2002 Training Symposium

Monday, October 28, 2002
8:00am - 11:30am
Location: Washington, DC

Health Disparities Among People with Disabilities

I. Welcome & Overview of Agenda (8:00 - 8:10)

Lisa A. Steffian, M.S, Vice Chair National Training Directors Council of AUCD

II. First Session of Symposium (8:10 - 8:55)

Disparity, Difference, & Inequality- Examining the Health of People with Disabilities
Presenter: Charles E. Drum, JD, Ph.D., Assistant Professor; Director, Oregon Office on Disability & Health; Co-Director, RRTC: Health & Wellness Consortium; Oregon Institute on Disability & Development/CDRC, Oregon Health & Science University
Session Overview: The purpose of this presentation is to provide an overview of the best available data regarding the health status of people with disabilities and review selected recommendations for addressing these issues. In particular, the presence of disparities or differences between people with and without disabilities in the following domains are examined: health status; access to medical care; access to health promotion and disease prevention programs; and communication access. A brief explanation of the public health model of health disparity and difference will be presented. Specific policy and programmatic recommendations on these issues from a recent policy forum on health and wellness will be reviewed and discussed.

III. Second Session of Symposium (8:55 - 9:40)

An Overview of the National Center on Physical Activity and Disability

Presenter: James Rimmer, Ph.D., Professor, University of Illinois at Chicago, Department of Disability and Human Development
Session Overview: The purpose of this presentation is to provide an overview of the NCPAD project. This will include increasing audience awareness of an online website providing information on physical activity for persons with disabilities, an explanation of the role of the National Center for Physical Activity and Disability, and providing data on the current demographics on prevalence of inactivity among this population. Participants will gain knowledge about current issues related to increasing physical activity among persons with disabilities, physical activity programs that are accessible to people with disabilities nationally and locally, strategies for customizing home-based and community-based exercise programs, and discover how to use NCPAD as a resource for all programming activities related to this area.

IV. Break (9:40- 9:50)

V. Third Session of Symposium (9:50 - 10:35)

Secondary Conditions Among Adults with Developmental Disabilities: Models for Assessment, Planning, Intervention, and Evaluation
Presenters: Tom Seekins, Ph.D. Associate Director for Research for the Rural Institute on Disabilities and Director, RTC: Rural; Meg Ann Traci, Ph.D. Director, Living Well Under the Big Sky; Rebecca Burke, Research Associate; & Kathy Humphries, Ph.D. Research Associate
Session Overview: There has been an explosion of interest in the health and wellness of people with disabilities over the past several years. One aspect of this focus has been prevention and management of secondary conditions. This presentation will outline a model for assessing secondary conditions, risk factors, and medical service utilization among adults with developmental disabilities living in supported environments, provide data on the prevalence of conditions, highlight how the measures can be used to assess the affectiveness of individual plans, point to findings showing the relationship between personal assistant turnover and increased medical costs, and highlight the systematic development of an intervention (focused on nutrition) stemming from surveillance. Its use in staff training will also be mentioned. This model was developed in collaboration with university-based researchers, consumers, community service providers, and state policy makers. It was supported by funding from the Montana Developmental Disabilities Planning and Advisory Council and by funds from the Centers for Disease Control and Prevention.

VI. Fourth Session of Symposium (10:35 - 11:20)

Improving Access to Interdisciplinary Evaluations for Children with Disabilities Living in Appalachia
Presenter: Ronald L. Lindsay, MD, FAAP, Nisonger Center UCEDD, The Ohio State University, Columbus, OH
Session Overview: Children with disabilities and their families living in Appalachia encounter several barriers to access to quality care. These barriers include: families being uninsured or underinsured, lack of diagnostic teams and referral sources, fragmented services, and lack of coordination between consultants, care providers, the local community and families. This interactive session will draw upon the experience of the participants and faculty to discuss innovative strategies for solving these unique challenges. Topics include: 1) developing strategies for establishing linkages between UCEs, local health care providers, community-based agencies and families; 2) integration of service delivery models with the training, technical assistance, consultation, and research model utilized in UCEs and LEND programs, 3) various options for funding; and 4) techniques in creating integrated, interdisciplinary systems of evaluation and service provision for children with disabilities. The session will include discussion of a model collaboration effort between a UCE/LEND program, families of children with disabilities, federal/state/local agencies, and Appalachian communities. This unique teaming enables a natural transition from a traditional center-based care model to a community-based, integrated, seamless systems of care consistent with the Medical Home model. The emphasis on local control and collaboration facilitates innovation and a shared vision that permits the development of successful methodologies to meet the individual needs of Appalachian communities.

VII. Closing & Collection of Evaluations (11:20-11:30)

Lisa A. Steffian, M.S, Vice Chair National Training Directors Council of AUCD

Pick up Box Lunches after turning in your evaluation!