Health & Disability Digest-February 2018

February 27, 2018

 

AUCD Health & Disability Digest

February 2018

Disability Rights and Sexual Health is for Everyone Action Team

Group of people sitting at a table with a man in wheelchairSexual and reproductive health are important parts of overall health; however, people with disabilities are not always given the resources they need to achieve it. For many, this topic is addressed in schools, at home, in doctors' offices, or in the care of other human service professionals. Are people with disabilities asked about their sexual needs, or does society assume that they cannot or do not have sex? Read more...

MMWR: 2016 Zika Birth Defects Surveillance 

Centers for Disease Control and PreventionCDC published a new Morbidity and Mortality Weekly Report (MMWR) describing the ;prevalence in U.S. states and territories of birth defects potentially related to Zika infection during pregnancy. The report found that about 3 out of every 1,000 had a potentially related birth defect. Read more...

 


Highlights from the Network


Embedding Cultural Diversity and Cultural and Linguistic Competence

Picture of different wordsGeorgetown University Center for Excellence in Developmental Disabilities (GUCEDD) is leading a consortium of four UCEDDs (Colorado, Georgia State, Massachusetts-Boston, Minnesota) and one Leadership Education in Neurodevelopmental Disabilities (Vermont - LEND) to implement the Embedding Cultural Diversity and Cultural and Linguistic Competence: A Guide for UCEDD Curricula and Training Activities Project. Embedding II (shortened title) is designed to build the capacity and leadership of UCEDDs to plan, implement, and evaluate their training activities/programs to integrate principles and practices of cultural diversity and cultural and linguistic competence (CLC) across all core functions. The project is conducting an array of consultation, professional development, and technical assistance activities for the UCEDD network on how to use resources/tools developed by the Embedding Project to advance cultural diversity and CLC and sustain change in curricula and training activities - including individual consultation to faculty and staff and on-site technical assistance for up to four UCEDDs. Click here for additional information and to apply for consultation and/or technical assistance.

Center for Leadership in Disability Investigates HIV Prevention for Individuals with Disabilities (GA UCEDD/LEND)

Group of people in a room working togetherOver the past year, faculty and staff from the Center for Leadership in Disability (CLD) in the School of Public Health at Georgia State University worked with community partners to conduct a research project identifying the availability and accessibility of HIV prevention resources and services for individuals with intellectual and developmental disabilities (IDD) in the Atlanta Metropolitan Region. Read more...

Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity

National Academies  of Sciences Engineering MedicineThe Health and Medicine Division of the National Academies of Sciences, Engineering, and Medicine released the commissioned paper Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity. Portions of this paper were presented at a 2016 workshop on the intersections among health disparities, disability, health equity, and health literacy (proceedings of which were released in late November of 2017). Read the full version of the paper.

 


Upcoming Events


Partnering to Transform Healthcare with People with Intellectual and Developmental Disabilities

Thursday March 15th, 2018 3:00pm-4:00pm ET

The Arc logoDisparities in treatment of people with intellectual disability in health care leads to increased morbidity and mortality and costs, and decreased quality of life. Proactive work for practical, implementable solutions is needed, as well as consensus and action plans on best practices and research and policy agendas. The Partnering to Transform Healthcare with People with Disabilities Conference provided an opportunity for self-advocates across disability communities (intellectual, physical, sensory and mental) to partner with national experts (providers and policy makers, executives, insurers, regulators and others) to synthesize current innovations and improvement efforts in health care with people with disabilities, reach consensus on best practices, propose needed research and policies, and develop action plans. We will report findings from the conference regarding currently implementable solutions, consensus on best practices and research, and policy agenda recommendations for people with intellectual disability. Register here.

AUCD for All 2018 Gala: Celebrating Leadership in State Policy

Tuesday, March 20, 2018, Washington, DC

AUCD for All Gala logoJoin the Association of University Centers on Disabilities (AUCD) on March 20, 2018, to celebrate state-level leadership in disability policy. States are often the catalysts for innovation, and AUCD members are engaging with policy makers and coalition partners in every state and territory by presenting research, conducting training, and developing and advocating for policies that will improve the lives of children and adults with disabilities. Read more...

Disability Policy Seminar 2018 and Trainee Summit

April 22-25, 2018, Washington, DC

Disability Summit logoThe Disability Policy Seminar is the premier opportunity to cultivate champions on Capitol Hill and advance the grassroots movement for people with intellectual and developmental disabilities. Join AUCD, the Arc, AAIDD, NACDD, SABE, and UCP as we learn about and advocate for access to health care and community living supports, and bedrock civil rights protections. The first 100 days of any new Administration and Congress are key to setting the agenda, and this year, more than ever, we need you in Washington, DC. Read more...

AUCD Leadership Academy

June 24 - June 29, 2018, Atlanta, GA

Application deadline will be March 2, 2018.

AUCD Leadership Academy logoThe AUCD Leadership Academy is a week-long program designed to enhance the skills of current and emerging leaders from the disability network to build coalitions to improve systems of supports and services. The Leadership Academy seeks participants from UCEDDs, LENDs, and their disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development. Read more...

