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AIR-P Pediatrics Supplement Now Published
 AIR-P has been developing a supplement issue to be included in the Pediatrics Journal. The first supplement of articles has been published on April 1, 2022. Check out articles written by AUCD Network centers and members in this issue. Read more...
Can Early Behavioral Therapy Interventions Improve Developmental Trajectories in Down Syndrome
 While children with Down syndrome have broad developmental delays and quite often have difficulty with challenging behaviors, there are no standardized behavioral strategies or therapies to treat them. Without a well-researched therapeutic standard, there is great variability in the quality of the services offered and a lack of evidence that can be drawn on by advocates for improved health care services. Dr. Nicole Baumer is currently pioneering the JASPER Clinical Trial research program in Down syndrome. Read more...
Mailman Center Hosts Successful Conference on Early Childhood Development in a Pandemic
Over 250 childhood personnel and allied health professionals including speech language pathologists, psychologists, social workers, and physicians participated in the University of Miami Mailman Center for Child Development Innovation and Connection Conference. The conference brought together experts in early childhood development to discuss challenges and opportunities for the care and wellness of young children as they grow up in a pandemic.” Read more...
New Center of Excellence for Behavioral Health Will Build Statewide Capacity to Serve Iowans
The Center for Disabilities and Development (CDD), Iowa’s UCEDD, has been awarded a grant from the Iowa Department of Human Services to establish a Center of Excellence for Behavioral Health in Iowa. CDD will collaborate with the Iowa Consortium for Substance Abuse Research and Evaluation to create the new Center of Excellence for Behavioral Health to develop and implement evidence-based practices to support individuals with serious mental illness (SMI), serious emotional disturbances (SED), and co-occurring conditions. Read more...
Missouri's Month-Long Effort to Increase Awareness Around Sexuality and Sexual Assault
In recognition of Sexual Assault Awareness Month, the University of Missouri-Kansas City’s Institute for Human Development, and the Missouri Developmental Disabilities Council (MODDC) are partners on a month-long campaign to promote self-advocacy among individuals with I/DD. The campaign efforts speak to the issues that confront people with I/DD, including how survivors of sexual assault and rape can find it difficult to form close bonds, develop healthy relationships and understand consent.. Read more...
WIHD Develops Post-COVID Roadmap to Recovery and Resilience
The COVID-19 pandemic disrupted WIHD's operations in an unprecedented way compelling the organization to rapidly shift service delivery models to ensure that our critical services could continue with little interruption. We had to rethink and adjust many processes; develop and implement new business models; modify employment practices; and adopt new technologies. Read more...
Rural Institute for Inclusive Communities Announces Recipients of the 2021 Community Investment Fund
The Rural Institute for Inclusive Communities established the Community Investment Fund (CIF)to support innovative projects or programs that help Montanans with disabilities live, learn, work and play alongside people without disabilities. This year Children's Special Health Services matched Rural Institute funds so awards were given to three projects: Kalispell Mosaic Mural, Pumpkins for a Cause and BASE Film Making Extravaganza. Read more...
Partnering with UCEDDs and LENDs to Develop a Statewide Early Childhood Comprehensive Systems of Personnel Development (CSPD)
The Early Childhood Personnel Center (ECPC) provides Technical Assistance to facilitate the implementation of Comprehensive Systems of Personnel Development (CSPD) for all disciplines serving infants and young children with disabilities and their families. A CSPD is a framework used to improve the quantity, quality, and effectiveness of the early childhood intervention workforce who provide services and interventions to facilitate the development and learning of infants and young children with disabilities and their families. Read more...
Center Staff Attend the Texas Transition Conference and PATHS Staff Attend the Grimes County Transition Fair
The Texas Transition Conference was held on February 23-25 in Denton, Texas. This year's conference faced a few challenges as an unusual ice storm made travel difficult for many of the attendees and speakers. However the event was very successful and informative. With over 350 in-person attendees registered and over 200 online registrants. Those who registered, but could not attend, were given access to view sessions online during the event. Many positive comments and feedback were given. Read more...
