Search Results

The annual report for the UNMC/NE Medicine Project SEARCH program is an evaluation of the 2015 - 2016 academic year. This site has a 83% employment rate one month post graduation. Employment outcome data is collected up to 11 months after interns have graduated from the program.

We evaluated the combined and sequential effects of 3 toilet-training procedures recommended for use with young children: (a) underwear, (b) a dense sit schedule, and (c) differential reinforcement. A total of 20 children participated. Classroom teachers implemented a toilet-training package consisting of all 3 procedures with 6...[more]

We present a review of the methodological aspects of caffeine research within animal tests of escape and avoidance behavior in the presence of aversive stimuli. We highlight species, methods of caffeine administration, dosage, dependent measures and research designs commonly used in this research.

Applied behavior analysts are interested in solving problems that matter to people, and there is little that matters more to people than their physical health. As a result, applied behavior analysts have been tackling problems of physical health for decades. But this research is not always easy to find, as it is often disseminat...[more]

We evaluated a parent-created video self-modeling (VSM) intervention to improve independence in an adolescent diagnosed with Intellectual Developmental Disorder(IDD) and Autism Spectrum Disorder (ASD). In multiple baseline design across routines, a parent and her 17 year old daughter created self-modeling videos of three target...[more]

Sex chromosome aneuploidies range in incidence from rather common to exceedingly rare and have a variable phenotype. We report 2 patients with sex chromosome aneuploidies who developed severe aplastic anemia requiring treatment. The first patient had tetrasomy X (48,XXXX) and presented at 9 years of age, and the second patient h...[more]

On-line application for UCEDD Family Traineeship

Online Application for those interested in the Self-Advocate Traineeship.

Problem behavior exhibited by individuals with autism can be disruptive to family traditions, such as decorating for the holidays. We present data for a 6-year-old girl who engaged in automatically reinforced pica and destruction of holiday decorations. Treatment was evaluated within an ABCDCD reversal design. During baseline (P...[more]

Restricted and repetitive behavior is a diagnostic characteristic of autism spectrum disorder (ASD). To the extent that the behavior of individuals with ASD can be conceptualized as problems of invariance, our understanding of environmental variables that influence restricted and repetitive behavior may be informed by the basic ...[more]

​Synthesizes and analyzes the basic, translational, and applied research base for autism service delivery Uses a translational model to integrate findings Promotes bidirectional translation and evidence-based decision making for autism treatment Explores the one nonmedical therapy (i.e., applied behavior analysis) th...[more]

Numerous clinical investigations have reported that children with cerebral palsy (CP) have tactile discrimination deficits that likely limit their ability to plan and manipulate objects. Despite this clinical awareness, we still have a substantial knowledge gap in our understanding of the neurological basis for these tactile dis...[more]

This grant provides funds for the Munroe Meyer Institute UCEDD to provide stipends to parent panel participants. Currently, we have parents who volunteer to participate in a training that occurs over lunch time (i.e., 12:00 1:30 pm). They are taking time off work, traveling to Boys Town, and often times bringing their child wit...[more]

We conducted a series of studies in which multiple strategies were used to clarify the inconclusive results of one boys functional analysis of aggression. Specifically, we (a) evaluated individual response topographies to determine the composition of aggregated response rates, (b) conducted a separate functional analysis of aggr...[more]

The CLM Farm Project is an innovative approach to providing developmental disability employment services. Students from Madonna Schools Transition and Employment Programs, as well as UNMC/Nebraska Medicine Project Search interns will have the opportunity to learn pre-vocational skills in an integrated community setting. Once the...[more]

The CAB website page was updated to include a picture and bio for each CAB member; CAB By-laws and Procedures; and an orientation PowerPoint on the DD Act, the role of the CAB and also the Munroe-Meyer Institute.

