AUCD 360 - September 2021

September 17, 2021

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
September 2021  |   Volume 6 Issue 9
AUCD 360, News from Around the Network, Facebook  space

  Central Office News

  Network Recognitions

  Network News

  Emerging Leaders Voices

  Community Updates

  Upcoming Events 


 AUCD Central Office News

AUCD 2021 Registration is Now Open!

Image of three conference participants speaking to each other in front of a research poster in a conference hall.

This year's Virtual Conference features live plenary sessions, live concurrent sessions, and on-demand poster sessions with a live Q&A session. We look forward to connecting and learning about ways to talk about research that everyone can understand. Join us by registering today. We seek to make the conference and all information presented as accessible as possible and recognize that cost can often be a barrier to attending. Learn how our scholarship opportunities can help.


AUCD's 12 Children's Mental Health Champions Complete Their Projects for the 2020-2021 Year

Image of a globe with a burst of lines. Text: AUCD Association of University Centers on Disabilities. The Leadership, Education, Advocacy & Research Network

In 2020, the Association of University Centers on Disabilities (AUCD) expanded its National Center on Disability in Public Health efforts with the launch of a new pilot program, Children's Mental Health Champions. This effort was made possible through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Twelve Champions were selected, representing American Samoa, California, Colorado, Connecticut, Georgia, Kentucky, Maine, New Mexico, North Carolina, South Dakota, and Virginia, to serve as liaisons to the CDC's Children's Mental Health project in 2020-2021. Read more...

Coming Soon! AUCD Launches a New Podcast

Image of a globe with a burst of lines with sound waves on each side. AUCD Network Narratives Real Stories for Our Members

We are proud to present AUCD's new podcast-- AUCD Network Narratives: Real Stories from Our Members. The podcast shares real stories from network members who are working to change systems and structures that impact people with disabilities. This first season focuses on network members promoting equity, diversity, and inclusion and reducing disparities for Black and brown disabled people. Read more...

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  Network Recognitions

Dr. Laura Stough awarded the Knowledge Award for Excellence in Education or Research

Image of a white woman with auburn hair wearing glasses and a blue blouse.

This summer Dr. Laura Stough was awarded the Knowledge Award for Excellence in Education or Research from the Texas Chapter of the American Association on Intellectual and Developmental Disabilities. It was awarded for significant contributions to the dissemination of knowledge in the field of intellectual and developmental disabilities through education and/or research. Read more...

Dr. Jennifer Walton Elected to the Executive Committee of the Section on Developmental Behavioral Pediatrics of AAP

Image of a black woman with long black hair wearing a black blouse smiling at the camera.

Jennifer Walton, MD, MPH from the Ohio State University Nisonger Center was elected to the Executive Committee of the Section on Developmental Behavioral Pediatrics of the American Academy of Pediatrics. Term to begin November 1st. Read more...

 

Dr. Emily Graybill becomes new Director of Georgia UCEDD, Center for Leadership in Disability

Image of a white woman with long brown hair wearing a sweater and smiling at the camera.

Emily Graybill, PhD, has been a faculty member at the Center for Leadership in Disability (CLD) at Georgia State University (GSU) since 2011. During that time, she has led impactful work that has strengthened Georgia's systems of care for children, adults, and families living with disabilities. Read more...

Institute for Disability Research, Policy & Practice Salutes New Division Director

Image of a white man with short greying hair and beard with glasses wearing a button down shirt smiling at the camera.

Dr. Tim Riesen is the new director of the Research and Training division of the Institute for Disability Research, Policy & Practice.To him, the research and training are connected: conduct the research, strengthen the training.Over the last several years, Riesen and his colleagues have conducted research to establish the evidence-based practices around customized employment for people with disabilities. Read more...

Dan Habib Accepts New Role at the Westchester Institute for Human Development

Image of a white man with grey hair wearing a suit standing alongside a movie poster.

Dan Habib, Project Director and Filmmaker at the UNH Institute on Disability (IOD), has accepted the position of Inclusive Communities Project Director at the Westchester Institute for Human Development (WIHD) in Valhalla, NY. Habib assumed his new role on July 26. Read more...

The Ohio State University Nisonger Center Welcomes Psychiatrist Dr. Ashley Byrd

Image of a white woman with long brown hair wearing a sweater and smiling at the camera.