Collaboration Between Vanderbilt Kennedy Center, Meharry Medical College Addresses Disparities in Autism Diagnosis for Black Families, Increases Understanding of Providing Equitable Care
Researchers from the Vanderbilt Kennedy Center’s (TN IDDRC, UCEDD, LEND) Treatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD) and Meharry Medical College (MMC) are collaborating to better understand the diagnostic experiences of Black or African American families with children with autism spectrum disorder (ASD). Though it is now possible to identify ASD in children as young as 18 months, African American children with ASD experience significant delays in diagnosis and access to treatment services.
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The Research and Training Center on Disability in Rural Communities is Recruiting Participants for the Rural Transportation Interviews Project
The Research and Training Center on Disability in Rural Communities (RTC:Rural) at the University of Montana is currently recruiting for a project in which researchers are interviewing people with disabilities who live in rural areas with limited transportation options. The one-on-one interviews ask about how they get around their communities and their experiences with different transportation services. Read more...
In Twenty-Two Cents an Hour, Doug Crandell Uncovers the Harsh Reality of People with Disabilities in the United States Who are Forced to Work in Unethical Conditions for Subminimum Wages with Little or No Opportunity to Advocate for Themselves
Doug Crandell is Public Service Faculty at the Institute on Human Development and Disability at the University of Georgia UCEDD and the author of several books and novels, most recently They're Calling You Home. Doug’s new book Twenty-Two Cents an Hour will be available starting APRIL 15, 2022. In this book, Doug Crandell uncovers the harsh reality of people with disabilities in the United States who are forced to work in unethical conditions for subminimum wages with little or no opportunity to advocate for themselves, while wealthy CEOs grow even wealthier as a direct result. Read more...
Self-Advocates from WIHD interviewed by Fox5NY
Hear Our Voices at The Westchester Institute for Human Development (WIHD) has developed a Speaker’s Network of self-advocates who present at local, state, and national conferences. The Speaker's Network offers individualized coaching to young adults with disabilities that want to share their story. The program empowers self-advocates to use their lived experiences to increase disability awareness. After completing the program, participants have a custom professional presentation that reflects their passion on a relevant topic. Read more...
Aggie Guide Dogs and Service Dogs at Texas A&M University Needs Your Support
Aggie Guide Dogs and Service Dogs (AGS), is a student-run organization that began in 1997. Our purpose is to educate about, fundraise for, and promote the training and use of guide dogs and service dogs and to increase awareness about how these animals help the individuals, with disabilities who use them. Read more...
Vanderbilt Kennedy Center Researcher Serves on Newly Designated Tourette Association of America Center of Excellence
The Vanderbilt University Medical Center’s Center for Tourette Syndrome and Other Tic Disorders has been designated a Tourette Association of America (TAA) Center of Excellence. Among the center’s team members is Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researcher David Isaacs, MD, MPH, assistant professor of Neurology and Pediatrics. Read more...
CHOP Researchers Show Early Developmental Delays Predict Poor Long-term Outcomes in Leigh Syndrome Patients
Researchers from the Mitochondrial Medicine Frontier Program at Children’s Hospital of Philadelphia (CHOP) have found that developmental delays associated with Leigh syndrome, the most common pediatric mitochondrial disorder, may occur earlier than previously recognized – even before metabolic stroke and regression – which could provide clinicians with an opportunity for earlier diagnosis and therapeutic interventions. The findings were recently published online by the journal Molecular Genetics and Metabolism. Read more...
My Disability Roadmap
Samuel Habib, 21, wants to date, leave home, go to college. But he drives a 350-pound wheelchair, uses a communication device, and can have a seizure at any moment. Determined to find his path forward, he seeks out guidance from America’s most rebellious disability activists. Will they empower him to launch the bold adult life he craves? DOCUMENTARY SHORT: Mid-May 2022 as a New York Times Op-Docs. FEATURE LENGTH FILM: Coming mid-2023. The entire lead cast on this project - and the majority of the production and outreach crew - are people with disabilities. Will be available with closed captions and audio description. Read more...
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