AUCD 360 - April 2020

April 15, 2020

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
April 2020  |   Volume 5 Issue 4
AUCD 360, News from Around the Network, Facebook  AUCD 360, News from Around the Networkspace

  Central Office News

  Network Awards

  Network News

  Emerging Leaders Voices

  Global Impact

  Community Updates

  Upcoming Events 

  Submissions

 

 AUCD Central Office News

 

April is Autism Acceptance Month

April is Autism Acceptance MonthAUCD's Autism Special Interest Group (SIG) is sponsoring a series of four webinars for Autism Acceptance Month. Topics will range from parent training to reducing disparities to treating mental health issues in people with ASD. We will also sponsor a special webinar aimed at the engagement of autism stakeholders in research and service initiatives. Read more... 

 

COVID-19 Public Health Webinar Series

COVID-19 Public Health Webinar SeriesJoin us for this 4-part webinar series, as we review what we currently know on disability inclusion as it relates to this emerging issue. Each session will be 75-minutes.We are kicking off our 4-part COVID-19 Public Health Webinar series! During Session 1 we will hear advice from experts on steps to prevent COVID-19 for people across the lifespan who have a disability. Read more... 

 

AUCD for ALL Virtual Gala

Self-Care Resources from MDDI

Wednesday, April 22, 2020, 7:00 p.m. - 9:00 p.m. ET

The April 22nd AUCD 2020 Virtual Gala will provide creative, engaging and fun multimedia content to celebrate the work of honorees Riva Lehrer and Kinetic Light, recognize the generous support of our sponsors, highlight our network's efforts around arts and culture as well as the 30th anniversary of the ADA. Read More...

 

2020 Emerging Leaders Map

2020 Emerging Leaders MapThe 2020 Emerging Leaders Map has now launched! Check out what emerging leaders across the country are doing to enhance access for and with people with disabilities. This interactive map highlights Emerging Leaders from across the country. You will be able to learn more about them, their center and the amazing projects that they are doing. Read more... 

 

Stories Needed about impact of COVID-19 on People with Disabilities

Stories Needed about impact of COVID-19 on People with DisabilitiesCongress is writing the next bill to respond to the needs of Americans in this crisis. In order for the needs of people with disabilities and their families to be addressed in the next bill, members need to hear about the real impacts. Often, a short personal story is helpful for them. Below are tips and tools to share your story. Read more... 

 

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  Network Awards


National Historic Recognition Project

National Historic Recognition Project

The National Historic Recognition Project: 2000-2020 is an effort by a dozen national and regional organizations to recognize the key individuals who have contributed to the transformation of the field of intellectual and developmental disability within the U.S. over the past 20 years. We are honored to have our staff, network and community members named as national honorees. Read more...



Jennifer Rabalais Awarded Scholarship from CVS Health Foundation

Jennifer Rabalais Awarded Scholarship from CVS Health Foundation

Jennifer Rabalais, Co-Director of the Center on Aging and Community Living (CACL) was awarded a scholarship from the CVS Health Foundation to attend the 2020 American Society on Aging (ASA) Leadership Institute in Atlanta, Georgia. She received this honor for her regional and national leadership in the aging arena. The ASA Leadership Institute is a five-day leadership development intensive that's designed to prepare the next generation of leaders in the field of aging. 
Read more...

 

Down Syndrome Program Coordinator Receives Impact Award

Down Syndrome Program Coordinator Receives Impact Award

Boston Children's Hospital Foundation held its first annual Special Events Award Reception, "A Night of the Stars." At the ceremony ICI's Angela Lombardo, Down Syndrome Program coordinator and LEND Boston family faculty, received the Impact Award.Lombardo was recognized for the way she goes above and beyond to significantly impact the lives of countless families, patients and siblings. Read more...

 


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  Network News


Opioid Epidemic: MN LEND will Create Statewide Telehealth Hub

Opioid Epidemic: MN LEND will Create Statewide Telehealth Hub

The Wyoming Institute for Disabilities (WIND is the WY LEND) has tapped the MN LEND program at the University of Minnesota's Institute on Community Integration (ICI is the MN UCEDD/LEND) to create a network of partner organizations across Minnesota that will enhance developmental screening, monitoring and education for families dealing with the effects of opioid exposure. The effort is part of a national training initiative called Project SCOPE: Supporting Children of the OPioid Epidemic. Under the initiative, MN LEND will assemble a statewide interdisciplinary team to complete immersion training in ECHO-SCOPE, a guided practice model that uses knowledge-sharing videoconference networks led by expert training teams. Read More...


