AUCD 360 - December 2019

December 11, 2019

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
December 2019  |   Volume 4 Issue 12
AUCD 360, News from Around the Network, Facebook  AUCD 360, News from Around the Networkspace

  Central Office News

  Network Awards

  Network News

  Emerging Leaders Voices

  Global Impact

  Community Updates

  Upcoming Events 

  Submissions

 
 AUCD Central Office News

 

New IDDRC Reporter: The Role of IDDRC Network in Recent Developments in the Treatment of Urea Cycle Defects

New IDDRC Reporter: The Role of IDDRC Network in Recent Developments in the Treatment of Urea Cycle Defects AUCD publishes annually a newsletter called the IDDRC Reporter summarizing the role of the Intellectual and Developmental Disability Research Centers (IDDRC), which are funded by the National Institute for Child Health and Development (NICHD), network in research developments. This year The IDDRC Reporter focuses on the recent developments in the treatment of Urea Cycle Defects. Learn more about our 14 IDDRC centers. Read more... 

 

Apply Today! 2020 AUCD Leadership Academy

Apply Today! 2020 AUCD Leadership AcademyApplication Deadline: March 2nd

The AUCD Leadership Academy is a year-long program designed to enhance the skills of current and emerging leaders from the disability network to build coalitions to improve systems of supports and services. The Leadership Academy seeks participants from UCEDDs, LENDs, and their disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development. Read more...
 

 

Innovations and Best Practices in Medicaid Managed Long-Term Services and Supports (MLTSS)

Innovations and Best Practices in Medicaid Managed Long-Term Services and Supports (MLTSS)Many states are working to move the management of Medicaid and Medicaid Waiver programs to MCOs.  Two new documents written by Sarah Swanson of the Munroe Meyer Institute and published by AUCD provide specific examples of new programs developed through this systems change, highlight states that are implementing quality programming in their LTSS programs, and outline ways that disability stakeholders can be involved. Read more... 

 

#AUCD2019 Sponsors - Thank you!

New IDDRC Reporter: The Role of IDDRC Network in Recent Developments in the Treatment of Urea Cycle DefectsOver 1,100 people from around the country joined us at the 2019 AUCD Conference in Washington, DC, as we explored the many ways AUCD network members, partners, and people with disabilities are all leading change together. Watch the AUCD2019 Opening Plenary!  Thank you to the AUCD 2019 Conference top sponsors for their generous support of the conference and AUCD's mission year-round. Read more... 

 

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  Network Awards


WIHD President and CEO, Dr. Susan Fox, Receives Two Prestigious Awards (NY UCEDD)

Headshot of Dr. George GottoWIHD's President and CEO, Dr. Susan Fox, was recently honored with two prestigious Westchester County awards celebrating her positive impact on the community. Dr. Fox was selected as one of the recipients of the "2019 Westchester Power 100 Award" which highlights individuals who are shaping the county's future. She was also selected as one of 914INC.'s Women in Business honorees. The award celebrates the county's most accomplished women in business. Read more...


ICI Announces New Director (MA UCEDD)

Headshot of Dr. George GottoCindy Thomas (MS, CRC) has been selected to serve as the director of the Institute for Community Inclusion (ICI). Ms. Thomas has been an integral part of the ICI for over 30 years, significantly contributing to its growth during that time. Prior to this appointment, she held the role of associate director and then of interim director, while leading the employment services and capacity building teams.Read more...


Amy Grattan Named Director of Sherlock Center (RI UCEDD)

Headshot of Dr. George GottoAmy Grattan, an expert in special education with a focus on early childhood, has been appointed director of the Paul V. Sherlock Center on Disabilities at Rhode Island College. Grattan "brings a breadth of knowledge and experience in the field of disability and special education," according to a Sherlock Center statement on her appointment. Grattan will help ensure that "Rhode Island's citizens with disabilities have a strong and vibrant advocate" and will "strengthen the many positive collaborative relationships with Rhode Island school systems and community partners," the statement said. Read more...


University of South Dakota Sanford School of Medicine Receives Governor's Award (SD UCEDD/LEND)
 

University of South Dakota Sanford School of Medicine Receives Governor's Award (SD UCEDD/LEND)
The University of South Dakota Sanford School of Medicine has been awarded the Governor's 2019 Outstanding Employer Award by the State of South Dakota. This annual award recognizes exceptional hiring and employment practices by businesses and institutions in South Dakota regarding people with disabilities.Read more...

