ITAC

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6/10/2022

Spanish-Language Caucus Recruitment

AUCD is recruiting new members for the AUCD Spanish-Language Caucus (SLC). The Spanish-Language Caucus is a workgroup open to Spanish-speaking individuals within the AUCD network. We hope for representation from all network roles (Spanish-speaking faculty, staff, Self-Advocates and LEND, UCEDD, and IDDRC current and former trainees).

 
 

5/20/2022

Health Care Transition Publication Supported by Autism Cares Act Funding

The Health Resources and Service Administration, and Maternal and Child Health Bureau have measured HCT service provision since 2001 but the longitudinal use of this measure has never been examined. This manuscript highlights the consistent and inconsistent uses of HCT constructs in two prominent national surveys (the National Survey of Children with Special Health Care Needs (NS-CSHCN) and the National Survey of Children's Health (NSCH)) between 2001 and 2019.

 
 
Picture includes members of ACT LEND and LoneStar LEND, and Scott Daigle from Texas Council for Developmental Disabilities. Hearing Room at the Texas Capitol Building, April 8, 2022.

5/20/2022

Texas LEND Programs Join Together at the Capitol in Austin

Developing leadership skills through policy education and advocacy is integral to LEND training. In recognition of Autism Acceptance Month, the Autism Consortium of Texas LEND (ACT LEND) invited LoneStar LEND to join them at the Capitol in downtown Austin on Friday, April 8, 2022. Scott Daigle, Public Policy Director at the Texas Council for Developmental Disabilities, provided a full day of policy training to the LEND trainees.

 
 

4/1/2022

2022 Autism Acceptance Month Webinar Series

AUCD's Autism Special Interest Group (SIG) is sponsoring a series of three webinars for Autism Acceptance Month.

 
 

12/20/2021

AIR-P Scholars & Pilot and Feasibility Funding

The Autism Intervention Research Network on Physical Health (AIR-P) is currently in its second year of funding under the direction of UCLA and Project Investigator Dr. Alice Kuo! AIR-P establishes and maintains an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals. The mission of the AIR-P is to develop a robust research infrastructure that will foster measurable improvements in optimal physical health and well-being of autistic individuals and their families across the lifespan

 
 

12/20/2021

COVID-19 Vaccines & Children with Developmental Disabilities: Let's Talk

By: Rachel C. Passmore, MPH; Lisa H. Shulman, MD

Dr. Lisa Shulman is a developmental pediatrician who specializes in the care of children with autism and is the Interim Director of the Rose F. Kennedy Children's Evaluation & Rehabilitation Center (RFK CERC) at Children's Hospital at Montefiore (CHAM) in the Bronx, New York. For the past 10 years, she has given a lecture entitled "Shattering the Myths around Vaccination" for families in the Bronx as well as worked with pediatricians on communicating with vaccine hesitant families.

 
 

12/20/2021

HRSA Awardees Study Impact of COVID-19 on Receipt of Services and Parent Mental Health in Children with ASD

University of Delaware�s Dr. Anjana Bhat, associate professor in physical therapy, and JP Laurenceau, professor in psychological and brain sciences, have been awarded a grant from the Health Resources and Services Administration (HRSA) at the Department of Health and Human Services (DHHS) for a new study to analyze the impacts of COVID-19 on receipt of behavioral, speech, occupational and physical therapy services and parent mental health in 9,000 children with autism from the SPARK cohort and to determine value derived from these services in an online capacity.

 
 

12/20/2021

Kennedy Krieger Faculty Receive Grant to Build Capacity to Deliver Evidence Bsed Mental Health Intervention

Dr. Deepa Menon, of the Kennedy Krieger LEND Program and co-PIs Kathryn Van Eck, PhD and Nikeea Copeland Linder, PhD, MPH were recently awarded a Jesse DuPont Bell grant to address mental health and COVID-induced trauma in patients with autism and other special health care needs. By utilizing Cognitive Behavioral Intervention for Trauma in Schools (CBITS) training, Social Work trainees from collaborating HBCU�s will receive mentoring and training to deliver an evidence-based validated program through telemedicine to address student stress and anxiety, and to build coping skills and resilience.