The Ohio State University Nisonger Center at Wexner Medical Center welcomes Ashley Byrd, MD, psychiatrist. Dr. Byrd is also an Assistant Professor of Clinical Psychiatry in The Ohio State University Department of Psychiatry and Behavioral Health. Dr. Byrd completed her undergraduate studies at Saint Louis University in 2012 with a Bachelor of Science in Nutrition and Dietetics. Read more...

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  Network News

New Nationally Certified Training for Vocational Rehabilitation Leaders

ICI Institute for Community Inclusion University of Massachusetts Boston UMASS BOSTONThe Institute for Community Inclusion (ICI) at the University of Massachusetts Boston is announcing the Transformational Rehabilitation Leader Training (TRLT), a new, nationally certified, professional education program in partnership with the Commission on Rehabilitation Counselor Certification (CRCC), and the University of Wisconsin-Stout Vocational Rehabilitation Institute (SVRI). Read more...


Get the Facts: Managing Resources to Help Youth with Disabilities Transition from School to Employment

A sphere with text Massachusetts Partnership for Transition to Employment MPTE Employment First Massachusetts Partnership for Transition to Employment (MPTE) has released a series of fact sheets for family members and support providers of youth with disabilities who are transitioning to competitive integrated employment. Read more...

The Center on Disability and Development Joins Forces to Make Sure People with Disabilities Can Get Vaccinated

Image of a hand holding a vile of COVID-19 Vaccine Disability Rights Texas Want to learn more about the COVID-19 vaccine or need help getting it?

The Center on Disability and Development joins forces to make sure people with disabilities can get vaccinated. The CDD has joined forces with our DD network partners in Texas and other organizations to make sure that people with disabilities have the opportunity to get vaccinated!  Read more...

Tips for Keeping Kids Safe as They Head Back to School During COVID-19s

Three graphic drawings side by side of a doctor giving a patient a shot, a family wearing masks and a child washing their hands.

Worried about your child being exposed to COVID-19 you can take to ensure they have a safe return to school. Produced by the University of Cincinnati UCEDD. Read more...

PATHS Program Begins their First Semester and First Day of Class as a 2-year Certificate Program

Image of two students standing in front of a college campus holding a sign that says First Day of Class Fall 2021

The two-year PATHS certificate program prepares graduates for employment in a career serving people with disabilities or working with children. Students have begun their first year and are excited to get started. After spending a few weeks this summer living in dorms on campus and learning how to navigate the buses and getting around on campus. This semester they are living in housing off campus and taking classes. Read more...

COVID-19 Screening in Schools for Children with IDD

Image of a college flag text Washington University in St. Louis 1853

This work is a joint partnership between the Washington University Intellectual and Developmental Disabilities Research Center (WUIDDRC), the Kennedy Krieger Institute in Maryland, the University of Missouri-Kansas City Institute of Human Development, in collaboration with the Special School District of St. Louis County (SSD) in Missouri, with funding from the National Institutes of Health. Read more...

Mailman Center Awarded Two FAAST Grants to Support Assistive Technology Program

Graphic of two children hand in hand. Mailman Center for Child Development Department of Pediatrics

As"Assistive Technology (AT) has the power to change the lives of individuals with disabilities by allowing them to be more independent in education, employment, recreation, and daily living," said Mailman Center Assistant Director Michelle Schladant, Ph.D. Read more...

Vanderbilt Kennedy Center UCEDD Co-director Aims to Expand Inclusive Higher Education in the U.S. Through Accreditation Committee Work

Image of five students standing arm in arm in front of a college campus smiling to the camera.

Vanderbilt Kennedy Center (TN IDDRC, UEDD, LEND) UCEDD co-director Elise McMillan, J.D., recently served on a national workgroup of experts to develop model program accreditation standards for inclusive higher education (IHE) programs for students with intellectual disabilities.  Read more...

Connectivity Kits at Texas Center for Disability Studies

Collage of images of  smart home devices such as a Ring doorbell and Phillips Hue lightbulbs, as well as devices for telemedicine: KardiaMobile, no contact thermometer, blood pressure cuff, and oximeter text Get connected! Smart Technology Kits Connecting Consumers to Community and Medicine Reduce social insolation amonth elders, persons with disabilities and their caregivers by implementing technology to increase connectivity. Check out a smart kit today
https://ttap.disabilitystudies.utexas.edu/smart-collaboration

The Texas Technology Access Program, within the Texas Center for Disability Studies at the University of Texas at Austin collaborated with the local Aging and Disability Resource Center (Capital Area Council of Governments) to assemble connectivity kits for persons with disabilities, older adults, and their caregivers. Read more...