 

Dr. Jeff Brosco Receives 2019 MCHB's Directors Award  (FL UCEDD/LEND)

Image of two woman smiling at the camera.Jeffrey Brosco, MD, PhD, Associate Director, Mailman Center for Child Development, was the recipient of the 2019 MCHB prestigious Director's Award from the Maternal and Child Health Bureau (MCHB) in the Health Resources and Services Administration (HRSA). The MCHB Director's award is presented to selected individuals who have made noteworthy national level contributions to the health of infants, mothers, children, adolescents, and children with special health care needs.
Read more...

ICI's LEND Director, David Helm Recognized by Arc of Massachusetts 2019

Image of two woman smiling at the camera.ICI's LEND Director, David Helm was recognized at the Arc of Massachusetts 2019 Fall Reception for his leadership in education and collaboration. In addition to leading the LEND program based at Boston Children's Hospital, David has played a lead role in supporting Massachusetts attendees at the annual Disability Policy Seminar in Washington DC. Read more...

 

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  Network News


Va-LEND Integral Component of New Physical Therapy Residency Program

Headshot of Dr. Terry Solano

Va LEND is now partnering with the new Pediatric Physical Therapy Residency Program at Virginia Commonwealth University. VCU joins 26 other pediatric physical therapy residency programs nationwide. The current cohort of LEND trainees includes two pediatric PTs enrolled in the new yearlong residency. Dr. Terry Solano, the director of the residency program and a former LEND trainee, sees Va-LEND participation as an ideal fit for the pediatric PT residents.
Read more...


WVU More than 425 turn out for Trunk or Treat at MMI
(NE UCEDD/LEND)

More than 425 turn out for Trunk or Treat at MMI (NE UCEDD/LEND)

More than 425 people attended the third annual Halloween Trunk or Treat at the Munroe-Meyer Institute, braving wintry conditions to take part in the event designed to be inclusive and accessible for children with developmental disabilities or complex health care needs. MMI faculty and staff, community partners such as WhyArts and the Ronald McDonald House, and the Student Alliance for People of All Abilities (SAPA) decorated trunks in themes ranging from Harry Potter to Maleficent to the Cookie Monster. Read more...


Announcing the Institute for Human Development at Northern Arizona University's 2020 Evidence for Success Disability Conference
Call-For-Presenters!
 

Image of a man wearing a suit standing at podium.The annual IHD Evidence for Success Disability Conference reflects the individual projects and collaborative endeavors in disability disciplines at NAU's Institute for Human Development. With a legacy of over 20 years of annual conferences in Arizona, the Evidence for Success Disability Conference has become one of the premier disability related conference in Arizona drawing over 500 participants annually, many from other states and US territories." Read more...


ICI Senior Researcher John Butterworth Provides Testimony (MA UCEDD/LEND)
 

ICI Senior Researcher John Butterworth Provides Testimony (MA UCEDD/LEND) On November 15th, ICI senior researcher John Butterworth provided testimony on data regarding subminimum wages at the U.S. Commission on Civil Rights public briefing on the civil rights impact of subminimum wage on people with disabilities. Read more...

 


South Dakota Center for Disabilities Holds 2019 Symposium (SD UCEDD/LEND)
 

Image of a woman painting a picture. The University of South Dakota Center for Disabilities (SD UCEDD/LEND) recently held its 2019 Symposium & the JAM Sept. 16-17 in Sioux Falls, SD. The conference was a great success, with almost 200 professionals, self-advocates, parents, family members, students, and community members in attendance. The Center for Disabilities' 2019 Symposium was developed to bring the community together to encourage learning, leadership, and innovation as well as an opportunity for building connections toward improving the lives of individuals with disabilities and their families.  Read more...

 

My Voice. My Participation. My Board. Concludes Seventh Cohort (GA UCEDD)

Image of a group of individuals smiling at the camera.

The final meeting of the seventh cohort of My Voice. My Participation. My Board (MVMPMB) was held in Augusta, GA. Eight individuals from throughout the Atlanta and middle Georgia area graduated from this cohort. This gathering was the conclusion of a three-part, multi-day training on self-advocacy, which focused on individuals with intellectual and developmental disabilities (IDD) learning how to be effective and engaged members of board of directors and advisory councils. Read more...

 

50th Year Anniversary of the Institute on Human Development and Disability (GA UCEDD)

50th Year Anniversary of the Institute on Human Development and Disability (IHDD)

This year marks the 50th year anniversary of The Institute on Human Development and Disability (IHDD). IHDD was established at the University of Georgia in 1969 as part of a national network of federally-designated centers now known as University Centers for Excellence in Development Disabilities, Education, Research and Service (UCEDDS). Read more...