 
 

12/13/2021

AIR-P/OAR Funding Opportunity: Community Grant Competition

Description: Applications for the AIR-P and the Organization for Autism Research (OAR) Community Grant Competition opened on Friday, October 8, and will close on April 30, 2022. Find details about the grant, application requirements, an FAQ, and a link to start your application!

 
 

12/13/2021

MI-LEND Team Develops Telehealth Module for National Neurodevelopmental Disabilities (NDD) Core Curriculum

In 2020, the Michigan Leadership Education in Neurodevelopmental and related Disabilities (MI-LEND) was selected to be part of an AUCD and American Academy of Pediatrics (AAP) project focusing on telehealth. The goal of the project was ultimately to support both providers and families to access telehealth and other distance care services for pediatric care. To achieve this goal, MI-LEND Directors, Dr. Sharon Milberger and Dr. Jane Turner, along with MI-LEND Fellow, Sean Jones, developed a curriculum focused on telehealth.

 
 

12/13/2021

Oral Health Complications Higher in Adolescents with Autism Spectrum Disorders and Other Developmental Disabilities (ODDs) with Obesity Compared to Healthy Adolescents

For this study, the authors used an analytical sample of adolescents of ages 10 to 17 years (n=68,942) using data from 2016 through the 2019 National Survey of Children's Health (NSCH). We categorized the analytical sample into 4 groups for comparisons: adolescents with ASD/ODDs and obesity (Group A), adolescents without ASD/ODDs but with obesity (Group B), adolescents with ASD/ODDs but no obesity (Group C), and adolescents without ASD/ODDs or obesity (Group D). Almost 7% of the sample were ASD/ODD adolescents with obesity representing approximately 2.31 million high-risk U.S. adolescents. Parents completing the survey, answered questions on their child's demographics, health status, health care utilization, and other relevant health-related information.

 
 

4/29/2021

Effect of Family Navigation on Diagnostic Ascertainment Among Children at Risk for Autism: A Randomized Clinical Trial From DBPNet

 
 

4/28/2021

A Fellow's Perspective: Virtual Opportunities through Rochester LEND's Collaborations in Central America

Written by Mariela Leon-Thomas, 2021 LEND Alumni Trainee, Rochester NY

It has been more than a year since we started adapting to the "new conditions" of living in a world with the COVID-19 pandemic. Transitioning from face-to-face to all-virtual interactions was not as much fun as the option of "working and studying from the bedroom" sounded. Not only did we start missing familiar faces, but we had to limit new relationships to connections traveling through router devices and Zoom platforms. Despite these limitations, the pandemic has triggered a virtual realm of opportunity. It has challenged our creativity and our passion to keep pursuing the visions and missions we sought out in "normal" times. It invited us to think outside the box and has extended connectivity and networking beyond local boundaries. The 2021 LEND cohort has experienced this firsthand.

 
 

4/28/2021

AIR-B Network Continues Outreach in Diverse Communities

Although much of the research activity has moved virtual, the Autism Intervention Research Network on Behavioral Health (AIR-B Network; PI: Kasari) continues its research-community partnership in the COVID-19 era. The AIR-B is a network of researchers at UCLA, UC Davis, University of Pennsylvania, University of Rochester, Drexel University, University of Kansas, University of Washington and each site's local community partners working to increase equity in access to ASD information and interventions for families of children with ASD.

 
 

4/28/2021

AIR-P (UCLA): Progress to Date

The Autism Intervention Research Network on Physical Health (AIR-P) is a multi-disciplinary, multi-site network that supports innovative life course intervention research and promotes optimal health and well-being of autistic individuals across the lifespan. In September 2020, the University of California, Los Angeles (UCLA) was awarded funding by the Maternal and Child Health Bureau in the Health Resources and Services Administration to lead and develop the network with the primary goal of increasing the life expectancy and quality of life for autistic individuals.

 
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