The Ohio State University Nisonger Center Next Chapter Book Club Updates

Icon of a open book The Next Chapter Book Club

Each of the 11 Next Chapter Book Clubs in central Ohio, which had been meeting virtually for the past year, voted in July to either return to in-person meetings, remain virtual, or create a hybrid schedule. Seven clubs eagerly chose to begin meeting in-person again, and members and facilitators in these clubs have been greatly enjoying the chance to be together.  Read more...

Meet Members of Georgetown University Center for Excellence in Developmental Disabilities Advisory Council

GUCEDD Advisory Council Members Highlights We will feature highlights from our great members each year.

The Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) is highlighting members of its Advisory Council (GAC) through a series of videos. Each member gives us an overview of the work that they do, why they are interested and what it means to them to be a member of the GAC. Read more...

New Hawk-IDDRC in Iowa

Ven diagram of the Administrative Core - Clinical Translation Core Developmental Genomics/Epigenetics Core Neurodiversity and Behavior Core Prevention Diagnosis Treatment Ameliorations Intellectual and Developmental Disabilities Research Across the Lifespan-From Conception to Adulthood IOWA Hawk-IDDRC

The University of Iowa Stead Family Children's Hospital Center for Disabilities and Development (CDD) and the Iowa Neuroscience Institute (INI) are joining forces with other researchers, clinicians, physicians, and scientists across the UI enterprise to form a new center aimed at advancing care for Iowans with IDDs. Read more...

Skills and Strategies for Health Care Decision-Making with Children Guide

Image of a child with a stethoscope with a doctor smiling over them.  URLEND Rural Institute for Inclusive Communities

Being a decision-maker for your own healthcare is important. Learning this skill can begin in childhood and continue into adulthood. For some, making healthcare decisions takes more support, practice, and tools. The Skills and Strategies for Health Care Decision-Making guide helps families and healthcare providers support people to learn the skills they need. Read more...

UNH Approved for $4.86 Million in Research Funding for Study of Telehealth Services on Mental Health Outcomes for People with IDD

The Center for Start Services Institute on Disabilities / UCED University of New Hampshire

Research associate professor Joan B. Beasley and a research team from the Center for START Services at the Institute on Disability (IOD) at UNH has been approved for a $4.86 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) for their study: Evaluation of Telehealth Services on Mental Health Outcomes for People with Intellectual and Developmental Disabilities. Read more...

Summer Enrichment Academy 2021: It's Time to Find the Superhero in You

NH-ME LEND Program

When you think of summertime, you probably think of taking vacations, soaking up the sun, spending time with family and friends, and having time away from school. In Mississippi, 22 youth and young adult students with disabilities chose to make their summer a work learning experience instead. These students attended the ToTAL (Transition of Teens to Adult Life) 2021 Summer Enrichment Academy. Read more...

IOD Programs Celebrate Major Milestones

NH-ME LEND Program

The IOD celebrated two major programmatic milestones this summer. In the month of June, the Center on Aging and Community Living (CACL) recognized 10 years of ensuring all New Hampshire residents have access to person-centered options to allow them to live and age in the communities of their choice. Read more...

Nisonger Center & JPMorgan Chase Collaboration

Image of eight individuals standing in front of a screen with a woman smiling a the camera

Six students from The Ohio State University and Columbus State Community College participated in paid internships through the Autism At Work program with JPMorgan Chase Consumer & Community Banking at their Polaris Campus. Students were excited to share how they applied their coursework (including but not limited to) programming, using Excel to organize and analyze data, creating workflows to automate processes, learning about business law concepts and developing presentations. Read more...

MMI Camp Uses VR Games to Achieve Therapy Goals

Image of a child using a virtual headset with therapist watching along side them.

In August, the Munroe-Meyer Institute held a two-week Hand Arm Bimanual Intensive Training (HABIT) camp. The institute has held the camp three times in the past. The purpose of the camp is to allow children with cerebral palsy and other conditions to work on bimanual therapy (using both hands to complete a task) in the form of play. Read more...

Guidelines to Improve Mental Health Treatment for People with Intellectual and Developmental Disabilities

The Center for Start Services Institute on Disabilities / UCED University of New Hampshire

There is a long-standing concern in the U.S. that people with intellectual and developmental disabilities and mental health needs (IDD-MH) receive ineffective treatment, including potentially inappropriate medications and misdiagnosis. Though nearly 40% of Americans with intellectual and developmental disabilities use mental health services, few healthcare providers are trained to respond to their unique needs. Read more...

