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2017-2018 Alaska LEND Without Walls Cohort


New AUCD Trainee Updates: News from the North (AK LEND)

Submitted by LEND Trainee Kelly McBride

Alaska's LEND Without Walls, part of the Center for Human Development at the University of Alaska Anchorage, is building capacity. 2017-2018 LEND trainees have had a variety of experiences so far, including time with host families, field experiences, and clinical observations.

Ellyn McNamara, Disability Studies IL LEND Trainee, screening a child for ASD.


IL LEND Hosts Autism Community Screening Events for Families in Illinois

On October 1st, IL LEND post-doc, Robin Dodds, and Clinical Training Director, Ann Cutler, organized and supervised the first autism spectrum disorder (ASD) community screening event of the fall semester. The event was held at the Spectrum Toy Store in the north side of Chicago. Six LEND trainees - in a variety of disciplines - provided screenings and discussed steps for further diagnostic evaluation, when indicated. In collaboration with Grupo Salto, a family advocacy and support group for Latino families, a second screening event was held on October 21st for Spanish speaking families in the west side of Chicago. A third screening event was held in Urbana, Illinois in December.



Expert Autism Reviewers Needed

The National Clearinghouse for Autism Evidence & Practice, NCAEP) are launching the update to the 2011 systematic review on evidence-based practices for children and youth on the autism spectrum. Please consider serving as a reviewer as well as passing this email and flyer along to your colleagues and graduate students.



"Learn the Signs. Act Early." Project Updates

The Act Early Ambassadors project is designed to develop a network of state-level experts who promote developmental monitoring and screening and improve early identification of DD/ASD practices. It is a collaborative effort on behalf of CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD), the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB), the Association of University Centers on Disabilities (AUCD), and the Association of Maternal and Child Health Programs (AMCHP).



The Autism CARES Partnership Network ​Our Journey Toward Collaboration

By bringing together organizations that all care deeply about improving outcomes for individuals with autism and their families across the lifespan, this Partnership Network hopes to be an example of collaboration and alignment at many different levels.



New Learning Module! Communicating the Value of Developmental Screening

The Association of Maternal & Child Health Programs (AMCHP) has released a new learning module focused on communicating the value of developmental screening. This easy-to-use learning module incorporates evidence-based practices with perspectives from physicians, parents, and the director of a Title V program for children and youth with special health care needs (CYSHCN).



Va-LEND Launches New Distance Learning Module

For the past year, Va-LEND has been focusing on ways to expand training opportunities statewide and beyond. Zipporah Levi-Shackleford, former outstanding LEND trainee and current faculty member, has used material from the Vanderbilt Consortium LEND (VCL) Moodle and other on-line resources to develop a module on the "Early Identification of Autism".



Standards for Systems of Care for CYSHCN Streamlined and Updated

The Association of Maternal & Child Health Programs just released an updated version of the National Standards for Systems of Care that strive to serve the nation's 11 million children and youth with special health care needs. Version 2.0 of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs, produced in partnership with the National Academy for State Health Policy with support from the Lucile Packard Foundation for Children's Health, sets the core components for the structure and process of effective systems of care while streamlining content for easier use by states and stakeholders.



EHDI 2017

The 16th annual Early Hearing Detection and Intervention (EHDI) Meeting brought together over 1,000 diverse stakeholders on February 26-28 in Atlanta, GA. The EHDI Meeting was organized by American Academy of Pediatrics, U.S. Department of Health and Human Services: HRSA, and National Center for Hearing Assessment and Management at Utah State University. The purpose of this national meeting was to help attendees expand opportunities for young children who are deaf and hard of hearing by enhancing implementation of comprehensive state-based EHDI programs.



AUCD Promotes Disability Employment during Developmental Disability and Autism Awareness Months


This March and April, the Association of University Centers on Disabilities (AUCD) is celebrating National Developmental Disability Month and National Autism Awareness/Acceptance Month by hosting a series of Twitter Chats about Employment: #Jobs4All. We will have chats from academic experts, business leaders, disabled entrepreneurs, and more.



News Autism Saftey Resource

Written in collaboration with key stakeholders and experts within the autism community, A Guide to Safety includes life-saving tips, strategies, and tools to help families strengthen their safety plans.



Predicting Autism: Researchers Find Autism Biomarkers in Infancy

New Research from IDDRC Network

Using magnetic resonance imaging (MRI) in infants with older siblings with autism, researchers from around the country were able to correctly predict 80 percent of those infants who would later meet criteria for autism at two years of age.



CT LEND has had an Exciting New Start this Year

The CT LEND has had an exciting new start this year. Nine UCONN graduate students from various disciplines, two Yale Developmental-Behavioral Pediatric fellows, four community trainees, and four Human Services/Family Studies students from Goodwin College fill our conference room at UCONN Health each Friday. We welcome family faculty and several UCEDD staff members to each weekly seminar as well.



2017 DMCHWD Diversity and Health Equity Peer Learning Collaborative

Deadline: December 5, 2016

Are you interested in improving your MCH Training Program or institution's practices around diversity or health equity? Are you revamping your existing practices related to training on cultural and linguistic competence or looking for resources, tools, and best practices related to diversity, cultural and linguistic competence and health equity initiatives? If so, consider applying for the 2017 Diversity and Health Equity Peer Learning Collaborative!



New Autism Data Portal From The Child And Adolescent Health Measurement Initiative

Compiling the research from four national surveys, this portal provides easy access to data on the health and well-being of children and families with autism. In addition to helping people learn about family experiences, the portal can be used as an advocacy tool. It also allows you to see how others are using autism data.

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