June 20th we will be welcoming back 15 amazing students from our first two-year cohort.  Both cohorts will be running simultaneously and our 2nd year cohort is super excited and cannot wait to start mentoring our newbies coming in. Both cohorts will learn valuable skills related to employment, self-determination, self-advocacy, and independent living. Read more...

Successful Grant Submission to AIR-P

Kennedy Krieger InstituteResearchers from the UMKC Institute for Human Development partnered with the leaders at the Children’s Center for the Visually Impaired, and other experts in education. Together, they explored the need for better measures of kindergarten readiness for children with visual impairment and the development of specialized decision-making tools. The purpose of the project was to provide solutions to guide teachers of the visually impaired, as well as kindergarten teachers, IEP teams, and personnel at receiving schools. Read more...

Horticultural Options in Plant Sciences (HOPS) Holds Graduation

Breionna Lachea Toliver, Chloe Rose Mallette, Christopher William Green Pizana, Kayley Marie McLean, Kylee Jean Rosier, Noah Samuel Martin, Sofia Angelina Montemayor Thomas, and Victoria Lynn Arevalo, and Shelbi Davenport, AgriLife Extension Program Assistant)The HOPS Project at Texas A&M University is a two semester training program to provide instruction and support for individuals with disabilities to gain the necessary skills and experiences to work in the horticulture industry. This first year, they had 8 students graduate from the program. Victoria Lynn Arevalo, Chloe Rose Mallette, Noah Samuel Martin, Kayley Marie McLean, Christopher William Green Pizana, Kylee Jean Rosier, Sofia Angelina Montemayor Thomas, and Breionna Lachea Toliver. Read more...

NH-ME LEND, Dartmouth Health, and Northeast Regional LEND Consortium Host Tenth Annual Spring Conference

image of child sitting next a teddy bear with their back faced to the cameraOn May 9, 2022 over 150 interdisciplinary professionals from the Northeast Region participated virtually in the 10th annual spring conference "Trauma in Children and Youth with Neurodevelopmental Disabilities: Impact and Evidence Based Interventions". Read more...


Hawai'i UCEDD June 2022 eNewsletter Release

Hawai'i UCEDD June 2022 eNewsletter ReleaseHighlighting Employment First Bill passing; Summer ASD Swim Facts with Dr. Kelle Murphy; 'Worry Time' Tips with Dr. Maya Matheis; Parent Resources Issues with Sandra Oshiro, Meriah Nichols, and Susan Rocco and SPIN (CDS Community Advisory Council members and partners); Dr. Thomas Conway's Retirement; featured artist Eben Hooey; Teen Survey and much more! Read more...

University of Cincinnati UCCEDD Vision Read on Ohio Senate Floor

Image of Senator Antonio reading mission statement on Senate floor.The University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD)’s vision was read on the Ohio Senate floor on May 25. Senator Antonio referenced our vision as she encouraged the Senate to pass SB202 Prohibiting discrimination on the basis of disability in parenting. Senator Antonio worked with our advocacy workgroup on the issue and connected our vision to her learnings. The bill then passed unanimously in the Senate. The bill will now return to the House for resolution before final passage. Read more...

New University of Iowa Hawk-IDDRC Twitter Account

Image of cheerleading holding IOWA Banners in a filled college stadium.The (University of Iowa) Hawk-IDDRC has a new Twitter account! Check out @Hawk_IDDRC and follow us!  One of only 15 Intellectual and Developmental Disabilities Research Centers in the country, the Hawk-IDDRC is part of the Association of University Centers on Disabilities (AUCD). Read more...

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  Emerging Leaders Voices

LEND Capstone Poster Session and Celebration

NH-ME LEND staff and trainees gather for a group photo.

17 trainees from the 2021-2022 NH-ME LEND program shared their scholarship and leadership development during the annual Capstone Poster Session and Celebration. The trainees' posters showcased their leadership development through community placements in settings that included state agencies, community health providers, advocacy organizations, and partners in each state's developmental disabilities network. Read more...

MN LEND Fellow Teaches People with IDD to Write Their Stories

Image of a young white man wearing a flannel shirt smelting at the camera.

Cow Tipping Press  founder Bryan Boyce (MNLEND, 2020-21) recently wrapped another series of the organization's writing courses for adults with intellectual and developmental disabilities (IDD), bringing the cumulative number of students served to nearly 600. Read more...

WI LEND Celebrates 10 Years of Welcoming Disability Advocates

WI LEND Disability Advocates

Wisconsin’s Leadership Education in Neurodevelopmental and Related Disabilities (WI LEND) program is proud to celebrate the tenth anniversary of graduating disability advocates as LEND trainees! WI LEND offers interdisciplinary and leadership training to over 30 trainees a year across more than a dozen disciplines, including disability advocates (persons with a developmental disability) and family (family members of a person with a developmental disability). Read more...

MN LEND 2021-22: "We Grew and Learned from One Another"

The MN LEND class of 2021-22.

