AUCD 360 - September 2016

September 8, 2016

AUCDigest:Network News: UCEDDs, LENDs and IDDRCs
September 2016  |   Volume 10 Issue 9
AUCD 360, News from Around the Network, FacebookAUCD 360, News from Around the Network, TwitterAUCD 360, News from Around the Networkspace                                   

  Central Office News

  Network Awards and Honors

  Network News

  In Memoriam

  Webinars and Events

  Submissions

  AUCD Central Office News

 

Nominate a Colleague for One of AUCD's Awards

Nominate a Colleague for One of AUCD's Awards

Deadline: September 9, 2016

The annual AUCD Awards gives us an opportunity to recognize individuals, programs, and organizations that have demonstrated exceptional leadership and made outstanding contributions in advocacy, research, policy, and practice that further diversity and create more inclusive communities for people with disabilities and their families. Comprised of 11 categories, the AUCD awards represent the 'best of the best' within our network, and local, state, and federal partners. Read more...

 Share this...

AUCD Welcomes Nicole LeBlanc as the Public Policy Intern

AUCD Welcomes Nicole LeBlanc as the Public Policy Intern

Nicole LeBlanc, former Advocacy Director for Green Mountain Self-Advocates, began her 13 week public policy internship. Nicole was chosen by the Arc to be this year's Paul Marchand Disability Public Policy intern, which will be hosted by AUCD. During her internship, Nicole will be involved in a number of activities including researching existing laws and monitoring pending legislation, attending hearings, briefings and coalition meetings, and writing policy newsletters. Read more...

 Share this...

AUCD Welcomes Elizabeth Koss (OH LEND) as the 2016-17 Virtual Trainee

AUCD Welcomes Elizabeth Koss (OH LEND) as the 2016-17 Virtual Trainee

Elizabeth Koss, Liz, is a student pursuing her Master's of Occupational Therapy at The Ohio State University. She received her Bachelors of Science in Psychology from Lindenwood University in St. Charles, Missouri. She is passionate about working with individuals with developmental disabilities and Autism Spectrum Disorder to increase independence and enhance quality of life. She has worked in clinical and administrative settings, using the most current research and best practices, with interdisciplinary teams to assess, evaluate, develop treatment plans, and implement appropriate treatment and care for individuals with neurodevelopmental differences. Read more...

 Share this...

 

Nutrition is for Everyone - September 2016

Nutrition is for Everyone - September 2016

Thanks to the Walmart Foundation, AUCD introduces the "Nutrition is for Everyone" program. The program's objective is to implement nutrition education interventions, including direct training for people with disability and community members across four states, which have the lowest consumption of fruits and vegetables for people with disabilities. This is the first in a series of newsletters that will be sent on the first Wednesday of every month to observe #WellnessWednesday and to share healthy eating and nutrition tips for people with disabilities.  Read more...

Share this...


Policy to Practice: Falls in Adults with Intellectual Disabilities

Policy to Practice: Falls in Adults with Intellectual Disabilities

One out of every three adults aged 65 years or older in the general population falls at least once each year. For adults with intellectual disability (ID), the prevalence of falls is even higher with studies estimating a fall rate ranging from between 29% to 70%. Falls are a major cause of serious injury and hospitalization, and an important public health concern. Using baseline data from the Longitudinal Health and Intellectual Disability Study examined the prevalence of falls and potential risk factors for falls in adults with ID. 
Read more...

Share this...

 

 top of page

 

  Network Awards & Honors

 

MCDD Law Trainee Honors (MD UCEDD/LEND)

MCDD Law Trainee Honors (MD UCEDD/LEND)Lauren earned a grant from the University of Baltimore Students for Public Interest to work as a law trainee. Lauren provided over 400 hours of services to Kennedy Krieger patients and families while working for Project HEAL (Health, Education, Advocacy, and Law). The MCDD is very proud of Lauren's accomplishments, and wish her continued success as a judicial clerk in the Circuit Court for Baltimore City. Read more...

 Share this...

 

 top of page


  Network News

 

Suicide Interventions: A Tribal & University Partnership between the Tanana Chief's Conference & the Alaska Training Cooperative (AK UCEDD)

Suicide Interventions: A Tribal & University Partnership between the Tanana Chief's Conference & the Alaska Training Cooperative (AK UCEDD)

The Alaska Training Cooperative (AKTC) is part of the Alaska UCEDD Center for Human Development at the University of Alaska Anchorage. The AKTC is a statewide effort to develop coordinated and accessible opportunities for professionals working with Alaska Mental Health Trust Authority beneficiaries. Beneficiaries include people with: mental illness; developmental disabilities; chronic alcoholism and other substance related disorders; Alzheimer's disease and related dementia; and traumatic brain injuries. The AKTC is dedicated to collaborating with Alaskan communities to train rural behavioral health care providers by blending traditional wisdom with evidence-based practices. Read more...

Share this...