Compliance with medical routines is an important part of basic health care for everyone, but especially individuals with intellectual and developmental disabilities (IDD). Compliance with medical routines may be especially important for individuals with IDD because, as a group, individuals with IDD have poorer health than thos...[more]

Crisis Intervention Team (CIT) Training for law enforcement officers encountering individuals with mental illness and/or developmental disabilities. Training to assist officers in ways to handle crisis situations and attempt to deescalate the situation.

written report to the federal Interagency Planning Committee on request: Smith (2015) DEC Testimony on the Inclusion of Children with Disabilities in Early Childhood Programs to the Federal Interagency Planning Board. Division of Early Childhood. Los Angeles, CA

Purpose: Children with cerebral palsy (CP) often use a crouch gait pattern that has disturbances in the knee joint kinematics. Al- though the length and rate of lengthening of the hamstring musculature have been speculated to be the reason that these disturbances are not adequately dissipated, this relationship has not bee...[more]

The brochure provides information about the Family Care Enhancement Project and also what the role of the Parent Resource Coordinator does. It is intended for families, professionals and any one else who may be interested in the project. It also provides a link to our website where we will post updates on additional collaborat...[more]

The FCEP database was developed to track the activities of the Parent Resource Coordinators and evaluate the impact of the Family Care Enhancement Project.

Created a manual for Parent Resource Coordinators within the Family Care Enhancement Project to have needed information and support for job responsibilities at MMI and in outreach clinics.

This is a product created to disseminate to medical clinics who may have an interest in having a Parent Resource Coordinator (a parent of a child that has a disability or special healthcare need) get connected to early intervention services and other needed community resources. It is used to serve as a conversation starter to h...[more]

Training curriculum series comprised of web-based modules for preparing professional parent resource coordinators to work with families of young children with disabilities and/or special healthcare needs in pediatric medical settings, with a focus on children birth to 5.

A trading card fitting UNMC branding guidelines has been developed for each Parent Resource Coordinator (PRC). The trading card provides a brief bio of the PRC, their contact information and an overview of their role.

Program plan to develop a Masters of Genetic Counseling degree at UNMC.

Maturity onset diabetes of the young (MODY) is a rare form of diabetes mellitus typically seen in young adults that results from pancreatic beta-cell dysfunction. MODY4 is a rare subtype caused by a PDX1 mutation. In this case, we present a nonobese 26-year-old male with polyuria and polydipsia. Lab work showed a blood glucose o...[more]

Osteogenesis imperfecta (OI) is a disorder of bone fragility chiefly caused by mutations in the COL1A1 and COL1A2 genes that encode type I procollagen. Four types of osteogenesis imperfecta were originally described by Sillence in 1979, and are now used broadly as the Sillence Criteria.[1] The Nosology and Classification of Gene...[more]

Hippocampal pathology is likely to contribute to cognitive disability in Down syndrome, yet the neural network basis of this pathology and its contributions to different facets of cognitive impairment remain unclear. Here we report dysfunctional connectivity between dentate gyrus and CA3 networks in the transchromosomic Tc1 mous...[more]

A webpage was added to the UNMC/Nebraska Medicine Human Resources webpage under "Work/Life Balance". All campus employees can access information if needed about Respite Resources offered in the state of Nebraska including; applications, funding resources, Respite Coordinators and Respite Providers.

Both genetic and environmental factors are thought to contribute to neurodevelopmental and neuropsychiatric disorders with maternal immune activation (MIA) being a risk factor for both autism spectrum disorders and schizophrenia. Although MIA mouse offspring exhibit behavioral impairments, the synaptic alterations in vivo that m...[more]

Lecture outline on lecture presentation on musculoskeletal assessment in pediatrics for the advanced pediatric practitioner.

A grant proposal to fund the development of a "toolkit" of 3 Android mobile apps capable of effectively tracking epilepsy treatment options; medication administration to include schedule, side effects, and reminders; tracking an individualized diet plan to include type/ratio, side effects, ketone levels, and glucose; and devel...[more]

article on parent leadership in disability policy: McGill Smith, P., Lauritzen A., Smith, M. (2015) The Promise Claimed: The ADA Has Improved Our Childrens Lives...and Theres More to Do. Ignite Magazine. University of Minnesota Press. Minneapolis, MN

Describes activities serving as an Executive Board Member of the Division of Early Childhood of the Council for Exceptional Children, future plans with the organization.

