AUCD 360 - April 2022

April 15, 2022

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
April 2022  |   Volume 7 Issue 4
AUCD 360, News from Around the Network, Facebook  space

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders Voices

  Global Impact

  Upcoming Events 

 AUCD Central Office News


April 2022: Autism Acceptance Month

'April is Autism Acceptance Month! Month #AutismAcceptance AUCD is hosting a series of webinars focused on mental health and ASD: Mental Health Parity Laws Suicide Prevention Support •Social Skills Development AUCD' .

During Autism Acceptance Month we will focus on the importance of mental health parity laws, suicide prevention, support, and social skills development of autistic people. Sponsored by AUCD's Autism SIG and ITAC, AUCD is hosting a series of webinars focused on mental health and ASD. AUCD staff will be using Facebook (@AUCDnetwork), Twitter (@AUCDnews), and Instagram (@aucdpix) to highlight relevant resources and webinars throughout April. Make sure to follow AUCD on social media, stay tuned to your newsfeeds, and use the #AutismAcceptance hashtag all month long!  Read more...

Join us! AUCD for All Gala

Association of University Centers on Disabilities AUCD for All Gala Celebrating Leadership in Inclusive ScienceJoin us! AUCD for All Gala  Join us on April 27, 2022 for the AUCD for All Gala! The theme is Celebrating Leadership in Inclusive Science. During the Gala, we will honor those who champion inclusive science and work to ensure that people with disabilities are included in every step of the research process. The AUCD Virtual Gala is free for all, however, we are asking anyone who plans to attend to support AUCD by making a gift. Every $25 donation enters you to win a $500 Airbnb gift card! Please consider donating today. Read more...


Free Coaching for UCEDDs Promoting Equity, Diversity, and Inclusion

Five headshots of individuals of various ages, gender and ethnicities. Text Equity, Diversity & Inclusion Coaching

Free coaching is available to UCEDDs to support efforts to promote equity, diversity, and inclusion from April through September 2022. Coaches can provide different kinds of support including providing one on one consultation, sharing relevant resources, presenting on content related to the ED&I Action Plan, or facilitating an exercise with a UCEDD workgroup, CAC, or executive team. Read more...

 top of page

  Network Recognitions

KUCDD's Evan Dean Receives Fulbright Scholar Award in Iceland

Image of a white male wearing a suit jacket and button down shirt smiling at the camera.

Kansas University Center on Developmental Disabilities Associate Director Evan Dean, Ph.D., has been granted a Fulbright Scholar award in Iceland. Dean and his family have settled near the University of Akureyri, Iceland, where he is serving with the researchers and faculty in the Occupational Therapy department. His research focuses on enhancing community participation, employment, self-determination, and supported decision-making for people with intellectual and developmental disabilities. Evan has extensive experience with delivering interventions in community settings. Read more...

OHSU UCEDD Celebrates 50 Years

Linear design with text OHSU

The Institute on Development & Disability at Oregon Health & Science University (OHSU) UCEDD celebrated big last month. In a March tradition, Developmental Disabilities Awareness Month was highlighted in a university sponsored event – this year, Pediatric Grand Rounds. A slice of the UCEDD’s work in communication access was the focus of the event, alongside some history of the Institutes longest running program and founding center making its mark on campus with the construction of the Child Development and Rehabilitation Center 50 years ago. Read more...


 top of page

  Network News


AIR-P Pediatrics Supplement Now Published

American Academy of Pediatrics Dedicated to the Health of All ChildrenAIR-P has been developing a supplement issue to be included in the Pediatrics Journal. The first supplement of articles has been published on April 1, 2022. Check out articles written by AUCD Network centers and members in this issue. Read more...