 

Providers Face Cultural Challenges when Evaluating Refugee Children (NY UCEDD/LEND)

Providers Face Cultural Challenges when Evaluating Refugee Children (NY UCEDD/LEND)"Numerous challenges face providers who are administering developmental screenings for refugee children, including differences in cultural and religious beliefs, language barriers, and disparate education levels, according to new research from the University of Rochester Medical Center (URMC) published in the journal Pediatrics. Read more...

 

Share this...

 

Montana UCEDD Leverages Community Partnerships to Address Violence Against People with Intellectual Disabilities.

Montana UCEDD Leverages Community Partnerships to Address Violence Against People with Intellectual Disabilities."Nothing About Us, Without Us" is the driving principle behind the community-based participatory research (CBPR) study, The Safety Project. Self-advocates are too often excluded from participating in research targeting the needs of their community. To increase inclusion, researchers at the University of Montana's Rural Institute for Inclusive Communities are partnering with self-advocates and other community partners to develop, implement, and evaluate an innovative and accessible group safety awareness program for men and women with intellectual disabilities. This article describes two vital community partnerships used in The Safety Project. Read more...

 Share this...

WV UCEDD Diversity & Disability Fellow Tackles Stigma

A Personal Story of a Cultural Broker (MA UCEDD/LEND)Louma Sebaihi is a Diversity & Disability Fellow at the West Virginia University Center for Excellence in Disabilities (WVU CED). Louma's upbringing in the Arab/American culture led her to be interested in reaching out to that community to help reduce the stigma associated with disabilities. As a part of her capstone project, Louma presented two sessions (one in English and one in Arabic) at the Islamic Center of Morgantown on the "Learn the Signs, Act Early" initiative to introduce the participants to developmental milestones that children should be achieving. Read more...

Share this...

 

AUCD Diversity Fellow: A Personal Story of a Cultural Broker (MA UCEDD/LEND)

A Personal Story of a Cultural Broker (MA UCEDD/LEND)In this 3-part series, a mother of a child with special needs describes how she became a cultural broker to support other families"You should stop speaking Vietnamese to your daughter," the school professional told me. "It will just confuse her." The professional went on to imply that I was taking things for granted and using tax dollars for my own child's benefit. My daughter, who is nonverbal, had been at school in the US for about two months at that point. As a single mom who was unfamiliar with the educational, medical, and social support systems in the US, I was feeling frustrated while navigating the system of care and support for my child. Read more...

 Share this...

 

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Programs SENSE Theatre, TennesseeWorks, and TRIAD Share Key Tools for Program Replication

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Programs SENSE Theatre, TennesseeWorks, and TRIAD Share Key Tools for Program ReplicationThree project replication guides on the topics of community participation through the arts and transitioning practice to community-based employment are now available through the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities (TN UCEDD, IDDRC, LEND).SENSE Theatre® has developed a complete intervention replication guide, TRIAD has outlined the steps in a successful partnership on community inclusion with the Nashville Opera, and TennesseeWorks has shared a process for providers to transition to integrated and inclusive employment practices.
Read more...

 Share this...

 

MN UCEDD Partners with State to Increase Graduation of Black and American Indian Students with Disabilities

MN UCEDD Partners with State to Increase Graduation of Black and American Indian Students with DisabilitiesThe Check & Connect program of the Institute on Community Integration (MN UCEDD) has received a five-year, $750,000 grant from the Minnesota Department of Education (MDE) for a new project, "Using Check & Connect to Improve Graduation Rates in Minnesota for Black and American Indian Students with Disabilities." Check & Connect is a comprehensive intervention developed at the Institute that is designed to enhance student engagement in school and with learning for marginalized, disengaged students in grades K-12.  " Read more...

Share this...

 

Mailman Center Receives Prestigeous Grant to Develop Training Program to Build Language Skills (FL UCEDD/LEND)

Mailman Center Receives Prestigeous Grant to Develop Training Program to Build (FL UCEDD/LEND)Many South Florida children with developmental disabilities benefit from assistive technology devices to improve their hearing, vision or communication skills. "Unfortunately, a substantial number of child care workers, pre-school teachers and parents have not been trained in how to use assistive devices to help these children, especially in underserved neighborhoods," said Michelle Schladant, Ph.D., assistant professor of pediatrics and Assistant Director of the Mailman Center at the University of Miami Miller School of Medicine. Read more...

 Share this...

Prescription To Play (IA UCEDD/LEND)

Prescription To Play (IA UCEDD/LEND)Prescription to Play is a program to lend therapeutic equipment to families seen at the Center for Disabilities and Development (CDD), Iowa's University Center for Excellence on Disabilities. CDD's Disability Resource Library assists the family in filling play prescriptions by locating and checking out the material for each child's identified developmental need. "Our toys are a bridge to entertainment and relationships for children using this service. The library staff hears again and again about breakthroughs in communication, behavior, and movement from play with our resources. The program is a win-win for parents and professionals, and a thrill for our eager participants", Mary Hubbard, Disability Resource Library Librarian. Read more...

 Share this...

