National Advisory Council Convened to Inform Coordinated and Integrated Data Systems for the Early Identification (CIDSEI) of Young Children with Developmental Delays or Disabilities Project
February 4, 2022
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On January 25th, 2022, the Association of University Centers on Disabilities (AUCD) and the Help Me Grow National Center (HMG National) convened its first national advisory council meeting to inform the Coordinated and Integrated Data Systems for the Early Identification (CIDSEI) of Young Children with Developmental Delays or Disabilities project. The advisory council is made up of the following members from national organizations and federal agencies.
- Julia Abercrombie- Centers for Disease Control and Prevention
- Christopher Botsko- Altarum
- Anna Corona- Association of Maternal and Child Health Programs
- Dr. Paul Dworkin- Connecticut Children’s Medical Center, Help Me Grow National Center
- John Eisenberg- National Association of State Directors of Special Education
- Maureen Greer- IDEA Infant and Toddler Coordinators Association
- Dr. Kathleen Hebbeler- SRI International
- Dr. Iheoma U. Iruka- University of North Carolina Frank Porter Graham Child Development Institute
- Kimberly Martini-Carvell- Help Me Grow National Center
- Dr. Colleen Murphy- Start Early
- Dr. Cynthia Tate- BUILD Initiative
The advisory council will lend their expertise to a series of conversations over the course of project related to the long-standing gap for realizing a coordinated, integrated, and systemic approach to gathering and using data between and across early childhood programs and systems to best support the early identification of young children and their families.
The first advisory council meeting provided an opportunity for members to provide feedback on an initial landscape scan conducted by HMG National and AUCD. This landscape scan consists of best practices and barriers to the development of integrated data systems designed to collect, manage, interpret, and disseminate data related to early detection, referral, and linkage.
In the next phase of the CIDSEI project, an environmental scan will be conducted to understand promising practices and lessons learned, as well as opportunities and challenges from states and territories engaged in work around data systems for early identification. As part of the environmental scan, key informant interviews will be conducted to understand how a state or territory identifies needs, develops plans for data collection, and manages their data, as well as illuminate the ways in which states and territories are utilizing integrated data systems to inform practice change, policy, and funding for early childhood initiatives. Findings will be used to inform the development of a toolkit that will then be piloted by states and territories participating in a community of practice.
If you have information about developmental monitoring activities in your state/territory/program in which data is being collected or shared across programs, please contact Betsey Howe at [email protected] for more information.