Crip Camp Screening and Conversation with Judy Heumann

Collage of images of Judy Heumann from the past and present along side the Crip Camp movie poster.

IOD staff and faculty recently participated in a unique professional development opportunity with renowned disability rights activist, advocate, and author Judy Heumann. The virtual event kicked off with a screening of the ground-breaking, Academy-award nominated film Crip Camp-in which Judy starred-and was followed by an enriching discussion on the creation of the film and Judy's thoughts on the current state of disability in America. Read more...

Vanderbilt Kennedy Center Efforts Enhance Inclusivity in Clinical Trials

Headshot of a white woman with shoulder length hair wearing a dress next to another headshot of a white man with cropped hair and glasses a beard wearing a suit.

Following the Vanderbilt Kennedy Center's (VKC) (TN IDDRC, UCEDD, LEND) renewal as a national Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center in 2020, the center underwent a shuffling of their four scientific cores that support basic and applied research on intellectual and developmental disabilities (IDD). Read more...

MI-DDI Spanish Language COVID-19 Vaccine Infographics

Stick figure drawings of a family text Las Personas con Discapacidades y el COVID-19 ¡Es necesario que todos nos 
vacunemos para volver a la vida  normal! Envíe un mensaje de texto con su código postal al 438829 para averiguar dónde puede obtener la vacuna COVID-19 de forma gratuita. Centros para el Control y la Prevención de Enfermedades: Las persona con discapacidades y el COVID-19 Cuando recibe la vacuna COVID-19, se ayuda a usted mismo y a otras personas a no enfermarse gravemente

Michigan Developmental Disabilities Institute is excited to share six Spanish plain language infographics on the COVID-19 vaccine. Access these resources on their COVID-19 Vaccine Confidence landing page, under "Plain Language Infographics (Spanish)". Help share these resources to promote vaccine confidence! Read more...

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  Emerging Leaders Voices

Trainee Voice: What I Learned in LEND by Victoria Murray

Image of a white woman with short wavy hair wearing glasses and a tank top smiling at the camera.

In May 2021, the Hawaii MCH LEND Program congratulated 22 long term trainees on their successful completion of the Program. At the final training session, trainee Victoria Murray (Discipline: Self-Advocacy) shared a beautiful poem with the cohort that captured what she learned in the Program. We wanted to share that poem with all of you. Read more...

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  Global Impact

Nisonger Center & AUCD Professional Fellows Win U.S. State Department Award

2 Images. Two woman standing next to each other holding up signs that read We are Leading Change Together! #AUCD2019  Image of 6 women sitting together in a class watching a video. The U.S. Department of State has awarded a $32,000 AEIF grant to AUCD Professional Fellows alumni and a Nisonger Center team led by Dr. Margo Izzo and Dr. Paula Rabidoux. The AEIF award (U.S. Department of State Alumni Engagement Innovation Fund) will sponsor the expansion of an online inclusive education & employment training partnership that connects Ohio LEND faculty, staff, and trainees to teachers in Tanzania's schools. Read more

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 Upcoming Events

9th Annual JFK Partners Autism Spectrum Disorder Conference

Image of two hands holding a string of lights. GU JFK Partners University of Colorado Anschutz Medical Campus 9th Annual JFK Partners Autism Spectrum Disorder Conference

Friday, October 1, 2021, 8:15 a.m. - 12:10 p.m. ET

Due to the COVID-19 pandemic, the annual JFK Partners Autism Spectrum Disorder Conference will once again be a virtual event. We are excited to offer topics in response to so many past participants' requests under the umbrella of "Shining a Light on Mental Health in ASD Across the Life Span." Read more...

22nd Annual Chronic Illness and Disability Conference

Baylor College of Medicine

October 28-29, 2021, Virtual

Baylor College of Medicine is holding its 22nd Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-Based Care on October 28 - 29, 2021. To learn more about the program and to register, click here. In partnership with Baylor College of Medicine, AUCD is happy to provide all network members with the following discounts on registration. Read more...

AUCD2021 - Learning Together: Connecting Research and Lived Experience

AUCD Conference Nov 15-17, 2021 #AUCD2021November 15-17, 2021, Virtual

We are excited to have our AUCD community explore the connection between people with disabilities, their families, and the professionals who carry out research about disabilities. How we talk about research and the words we use make a big difference in how we think about research. We hope the conference will give us a chance to learn about ways to talk about research that everyone can understand. Read more...

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  Submissions
Image of a button with an image of a document. News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.