Can Early Behavioral Therapy Interventions Improve Developmental Trajectories in Down Syndrome

Icon of genes Text IDDRC The Intellectual and Developmental Disabilities Research Center at Boston Children's HospitalWhile children with Down syndrome have broad developmental delays and quite often have difficulty with challenging behaviors, there are no standardized behavioral strategies or therapies to treat them. Without a well-researched therapeutic standard, there is great variability in the quality of the services offered and a lack of evidence that can be drawn on by advocates for improved health care services. Dr. Nicole Baumer is currently pioneering the JASPER Clinical Trial research program in Down syndrome. Read more...

Mailman Center Hosts Successful Conference on Early Childhood Development in a Pandemic

Image of  college campus. Text Mailman Center for Child Development  Innovation & Connection Conference Promoting Early Childhood Development in the Era of COVID: Practice, Policy, and Future Opporunities

Over 250 childhood personnel and allied health professionals including speech language pathologists, psychologists, social workers, and physicians participated in the University of Miami Mailman Center for Child Development Innovation and Connection Conference. The conference brought together experts in early childhood development to discuss challenges and opportunities for the care and wellness of young children as they grow up in a pandemic.” Read more...

New Center of Excellence for Behavioral Health Will Build Statewide Capacity to Serve Iowans

50 Years 1972-2022 University of Iowa Health Care Center for Disabilities and Development UCEDD University Center for Excellence in Developmental Disabilities

The Center for Disabilities and Development (CDD), Iowa’s UCEDD, has been awarded a grant from the Iowa Department of Human Services to establish a Center of Excellence for Behavioral Health in Iowa. CDD will collaborate with the Iowa Consortium for Substance Abuse Research and Evaluation to create the new Center of Excellence for Behavioral Health to develop and implement evidence-based practices to support individuals with serious mental illness (SMI), serious emotional disturbances (SED), and co-occurring conditions. Read more...

Missouri's Month-Long Effort to Increase Awareness Around Sexuality and Sexual Assault

Sexual Assault Awareness Month #SAM 83% of women with disabilities will be sexually assaulted in their lives. - Disability Justice Institute for Human Development MODDC

In recognition of Sexual Assault Awareness Month, the University of Missouri-Kansas City’s Institute for Human Development, and the Missouri Developmental Disabilities Council (MODDC) are partners on a month-long campaign to promote self-advocacy among individuals with I/DD. The campaign efforts speak to the issues that confront people with I/DD, including how survivors of sexual assault and rape can find it difficult to form close bonds, develop healthy relationships and understand consent.. Read more...

WIHD Develops Post-COVID Roadmap to Recovery and Resilience

WIHD Westchester Institute for Human Development

The COVID-19  pandemic disrupted WIHD's operations in an unprecedented way compelling the organization to rapidly shift service delivery models to ensure that our critical services could continue with little interruption. We had to rethink and adjust many processes; develop and implement new business models; modify employment practices; and adopt new technologies. Read more...

Rural Institute for Inclusive Communities Announces Recipients of the 2021 Community Investment Fund

Rural Institute for Inclusive Communities

The Rural Institute for Inclusive Communities established the Community Investment Fund (CIF)to support innovative projects or programs that help Montanans with disabilities live, learn, work and play alongside people without disabilities. This year Children's Special Health Services matched Rural Institute funds so awards were given to three projects: Kalispell Mosaic Mural, Pumpkins for a Cause and BASE Film Making Extravaganza. Read more...

Partnering with UCEDDs and LENDs to Develop a Statewide Early Childhood Comprehensive Systems of Personnel Development (CSPD)

ECPC Early Childhood Personnel Center

The Early Childhood Personnel Center (ECPC) provides Technical Assistance to facilitate the implementation of Comprehensive Systems of Personnel Development (CSPD) for all disciplines serving infants and young children with disabilities and their families.  A CSPD is a framework used to improve the quantity, quality, and effectiveness of the early childhood intervention workforce who provide services and interventions to facilitate the development and learning of infants and young children with disabilities and their families. Read more...

Center Staff Attend the Texas Transition Conference and PATHS Staff Attend the Grimes County Transition Fair

he PATHS Program staff, Melanie McCurry and Latisha Crockett-Turrell standing behind exhibitor table.

