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AUCDigest

December 12, 2007 • Volume 7, Number 11


RESOURCES

Network Related Resources

Alliance for Full Participation Releases Summit (& Beyond) DVD. The Alliance for Full Participation released a DVD and discussion guide based on the historic "Many Voices One Vision" Summit the Alliance held in Washington, DC in 2005. The materials are all available for download at the Alliance for Full Participation's website. The Social Security Administration provided a grant to the Alliance to develop the DVD to try to fulfill the Alliance's hope that the "conversation that began in Washington DC can continue in communities across the country" through this project. AUCD was one of eleven national disability organizations sponsoring and participating in the 2005 Summit.

National Survey of Children with Special Health Care Needs (NS-CSHCN). The CDC National Center for Health Statistics released microdata from the 2005-2006 NS-CSHCN. This survey was sponsored by the Health Resources and Services Administration's Maternal and Child Health Bureau (MCHB). The survey data can be used to develop updated estimates of the prevalence of special health care needs among children including the use of medical homes, adequate health insurance, and access to needed services, both nationally and within each state.

MCH Alert: Focus on Infant Mortality. Developed by the Maternal and Child Health Library, in collaboration with the National Sudden Infant Death Resource Center. The newsletter resource will feature research findings, policy developments, recently released publications, and new programs and initiatives related to sudden infant death, miscarriage, stillbirth, other infant death, and related topics.

Publications from the Rural Institute (MT UCEDD)

  • Humphries, K. (Kathleen), Traci, M. (Meg), & Seekins, T. (Tom). (2007). Food on Film: Pilot Test of an Innovative Method for Recording Food Intake of Adults with Intellectual Disabilities Living in the Community. Journal of Applied Research in Intellectual Disabilities. EarlyOnline version at http://www.blackwell-synergy.com/toc/jar/0/0.
  • Ravesloot, C. (Craig), Seekins, T. (Tom), Cahill, T., Lindgren, S., Nary, D.E., & White, G. (2007). Health promotion for people with disabilities: Development and evaluation of the Living Well with a Disability Program. Health Education Research. 22, 4, 522-531.

Resource from the Partners associated with the Institute on Community Integration (MN UCEDD)

New Products and Resources from National Center on Physical Activity and Disability, in association with Institute on Disability and Human Development (IL UCEDD)

  • Secondary Conditions: Non-Traditional Exercise as a Way of Preventing Secondary Conditions - Part I. When beginning to explore options for initiating an exercise program or maintaining current fitness level by using a variety of new activity strategies, consider non-traditional exercise programs that have been beneficial to some populations of people with disabilities.
  • List of Healthy Gifts for All. 'Tis the season for checking your list to see who has been naughty and who has been nice. But nice or not, being active is a must, and what better way to show someone you care for their well-being than giving them an active lifestyle gift. The elves at NCPAD have assembled a list to get everyone moving.
  • Physical Activity and the Deaf Community. Reduced hearing acuity during infancy and early childhood interferes with the development of speech and language skills and adversely affect social, emotional, cognitive, and academic development. Since physical activity and fitness are tied to these developmental constructs, hearing loss may influence physical activity patterns and levels of physical fitness.
  • NCPAD Video Corner: Bowling. Bowling is a very popular recreational and competitive activity enjoyed by individuals of all abilities. It is an indoor activity with minimal equipment adaptations and is easily accessible across the country.

Research to Know

AAIDD Study: Who Chooses Service Providers? The Spread of Consumer Choice, 1992-2004. In the period between 1992-2004, the number of U.S. states offering young adults with developmental disabilities the opportunity to choose their service provider increased from only 8 to 41 states, according to a study published in the December issue of the journal, Intellectual and Developmental Disabilities. The study reveals a lens through which to explore the changing state of developmental disability services. To read an abstract of the article, click on the provided hyperlink. Access to full text requires a purchase at the same website.