Motor-skill learning induces changes in synaptic structure and function in the primary motor cortex through the involvement of a long-term potentiation- (LTP-) like mechanism. Although there is evidence that calcium-dependent release of gliotransmitters by astrocytes plays an important role in synaptic transmission and plasticit...[more]

The NE legislature allocated funding to establish a pilot for an Aging and Disability Resource Center. The aging partners took the lead and did not allocate any funding to disability organizations. Instead proposed to provide options counseling to people with disabilities from the aging offices. This is the response to the Ag...[more]

The to letter is written to respond to NE Dept. of Labor and NE Vocational Rehabilitation's combined plan on the Workforce Innovation Opportunity Act. It was disseminated to many other disability organizations and fourteen others signed on including: The NE Statewide Independent Living Council, The Arc of NE and other members o...[more]

The State Plan for Ind. Living is required by the Admin for Community Living every 3 years by the IL programs in each state. This year was unique for NE because it was the first time that the SILC and Centers collaborated to identify these and mutually agree on a strategy to address the gaps and strengthen the IL programs. E...[more]

This was a concurrent Presentation on the UCEDD becoming the Designated State Entity to the Statewide Independent Living Councils. It was 45 minutes of presentation and then a group discussion of the pros and cons of this. The NE SILC and the Policy Analyst at NCIL were presenters as well.

The Nebraska Respite Network Flyer was updated and edited to be distributed on the UNMC/Nebraska Medicine Campus to share information to campus employees about respite resources offered in the state of Nebraska. This will also be used by Respite Coordinators in the Douglas and Sarpy County areas.

Response during Public Comment on NE State Plan for Independent Living

Background and Purpose: The neuromuscular impairments seen in the ankle plantarflexors have been identified as a primary factor that limits the mobility and standing postural balance of individuals with multiple sclerosis (MS). However, few efforts have been made to find effective treatment strategies that will improve the ankle...[more]

poster describing data gathered by the AUCD COCA on national suport to advocates with disabilities, particularly within the AUCD network. Data were presented from focus groups, a search of the NIRs data system and a survey' recommendations were given on ways to improve supports to advocacy, particularly advocates with disabiliti...[more]

Report on he supports to advocacy across the nation for disability advocacy, especially when the advocates themselves have disabilities. Focuses primarily on the AUCD network but looks beyond those programs. Data were gathered (survey, focus groups, and existing network data)and aggregated and recommendations are made on ways to...[more]

Orientation manual to NE UCEDD for new CAB members. Includes membership roster, history of the Institute, role of CAB members, Policies and Procedures, alphabet soup, DD Act, etc.

Patients with Zellweger Spectrum Disorders (ZSDs) have impaired peroxisome biogenesis and severe, multisystem disease. Although the neurologic symptoms of ZSD tend to be the most prominent, patients also have hepatic, renal and adrenal impairment. Little is known about bone health in patients with ZSD, particularly those with mi...[more]

Course syllabus for college entry level neuroscience course.

Website for People First of Nebraska. Includes pages for each chapter, convention information, resources for starting and running a self-advocacy organization.

Peroxisome biogenesis disorders in the Zellweger spectrum (PBD-ZSD) are a heterogeneous group of genetic disorders caused by mutations in PEX genes responsible for normal peroxisome assembly and functions. As a result of impaired peroxisomal activities, individuals with PBD-ZSD can manifest a complex spectrum of clinical phenoty...[more]

Website created for Project SEARCH instructor to communicate daily information and upcoming events to interns and their families. Interns can chat with one another on the message board. Pictures can be uploaded to share with others.

Worked with UNMC Public Relations to get a ttention for story on respite. Disseminated to newspapers and TV stations. Anticipate that a TV interview will be conducted with a family, the Respite provider and UCEDD staff to raise awareness of Respite and the importance of family caregivers to take a break .