From developing more inclusive 4-H programs to identifying best practices in teaching medical and dental students about intellectual and developmental disabilities, the 2021-22 MN LEND fellows made significant contributions. On May 19, the program celebrated their accomplishments. Read more...

Iowa LEND Trainees Explore the Intersection of Mental Health, Disability, and Incarceration

27 trainees completed the Iowa Leadership Education in Neurodevelopmental and Related Disabilities (Iowa LEND) program

This year, 27 trainees completed the Iowa Leadership Education in Neurodevelopmental and Related Disabilities (Iowa LEND) program. Their graduation ceremony was held on May 5, two days after they had presented at the third annual virtual Iowa LEND Research Poster Symposium. As in previous years, the Symposium provided an impressive display of the talent, hard work and dedication of these emerging leaders.  Read more...

Two Iowa LEND Graduates Named 2022 Healy Award Recipients

(L-R) Flannery Currin, Assistive Technology and Family trainee, and Sofie Dollison, Public Health trainee (L-R) Flannery Currin, Assistive Technology and Family trainee, and Sofie Dollison, Public Health trainee

Two graduates of the Iowa LEND program were recently named the 2022 recipients of the Alfred Healy Leadership Award in Developmental Disabilities. Each year, Iowa’s UCEDD awards a trainee, or trainees, who are nominated by LEND core faculty after completing the LEND program with distinction. This year’s recipients are Flannery Currin, Assistive Technology and Family trainee, and Sofie Dollison, Public Health trainee. Read more...

Louisiana LEND Scholars Recognized with Allied Health Honors

     Alix Moody received the Outstanding Student in Audiology and nominated for Alpha Eta Society (LA LEND 2020-21)     Sloane Henry received the Berlin Audiology Award (LA LEND 2020-21)

Louisiana’s UCEDD, LSUHSC Human Development Center, is proud to see Louisiana LEND scholars receive honors from the LSU Health Sciences Center School of Allied Health Professions as they completed their respective programs on May 19th.The scholars recognized are: Alix Moody received the Outstanding Student in Audiology and nominated for Alpha Eta Society (LA LEND 2020-21)  Sloane Henry received the Berlin Audiology Award (LA LEND 2020-21). Read more...

NH Leadership Series Graduate Receives SAR-TAC Fellowship

A young man with brown hair and black glasses is wearing a light blue polo shirt.

Louisiana’s UCEDD, LSUHSC Human Development Center, is proud to see Louisiana LEND scholars receive honors from the LSU Health Sciences Center School of Allied Health Professions as they completed their respective programs on May 19th.The scholars recognized are: Alix Moody received the Outstanding Student in Audiology and nominated for Alpha Eta Society (LA LEND 2020-21) Sloane Henry received the Berlin Audiology Award (LA LEND 2020-21). Read more...

2021 PATHS Graduate, Brian Berg, passed his CDA license exam and in-class evaluation

Image of white man with facial hair and glasses wearing a tshirt.

The year of COVID (2020-2021) did not stop the PATHS program from teaching students, like Brian Berg, the skills needed to have successful and independent lives. The PATHS Program was forced to transition to an online program, but through zoom trainings and student online interactions the program experienced another successful year. Brian Berg graduated the PATHS program as a Para-Professional in 2021 and continued his training at San Jacinto Community College in Pasadena, Texas.
Read more...

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  Community Updates

 NEW CDC Study: COVID-19 Cases and Hospitalizations Among Medicare Beneficiaries With and Without Disabilities

Healthcare provider wearing a mask, holding hands with a person another person wearing a mask who is sitting in a wheelchair.

A new CDC study explored the rate of COVID-19 related hospitalizations among Medicare beneficiaries with and without disabilities. Researchers of this study found that COVID-19 related hospitalizations were higher among Medicare beneficiaries with disabilities (3,148 per 100,000) compared Medicare beneficiaries without disabilities who were aged 65 and older (2,129 per 100,000). Read more...

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 Upcoming Events

Maryland Center for Developmental Disabilities: 2022 Summer Learning

Image of teacher talking to a group of studentss.June 21, 2022 - August 1, 2022, Virtual
The Community and Professional Development Training Program offered by the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute is committed to providing evidence-based training across a broad spectrum of topics to improve the quality of life of people with disabilities and their families. Read more...

 2022 State-of-the-Science on Disability Statistics

Disability Statistics & Demographics Rehabilitation Research & Training CenterOctober 6-7, 2022, Virtual and In-Person
Out of concern for the health and wellness of our community, StatsRRTC has postponed the State-of-the-Science on Disability Statistics Conference to October 6 - 7, 2022. This hybrid event will be streamed online via Zoom and held in-person at the Holiday Inn, 550 C St SW, Washington, DC 20024. Read more...

 AUCD 2022 Conference

 AUCD 2022 ConferenceNovember 13-16, 2022, In-Person
The AUCD Conference brings together more than 1,200 researchers, policymakers, practitioners, professionals, advocates, community leaders, and students. This annual event is designed to promote innovative thinking that will launch disability policy, research, and advocacy initiatives to the next level. Read more...

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  Submissions
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News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.news