Updates from the State Public Health Autism Resource Center

December 13, 2018

On the Horizon for State Grantees

As mentioned in the previous Developments issue, SPHARC, in partnership with HRSA, is continuing to support the new Autism Community of Learners state grantee cohort as they continue work in the final year of the grant cycle. Grantees include:

  • Delaware
  • Rhode Island
  • Washington
  • Wisconsin

This cohort has continued participating in monthly technical assistance calls, and through these calls, there has been a lot of discussion around grantee needs for more support and guidance around the Telehealth/education piece of their work as well as sustainability efforts. The 2019 Peer-to-Peer Exchange will be held in April in Madison, WI with a focus on Quality Improvement and Evaluation Strategies for Sustainability. The meeting will feature the Wisconsin Care Integration Initiative team and their partners. Stay tuned for our lessons learned from the meeting!

AMCHP's SPHARC has released several new resources designed to aid and assist Autism and other Developmental Disabilities (ASD/DD) grantees

Creating Connections through Telehealth: Takeaways from the 2018 Peer to Peer Exchange

The April 2018 SPHARC Peer-to Peer Exchange took place in Spokane, WA and was hosted by the Washington State Department of Health grantee team. Peer to Peer 2018 aimed to increase knowledge about and resources for telehealth through a variety of learning activities.

Washington's Autism Spectrum Disorders and Other Developmental Disabilities project, AS3D, is currently leveraging its resources and dynamic partnerships across the state to improve access to interventions and empower families of children with ASD/DD. Representatives from 10 states participated in the two-day meeting, including: Delaware, Iowa, Maryland, Minnesota, New Hampshire, Rhode Island, Texas, Virginia, Washington, and Wisconsin.  The following were incorporated throughout all activities: cultural considerations and language access, social justice, the needs of rural, frontier, and urban communities, self-advocacy, and child/family-centric care. Follow this link to check out the full overview as well as the list of presentations and resources. Additionally, an article featuring participants from the meeting was included in AMCHP's PULSE newsletter titled, "The Relationship between the Lived Experience of Autism Spectrum Disorder and Health Equity: Reflections from a Parent- and Self-Advocate" which can be found here.

Archived Coffee Talk: Meaningful Inclusion of People on the Autism Spectrum

During last year's Autism Awareness month, SPHARC, in partnership with ITAC, proudly hosted a virtual coffee talk focused on the Autistic Adults and other Stakeholders Engage Together (AASET) project, featuring Drs. Stephen Shore and Teal Benevides, the project co-leads. See below for the event recording to view the coffee talk, including an overview of AASET and key strategies for meaningful inclusion of people on the Autism Spectrum in multiple settings, as well as an open discussion amongst attendees around this topic of interest. 

Event resources can be accessed here.

Interactive Family Navigator "Story Wall"

AMCHP is happy to share the new update to the SPHARC Family-Professional Partnership learning module webpage, "Family Navigator Story Wall." This interactive story wall features a half dozen family navigators' stories on their experience supporting families as they access comprehensive systems of care for children with special health care needs, and inform public health professionals, partners, and stakeholders of the roles that family navigators play within different contexts to better serve children and youth with special health care needs and their families. You can access the story wall here. Also check out the visual updates we've made to the SPHARC learning module homepage (including the Early and Continuous Screening module)!

For more information, visit AMCHP's State Public Health Autism Resource Center website: www.amchp.org/spharc or contact Paige Bussanich at [email protected].

Archived Webinar- Developmental Screening: Aligning National Data and Strategies

Please check out the following slides and recording from the Developmental Screening Alignment: Title V National Performance Measure 6 Data and Strategies webinar [July 2018] from Ashley Hirai, Senior Scientist, Office of Epidemiology and Research, HRSA's Maternal and Child Health Bureau and Colleen Reuland, Director, Oregon Pediatric Improvement Partnership (OPIP). For additional resources check out the following article on Prevalence and Variation of Developmental Screening and Surveillance in Early Childhood.

Event resources can be accessed here     

Title V Early Childhood Data Integration Toolkit Fact Sheet

In response to states increasing their capacity to integrate early childhood data across systems, the Association of Maternal & Child Health Programs (AMCHP), in collaboration with AEM Corporation, released its Title V Data Integration toolkit in October 2017. Due to the plethora of resources included in this toolkit, AMCHP recently released a fact sheet that provides a quick summary of what the toolkit is, where you can find it, and how you can use it.

The fact sheet provides a quick glance of the glossary of resources that aim to assist states as they integrate Title V data into Early Childhood Integrated Data Systems (ECIDS). The fact sheet covers the following:

  • WHAT is the Title V Early Childhood Data Integration Toolkit? (including WHERE you can find it)
  • HOW can you use the toolkit? The fact sheet describes the three main resources in the toolkit (tip sheets, use cases, and state examples) and how Title V staff can use these resources and other available resources.

With these tools, Title V leaders and stakeholders can access and learn about best practices for data integration to help with discussing early childhood data integration, identifying needs, and tailoring programs in their respective population-based area. See for yourself how this new fact sheet can kick-start your data integration efforts!

For more information about AMCHP's State Public Health Autism Resource Center, click here.

For more information, contact Patrick Boyle, associate director of communications and membership, at [email protected]

AMCHP Annual Conference

Join Top MCH Leaders & Thinkers at AMCHP 2019!

Registration is open for the 2019 AMCHP Annual Conference.  Take advantage of this amazing opportunity to connect and network with more than 800 public health officials who share an interest in maternal and child health. The 2019 AMCHP Annual Conference will be held March 9-12 at the San Antonio Marriott Rivercenter, San Antonio, Texas. Click here register for this event. For additional information, please contact Samantha Freeman. We look forward to seeing you in San Antonio!