Developmental-Behavioral Pediatrics services at Stanford goes to Remote Telehealth for all visits in the COVID-19 Pandemic

Developmental-Behavioral Pediatrics services at Stanford goes to Remote Telehealth for all visits in the COVID-19 Pandemic

The Covid-19 pandemic demanded quick decisions and many changes. Our county was an early hot spot. So, we needed to get to work early in the game. Our DBP team, in consultation with a receptive hospital administration, rapidly determined that we should not bring infants and toddlers from the High-Risk Infant Follow-Up program to the clinic because of their increased vulnerability to infection. However, we did not want to cancel visits, especially at a time of high stress when children may be at risk for other dangers, such as maltreatment or hunger. Read More...


COVID-19 Resources from MDDI

COVID-19 Resources from MDDI

Michigan Developmental Disabilities Institute (MI-DDI) has compiled COVID-19 resources to assist the community to protect the health and safety of at-risk populations. There are a number of plain and Spanish language resources, as well as resources aimed towards specific age groups, people with I/DD, and direct support professionals (DSPs). Read More...

 

Healthy and Connected: An important message from the UK Human Development Institute

Healthy and Connected: An important message from the UK Human Development Institute

Dr. Kathy Sheppard-Jones, Executive Director of the University of Kentucky Human Development Institute (HDI), shares an important and timely message with Kentuckians. This short video message includes reminders about landmark civil rights laws and protections in our country, as well as information about resources and services that can help people with disabilities stay safe, healthy, and connected during this uncertain time. #TeamKentucky. Read More...


Self-Care Resources from MDDI

Self-Care Resources from MDDI

Now, more than ever, self-care is one of the most important types of care. Check out Michigan Developmental Disabilities Institute's (MI-DDI) compilation of resources to use while self-distancing. Resources are categorized to target your physical, mental, emotional, and spiritual well-being. Read More...


The Center for Leadership in Disability Hosts Positive Behavior Support Workshop for Caregivers

The Center for Leadership in Disability Hosts Positive Behavior Support Workshop for Caregivers

The Center for Leadership in Disability (CLD) in partnership with the Georgia Department of Public Health offered a series of Positive Behavior Support Parent Academies for caregivers of children aged three- to five-years-old who engaged in persistent, challenging behaviors. The Positive Behavior Support Parent Academy is facilitated over five in-person sessions and includes between-session assignments. Each session includes didactic content, hands-on activities, group discussions, and peer-to-peer support. Read More...


OHSU UCEDD Research Team Featured by Bloomberg News

OHSU UCEDD Research Team Featured by Bloomberg News

The Institute on Development & Disability at Oregon Health & Science University (OHSU) UCEDD research team specializing in Assistive Technology was featured by Bloomberg News for their groundbreaking Brain-Computer Interface work. The REKNEW lab, led by researcher and UCEDD Co-director, Melanie Fried-Oken, Ph.D., CCC/Sp, specializes in developing technology to address communication needs for people with severe disabilities, such as locked-in syndrome. Read More...


Lead On: Leadership & Women with Disabilities in Government Blogs

Lead On: Leadership & Women with Disabilities in Government Blog

"Throughout history the voices of people with disabilities have been suppressed, hidden away from society in segregated institutions, schools, and workshops. To this day we continue to see vestiges of this as the disability community advocates for policy that will allow people to choose where they live (Olmstead Decision), to have equal access and opportunity in education and employment (IDEA, Rehab Act, ADA), and to no longer be paid sub-minimum wages."Post from Dr. Kate Caldwell (UIC IDHD) along with Dr. Brenda Parker (UIC CUPPA) about our project looking at leadership and women with disabilities in government was just published on the Gender on the Ballot blog. Read More...

