AUCD 360- July 2021

July 21, 2021

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
July 2021  |   Volume 6 Issue 7
AUCD 360, News from Around the Network, Facebook  space

  Central Office News

  Network Awards

  Network News

  Emerging Leaders Voices

  Community Updates

  Upcoming Events 


 AUCD Central Office News


AUCD Celebrates ADA31

AUCD Celebrates ADA31

AUCD joins with other members of the civil rights community in celebrating the progress our society has made in the 31 years since the Americans with Disabilities Act (ADA) and is committed to continuing the ongoing work needed to fulfill its promise of full inclusion for all members of all communities. Our newest mission: to vaccinate all eligible people with disabilities by the anniversary of the ADA on July 26th! Read more...

New COVID-19 Vaccine Confidence Tools and Videos for People with Disabilities

New COVID-19 Vaccine Confidence Tools and Videos for People with Disabilities

AUCD's National Center on Disability in Public Health is excited to share new COVID-19 Vaccine Resources to promote vaccine confidence for people with disabilities, their families, and Direct Support Professionals. The new resources include Vaccine Confidence Plain Language Talking Points to support and promote conversations around the COVID-19 vaccine for people with disabilities; Social Media Graphics featuring plain language text and a diverse array of characters; and more! Read more...

HHS Announces New Membership of the Interagency Autism Coordinating Committee: AUCD Network Members Added

HHS Announces New Membership of the Interagency Autism Coordinating Committee: AUCD Network Members Added

The U.S. Department of Health and Human Services (HHS) recently announced the appointments of new and returning members to the Interagency Autism Coordinating Committee (IACC). Several AUCD Network Members were appointed.The IACC is a federal advisory committee composed of public stakeholders and federal officials that coordinates federal activities concerning autism spectrum disorder (ASD) and provides advice to the HHS Secretary on issues related to autism. Read more...

HRSA Expands National Access to the Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) Program

HRSA Expands National Access to the Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) Program

The U.S. Department of Health and Human Services (HHS) recently announced the appointments of new and returning members to the Interagency Autism Coordinating Committee (IACC). Several AUCD Network Members were appointed.The IACC is a federal advisory committee composed of public stakeholders and federal officials that coordinates federal activities concerning autism spectrum disorder (ASD) and provides advice to the HHS Secretary on issues related to autism. Read more...

AUCD2021 Opening Plenary Learning Together: Finding Common Ground and Language Between Research and Lived Experience

AUCD2021 Opening Plenary Learning Together: Finding Common Ground and Language Between Research and Lived Experience

We are excited to announce the Opening Plenary keynote speaker Diana W. Bianchi, MD, Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development. During the Opening Plenary, Dr. Bianchi will share about her leadership at NICHD and her push for more meaningful inclusion of people with disabilities in the research process as well as a stronger connection between clinical and translational research. Following the keynote, NICHD Deputy Director Alison Cernich, PhD will lead a live Q&A session for our network and attendees. Read more...

Recognize Exemplary Leadership - Submit an AUCD Award Nomination by September 3rd  

Recognize Exemplary Leadership - Submit an AUCD Award Nomination by Seoptember 3rd

We  know the depth, breadth, and expertise of our trainees, advocates, professionals, and partners is extraordinary and deserving of recognition. In preparation for this year's conference, we invite you to nominate someone who truly inspires you in the spirit of the conference theme: Learning Together: Connecting Research and Lived Experience. Help recognize an individual, program, and/or organization that has demonstrated exceptional leadership and made outstanding contributions. Submit an AUCD Award nomination by September 3.



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  Network Awards


Congratulations to Marc J. Tasse, PhD

Congratulations to Marc J. Tasse, PhD

The Ohio State University Nisonger Center Director Marc J. Tassé was awarded the AAIDD Exceptional Service to the Field and Association Award during the AAIDD 2021 Annual Meeting held on June 22nd. Dr. Tassé, is a Professor in the Departments of Psychology and Psychiatry and is also the Director of Nisonger Center, a University Center for Excellence in Developmental Disabilities, at The Ohio State University. Read more...

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  Network News


Pop-Up Vaccine Clinic at Rose F Kennedy UCEDD Site

Pop-Up Vaccine Clinic at Rose F Kennedy UCEDD SiteThe RFK UCEDD's clinical site held a 'Pop- Up' Vaccination Clinic. The day was a huge success! A total of 40 patients were scheduled and 34 were vaccinated. Our space was carefully configured and even allowed for a safe, separate area for children and adults with behavioral or sensory issues. One family tried to vaccinate their child at several other sites but was unsuccessful each time. Today all staff erupted in applause when a team of fourwere finally able to vaccinate him.
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Kennedy Krieger Institute Hosted Special Vaccine Clinics for People with Disabilities

Kennedy Krieger Institute Hosted Special Vaccine Clinics for People with DisabilitiesKennedy Krieger Institute recently partnered with Johns Hopkins Medicine to offer a series of free, drive-through vaccine clinics for people with disabilities. The clinics were held at the Baltimore-based Institute. More than 100 volunteers helped to plan and carryout the well-attended clinics, which were designed especially for individuals with intellectual disabilities, serious mental health disorders, behavioral disorders and those with complex medical conditions. Volunteers administered 580 shots. Read more...