 


Helpful Resources


Youth and Parents Share Ideas for Supporting Healthy Lifestyles for Youth with Disabilities

National Rehabilitation Information Center logoYouth with disabilities are less likely to be physically active and likely to have higher rates of obesity than youth without disabilities, according to earlier research studies. Youth with disabilities may find it challenging to follow healthy lifestyle habits, such as regular exercise and healthy eating, due to social and environmental barriers. In a recent NIDILRR-funded study, researchers held focus groups to discuss these issues facing ethnic minority youth with disabilities. Researchers wanted to find out what challenges the youth and parents reported that made it difficult to engage in healthy lifestyles and participate actively in their communities. Read more here

Healthy Native Babies Project Toolkit Disk

Image of diagram of baby sleeping both on it's back and stomachHHS/NIH, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD): Announcement of outreach stipends for Tribes and organizations serving AI/AN communities to have customized materials with Safe to Sleep Campaign messages printed by NICHD, utilizing the Healthy Native Babies Project Toolkit Disk. The Toolkit Disk allows individuals to design culturally appropriate and regionally specific materials with phrases translated into Native languages as well as photographs of Native families taken across the country. View campaign materials here. For further information, please contact [email protected].

Poverty and Health of People with Disabilities

NCPHAD logoPeople with disabilities have been a demographic that experiences poverty at a rate disproportionate to their peers without disabilities. Population surveys have consistently shown that nearly one third of people with disabilities live below the poverty line and they're more than twice as likely to live in poverty when compared to their non-disabled peers. Read more about the how poverty can also foster living in conditions that do not promote health or access to health promotion opportunities and can cause the financial distress that lead to impoverished conditions here.

The Guide to Community Preventive Services and Disability Inclusion

Centers for Disease Control and Prevention logoThe Guide to Community Preventive Services helps public health officials and community organizations see what programs exist to address public health issues (e.g., cancer screenings, access to physical activity, smoking). In a recent report, the Centers for Disease Control and Prevention (CDC) summarize how public health recommendations from the guide can be adapted to better benefit people with disabilities. Read more...

Apply Now: NACCHO's Health in All Policies Technical Assistance Program

National Association of County & City Health Officials logoNACCHO is accepting applications for the Health in All Policies (HiAP) Technical Assistance Program for local health department staff interested in assistance. NACCHO defines HiAP as a change in systems that determine how decisions are made and implemented at the local, state, and federal level. Apply by May 15. Learn more...>

Healthy Communities Policy Guide

Cover photo of the APA Healthy Communities Policy GuideAPA's Healthy Communities Policy Guide identifies policy ideas for local, state, and federally elected officials aimed at improving community health and quality of living through planning. APA believes "healthy communities" are places where all individuals have access to healthy built, social, economic, and natural environments that give them the opportunity to live their fullest potential regardless of their race, ethnicity, gender, income, age, abilities, or other socially defined circumstance. Read the complete guide here.

 

Health & Disability Digest Submissions

Would you like to share important updates or innovative practices from your program?

Health & Disability Digest invites you to submit notable information from your project including information about your staff, network wide requests, upcoming or past events, available positions, new research developments, and resources.  Articles can be submitted using the online form or emailed to Daphnee Guillaume.

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In This Issue

Disability Rights and Sexual Health 

MMWR: 2016 Zika Birth Defects Surveillance 

Highlights from the Network:

Embedding Cultural Diversity and Cultural and Linguistic Competence

Center for Leadership in Disability Investigates HIV Prevention for Individuals with Disabilities (GA UCEDD/LEND)

Compounded Disparities: Health Equity at the Intersection of Disability, Race, and Ethnicity

Upcoming Events:

Partnering to Transform Healthcare with People with Intellectual and Developmental Disabilities

AUCD 2018 Gala

Disability Policy Seminar 2018 and Trainee Summit

AUCD Leadership Academy

Helpful Resources: 

 Youth and Parents Share Ideas for Supporting Healthy Lifestyles for Youth with Disabilities

Healthy Native Babies Project Toolkit Disk

Poverty and Health of People with Disabilities

The Guide to Community Preventive Services and Disability Inclusion

Apply Now: NACCHO's Health in All Policies Technical Assistance Program

Healthy Communities Policy Guide

 

Quick Links

AUCD

Friends of NCBDDD

Public Health is for Everyone

CDC

Including People with Disabilities: Public Health Workforce Competencies

Feature Resource

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Public Health is for Everyone
An inclusive planning toolkit for public health professionals. Support inclusion with @PHis4Everyone on Twitter!
Submit content for the toolkit.

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Including People with Disabilities: Public Health Workforce Competencies is a resource to help public health professionals include people with disabilities in planning to decrease health disparities.

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AUCD's Health Reform Hub is an online gateway to provide technical assistance and information about the Patient Protection and Affordable Care Act (PPACA). Be sure to check the "Related Links" section at the bottom of the Health Reform Hub!

 
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