The Texas Transition Conference was held on February 23-25 in Denton, Texas. This year's conference faced a few challenges as an unusual ice storm made travel difficult for many of the attendees and speakers. However the event was very successful and informative. With over 350 in-person attendees registered and over 200 online registrants. Those who registered, but could not attend, were given access to view sessions online during the event. Many positive comments and feedback were given. Read more...

Collaboration Between Vanderbilt Kennedy Center, Meharry Medical College Addresses Disparities in Autism Diagnosis for Black Families, Increases Understanding of Providing Equitable Care

Image of black man and woman holding their child who is also holding at teddy bear everyone is wearing white tshirt and jeans and smiling at the camera.

Researchers from the Vanderbilt Kennedy Center’s (TN IDDRC, UCEDD, LEND) Treatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD) and Meharry Medical College (MMC) are collaborating to better understand the diagnostic experiences of Black or African American families with children with autism spectrum disorder (ASD). Though it is now possible to identify ASD in children as young as 18 months, African American children with ASD experience significant delays in diagnosis and access to treatment services.

The Research and Training Center on Disability in Rural Communities is Recruiting Participants for the Rural Transportation Interviews Project

Icons of f wheelchair user, walker users and a bus, car and van.Rural Transportation Interviews

The Research and Training Center on Disability in Rural Communities (RTC:Rural) at the University of Montana is currently recruiting for a project in which researchers are interviewing people with disabilities who live in rural areas with limited transportation options. The one-on-one interviews ask about how they get around their communities and their experiences with different transportation services. Read more...

In Twenty-Two Cents an Hour, Doug Crandell Uncovers the Harsh Reality of People with Disabilities in the United States Who are Forced to Work in Unethical Conditions for Subminimum Wages with Little or No Opportunity to Advocate for Themselves

Image of Twenty of four rows of four pennies. Text Disability Rights and the fight to end subminimum wages Doug Crandell

Doug Crandell is Public Service Faculty at the Institute on Human Development and Disability at the University of Georgia UCEDD and the author of several books and novels, most recently They're Calling You Home. Doug’s new book Twenty-Two Cents an Hour will be available starting APRIL 15, 2022. In this book, Doug Crandell uncovers the harsh reality of people with disabilities in the United States who are forced to work in unethical conditions for subminimum wages with little or no opportunity to advocate for themselves, while wealthy CEOs grow even wealthier as a direct result. Read more...

Self-Advocates from WIHD interviewed by Fox5NY

Image of a college campus. Text Hear Our Voices: Speaker's Network: The methlodology

Hear Our Voices at The Westchester Institute for Human Development (WIHD) has developed a Speaker’s Network of self-advocates who present at local, state, and national conferences.  The Speaker's Network offers individualized coaching to young adults with disabilities that want to share their story. The program empowers self-advocates to use their lived experiences to increase disability awareness. After completing the program, participants have a custom professional presentation that reflects their passion on a relevant topic. Read more...

Aggie Guide Dogs and Service Dogs at Texas A&M University Needs Your Support

Image of four masked young women and four service dogs sitting on a cannon.

Aggie Guide Dogs and Service Dogs (AGS), is a student-run organization that began in 1997. Our purpose is to educate about, fundraise for, and promote the training and use of guide dogs and service dogs and to increase awareness about how these animals help the individuals, with disabilities who use them. Read more...

Vanderbilt Kennedy Center Researcher Serves on Newly Designated Tourette Association of America Center of Excellence

Image of 6 women and one man dressed in professional attire standing outside and smiling at the camera.

The Vanderbilt University Medical Center’s Center for Tourette Syndrome and Other Tic Disorders has been designated a Tourette Association of America (TAA) Center of Excellence. Among the center’s team members is Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researcher David Isaacs, MD, MPH, assistant professor of Neurology and Pediatrics. Read more...

