Regional Genetic Services Collaboratives/LEND Joint Meeting


pdf File RC LEND Mtg Agenda 11 6 13 FINAL.pdf (481KB) [download]

pdf File NCC and RC Contact List with map updated 1113.pdf (192KB) [download]

Saturday, November 16, 2013
12:00pm - 5:00pm
Location: Washington, DC

AUCD logo

Sharing Resources, Building Partnerships

AUCD and the National Coordinating Center for the Regional Genetic Service Collaboratives (part of ACMG) are co-sponsoring this networking event to bring together representatives of Leadership Education in Neurodevelopmental Disabilities (LEND) programs with members of the Regional Genetic Service Collaboratives (RC) to share information and plan future activities.

Although this meeting will include brief panel presentations, the majority of the afternoon will be devoted to regional discussions around opportunities for collaboration. A map of the RC and LEND programs can be found in the top right corner of this page.

AGENDA  - See attached agenda in the top right corner of this page

AUCD & Leadership Education in Neurodevelopmental and Related Disabilities (LEND)

National Coordinating Center (NCC)

Links to Relevant Resources

The Genetic Alliance and the American Academy of Pediatrics have agreed to join our RC/LEND Joint meeting to share relevant resources and to proivide examples of how materials are being used by both networks.  To help familarize you with the many resources that are available, our colleagues have shared the following documents and links.

Genetic Alliance:

American Academy of Pediatrics (AAP):

Questions? Contact Meaghan McHugh at AUCD or Alisha Keehn at NCC.



This joint meeting was made possible, in part, with support from the MCH Genetic Services, Maternal and Child Health Bureau (MCHB), the Health Resources and Services Administration (HRSA