Students and Self-Advocates Gather at Georgia State Capitol for IPSE Advocacy Day

Students and Self-Advocates Gather at Georgia State Capitol for IPSE Advocacy Day

A Inclusive education policies are necessary to assist Georgians with developmental disabilities in reaching their full potential. Inclusive postsecondary education (IPSE) programs provide students with intellectual and developmental disabilities access to education not otherwise available. The Georgia Council for Developmental Disabilities (GCDD) hosts regular advocacy days at the Capitol during each legislative session. Attendees learn about policies affecting people with disabilities and join advocates from across the state in speaking with elected officials about these very important issues. Read More...

 

Kessler Foundation Grant to Investigate How Students with Disabilities Find Work After College

Kessler Foundation Grant to Investigate How Students with Disabilities Find Work After College

Kessler Foundation has awarded a two-year, $250,000 Signature Employment Grant to the University of New Hampshire Institute on Disability to investigate the experiences of recent college graduates with disabilities as they transitioned into the workplace, including experiences related to career planning and preparation, searching for a job, disability disclosure, onboarding, and accommodations. The grant is part of over $2.4 million in grants awarded by Kessler Foundation in 2019 to organizations across the U.S. to support initiatives that create and expand job training and employment opportunities for people with disabilities. Read More...


Building Mental Health Muscles in Special Olympians and Bridging Learning Opportunities for Vanderbilt Kennedy Center Trainees

Building Mental Health Muscles in Special Olympians and Bridging Learning Opportunities for Vanderbilt Kennedy Center Trainees

SA Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) partnership with Special Olympics Tennessee and the Strong Minds program teaches athletes coping strategies to reduce stress while providing trainees with hands-on learning opportunities. Strong Minds is the latest of eight disciplines to be offered through Healthy Athletes, a Special Olympics program designed to address the unmet health needs of its athletes by providing free health screenings. Read More...

 

ICI Learning Game Featured at National ED Games Expo

Building Mental Health Muscles in Special Olympians and Bridging Learning Opportunities for Vanderbilt Kennedy Center Trainees

The 7th annual ED Games Expo, held in Washington, D.C., featured a range of educational games and learning technologies for children with and without disabilities. One featured learning tool was Future Quest Island-Explorations (FQI-E), developed and run by staffers on our Education & Transition team here at the ICI.The U.S. Department of Education funded the expo, which highlighted a range of products and presenters ranging from university staffers to venture capitalists. Read More...

 

 

The Power of Statistics: StatsRRTC Releases 2019 Annual Disability Statistics Compendium

The Power of Statistics: StatsRRTC Releases 2019 Annual Disability Statistics Compendium

"Statistics are a powerful tool - in research, policymaking, program evaluation, and advocacy. They are also a matter of representation," said Andrew Houtenville, Associate Professor of Economics and Research Director and Acting Director at the Institute on Disability. "Imagine if there were no statistics that characterize the size of the population with disabilities and their lives; it would be as if they were not worthy of being counted or considered. Statistics can be dry and sometimes obtuse, but they are crucial to the advancement of people with disabilities. Read More...

 

Free Resources for Autism Assessment and Care Amid COVID-19 Pandemic

Self-Care Resources from MDDI

The rapidly evolving challenges associated with the COVID-19 pandemic have caused countless disruptions for families across the country as they seek autism diagnostic assessments and support for their toddlers. In response TRIAD has developed opportunities to share various resources with families, early intervention providers, and diagnosticians. We will continue to add resources and opportunities as able and needed. Read More...

 

STEP UP Continues Engagement Virtually

STEP UP Continues Engagement Virtually

As everyone has moved to social distancing, STEP UP members have expressed their need for social interactions with their peers, weekly routines, and community engagement. The Institute for Disability Studies (IDS) is offering something new that will keep the STEP UP members engaged and active in a different way. STEP UP Members now have the opportunity to remain engaged thanks to the DISCORD application, a digital distribution platform that is both free and available on devices that support Windows, MacOS, Android, iOS, Linux, and in web browsers. Originally designed and released in 2015 to bring those in the gaming communities together, DISCORD is now being used to reach different groups worldwide. Read More...

 

"See Me for Me"

"See Me for Me"

As everyone has moved to social distancing, STEP UP members have expressed their need for social interactions with their peers, weekly routines, and community engagement. The Institute for Disability Studies (IDS) is offering something new that will keep the STEP UP members engaged and active in a different way. STEP UP Members now have the opportunity to remain engaged thanks to the DISCORD application, a digital distribution platform that is both free and available on devices that support Windows, MacOS, Android, iOS, Linux, and in web browsers. Originally designed and released in 2015 to bring those in the gaming communities together, DISCORD is now being used to reach different groups worldwide. Read More...