CHOP Researchers Show Early Developmental Delays Predict Poor Long-term Outcomes in Leigh Syndrome Patients

CHOP Researchers Show Early Developmental Delays Predict Poor Long-term Outcomes in Leigh Syndrome Patients

Researchers from the Mitochondrial Medicine Frontier Program at Children’s Hospital of Philadelphia (CHOP) have found that developmental delays associated with Leigh syndrome, the most common pediatric mitochondrial disorder, may occur earlier than previously recognized – even before metabolic stroke and regression – which could provide clinicians with an opportunity for earlier diagnosis and therapeutic interventions. The findings were recently published online by the journal Molecular Genetics and Metabolism. Read more...

My Disability Roadmap

Image of Samuel a young white man dressed in a tuexedo using a powered wheelchair and a young woman wearing a promo dress smiling at the camera.

Samuel Habib, 21, wants to date, leave home, go to college. But he drives a 350-pound wheelchair, uses a communication device, and can have a seizure at any moment. Determined to find his path forward, he seeks out guidance from America’s most rebellious disability activists. Will they empower him to launch the bold adult life he craves? DOCUMENTARY SHORT: Mid-May 2022 as a New York Times Op-Docs. FEATURE LENGTH FILM: Coming mid-2023. The entire lead cast on this project - and the majority of the production and outreach crew - are people with disabilities. Will be available with closed captions and audio description. Read more...

 top of page

  Emerging Leaders Voices

LEND Fellow Project: PATH-IDD

LEND Leadership Education in Neurodevelopmental Disabilities University of Minnesota Driven to Discover

A team of LEND fel ows at the University of Minnesota Institute for Community Integration are valued members of the PATH-PWIDD project. The team has been instrumental in research and developing processes to further the project. Through a grant front the Administration for Community Living, multiple universities are working on conducting a scoping review of literature around training inter-profesional health students (medical, dental etc.) about IDD. Read more...

Yingying Zhao, Doctoral Student, has Joined the Center on Disability and Development

Headshot of a young asian woman with haired tied back wearing glasses and a blouse.

Yingying Zhao is a doctoral student at the developmental sciences program in the Department of Educational Psychology, Texas A&M University (TAMU). As a third-year Ph.D. student, she has research experience using quantitative and qualitative methods. Yingying is originally from China, and she worked as a high school teacher for two years before her master's study in Education. She joined the CDD in January 2022, before which she worked at the Center for Teaching Excellence at TAMU as a graduate research assistant. Read more...

 top of page
  Global Impact


University of Massachusetts Boston Institute Launches International Fellowship Program on Inclusive Civic Engagement

Image of ten African leaders standing arm in arm and smiling at the camera. Text Join a new generation of African disability leaders committed to inclusive engagement.

The Institute for Community Inclusion (ICI) at the University of Massachusetts Boston, in partnership with Humanity & Inclusion (HI), has been awarded a grant from the US Department of State to develop and implement the Professional Fellows Program on Inclusive Civic Engagement, a new professional program for emerging leaders in Africa to exchange and implement best practices for inclusive civic engagement. Read more...

 top of page

 Upcoming Events


 Nisonger Institute 2022 - Addressing the Social Determinants of Health for People with Developmental Disabilities

The Ohio State University Nisonger CenterMay 13, 2022, 9:30 - 12:30pm ET

The Ohio State University Nisonger Center is hosting the annual Nisonger Institute virtually! This year's topic is Addressing the Social Determinants of Health for People with Developmental Disabilities with keynote speaker Eric Emerson, PhD. Read more...


 2022 State-of-the-Science on Disability Statistics

Disability Statistics & Demographics Rehabilitation Research & Training CenterOctober 6-7, 2022, Virtual and In-Person

Out of concern for the health and wellness of our community, StatsRRTC has postponed the State-of-the-Science on Disability Statistics Conference to October 6 - 7, 2022. This hybrid event will be streamed online via Zoom and held in-person at the Holiday Inn, 550 C St SW, Washington, DC 20024. Registration will open after the Release of the Annual Disability Statistics Collection Webinar. Read more...


 top of page


Image of a button with an image of a document. News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910

This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.