Other Resources

Home and Community Based Services Resources

  • ABCs of Aging and Disability Resource Centers Replication Manual. South Carolina ADRC compiled this how-to manual for establishing an Aging and Disability Resource Center. Information included: Background of Aging and Disability Resource Centers, Establishing An Aging and Disability Resource Center, A Management Information System to Support the ADRC, Marketing the ADRC, Evaluation and Quality Assurance of the ADRC, Lessons Learned and Sustainability, and Resources.
  • Support Waivers For People With ID/DD: Profiles Of State Supports Waivers. This project was funded to: a) gather descriptive information on HCBS waivers, both comprehensive and supports, operated for people with I&DD in 17 states with the supports waivers; b) determine how supports waivers have emerged as separate and distinct HCBS waivers; c) better understand the range of participant characteristics and experiences that distinguish supports waivers from other HCBS waivers; and d) more fully appreciate how states view supports waivers as a way to address demand for HCBS.
  • State Perspectives on Emerging Medicaid Long-Term Care Policies and Practices Summary. The purpose of this survey analysis is to provide states with an overview of the implementation of these DRA changes across the country, specifically in terms of Long-Term Care services and the steps the states have taken. Findings address eligibility, Children with Disabilities, Money Follows the Person, HCBS State Plan Amendments, Transition from Institutions, Managed Care, SPA for Personal Care Services, Cash & Counseling, Care Coordination, Disease Management and Long-Term Care Reform.
  • Government and Vendor Fiscal/Employer Agent Workshop: Building Sustainable Fiscal Supports For Self-Directed Service Programs. The presentations from the November 2007 F/EA Workshop are now available. Topics included Promising Practices in Workers' Compensation, CMS Policies, the Role of Reporting Agents in the Provision, plus Government and Vendor F/EA Operations, Design and Implementation Issues.
  • Videos to Help Persons with Disabilities Prepare for Disasters. People with disabilities may need to make specific preparations for emergencies. A new Homeland Security video provides helpful information on how to do so.
  • Center for Children with Special Health Care Needs Involving Families as Advisors Toolkit. This toolkit was developed from resources and materials used with the Family Consultant Project, which is a model for sustaining meaningful involvement of family members as expert consultants. This toolkit provides resources and handouts to help you involve families as advisors or consultants in your own organization.

Guides, Reports, & Factsheets

  • Resource Guide for Serving Refugees with Disabilities. The Resource Guide for Serving Refugees with Disabilities is written as a how-to for caseworkers and advocates who serve refugees with disabilities. It was developed in an effort to improve access to services for newly arrived refugees with disabilities. Funding for this project was provided through the U.S. Department of Health and Human Services, Office of Refugee Resettlement.
  • National Disability Institute 2006-2007 Annual Progress Report. The roadmap out of poverty for millions of working Americans with disabilities is being paved by a grassroots movement of community-based organizations nationwide called the Real Economic Impact Tour (REI Tour). The 54 city Tour in 2007 built on the existing work being led by the Annie E. Casey Foundation, United Way of America, the National Community Tax Coalition and other national organizations in providing EITC outreach to an underserved population of taxpayers with disabilities.
  • Secondary School Experiences of Students with Autism (Factsheet). This fact sheet provides a national picture of the secondary school experiences of students with autism using data from the National Longitudinal Transition Study-2 (NLTS2).
  • TRACE Practice Guide - Universal Checklist for Identifying Infants and Toddlers Eligible for Early Intervention. The Tracking, Referral and Assessment Center for Excellence (TRACE) has released a new practice guide entitled Universal Checklist for Identifying Infants and Toddlers Eligible for Early Intervention that describes the development and use of a universal checklist designed to be used by primary referral sources for identifying infants and toddlers who may be eligible for early intervention.

Additional Resources

  • Tax Benefits for Businesses Accommodating Persons with Disabilities. The Internal Revenue Service reminds businesses that there are tax benefits in the form of credits and deductions for businesses that accommodate individuals with disabilities. The Disabled Access Credit provides a non-refundable credit for small businesses that incur expenditures for the purpose of providing access to persons with disabilities. An eligible small business is one that that earned $1 million or less or had no more than 30 full time employees in the previous year; they may take the credit each and every year they incur access expenditures. Refer to Form 8826, Disabled Access Credit for information about eligible expenditures.
  • Adobe Accessibility Resource Center. Adobe's Accessibility Resource Center provides guides that tell readers how to incorporate accessibility into their documents and webpages. It describes the Section 508 requirements, which mandate website accessibility for people with disabilities; defines accessibility and explains assistive devices and how they are used; and provides an overview of steps to building accessible websites.
  • DisabilityNation Audio Magazine. DisabilityNation is an audio magazine by and for people with disabilities. It highlights people working, participating in sports and recreation, and other activities, including married couples, singles, children and adults, politicians, and couch potatoes who happen to be people with disabilities.

New Websites

Doing What Works. The Department of Education website provides teachers, administrators and other educators with recommendations on effective teaching practices and examples of possible ways to implement those practices to help promote excellence in American education and improve student achievement.

Employer Assistance & Recruiting Network (EARN). EARN is a nationwide free service of U.S. Department of Labors Office of Disability Employment Policy that connects employers looking for quality employees with skilled job candidates. Discover what employers across the nation have learned: hiring people with disabilities is a great business strategy.

NINDS Announces New Spanish Language Website. Free, accurate information on many neurological disorders is now available from the National Institute of Neurological Disorders and Stroke (NINDS), part of the National Institutes of Health (NIH). Health information featured on the new website includes publications on stroke, dementia, Parkinson's disease, epilepsy, and autism, as well as many other neurological disorders. The website also provides information on clinical studies, links to non-profit organizations that offer information and assistance on neurological disorders, and a contact form where people can submit questions on topics related to health and biomedical research.

 

 

 

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