Mailman Center for Child Development's Families First Program: The Impact of a Community-Based Program on Parenting

Mailman Center for Child Development's Families First Program: The Impact of a Community-Based Program on Parenting

The University of Miami's Families First Program, funded by The Children's Trust since 2004, delivers free parenting services to at-risk families with children ages birth to three throughout Miami-Dade County. Goals include building resources for parents, strengthening families, promoting optimal child health and development and reducing parental stress. Families First partners with over 20 community organizations including childcare facilities, places of worship and healthcare sites to offer two evidence-based/best practice parenting groups in English and Spanish at times and locations convenient to families. Read more...

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) TRIAD and TEIS Partnership Continues, Expands Early Intervention Services

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) TRIAD and TEIS Partnership Continues, Expands Early Intervention Services

The Tennessee Department of Intellectual and Developmental Disabilities (DIDD) has renewed its contract with Vanderbilt Kennedy Center's (TN IDDRC, UCEDD, LEND) Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) to continue and expand a partnership with Tennessee Early Intervention System (TEIS). The $4 million grant will continue to be driven by a shared mission to facilitate quick access to high quality early assessment and intervention services. Read more...


The Wyoming Institute for Disabilities Announces Partnership with the Epilepsy Foundation of Colorado and Wyoming

The Wyoming Institute for Disabilities Announces Partnership with the Epilepsy Foundation of Colorado and Wyoming

The TOPS Program celebrated its seventh graduating class yesterday in an intimate, socially-distanced ceremony. The four graduates of the Class of 2021 were recognized for their hard work and effort, especially the ability to navigate their college experiences during a global pandemic. The TOPS Program staff are incredibly proud of these students, Congratulations! Read more...


The Ohio State University Nisonger Center's Early Learning Program Collaborates with Early Head Start

The Ohio State University Nisonger Center's Early Learning Program Collaborates with Early Head Start

The Early Learning Program at the Nisonger Center just received an expansion to collaboration with Early Head Start; they will be providing social-emotional, developmental, and behavioral supports for an increased number of children/families, and will be hiring a social worker to assist their existing staff with these activities. Read more...


Dan Habib of UNH's Institute on Disability Accepts New Role at the Westchester Institute for Human Development

Dan Habib of UNH's Institute on Disability Accepts New Role at the Westchester Institute for Human Development

Dan Habib, Project Director and Filmmaker at the UNH Institute on Disability (IOD), has accepted the position of Inclusive Communities Project Director at the Westchester Institute for Human Development (WIHD) in Valhalla, NY. Habib will assume his new role on July 26. Shortly after the premiere of his award-winning documentary, Including Samuel, Habib joined the IOD in 2008. Since then, he has produced several other nationally broadcast documentary films, including Intelligent Lives, Who Cares About Kelsey?, Mr. Connolly Has ALS, as well as a number of short films on disability-related topics.
Read more...

CLD Launches COVID-19 Vaccine Confidence Initiative

CLD Launches COVID-19 Vaccine Confidence Initiative

The Center for Leadership in Disability (CLD) at Georgia State University is launching a new public health initiative: COVID-19 Vaccine Access and Confidence for People with Disabilities. This initiative is focused on building vaccine confidence in the disability community through conversations among people with disabilities, families, and the direct support workforce during the 2021 summer months.  Read more..


IMPACT: A Special Issue on Crisis Management for People with Intellectual and Developmental Disabilities

IMPACT: A Special Issue on Crisis Management for People with Intellectual and Developmental DisabilitiesImpact contains contributions from researchers at Texas A&M University's Center on Disability and Development and the University of Texas at Austin's Texas Center for Disability Studies. Dr. Laura M. Stough, served as edition editor, along with Mary Sowers, Executive Director of the National Association of State Directors of Developmental Disabilities Services, and Renáta Tichá, Co-Director of the Global Resource Center for Inclusive Education at the Institute on Community Integration. Note that this interactive digital edition also provides a voiced reader to increase accessibility.
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Ribbon Cut on New Home of Munroe-Meyer Institute

Ribbon Cut on New Home of Munroe-Meyer InstituteThe UNMC Munroe-Meyer Institute celebrated its new home June 8 with a ribbon-cutting event that showcased the innovation, care and commitment that went into creating the building at 6902 Pine St., near the University of Nebraska at Omaha Scott campus. Noted autism advocates John and Traci Schneider, chair of Special Olympics International Timothy Shriver, PhD, Omaha Mayor Jean Stothert, University of Nebraska President Ted Carter and the parent of an MMI client joined MMI, UNMC and University of Nebraska Foundation speakers to welcome a small group to MMI's new home in an event that was livestreamed across the state and country. Read more...