This article was written to promote the Respite Resources Lunch and Learn event that was held on the UNMC campus in November, 2015. This was held to inform all campus employees and students of Respite Resources provided in the state of Nebraska if you have a family member with a disability, chronic health care condition or who ...[more]

This article was a combination of two previous articles that Nebraska Medicine used for the NOW Newsletter and other newspapers followed their lead with additional releases. This article shared our Respite Employer Engagement Pilot Project with the staff at Nebraska Medicine to let them know where to find Respite Resources if n...[more]

This Respite Care Resource Poster was created to be displayed at all UNMC/Nebraska Medicine New Hire Orientations as well as other campus activities promoting Respite Resources offered in the state of Nebraska. UNMC/Nebraska Medicine are contracting with DHHS to educate all of our employees about Respite Resources. This is par...[more]

Interview with Cheril Lee, News Anchor KIOS, 91.5 - Omaha, NE Public Radio 402-557-2553 to promote collaboration of UNMC and DHHS Respite Provider training and the need to build base of respite providers

UNMC/Nebraska Medicine have contracted with the Nebraska Department of Health and Human Services to offer Respite Employer Engagement Resources to all employees as a pilot program. This Nebraska Respite Network Brochure was created to share Respite Resources offered in our state including, applying for Respite Care, funding fro...[more]

This Caregiver Respite Resource and Balance Event was created and publicized in 2016 but will happen in 2017. This is a Lunch and Learn Event for Caregivers who have a family member with a disability, chronic health care condition or aging parents or grandparents. If any UNMC/Nebraska Medicine Employees are in need of Respite i...[more]

This webpage provides Respite Resource information offered in the state of Nebraska to families with family members who have disabilities, chronic health care conditions or who are aging. You can find information regarding applying for Respite, Respite Subsidy Funding, how to find a Respite Provider, Training to become a Respit...[more]

This grant was submitted for additional funding to collect data and prove sustainability of the REST Respite Provider Training in the state of Nebraska. We were awarded the grant and have used it to develop a data collection webpage, follow-up with REST Trainers, hold conference calls, prove sustainability and promote Respite t...[more]

A grant application to create a mobile application for Seizure Tracker compatible w/Android devices. Seizure Log is the iOS version already available. This project allows the application to be available to the 2 largest operating systems in the mobile market to date.

The Sixpence is a Early Learning Fund is a public-private partnership that is used primarily for grants to school districts to provide programs and services for infants and toddlers who are most at risk.

This provides an overview of the role of Respite for Family Caregivers; how to use the state Respite Subsidy and provides resources to get in touch with the statewide Respite Coordinators

The website for the UCEDD program was updated to reflect the many activities UCEDD staff are involved.

Feature article in the "UNMC Today" on our role in collaborating with the Respite Program by providing training to those interested in becoming a Respite Provider

This article was written for distribution on campus about our Respite Employer Engagement Pilot Project with Nebraska's Department of Health and Human Services. We are sharing Respite Resources; both financial and care provider information to all campus employees if needed. We also promoted our REST Respite Provider Training in...[more]

A 5 year strategic plan for the UNMC/NE Medicine Project SEARCH program. It outlines the roles and responsibilities of stakeholders, goals, and sustainability for the future.

The Project SEARCH program was started in 2015 at UNMC/NE Med to create unpaid internship opportunities to help individuals with developmental disabilities gain knowledge and skills which could potentially lead to paid employment.

Open House event promotion flyer for interested individuals with developmental disabilities to participate in Project SEARCH on the UNMC and Nebraska Medicine campus.

Project SEARCH assessment day event promotion flyer for interested individuals with developmental disabilities to participate in a round of vocational assessments to determine if they would be appropriate for the Project SEARCH Program on the UNMC and Nebraska Medicine campus.

We evaluated the efficacy of a procedure that incorporated a mirror to teach gross motor imitation with a 2-year-old boy who had been diagnosed with autistic disorder. Responses taught with a mirror were acquired more quickly than responses taught without the mirror and were maintained after the mirror was removed. These data in...[more]

Multiple schedules with signaled periods of reinforcement and extinction have been used to thin reinforcement schedules during functional communication training (FCT) to make the intervention more practical for parents and teachers. We evaluated whether these signals would also facilitate rapid transfer of treatment effects acro...[more]

Overview presentation about Project SEARCH at UNMC and NE Medicine. Job rotation sites are listed along with project partners.

This provides an overview of the role of Respite for family caregivers. It targets working caregivers and offers suggestions for the caregiver and employer.