Linking Evidence-based Practices in Behavioral Health Across Services Using Systems Change to Improve Quality of Life for Children and Adults with Dual Diagnosis (Intellectual and Developmental Disabilities and Mental Illness)


pdf File UMASS Medical Home PPTs (1,262KB) [download]

pdf File Strategies for Improving BH Outcomes for Individuals with I/DD and MH-Related Diagnoses PPTs (2,965KB) [download]

pdf File Quality of Life Assessment Wheel (676KB) [download]

pdf File Quality of Life Evaluation (12KB) [download]

pdf File KIPBS Impact Scale (132KB) [download]

pdf File Person-Centered Positive Behavior Support Plan Report Scoring Criteria & Checklist (93KB) [download]

Archived Recording
In order to view the webinar presentation, please click on the webinar icon below.

Monday, October 28, 2013
Location: webinar


Improving behavioral health outcomes for individuals with intellectual and developmental disabilities (IDD) requires a framework for training and interagency communication across a variety of educational and human services. This webinar described statewide efforts for improving behavioral health outcomes for all children by working with mental health centers and other organizations to: 1) use a systems change framework for evaluating the effectiveness of multiple, evidence-based practices, 2) build the internal capacity for ongoing training systems that emphasize coaching and mentoring, 3) use a tiered prevention model that promotes wellness across communities, identifies children at risk for mental illness, and provides intensive evidence-based interventions to children needing intensive support, and 4) improve communication across mental health, juvenile justice, IDD, children and family services and other agencies at regional and statewide levels. 


Rachel Freeman, PhD, is the Project Director of the Kansas Mental Health Positive Behavior Support Project and the Kansas Institute for Positive Behavior Support, an Associate Research Professor at the Life Span Institute in the University of Kansas (KU), an Adjunct Faculty member in the Department of Special Education at KU, and has served as President for the Association for Positive Behavior Support for three years ( and the Board of Directors for ten years. Dr. Freeman works with state, regional, and local PBS teams interested in wide-scale dissemination of PBS within an interagency framework, including facilitation of positive behavior support in districts and schools implementing district-wide and school-wide positive behavioral interventions and supports. Her research interests include interagency statewide planning, organization-wide and school-wide positive behavior support, online instruction and staff development systems, and issues related to children and adults with developmental disabilities including self-injury, self-restraint, and biobehavioral assessment.

Lauren Charlot, LICSW, PhD is a Developmental Psychologist, who has been working with individuals with Intellectual and Developmental Disabilities (IDD) and severe co-occurring psychiatric disorders and challenging behaviors, for over 25 years. Dr. Charlot is an assistant professor of psychiatry and Director of ID/MH Services at the UMass Medical School/UMass Medical Center.  Dr. Charlot and her team are developing a pilot program in conjunction with the Massachusetts DDS that will provide a Medical Home for adolescents and adults with IDD who have psychiatric disorders.  She was the lead author on the NADD and APA sponsored DM-ID chapter on Mood Disorders and she is considered to be a national expert on differential diagnosis of psychiatric disorders in people with ID. Dr. Charlot and Shriver colleagues recently published research regarding medical comorbidities among psychiatric inpatients with ID. Dr. Charlot has designed and directed multiple acute inpatient and outpatient psychiatric services for individuals with ID and ASD, providing oversight in program development, operations and providing extensive training to personnel within these varied programs.  Her most recent project is the design and development of a specialized "Medical Home" service for individuals with IDD who have severe psychiatric and behavioral challenges, in which the patients are treated by a team of physicians, behaviorists and other specialists who meet weekly and provide collaborative care, lead by a Care Coordinator.


*Note: This quality of life section is part of a larger tool that is described in this publication:
Kincaid, D., Knoster, T., Harrower, J. Shannon, P., & Bustamante, S. (2002). Measuring the impact of positive behavior support. Journal of Positive Behavior Interventions, 4, 109-117.