 

Student Highlight, Adonay Mendoza (TX UCEDD)

Student Highlight, Adonay Mendoza (TX UCEDD)

Adonay N. Mendoza, B.S. Texas A&M University Adonay Mendoza was born in Houston, Texas but raised in El Salvador. His father brought he and his brother back to the United States to get a sound education at the beginning of his 6th grade year. He remembers having a hard time understanding the new content and teachers because of the language barrier and previous lack of adequate education. "Seeing of my classmates struggling because they could not understand some of the things presented, and how patient, loving, and caring teachers were toward them, helped me develop a keen passion for becoming a bilingual teacher." Adonay reflected. Read more...

 

Wyoming Institute for Disabilities Celebrates Silver Anniversary
(WY UCEDD)
 

Image of a older male with a grey beard wearing a suite facing the camera and smilingWyoming Institute for Disabilities (WIND) celebrated 25 years of impactful contributions to the state in support of people with disabilities. Executed by the WIND Consumer Advisory Council, our silver celebration brought together families, colleagues and constituents for activities that recognize and celebrate WIND partnerships and service to the state of Wyoming. Read more...

Call for Abstracts! The Mountain State Conference on Disabilities (WVA UCEDD)

Call for Abstracts! The Mountain State Conference on Disabilities

The Mountain State Conference on Disabilities is hosted by disability partners across the state including the WVU Center for Excellence in Disabilities, the West Virginia Developmental Disabilities Council, Disability Rights of WV, and the Autism Training Center at Marshall University. This year's theme "Journey to the top" reflects the services, supports and work being done to help individuals with disabilities on their journey. Read more...

 

The Maryland Center for Developmental Disabilities Hosts a Project SEARCH Intern (MD UCEDD)

The Maryland Center for Developmental Disabilities Hosts a Project SEARCH Intern (MD UCEDD)

The Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute recently hosted its first Project SEARCH intern. Project SEARCH is an internationally recognized program, which seeks to secure competitive employment for individuals with disabilities. Over the past month, the MCDD interviewed candidates for Kennedy Krieger's Project SEARCH program.  The MCDD ultimately decided to hire Cole Slusher as the MCDD's first Project SEARCH intern.
Read more...

 

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  Emerging Leader Voices


New Leadership Opportunity: Council Trainee Representative

2020 AUCD Emerging Leaders Map Nomination Survey is Open!Deadline: December 20, 2019

The AUCD Emerging Leaders Community, in partnership with the AUCD Councils have launched a new leadership opportunity for IDDRC, LEND, and UCEDD trainees! AUCD includes five (5) Councils that address emerging trends and issues to facilitate communication across and beyond the AUCD network, including community education, leadership and advocacy, research and evaluation, diversity and inclusion, and interdisciplinary training. Read more...
 

 

2020 AUCD Emerging Leaders Map Nomination Survey Now Open!

2020 AUCD Emerging Leaders Map Nomination Survey is Open!Deadline for nomination is Friday, January 10th

AUCD is excited to announce that recruitment is now open for the 2020 AUCD Emerging Leaders Map! This year's theme is "Enhancing Access: Opening Doors with and for People with Disabilities." Our team is looking for each AUCD member Program or Center to nominate one (1) Emerging Leader to be on this year's AUCD Emerging Leaders Map. Read more...
 

 

Boston LEND Fellow Receives CORE Trainee Research Award!

Boston LEND Fellow Receives CORE Trainee Research AwardAriel Schwartz, a former LEND fellow from Boston LEND at the Massachusetts ICI/UCEDD received this year's CORE Trainee Research Award. The Council on Research and Evaluation (CORE) recognizes outstanding research accomplished by a current or recent AUCD/LEND trainee.In recognition of her outstanding research accomplishments her nomination noted "she is a prime example of an emerging researcher with the potential to make a positive impact on the lives of people with disabilities. Read more... 

 

Kansas LEND Post Doctoral Fellow Wins Anne Ruidiger Award!

Kansas LEND Post Doctoral Fellow Wins Anne Ruidiger AwardAlice Zhang, PhD, bcba, LBA was honored with the Anne Ruidiger Award at the 2019 Awards Gala at the Annual Meeting of the Association for University Centers on Disability (AUCD). Dr. Zhang is a second year post doctoral fellow at Kansas LEND, and during her training has contributed to the program in a number of ways, including providing culturally responsive clinical services, contributing to didactic coursework and grant writing efforts. Read more... 

 

OHSU Institute on Development and Disability UCEDD Faculty Elevate Diversity Efforts Big and Small!

OHSU Institute on Development and Disability UCEDD Faculty Elevate Diversity Efforts Big and SmallFormer OHSU LEND trainees, Hannah Sanford-Keller and Bethany Sloane are now faculty at the Institute on Development and Disability (IDD) and UCEDD at Oregon Health & Science University. They work to bridge diversity efforts across OHSU centers and programs with the broader University and the AUCD network. Their roles include serving as co-leads of the IDD Diversity Committee. This work began during a yearlong experience as LEND trainees. Read more... 