 

 


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  Emerging Leader Voices


MN LEND Teams Launch Projects

MN LEND Teams Launch ProjectsHosting a film series and discussions exploring cultural responses to autism. Asking families what services they need most. Evaluating and expanding a promising mentoring program. These are just a few of MN LEND's fellowship projects for 2019-20, marking a decade since the program's inception. An interdisciplinary partnership of the University of Minnesota, MNLEND (Leadership Education in Neurodevelopmental Disabilities) brings together ICI, the College of Education + Human Development's Educational Psychology Department, the School of Medicine's Department of Pediatrics, and the College of Liberal Arts' Department of Speech Language and Hearing Sciences. Read more... 

 

Alumni Update: JaeRan Kim

Alumni Update: JaeRan KimSocial workers routinely interact with people with disabilities, but they receive relatively little disability-related coursework as they train for their careers. And while demand for social workers is growing, students with disabilities in those programs often encounter a disappointing level of commitment to inclusive academic training. Passionate about making disability more visible in social work education, JaeRan Kim (MN LEND, 2010-11) is writing and blogging about her field (www.jaerankim.com/blog/), and creating and teaching university elective courses on disability and social work policy and practice. Read more... 

 

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  Global Impact


School for Global Inclusion and Social Development /bAsian American Studies

School for Global Inclusion and Social Development /bAsian American StudiesRecent School for Global Inclusion and Social Development graduate Theresa Tran was profiled in the Vietnamese American Initiative for Development's (VietAID) latest newsletter. The bilingual profile highlighted her various roles in the community and how those responsibilities impacted her life. VietAID was founded in 1994 by community leaders and residents who believed that a community development corporation would provide comprehensive economic development programs to alleviate poverty and advance civic participation in the Fields Corner Vietnamese community of Dorchester. Read More...

 

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  Community Updates


CDC COVID-19 Training on Demand

COVID-19 Training on Demand

This special issue of the CDC Learning Connection newsletter highlights several COVID-19 trainings.Check out Training for Healthcare Professionals to find CDC courses on COVID-19 topics. Learn about clinical care, appropriate use of personal protective equipment (PPE), emergency preparedness, and more. The page will be updated as new trainings are available. Read more...

 

Walmart is Launching Curbside Pickup

Walmart is Launching Curbside Pickup

Walmart is launching a Pickup hour for people most at-risk for COVID-19. Each day the 7 to 8 a.m. hour at select pickup store locations will be reserved for customers over the age of 60, as well as first responders, customers with disabilities and anyone designated high-risk by the Centers for Disease Control and Prevention. You can use the code LOADIT4U to get $10.00 off your first order. Read more...

 

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 Upcoming Events

 

Disability Organizing in the Age of Covid-19: Medical Rationing, Eugenics, and the Precarity of Mutual Aid

Disability Organizing in the Age of Covid-19: Medical Rationing, Eugenics, and the Precarity of Mutual Aid

Tuesday, April 21, 2020, 7:00 p.m.

Now, with medical rationing plans that disabled people losing the ventilators they use for everyday breathing if they seek care for covid-19, disabled advocates are once again sounding the alarm on new eugenics practices and proposals nationally. You must RSVP before Sunday 19 April 2020. 
Read More...

 

HDI Seminar Series - Justice for wthe Whole Self: Learning to Be a Better Ally

Whole Self:  Learning to be a Better Ally

Friday,  April 24, 2020, 1:00 p.m. - 3:00 p.m. ET

Ableism is the intentional or unintentional discrimination or oppression of individuals with disabilities. Following in the tradition of the disability justice movement "nothing about us without us," this webinar is a panel of national and local disability rights advocates who will discuss the intersection of disability with other forms of marginalization. The panelists will also explore how youth and young adults can engage with the disability justice movement. The panel will conclude by sharing strategies that students, researchers, practitioners, and community members can use to become better allies. This panel is a partnership of the UK Center for Equality and Social Justice, Disability Resource Center, Students Against Social Injustice, and Counselor Education Program. Read More...

 

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  Submissions
Image of a button with an image of a document. News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Intellectual and Developmental Disabilities (AIDD) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.