News

 

News is divided into three categories: ITAC News, ASD/DD News, and LEND/DBP News. Click the “View All” Links to see previous items. Please send Sarah DeMaio any suggestions for additional news items.

 
 

ITAC News

 

LEND Regional Consortia Activities

LEND Regional Consortia are a forum for smaller groups of neighboring programs to share ideas around topics such as recruitment, curriculum, evaluation, research, and clinical/community services. This resource summarizes previous and proposed LEND collaborative activities at the regional level.

 
 

Introducing the ITAC Bulletin Board!

We are excited to launch the ITAC Bulletin Board as part of AUCD's technical assistance to LENDs and DBPs! This quarterly newsletter will hopefully make it easier for you to access and use what is most relevant to MCH training programs.

 
 

Coffee Talk: Meaningful Inclusion of People on the Autism Spectrum

In partnership with AMCHP's State Public Health Autism Resource Center, ITAC proudly hosted a virtual "Coffee Talk" focused on the Autistic Adults and Other Stakeholders Engage Together (AASET) project, featuring co-leads Drs. Stephen Shore and Teal Benevides, on Monday, April 30. Their PowerPoint slides and an accessible webinar recording are now available; this includes an overview of the AASET project's accomplishments, efforts in progress, and plans, as well as key strategies for meaningful inclusion of people on the autism spectrum across multiple settings. All are encouraged to tune in and share widely!

 
 
 

ASD/DD News

 

Tuesdays with Liz - The Autism CARES

Ivanova Smith is here to talk to Liz about Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs, which are funded through the Autism CARES Act. The act is up for renewal by Congress and needs to be reauthorized by September 30, 2019, in order to continue to provide funding for programs like LEND.

 
 

Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families

This study comparee barriers to autism spectrum disorder (ASD) diagnosis and current ASD-related service use among non-Latino white (NLW) families and Latino families with English proficiency (L-EP) or limited English proficiency (L-LEP).

 
 

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.

 
 
 

LEND / DBP News

 

Fact Sheets Created From Disabled Parenting Project (OH UCEDD/LEND)

These fact sheets were created as part of our Cincinnati LEND Seminars in Evidence-Based Medicine project. A team of LEND trainees and faculty members conducted research on best practices while also consulting with stakeholders, including women with disabilities who have experienced pregnancy and prenatal care as well as medical providers.

 
 

Working to Improve the Patient Experience (AL LEND)

Each year, LEND Trainees at the Civitan-Sparks Clinics in Birmingham, Alabama develop a project that will aid in improving the experience of our patients. As an interdisciplinary clinic, families who come into the Civitan-Sparks Clinics see a wide variety of professionals, including Speech/Language Therapy, Occupational Therapy, Nutrition, Pediatrics, Audiology, Psychology, and Dental. As such, many parents are unsure of what to expect from a visit with each of these disciplines, particularly when they are new to our clinic. Additionally, while the range of areas of concerns that families come in with is broad, visits to each of our disciplines are largely the same clinic to clinic.

 
 

Georgia LEND hosts David Satcher Lecture on Leadership on the Elimination of Health Disparities

Georgia State University's (GSU) Georgia Leadership Education in Neurodevelopmental Disabilities (GaLEND) Program - housed within the Center for Leadership in Disability (CLD) - has had a partnership with the Satcher Health Leadership Institute at the Morehouse School of Medicine extending back to 2010. GaLEND recruits a fellow who participates in the Health Leadership Policy Fellowship at Morehouse School of Medicine and GaLEND at GSU concurrently. In 2015, GaLEND and the Satcher Health Leadership Institute created a partnership with Emory's Center for Excellence in Maternal Child Health (MCH). These three institutions offer the MCH Leadership Collaborative each Fall semester which draws students and faculty from across the three institutions to prepare for leadership in a rapidly changing world.