News

 

News is divided into three categories: ITAC News, ASD/DD News, and LEND/DBP News. Click the “View All” Links to see previous items. Please send Ben Kaufman any suggestions for additional news items.

 
 

ITAC News

 

New The Boggs Center (NJ UCEDD/LEND) Hosts First NJLEND Alumni Leadership Symposium, "Leadership in a Time of Crisis: The COVID-19 Pandemic"

The Boggs Center on Developmental Disabilities at Rutgers Robert Wood Johnson Medical School Department of Pediatrics hosted the first Leadership Education in Neurodevelopmental Disabilities - NJLEND Alumni Leadership Symposium. This virtual symposium, "The Challenge of Leadership in a Time of Crisis: The COVID-19 Pandemic" was a collaboration with systems across the state and RWJMS to address the COVID-19 pandemic and its impact on children and young adults with Autism and other early onset disabilities and their families.

 
 

New The Boggs Center (NJ UCEDD/LENHosts First NJLEND Alumni Leadership Symposium, "Leadership in a Time of Crisis: The COVID-19 Pandemic"

The Boggs Center on Developmental Disabilities at Rutgers Robert Wood Johnson Medical School Department of Pediatrics hosted the first Leadership Education in Neurodevelopmental Disabilities - NJLEND Alumni Leadership Symposium. This virtual symposium, "The Challenge of Leadership in a Time of Crisis: The COVID-19 Pandemic" was a collaboration with systems across the state and RWJMS to address the COVID-19 pandemic and its impact on children and young adults with Autism and other early onset disabilities and their families.

 
 

MNLEND Trainee jumps into coordinating a public health response to COVID with community partners

Whitney Terrill typically supports Minnesotans living with disabilities to access home and community based services through her role at the Minnesota Department of Human Services, Disability Services Division Fiscal Policy Team. Whitney is deeply interested in value and outcomes based payment design, and currently works on a legislatively mandated project to explore options for how Minnesota might pay for disability services in the future.

 
 
 

ASD/DD News

 

AUCD Announced as Partner in AIR-P Network

Autism is a neurodevelopmental condition that affects 1 in 54 children, according to the Centers for Disease Control and Prevention. As autistic children age into adulthood, health-related behaviors that may develop in childhood can have long-term consequences. Diet and exercise can impact cardiovascular risk, particularly in families with a history of hypertension, diabetes or cardiac complications. Autistic children and adults often do not get the recommended preventive services, such as immunizations or lab tests for cholesterol and diabetes. Autistic adults often do not get screened appropriately for cancer.

 
 

MI-LEND Fellow Sean Jones Awarded an Albert Schweitzer Fellowship

Congratulations to MI-LEND Fellow and Wayne State University School of Medicine student Sean Jones on being awarded an Albert Schweitzer Fellowship for 2020-2021! Jones will address the specific health needs of individuals with intellectual and/or developmental disabilities. His project involves the creation of a student-run clinic that promotes the overall quality of life of individuals with disabilities and their families.

 
 

MN LEND Project Responds to Opioid Crisis

What can you do if your baby, or a loved one's baby, has neonatal abstinence syndrome (NAS)? How can a toddler's development be affected by NAS? Where can Minnesotans find support?

 
 
 

LEND / DBP News

 

AUCD Applauds Congress' Passage of Autism CARES Act

AUCD applauds Congress' passage of the Autism Cares Act of 2019, a bipartisan bill to expand research and coordination, increase public awareness and surveillance, and expand interdisciplinary health professional training to identify and support individuals with autism and their families. Passage of the bill, which occurred by voice vote, has been championed by Senators Enzi (R-WY) and Menendez (R-NJ) and Representatives Smith (R-NJ) and Doyle (D-PA), which reauthorizes CARES programs at NIH, CDC, HRSA, and IACC over the next five years.

 
 

MNLEND Trainee jumps into coordinating a public health response to COVID with community partners

Whitney Terrill typically supports Minnesotans living with disabilities to access home and community based services through her role at the Minnesota Department of Human Services, Disability Services Division Fiscal Policy Team. Whitney is deeply interested in value and outcomes based payment design, and currently works on a legislatively mandated project to explore options for how Minnesota might pay for disability services in the future.

 
 

Edward Esbeck Leads the Way for Iowa's Self-Advocates

Before 2020, Iowa's LEND program did not have a Self-Advocacy Coordinator serving as Core Faculty for trainees in the program. Before 2019, Iowa's UCEDD, the Center for Disabilities and Development (CDD), did not have a Self-Advocacy Coordinator as a member of its staff. Before 2017, Iowa LEND had never had a Self-Advocacy Trainee. But since 2016, when he became a member of the UCEDD's Community Advisory Committee, CDD has had Ed Esbeck. For the past year, since he was hired as CDD's Self-Advocacy Coordinator in the fall of 2019, Esbeck has championed inclusion for Iowa LEND, and has led the way for more self-advocates to become leaders, as he has.