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AUCDigest

June 29, 2007 • Volume 7, Number 6


NEWS FROM AUCD NATIONAL OFFICE

 

 David Morrissey Presents at International Disability Conference
AUCD Policy Fellow Presents at International Disability Conference. AUCD Policy Fellow David Morrissey, MPS, presented at the 3rd International Conference on Birth Defects and Disabilities in the Developing World, June 17-21, in Rio de Janeiro, Brazil. David presented “Effective Transition Planning for Children with Special Health Care Needs: Recommendations for Collaborative Systems.” This presentation grew from a series of projects on transition which he began last year during graduate coursework in health care systems and as a trainee in the LEND program at the University of Arkansas for Medical Sciences campus in Little Rock. The conference brought together representatives from every continent and included staff from the Centers for Disease Control’s National Center on Birth Defects and Disabilities and the March of Dimes. The conference provided an opportunity to share experiences and exchange best practices for building the capacities of developing countries to serve individuals and their families affected by birth defects through medical and community-based programs. Conference topical areas included surveillance, prevention, prenatal diagnosis, clinical genetics, and parent-patient associations. The next conference has been announced for India in 2009.

 

New Disability Studies Special Interest Group. AUCD is developing a new special interest group on Disability Studies. Several Centers have established academic programs in Disability Studies and others are interested in doing so. The formation of this group will allow for discussion and information sharing across the network. One of the first tasks will be to develop a definition of Disability Studies, a second task will be to discuss promoting the inclusion of that definition in the reauthorization of the DD Act. The group will also assist with the development of a pre-conference session on Disability Studies for the AUCD Annual Meeting this November and a resource-sharing webpage on the AUCD website. The group is open to anyone in the network who is interested in participating. If you would like to join and be added to the listserv, please contact Dr. Joe Caldwell, Policy Analyst.

AUCD Trainees Research Corner. Trainees were asked to share research proposals, completed research projects, leadership projects, program evaluation projects, or program changes that they have implemented in the past year. These materials are posted to a resource page that is intended to describe the different scholarly activities and involvement of current and former trainees and to generate discussion and ideas for future projects for new incoming trainees. This is an opportunity for trainees within the AUCD network to share their research projects, leadership projects, or other program projects that they have been involved with during their traineeship.

End-of-Year 2007 LENDLinks Available. The June 2007 edition of AUCD’s LENDLinks, the newsletter for and about the nation’s MCHB LEND Interdisciplinary Leadership Training Programs, is now available. This informative issue features articles from staff and trainees on collaborations and commencements, important announcements, and handy resources. The next issue of LENDLinks will be produced at the beginning of the fall semester. **NEW FEATURE**: Submitting articles and photos for LENDLinks? Simply visit the LENDLinks Submission webpage!

 

AUCD Senior Policy Consultant Moving On. Bob Williams, who has served as a Senior Policy Consultant at AUCD, has accepted a position serving as an advisor and special assistant to Judy Heumann, who recently was named to head up the District of Columbia’s newly created Department of Disability Services. The Central Office wishes Bob the very best with all his endeavors.

 

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