 

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  Global Impact


PFP-IDE Fellow Archy Gomba at the Center for Disabilities and Development, Iowa City

PFP-IDE Fellow Archy Gomba at the Center for Disabilities and Development, Iowa City I am Archy Gomba, the AUCD international fellow at the Center for Disabilities and Development, Iowa’s UCEDD in Iowa City, Iowa. Life in Iowa is incredible, and I am super excited to be here! I began my first week at the Iowa Center for Disabilities and Development (CDD), with a welcome reception and orientation. I was so happy to receive such a welcome and look forward to the opportunity to meet with many different people. I work with Derrick Willis and Tammie Amsbaugh, who are my mentors at CDD. During my first day, I met with many CDD and UCEDD staff. Read More...

 

ICI Implements U.S.-Japan Symposium "Inclusion Matters" in Tokyo (MA UCEDD/LEND)

ICI Implements U.S.-Japan Symposium Tokyo-based staffer, Dr. Heike Boeltzig-Brown, and Miwa Tanabe, both of the Institute for Community Inclusion (ICI) based at the University of Massachusetts Boston (UMass Boston), organized "Inclusion Matters," a U.S.-Japan Symposium that attracted more than 100 attendees. Funded by the U.S. Embassy Tokyo and hosted at the Nippon Foundation's headquarters in downtown Tokyo, attendees included leaders in disability and career services from top universities across Japan, business leaders, major media outlets and postsecondary students with disabilities (SWD). Read More...

 

Inclusive Supported Employment: International Learning Series

Inclusive Supported Employment: International Learning Series The National Competence Center on Developmental Disabilities (NAKU) of Norway and the North Dakota Center for Persons with Disabilities (NDCPD) of North Dakota, USA are pleased to announce an international opportunity for learning and discussion on Inclusive Supported Employment (also known as Customized Employment). We invite our international colleagues to present on their work on Inclusive Supported Employment, and to attend online sessions and presentations about this important topic. It will culminate in a focused pre-conference on Inclusive Supported Employment in Washington, DC in the fall of 2020. Read More...

 

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  Community Updates


The Joseph P. Kennedy, Jr. Foundation 2020 Public Policy Fellowship Program

Comment Box

Deadline: January 15, 2020

The Joseph P. Kennedy, Jr. Foundation is seeking exemplary professionals, and/or persons experiencing disability and/or family members of persons with intellectual or developmental disabilities who are currently working or volunteering in the field of inclusive services and supports for people with intellectual and developmental disabilities. Read more...

 

Interagency Autism Coordinating Committee Seeks Nominations for Public Members

Comment Box

Deadline: January 24, 2020

The U.S. Department of Health and Human Services seeks nominations of individuals to serve as non-federal public members on the Interagency Autism Coordinating Committee (IACC). The IACC is a federal advisory committee composed of federal officials and non-federal public members, including autism self-advocates; family members; representatives of autism research, service, and advocacy organizations; community professionals; and other public stakeholders. Read more...

 

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 Upcoming Events


The Current State of Service Coordination Across the Country

The Current State of Service Coordination Across the Country

Tuesday, December 17, 2019, 3:00 p.m. - 4:00 p.m. ET

The national status of service coordination under Part C of IDEA for infants and toddlers with disabilities and their families will be described using data from surveys and case studies. The presenters will describe three data sets collected to measure aspects of service coordination, and discuss the challenges facing service coordinators and families as reported in the data. Read more...

PacRim2020

PacRim2020

March 2-3, 2020, Honolulu, HI

The University of Hawaii at Manoa, Center on Disability Studies, in the College of Education, is accepting presentation proposals to be featured at the 35th Annual Pacific Rim International Conference on Disability & Diversity at the Hawaii Convention Center.  Read more...

Disability Policy Seminar 2020 and AUCD Policy Forum

Disability Policy Seminar 2020 and AUCD Policy Forum

March 22-25, 2020, Washington, DC

The Disability Policy Seminar is the premier opportunity to cultivate champions on Capitol Hill and advance the grassroots movement for people with intellectual and developmental disabilities.  Read more...

AUCD for All 2020 Gala: Celebrating Leadership in Arts and Culture

AUCD for All 2020 Gala: Celebrating Leadership in Arts and Culture

April 22, 2020, Washington, DC

Join AUCD for our annual AUCD for All Gala to celebrate leadership in arts and culture and the 30th anniversary of the Americans with Disabilities Act. Ensuring inclusion and belonging for people with disabilities and their families in all aspects of life includes access to, and participation in, the arts and culture.  Read more...

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  Submissions
Image of a button with an image of a document. News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

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This newsletter is in part supported by the Administration on Intellectual and Developmental Disabilities (AIDD) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.