Home Accessibility May Impact Community Participation (MT UCEDD)

Home Accessibility May Impact Community Participation (MT UCEDD)New research from the Research and Training Center on Disability in Rural Communities (RTC: Rural) at UM Rural Institute for Inclusive Communities, in collaboration with the Rehabilitation Research Training Center on Community Living, presents the state of inaccessible housing for people with mobility disabilities. The data reveal most homes lack critical accessibility features, not meeting individual needs, and potentially impacting broader community engagement and participation. Read more...

Share this...

 

New Video: Being Amy's Sister - On Having a Sibling with a Disability (CO UCEDD/LEND)

New Video: Being Amy's Sister - On Having a Sibling with a Disability (CO UCEDD/LEND)JFK Parnters' is pleased to let you know about Being Amy's Sister: On Having a Sibling with a Disability, in which Meg Bost, a college student, describes her experiences growing up as a twin with a sister with disabilities. Meg talks about finding support, accepting her feelings, and finding her voice as an advocate. This video has important messages for family members of children with disabilities, especially sisters and brothers, as well as providers who offer support for families. This video is a companion to the video A Reunion with Amy (see below) in JFK Partners' ENRICH Early Intervention Reunion Videos. In this series, families who received early intervention services as long as 20 years ago discuss what early intervention services meant to them, which aspects of the services were most useful, and what has happened since. Read more...

Share this...

 

Center on Disability and Development Awarded Two Grants Under the Autism Grant Program (TX UCEDD)

Center on Disability and Development Awarded Two Grants Under the Autism Grant Program (TX UCEDD) The Center on Disability and Development was awarded two grants from the Division of Academic Quality and Workforce. Dr. Jennifer Ganz, the Project Director for both projects, is a professor of Special Education in the Department of Education Psychology and is an affiliated faculty member at the Center. She has received several grants to fund research projects involving students with autism spectrum disorders. Further, her efforts, alongside Cheryl Allen, CEO of Easter Seals East Texas, resulted in the opening of the Autism Clinic at the Brazos Valley Rehabilitation Center, currently directed by Dr. Amy Heath, which provides for children and adults with autism and their families. Read more...

 Share this...

 

UCLA PEERS Clinic Conducts Certified Training Seminars in Australia

Publication of the PEERS for Young Adults Treatment Manual (CA UCEDD) title= In August 2016, Dr. Elizabeth Laugeson, Director of Training at the Tarjan Center for Excellence in Developmental Disabilities at UCLA, conducted a symposium on "Parent-assisted social skills training for preschool children with Autism Spectrum Disorder (ASD): The UCLA PEERS for Preschoolers Program" at the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 15th World Congress in Melbourne, Australia. Read more...

Share this...

 top of page

 

  Community Updates

 

NIH Names Dr. Diana Bianchi Director of the National Institute of Child Health and Human Development

NIH Names Dr. Diana Bianchi Director of the National Institute of Child Health and Human Development

National Institutes of Health Director Francis S. Collins, M.D., Ph.D., announced today the selection of Diana W. Bianchi, M.D., as director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). Dr. Bianchi is expected to join NIH on Oct. 31, 2016."Diana's accomplishments as a prenatal geneticist, along with her leadership, clinical and research experience in both pediatrics and obstetrics, make her ideally suited to lead NICHD," said Dr. Collins. "We are excited to have her join our team and lead this important area of research."
Read more...

Share this...

 

 top of page

 

  Upcoming Webinars and Events

 

16th Annual Conference on Cognitive Disabilities and Technology

16th Annual Conference on Cognitive Disabilities and TechnologyThursday, October 6, 2016, Broomfield, CO

On October 6, 2016, the Coleman Institute for Cognitive Disabilities will proudly host its 16th Annual Conference on Cognitive Disabilities and Technology in Broomfield, CO. Join innovators engaged in working with Cognitive Disabilities and Technology in a Conference designed to inform about recent advances in the field and stimulate conversations about future developments.
Read more...

 

Annual State of the Art Conference on Postsecondary Education
and Individuals with Intellectual Disabilities

16th Annual Conference on Cognitive Disabilities and TechnologyDecember 1-2, 2016. Fairfax, VA

Annual State of the Art Conference on Postsecondary Education and Individuals with Intellectual Disabilities focuses on postsecondary education for students with intellectual disabilities and provides an opportunity for colleges and universities, researchers, program staff, parents and self-advocates to discuss the current state of policies, research, and practice in the field.
Read more...

 

AUCD2016

AUCD2016December 4-7 in Washington, DC

The AUCD 2016 Conference, "Navigating Change: Building our Future Together," highlights both the change that comes at the end of a Presidential term as well as our need to work together to create a future in which children and adults with disabilities are able to participate fully in all aspects of life as valued members of their communities. Join us to engage in powerful, important, and inspiring personal and professional discourse. Read more...

 

 top of page

 

  Submissions

 

button to submit articles to AUCD 360 form News items may be submitted for consideration via the AUCD 360 Submission page. Submissions are due on the 4th Friday of the Month.

AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910

 

This newsletter is in part supported by the Administration on Intellectual and Developmental Disabilities (AIDD) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.

 top of page