Nisonger In 'Sights' Photo Contest

Nisonger In 'Sights' Photo Contest The Nisonger In'Sights' Photo Contest first began in 2014 as a way to help increase positive images of individuals with intellectual & developmental disabilities and their families. Since then, with themes varying from ‘at work' , ‘technology' and ‘families;' we've received more than 500 photos and been able to use them in a multitude of settings and variety of media including our website, Facebook page, and various promotional, educational and research materials. Read more...

Path's Graduate Abigail Junek

Path's Graduate Abigail Junek Abigail is excited about working at River Bend Elementary School and feels confident and prepared to begin her work as a paraprofessional in a SpEd setting in the fall. She is looking forward to growing and learning in her career. Her ultimate goal is to earn a degree from Texas A&M University and become a certified Special Education Teacher. She stated that the PATHS program was a great first step for her. Read more...

 

 

  Emerging Leader Voices

 

All in the Family: Salma Hussein (MN LEND, 2012-13)

All in the Family: Salma Hussein (MN LEND, 2012-13)

Salma Hussein (MN LEND, 2012-13), recently selected as a 2021 Bush Fellow, will use the $100,000 fellowship to complete her doctorate degree in educational leadership and continue the non-profit organization she runs with her sister, Fatimah, the Girls Initiative in Recreation and Leisurely Sport (GIRLS). Trained as a social worker while attending MN LEND, she is now an assistant principal at a Saint Paul, Minnesota high school. Read more...

 

 

Celebrating ADA in Good Health

Celebrating ADA in Good Health

Jennifer Hall-Lande of MN UCEDD/MN LEND in 2016 at the headquarters of the U.S. Centers for Disease Control and Prevention (CDC), where, as the Minnesota Act Early Ambassador, she was trained to promote early identification, screening, and intervention for autism and related neurodevelopmental disabilities in culturally- and linguistically-diverse communities across Minnesota. Read more...

 

 

OHSU UCEDD Developing Disability Professionals for 20 Years

OHSU UCEDD has been developing disability professionals for 20 years

The Institute on Development & Disability at Oregon Health & Science University (OHSU) UCEDD starts each summer with a group of fresh-faced interns hoping to inspire a career path that includes helping people with disabilities. Sometimes the UCEDD is lucky enough to be part of students' journeys beyond the eight-week summer internship program. One of those students, Aleena West, has worked with the UCEDD as an intern in the Summer Internship Program (SIP), a student worker, and now currently a research assistant.. Read more... 


29 MN LEND Fellows Complete Year

29 MN LEND Fellows Complete Year

Capping a year of learning and interacting almost entirely online, the 29 graduates of ICI's Minnesota Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) certificate program recently closed out their final ceremony with a few last words of their own. The online gathering celebrated not only the fellows' learning about disabilities and disability advocacy, but also showcased the projects each one pursued during the year. Read more... 

 

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  Community Updates


Prenatal Laws: Down Syndrome Information Acts

Prenatal Laws: Down Syndrome Information ActsA state-by-state guide to Down Syndrome Information Acts. On October 8, 2008, the "Prenatally and Postnatally Diagnosed Conditions Awareness Act" was signed into law "to increase the provision of scientifically sound information and support services to patients receiving a positive diagnosis for Down syndrome or other prenatally and postnatally diagnosed conditions." Unfortunately, the federal law was never funded; therefore, several states have proposed and/or passed similar legislation. The Center for Dignity in Healthcare for People with Disabilities (CDHPD) designed this fact sheet as a resource for people to quickly find the Down syndrome information dissemination requirements in their state's statutes and, where statutes do not exist, their state's legislative history. Read more!

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 Upcoming Events


AUCD2021 - Learning Together: Connecting Research and Lived Experience

Call for Proposals AUCD Virtual ConferenceWe are excited to have our AUCD community explore the connection between people with disabilities, their families, and the professionals who carry out research about disabilities.  How we talk about research and the words we use make a big difference in how we think about research.  We hope the conference will give us a chance to learn about ways to talk about research that everyone can understand.  Read more...

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  Submissions
Image of a button with an image of a document. News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.